CanChild is grateful to the key partners for their financial and resource support: McMaster University, the Faculty of Health Sciences, the School of Rehabilitation Science, the Department of Pediatrics, and the McMaster Children’s Hospital Foundation.

VIDEO MESSAGE FROM THE DIRECTOR

“In 2018, we got formal approval by McMaster University as a recognized research Centre. I’m extremely proud of it…”

Dr. Jan Willem Gorter
Director of CanChild & Professor of Pediatrics, McMaster University
Scotiabank Chair in Child Health Research

Research Highlights

F-words Research and Knowledge Translation Program

F-WORDS

The F-words Research team continues to disseminate and support the implementation of the ‘F-words in Childhood Disability’ (function, family, fitness, fun, friends, and future) into practice. In 2017, the ‘F-words’ caught the attention of the Ontario Brain Institute (OBI) and CanChild received funding from OBI to produce two additional ‘F-words’ videos, of which one was developed by youth with disabilities to share what the ‘F-words’ mean to them. The youth video won the Runner-Up Award for the 2017 CIHR Institute of Human Development, Child and Youth Health Video Talks Competition. In July 2017, CanChild’s ‘F-words Knowledge Hub’ was formally launched to inform families and service providers about the ‘F-words’; to promote a community of knowledge sharing and exchange; and to provide action-oriented tools to support use of the ‘F-words’ in practice. Early adopters around the world have shared with us that they are using the ‘F-words’ to inform their thinking, practices, and program planning. A pilot study was conducted to evaluate the usability and utility of the knowledge hub and was published in the Journal of Medical Internet Research Rehabilitation and Assistive Technologies in 2018 (Cross et al., 2018). Over the last few years, CanChild has received increasing requests for educational outreach visits to teach about the ‘F-words’ and how they can be used to support family-centred service, inter-professional collaboration, collaborative goal setting and service planning with families, and coordinated service planning. Since 2016, we have delivered 38 invited educational outreach visits in Ontario to children’s treatment centres, EarlyOn centres, respite homes, school boards, and community organizations.
Research on Child and Family
Well-being

ENVISAGE: ENabling VISions And Growing Expectations’

ENVISAGE: ENabling VISions And Growing Expectations’ is an international program, co-developed by health services researchers and parents in Canada and Australia, that aims to empower parents of children with a neurodevelopmental disability to make informed choices and enhance overall family well-being. Pilot funding was received from the American Academy for Cerebral Palsy and Developmental Medicine (2017-2018) to establish parent partnerships, develop the workshop content, and evaluate the comprehensibility, acceptability, usability, and utility of the workshops. With the pilot funding, we: i) held two brainstorming meetings with 16 parents in Canada and Australia; ii) developed the workshop content with eight parents as key informant collaborators; and iii) investigated parents’ perceptions of the comprehensibility, acceptability, usability, and utility of the workshops through questionnaires and interviews with 11 parents who were not involved in the development of the workshop content.

In 2018, the ENVISAGE research team received a Canadian Institutes of Health Research project grant (CIHR; 2018 – 2021) to evaluate the ENVISAGE program. This summer 2019 we will be recruiting 30 parents each from Canada and Australia to take part in the workshops. The workshops will run from Fall 2019 to Spring 2020, and data analysis and knowledge translation activities will follow shortly afterwards. Members of the ENVISAGE team have presented on the progress of the study at several international conferences (including the Canadian Associations of Pediatric Health Centres, Australasian Academy of Cerebral Palsy and Developmental Medicine, and the European Academy of Childhood Disability) and are currently working on publishing several peer-reviewed publications to share some of the early findings.
Research on Language Comprehension

Computer-Based Instrument for Low motor Language Testing - Canadian English Validation Study

Communication is fundamental for everyday relationships, school, work and leisure. Many children with cerebral palsy (CP) have impaired speech, language or hearing abilities, which affect their communication. In turn, this may lead to significant long-term impacts on learning, friendships, social participation and employment. For some children with CP, their impairments can be so severe that children are unable to speak.

Many children with CP who are non-speaking are still be able to comprehend spoken language. For them, it is critical to accurately determine how much they understand in order to know how to talk with them, and to set therapy goals that reflect the child's skills. It can also help to determine the most appropriate augmentative and alternative communication systems and supports to facilitate and optimize the child's ability to learn, develop and participate in daily life and classroom activities.

This project is studying the adaptation and evaluation of the Computer-Based Instrument for Low motor Language Test (C-BiLLT), an innovative Dutch tool that uses alternative access methods to assess spoken language comprehension for children with CP. This means that many children with severe physical impairments are able to participate in the assessment with this test.

A stakeholder meeting was held in June of 2018. This meeting included Academic Researchers, Research Staff, Students, Speech Language Pathologists, Occupational Therapists, Professional Linguists, and parents of children with CP. Several researchers from the original Dutch C-BiLLT team attended the meeting in person, and others joined the meeting via teleconference. The first step of the meeting was to bring together a group of ~10 SLPs/Linguists for a consensus meeting to: review the English items to determine whether the semantic and grammatical concepts and levels of complexity have been retained and that concepts are relevant to English-speaking children, and to ensure linguistic differences between the two languages have been taken into consideration such as vocabulary, morphology and word order.

The version of the C-BiLLT that was created using the results from this consensus meeting was used in the pilot test. In the pilot test, Canadian children reviewed the 86 C-BiLLT items. They were invited to share feedback on the wording, the image, and the concept of all items. The resulting version of the C-BiLLT is currently being used to test its validity, reliability and feasibility.
Research on Employment

Job Train Program (JTP)

Evidence shows that the unemployment rate in adults with ASD is estimated at 75-90%. We also know that earlier job experiences predict better employment outcomes. Secondary school co-op programs aim to provide early job experience; however, challenges exist in providing successful co-op experiences and integrating acquired skills across contexts (home, school, and community). A unique employment program (Job-Train Program; JTP) was developed from a partnership between a Canadian university, a community agency, and a local school board. The JTP is a 13-week program that includes: (1) weekly coach-facilitated group sessions providing an individualized curriculum and support; (2) paid 9-week summer job placement within the university.

This mixed-methods study used a pre-post design to examine the program outcomes in 12 secondary school students with ASD, and gather insights from parents, job coaches and employers within the JTP. The sample consisted of 12 youth with ASD. JTP job placements involved the following university departments: housing and conference services, health sciences library, faculty services, and several health science academic departments and research centers.

This study successfully implemented a job training program with the essential elements of individualized supports and programming, weekly coached group sessions and strong community partnerships (agency, school board and university). This study provides useful preliminary results that, despite a small sample size, suggest improvement in issues related to employment skills and independence.
Research on Transition

READYorNot - Brain-Based Disability trial

Moving Ahead with Transition of Care from Adolescence to Adulthood:
Youth with brain-based disabilities require seamless transition from the pediatric to adult health care systems. This transition can be disruptive for youth and their families and have a negative impact on a patient’s health. In many pediatric centres, there are no dedicated resources for transition of care. With the READYorNotTM Brain-Based Disabilities Project, we are developing and evaluating e-health aids to help patients and families take charge of this transition.

We gratefully acknowledge funding from the CHILD-BRIGHT Network, under the Canadian Institutes of Health Research (CIHR) Strategy for Patient-Oriented Research (SPOR) initiative, and with partner support from Montreal Children's Hospital Foundation, McMaster University Faculty of Health Sciences, New Brunswick Health Research Foundation, McMaster Children’s Hospital Foundation and Hamilton Health Sciences.

The CHILD-BRIGHT network has provided a unique opportunity to develop and test a digital intervention to improve the transition of care journey. The focus of activities in 2016 were to hire staff and engage stakeholders and consultants on the project. From 2017 to 2019, Ariane Marelli (McGill University) has led the development of the MyREADY Transition BBD App in collaboration with 360Medlink, Jan Willem Gorter (McMaster University) , Khush Amaria (SickKids), Adrienne Kovacs (Oregon Health & Science University), Ronen Rozenblum (Brigham and Women’s Hospital), and research teams. From 2019 to 2021, Jan Willem Gorter will lead this collaborative team in a randomized control trial (RCT) to deploy the MyREADY Transition BBD App intervention across recruitment sites in Alberta, Ontario, Quebec and the Maritimes.

We have directly engaged patients, their caregivers, and families as partners in research through a Patient and Family Advisory Council (PFAC) to directly inform the design and testing of the intervention. Throughout the MyREADY TransitionTM BBD App development, we have also engaged patient, family and healthcare stakeholders as research participants in qualitative focus groups and interviews.

Website

ApplyIT

The journey from childhood to adult life involves reaching milestones, as well as assuming new roles and responsibilities. For the rapidly growing population of youth with chronic health conditions/disabilities, transition into the adult healthcare system is an important dimension of this journey. Sadly patients and families often describe the transfer of care as ‘falling off a cliff’ due to the lack of sufficient preparation, information, supports, and skills to facilitate the process. Adolescents are expected to take on more responsibility for their own health as they age, yet many providers report neither having the tools nor appropriate resources to foster smooth transitions for patients and their families.

In February 2017, under the Hamilton Academic Sciences Organization (HAHSO), the ApplyIT study was funded (An app-based Transition Toolkit targeting youth with chronic health conditions: A randomized trial as a foundation to improve healthcare transition and outcomes).

We hypothesized that an app-based transition toolkit (named MyTransition) designed to support youth moving from pediatric to adult healthcare can improve their experiences and lead to better health. With HAHSO funding, our team conducted a pilot RCT informed by patient and family stakeholders, to test the MyTransition app at McMaster Children’s Hospital (MCH). We explored whether the MyTransition App can improve transition and health outcomes compared to usual care in transition aged youth (14‐17 years) at MCH. The main objective of this study was to collect information to design a large multi-centre RCT to assess implementation of the MyTransition app including the recruitment, completion of follow-up, and scalability of the intervention. The secondary objective was to assess the feasibility and potential effect of the MyTransition app-based transition toolkit for improving health of youth (quality of life), transition readiness, healthcare transition experiences, and achievement of health and life goals.

The primary feasibility outcome examined whether a 90% retention could be attained. Our team was successful in achieving this outcome with 36 out of 39 participants completing all 3 time points. However - we learned many valuable lessons from this study, including but not limited to the following: Buy‐in from youth and physicians around the importance of transition preparation/goal setting, recruitment barriers, and youth awareness of self-management.

The study team aims to build on the existing study and use the data collected to tailor and integrate lessons and transition supports that are highly scalable to a growing group of youth in transition from pediatric to adult health care systems.
Research in Concussion/
Mild Traumatic Brain Injury

Safely Returning Children and Youth to Activity After Concussion (Back to Play Study)

Concussion management is a complex process. The challenge in preventing prolonged recovery and repeat injuries within a short period of time lies partly in creating and following guidelines for safe return to play/activity. With funding received from the Canadian Institutes of Health Research in 2014, Prof. DeMatteo and colleagues evaluated the Return to Activity and Return to School guidelines for Children with Concussion that were developed as part of a CanChild Knowledge Translation project. Enrollment for this study closed in December 2016 with a total of 139 families recruited. As ongoing final analyses occurred in 2017-2018, the Back to Play team continued to publish and present study results at local, national and international conferences.

Brain Smart Hamilton – Let’s Play Safely!

As concussion is on the rise among youth involved in organized sports the Brain Smart Hamilton Team received funding from the Hamilton Community Foundation to attempt to learn about the current practices regarding concussion protocols in organized youth sports in Hamilton. By developing, implementing and evaluating a concussion education strategy aimed at coaches, parents and youth the key objectives of this project were to reduce the risk of concussion in organized youth sports, to maintain and increase safe participation in organized youth sports and to increase knowledge of concussion management with various stakeholders. Recruitment started for the Let’s Play Safely Project in June 2017 and continued until December 2018. This project is currently in the final data analysis and dissemination phase.

CanChild Pediatric Concussion Management Guidelines

The science of concussion management is constantly evolving. The 2012 CanChild Return to Activity(RTA) and Return to School(RTS) Guidelines needed to be updated to incorporate the most recent evidence from the literature and the results from CanChild’s most recent concussion study, “Back to Play”. The Concussion Research Team received funding from an internal grant from CanChild to update these guidelines. A systematic review examining the most recent evidence for RTA/RTS has been completed and submitted for publication. The guidelines were updated according to this systematic review, the results from the Back to Play Study and the Berlin Consensus Statement on Concussion (2017). The guidelines were released in March 2019. The newly updated guidelines can be found on the CanChild website and downloaded for free!
Research to Advance Rehabilitation Services Delivered in Schools

Partnering for Change (P4C); Facilitating Integration of Rehabilitation Services through Training Implementation ToolKit (FIRST KIT); and INtegrated serviCes for incLUsion anD Equity (INCLUDE)

Dr. Cheryl Missiuna, Dr. Wenonah Campbell, Nancy Pollock and a multidisciplinary team at CanChild have continued to conduct research about tiered rehabilitation services in schools, building from the Partnering for Change (P4C) program of research.

Tiered models, such as P4C, consist of “layered” services in which each tier represents increasingly intensive services. Building trusting relationships amongst the child, family, school team, and community partners provides the foundation to support interventions across all tiers. In a tiered model, services are provided universally by a health professional to support all children, with increasingly intensive services provided based on need. Thus, at the universal level, all children, the whole school, and broader system are supported. Services are collaboratively designed to support educators, children, and families. The needs of the child, educators, and family are considered when determining services and interventions required to support children’s learning, participation, and engagement. The child’s response to intervention is continually monitored to determine if, and when, more or less service is required to meet the child’s needs. Children receive services fluidly over time, as needed at each tier, and can receive interventions at more than one tier simultaneously.

The P4C team’s research and experience with implementation of the tiered P4C Model showed that transitioning to a new model of service delivery is complex (Pollock, Dix, Sahagian Whalen, Campbell, & Missiuna, 2017). As a result, current research activities aim to:

a) synthesize knowledge about the delivery of rehabilitation support services in education settings and

b) identify and develop resources to support implementation of tiered approaches to service delivery.

The team has received funding from the Ontario Ministry of Education for a two-year knowledge generation and synthesis project (2017-19) comprising several studies that are informing development of an Implementation Toolkit to be used by speech language pathologists (SLPs), occupational therapists (OTs) and physiotherapists (PTs) interested in providing tiered services in schools.

Specifically, four unique projects comprise this grant:

One of our projects uses semi-structured interviews and a qualitative framework analysis to answer the research question, “What do school board speech-language pathology services look like in Ontario and what influences delivery of these services?” In Ontario, only SLPs are routinely employed by school boards with other rehabilitation providers largely employed by community agencies. Therefore, school board SLPs are important stakeholders whose perspectives can shed light on current and best practices for service delivery within the education system.

A second project also is using interview methods and a framework analysis approach to answer the research question, “How do occupational therapists adopt and implement a tiered model of service delivery in varied education settings and what factors influence implementation?” In Ontario and across Canada, several occupational therapists who provide services in education settings have led efforts to intentionally transition from an individual, referral-based model of service to one that is based on Partnering for Change. In this study, we want to learn what that process of transition and adaptation “looks like.”

A third project involves synthesizing knowledge about tiered models of service delivery from an international perspective. We conducted a realist review of the peer-reviewed literature across speech-language pathology, occupational therapy, and physiotherapy to answer the question: “What are the characteristics of successful tiered approaches to rehabilitation services for children and youth in education settings, in what circumstances do these services best occur, and why?” Realist reviews are well-suited to answering questions about complex interventions and are ideal for identifying why implementation works in some contexts but not others.

Our fourth project, INtegrated serviCes for incLUsion anD Equity (INCLUDE), was a collaborative effort between CanChild, the Hamilton-Wentworth Catholic District School Board (HWCDSB), and the Hamilton Niagara Haldimand Brant Local Health Integration Network (HNHB LHIN) with research funding from the Hamilton Community Foundation. The project explored how health professionals and educators can work together as a team to develop and deliver tiered services and support for all members of school communities.

Throughout the 2017-18 school year two teams comprising an occupational therapist (OT), speech-language pathologist (SLP), and special education resource teacher (SERT), collaboratively provided services one day/week in two HWCDSB Equal Opportunity elementary schools. The OT and SLP worked collaboratively with the SERT and educators to provide a range of services supporting students and the school community, including students with special needs. The study used a participatory action research approach by partnering with researchers, decision-makers, and local users. Qualitative research methods were used to learn about the nature and content of tiered services that are provided by this type of team and the perceived impact of these services on the larger school community, including children, educators, and families.

Our findings showed that families viewed co-delivered services as comprehensive and family-centred; educators valued services that were provided in classrooms and focused on all children’s needs; and professionals appreciated the diverse perspectives offered by a team approach. Not unexpectedly, several challenges also were identified. Professionals from different disciplines understood tiered services differently; struggled to find the right balance between their individual caseloads and collective work as a team; and reported several system-level barriers that interfered with effective collaboration.

Having shared these findings with our community stakeholders and Ministry partners, we are now in the process of preparing peer-reviewed presentations and publications.

In addition to these four projects, we have engaged an experienced Partnering for Change occupational therapist and a working group of school board speech-language pathologists to guide development of a repository of multi-media resources about tiered approaches to service delivery in schools. In Ontario and across many jurisdictions, resources and tools are needed to assist rehabilitation professionals in learning about, adopting, and advocating for tiered approaches to rehabilitation services in schools. Our resources will be free and available online at the conclusion of our project.

Related Grants:

2017 Apr - 2019 Aug Campbell W (co-PI), Missiuna C (co-PI), Pollock N, Bennett S, Kyte C, Rivard L, Specht J, McCauley D., Synthesizing knowledge and developing an implementation toolkit to support delivery of integrated rehabilitation services., Grant, Ontario Ministry of Education, Research - New Project, $659,857.00

2018 Apr - 2019 Dec Kennedy J (trainee & PI), Campbell W (co-I), Breaking down barriers: Understanding family engagement in school-based occupational therapy services. Grant, Canadian Occupational Therapy Foundation, Research – New Project, $5,000.00

2017 May - 2018 Apr Campbell W (PI), Missiuna C, Pollock N, Phoenix M & Kennedy J., Exploring Integrated, School-based Universal Services to Enhance Inclusion and Equity., Grant, Community Health, Education and Research Grant, Hamilton Community Foundation, Research - New Project, $29,943.00
Research in Autism Spectrum Disorder (ASD)

ACSF:SC - a tool to classify social communication in preschool children with ASD

One of the challenges faced by clinicians and families of children/youth with ASD is how to classify functional abilities in a meanigful way. For this purpose, with funding from CHIHR (2011-2015), researchers at CanChild developed the Autism Classification System of Functioning: Social Communication (ACSF:SC, version 2016).

The ACSF:SC is a strengths based measure consisting of five brief descriptions of “social communication” abilities – what kids can do. This measure was originally designed and tested for use with preshoolers (ages 3 to <6 years), and could be completed by both families and professions familiar with the preshoolers.

Once testing was completed and this measure was released for general use, it proved to be popular among clinicians, therapists, and families. During 2017 we secured funds to study how to adapt this tool for other age groups. In 2018 we started with focus group sessions and interviews, to ask both professionals and parents for their ideas about how we could adapt the ACSF:SC for both younger (<3 years) and older (≥6 years)groups.

At this time, we have a working draft of the ACSF:SC-Integrated, for children and youth of all ages (minimum 24 months). We are now working to field test this adaptation with families and professionals working with toddlers, preschoolers, and school-aged children/youth. Once testing is completed, we will release a finalized version for general use.

Related Grants:

Hamilton Health Sciences’ New Investigator Fund (NIF).$35,000.00. 2018-2019. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion & Testing for Toddlers.Briano Di Rezze (Recipient), Peter Rosenbaum (Mentor), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).

Hamilton Health Sciences Research Early Career Award (ECA). $50,000.00. 2018-2019. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion, Testing, and Charting Early Trajectories for Toddlers to School-Aged Children with Autism Spectrum Disorder. Briano Di Rezze (Recipient), Peter Rosenbaum (Supervisor), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).

Hamilton Academic Health Sciences Organization (HAHSO) AFP Innovation Grant Competition. $199,792.13. 2018-2020. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion, Testing, and Feasibility of Charting Early Trajectories from Toddlers to School-Aged Children. Peter Rosenbaum (Recipient), Briano Di Rezze (Co-PI), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).
Research in Cerebral Palsy

Childhood Cerebral Palsy Integrated Neuroscience Discovery Network

The Childhood Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is an initiative funded by the Ontario Brain Institute designed to improve our understanding of cerebral palsy (CP) and accelerate the development of new treatments. In 2018, the CP-NET program of research was funded for an additional 5 years.

Knowledge Translation

The Knowledge Translation arm of CP‐NET is being spearheaded by CanChild Centre for Childhood Disability Research under the leadership of Drs. Jan Willem Gorter and Peter Rosenbaum. In 2018, the following activities were undertaken to disseminate CP-NET research and bring awareness to issues of importance to individuals with CP:

Five Year Report– An interactive online report highlighting CP-NET activities and research from Phase 2 was released in June 2018. The report can be accessed by going to cpnetreport.ca

CP-NET Science and Family Day: On October 19, 2018, our community came together to celebrate World CP Day with the 5th Annual CP-NET Science & Family Day. We received very positive feedback from attendees on the event evaluation form (from approximately 65 attendees). Attendees felt that it was an excellent and family friendly way to network within the CP community. We received a number of positive and motivational comments from our audience:

"Loved the panel discussion and the key note!! Thanks for a great day"

"Engaging, informative. Speakers were well-prepared, knowledgeable"

"Congratulations on a tremendous event!"

We have already started planning the 2019 event!

Newsletters– The CP-NET Today newsletter was released twice in FY 2018/2019 and currently has over 2000 subscribers. The newsletter has a high open rate ranging from 34-42%. CP-NET work has also been highlighted in the CanChild newsletter (with over 4000 subscribers). We plan to continue circulating our newsletter 2x/year.

Webinars –Wehosted a webinar on Selective Dorsal Rhizotomy (June 12, 2018) which was attended by 117 participants worldwide. The webinar was presented by Christine and Larry Marion (parents); Dr. George Ibrahim (surgeon); Dr. Golda Milo-Manson (paediatrician); Marilyn Wright (PT) and moderated by Dr. Jan Willem Gorter. Since posting the webinar on the cp-net.org website, we have had more than 400 plays of the video. After each webinar, participants are requested to complete a survey. We received 36 responses from the survey with very positive results – 97% felt the speakers were knowledgeable; 94% felt the material was easy to understand; 100% felt the duration was appropriate; 83% felt the content was relevant to them. As requested from our Stakeholder Advisory Group, we will be hosting our next webinar on “Attitudes towards Disability” on April 25, 2019, presented by Dr. Lucy Lach and Donna Thomson.

Stakeholder Advisory Group/Engagement Activities – Over the past 5 years, we have built a very strong and active parent/stakeholder advisory group for CP-NET. Consisting of young adults with CP, parents, patient organizations, researchers and clinicians, this group provides guidance and direction for research planning and priority setting, support for our annual World CP Day Science and Family Day events, reviews materials for publishing on the website, etc. Over the 2018/2019 FY, we held 4 Stakeholder Advisory Group meetings. Members of our group have partnered with us on presenting at different forums (e.g., PAC meeting – Sept 27, 2018, CP-NET Investigator meeting – Jan 25, 2019), have volunteered to sit on committees (CP-NET Science and Family Day; Communication Video group).We have also collaborated with our Stakeholders on the preparation of the My Voice publication (to be submitted in May 2019).

GMFM App – Our group has worked closely with MEDIC at Mohawk College to create the GMFM App+. Our plan is to launch the Single User desktop versions (for both PC and Mac computers) in conjunction with the European Academy of Childhood Disability conference (May 2019) in which we will be presenting a poster on the GMFM App+.

Clinical Database - Understanding Risk Factors for Cerebral Palsy

A comprehensive CP-NET clinical database will allow researchers to study a variety of risk factors for CP, such as clinical risk factors occurring before, during and after childbirth. This data will be collected by conducting a detailed review of the child’s neonatal, medical and rehabilitation charts, along with maternal medical and obstetrical records. Other variables evaluated will include socio-demographic information, family history as well as diagnostic data. Clinically acquired imaging data from fMRIs will be obtained and will be read, classified, and coded to create a neuroimaging database. It is hoped that the information collected will support current and future CP-NET research questions and themes. McMaster is one of the 5 recruitment sites for the Clinical Database component. Researchers at CanChild and McMaster University are actively recruiting and assessing children from the Hamilton and Niagara regions. Phase 2 of the study ended in 2018 with 35 families having consented to participate. Phase 3 of the Clinical Database has recently begun. Two families have consented to participate in Phase 3 to date.

My Story – Understanding the Health and Well-being of Youth and Young Adults with CP

Research has shown that youth with disabilities have complex journeys. They often have to navigate new environments with limited guidance, feel pressure to be independent, and lack resources and supports for successful transition into adulthood. Adolescents and young adults aged 13-30 years from across Ontario are being recruited to investigate the course of physical and mental health and well-being, and explore brain functioning and development. A total of 126 participants have agreed to participate in this study. 38 participants completed year two of the study, 26 participants completed year three of the study, and five participants have completed year 4 of the study. The participants will be asked to complete up to 6 years in total until 2022. 12 youth have completed the EEG portion of the study, and 19 have participated in the fMRI portion of the study (10 youth with CP and 9 Controls).
Research on Family Engagement

Family Engagement in Research Certificate of Completion Program

In 2018, the Kids Brain Health Network Family Engagement Team at McMaster partnered with two parent advisors to co-create a “Family Engagement in Research Certificate of Completion Program”. The overall goal of the program is to create a cohort of graduate student research trainees and families across Canada who have the knowledge, experience of working together, and confidence to influence how research in developmental disability is done in Canada. The certificate program is a 10-week course (30-hours + assessment) offered through McMaster University’s Continuing Education Program. The course is delivered in an online format, using McMaster University’s Learning Management Platform – Avenue to Learn (A2L or Avenue). Course work involves live online (synchronous) discussions, review of written materials and case studies, as well as collaborative online (asynchronous) group exercises. From its inception the course has been developed and delivered in partnership by parents and researchers. Upon successful completion of the course, students receive a McMaster University/Kids Brain Health Network Certificate of Completion. The first two cohorts of the certificate program are now complete (Fall 2018 and Winter 2019) and there are 36 graduates (19 graduate student research trainees; 17 family members). Two more cohorts will be offered in Fall 2019 and Winter 2020.

What are family participants saying about the course?
“I highly recommend this course! With this course I was able to learn a lot about the research phases and how I could be engaged in research as a caregiver. The instructors and participants were fully engaged, the discussions were always respectful and the readings were right on target. An enlightening experience about Family Engagement in Research!”

“A fabulous opportunity in a warm, welcoming, and non-judgmental environment to understand and explore family engagement in research. Being able to have one-on-one conversations with my research partner gave me insight that is difficult to find in the community.”

What are graduate student research trainees saying about the course?
“I had zero experience regarding family engagement and research before taking this course, so it was very helpful for me to take this course. It really helped elevate my level of appreciation for family engagement in research. For anyone who is interested in family engagement in research I would definitely recommend it. It was really well designed.”

“I really liked the process and I really liked how we got to work with a family member as a research member for the entire course. I hope that everyone is getting something out of it moving forward because I think the potential is quite huge. I also really appreciate the continued support and I think it’s a great project being partnered with McMaster.”

F-words Research and Knowledge Translation Program

F-WORDS

The F-words Research team continues to disseminate and support the implementation of the ‘F-words in Childhood Disability’ (function, family, fitness, fun, friends, and future) into practice. In 2017, the ‘F-words’ caught the attention of the Ontario Brain Institute (OBI) and CanChild received funding from OBI to produce two additional ‘F-words’ videos, of which one was developed by youth with disabilities to share what the ‘F-words’ mean to them. The youth video won the Runner-Up Award for the 2017 CIHR Institute of Human Development, Child and Youth Health Video Talks Competition. In July 2017, CanChild’s ‘F-words Knowledge Hub’ was formally launched to inform families and service providers about the ‘F-words’; to promote a community of knowledge sharing and exchange; and to provide action-oriented tools to support use of the ‘F-words’ in practice. Early adopters around the world have shared with us that they are using the ‘F-words’ to inform their thinking, practices, and program planning. A pilot study was conducted to evaluate the usability and utility of the knowledge hub and was published in the Journal of Medical Internet Research Rehabilitation and Assistive Technologies in 2018 (Cross et al., 2018). Over the last few years, CanChild has received increasing requests for educational outreach visits to teach about the ‘F-words’ and how they can be used to support family-centred service, inter-professional collaboration, collaborative goal setting and service planning with families, and coordinated service planning. Since 2016, we have delivered 38 invited educational outreach visits in Ontario to children’s treatment centres, EarlyOn centres, respite homes, school boards, and community organizations.

Families and service providers in Quebec and Northern Ontario also have approached us to translate the Knowledge Hub and all of the ‘F-words’ resources into French. Anecdotally, we know that the ‘F-words’ ideas are having an impact on the lives of children and families, but this is yet to be formally evaluated.

Research on Child and Family Well-being

ENVISAGE: ENabling VISions And Growing Expectations’

ENVISAGE: ENabling VISions And Growing Expectations’ is an international program, co-developed by health services researchers and parents in Canada and Australia, that aims to empower parents of children with a neurodevelopmental disability to make informed choices and enhance overall family well-being. Pilot funding was received from the American Academy for Cerebral Palsy and Developmental Medicine (2017-2018) to establish parent partnerships, develop the workshop content, and evaluate the comprehensibility, acceptability, usability, and utility of the workshops. With the pilot funding, we: i) held two brainstorming meetings with 16 parents in Canada and Australia; ii) developed the workshop content with eight parents as key informant collaborators; and iii) investigated parents’ perceptions of the comprehensibility, acceptability, usability, and utility of the workshops through questionnaires and interviews with 11 parents who were not involved in the development of the workshop content.

In 2018, the ENVISAGE research team received a Canadian Institutes of Health Research project grant (CIHR; 2018 – 2021) to evaluate the ENVISAGE program. This summer 2019 we will be recruiting 30 parents each from Canada and Australia to take part in the workshops. The workshops will run from Fall 2019 to Spring 2020, and data analysis and knowledge translation activities will follow shortly afterwards. Members of the ENVISAGE team have presented on the progress of the study at several international conferences (including the Canadian Associations of Pediatric Health Centres, Australasian Academy of Cerebral Palsy and Developmental Medicine, and the European Academy of Childhood Disability) and are currently working on publishing several peer-reviewed publications to share some of the early findings.

Research on Language Comprehension

Computer-Based Instrument for Low motor Language Testing – Canadian English Validation Study

Communication is fundamental for everyday relationships, school, work and leisure. Many children with cerebral palsy (CP) have impaired speech, language or hearing abilities, which affect their communication. In turn, this may lead to significant long-term impacts on learning, friendships, social participation and employment. For some children with CP, their impairments can be so severe that children are unable to speak.

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Many children with CP who are non-speaking are still be able to comprehend spoken language. For them, it is critical to accurately determine how much they understand in order to know how to talk with them, and to set therapy goals that reflect the child’s skills. It can also help to determine the most appropriate augmentative and alternative communication systems and supports to facilitate and optimize the child’s ability to learn, develop and participate in daily life and classroom activities.

This project is studying the adaptation and evaluation of the Computer-Based Instrument for Low motor Language Test (C-BiLLT), an innovative Dutch tool that uses alternative access methods to assess spoken language comprehension for children with CP. This means that many children with severe physical impairments are able to participate in the assessment with this test.

A stakeholder meeting was held in June of 2018. This meeting included Academic Researchers, Research Staff, Students, Speech Language Pathologists, Occupational Therapists, Professional Linguists, and parents of children with CP. Several researchers from the original Dutch C-BiLLT team attended the meeting in person, and others joined the meeting via teleconference. The first step of the meeting was to bring together a group of ~10 SLPs/Linguists for a consensus meeting to: review the English items to determine whether the semantic and grammatical concepts and levels of complexity have been retained and that concepts are relevant to English-speaking children, and to ensure linguistic differences between the two languages have been taken into consideration such as vocabulary, morphology and word order.

The version of the C-BiLLT that was created using the results from this consensus meeting was used in the pilot test. In the pilot test, Canadian children reviewed the 86 C-BiLLT items. They were invited to share feedback on the wording, the image, and the concept of all items. The resulting version of the C-BiLLT is currently being used to test its validity, reliability and feasibility.

Research on Employment

Job Train Program (JTP)

Evidence shows that the unemployment rate in adults with ASD is estimated at 75-90%. We also know that earlier job experiences predict better employment outcomes. Secondary school co-op programs aim to provide early job experience; however, challenges exist in providing successful co-op experiences and integrating acquired skills across contexts (home, school, and community). A unique employment program (Job-Train Program; JTP) was developed from a partnership between a Canadian university, a community agency, and a local school board. The JTP is a 13-week program that includes: (1) weekly coach-facilitated group sessions providing an individualized curriculum and support; (2) paid 9-week summer job placement within the university.

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This mixed-methods study used a pre-post design to examine the program outcomes in 12 secondary school students with ASD, and gather insights from parents, job coaches and employers within the JTP. The sample consisted of 12 youth with ASD. JTP job placements involved the following university departments: housing and conference services, health sciences library, faculty services, and several health science academic departments and research centers.

This study successfully implemented a job training program with the essential elements of individualized supports and programming, weekly coached group sessions and strong community partnerships (agency, school board and university). This study provides useful preliminary results that, despite a small sample size, suggest improvement in issues related to employment skills and independence.

Research on Transition

READYorNot – Brain-Based Disability trial

Moving Ahead with Transition of Care from Adolescence to Adulthood:

Youth with brain-based disabilities require seamless transition from the pediatric to adult health care systems. This transition can be disruptive for youth and their families and have a negative impact on a patient’s health. In many pediatric centres, there are no dedicated resources for transition of care. With the READYorNotTM Brain-Based Disabilities Project, we are developing and evaluating e-health aids to help patients and families take charge of this transition.

We gratefully acknowledge funding from the CHILD-BRIGHT Network, under the Canadian Institutes of Health Research (CIHR) Strategy for Patient-Oriented Research (SPOR) initiative, and with partner support from Montreal Children’s Hospital Foundation, McMaster University Faculty of Health Sciences, New Brunswick Health Research Foundation, McMaster Children’s Hospital Foundation and Hamilton Health Sciences.

The CHILD-BRIGHT network has provided a unique opportunity to develop and test a digital intervention to improve the transition of care journey. The focus of activities in 2016 were to hire staff and engage stakeholders and consultants on the project. From 2017 to 2019, Ariane Marelli (McGill University) has led the development of the MyREADY Transition BBD App in collaboration with with 360Medlink, Jan Willem Gorter (McMaster University) , Khush Amaria (SickKids), Adrienne Kovacs (Oregon Health & Science University), Ronen Rozenblum (Brigham and Women’s Hospital), and research teams. From 2019 to 2021, Jan Willem Gorter will lead this collaborative team in a randomized control trial (RCT) to deploy the MyREADY Transition BBD App intervention across recruitment sites in Alberta, Ontario, Quebec and the Maritimes.

We have directly engaged patients, their caregivers, and families as partners in research through a Patient and Family Advisory Council (PFAC) to directly inform the design and testing of the intervention. Throughout the MyREADY TransitionTM BBD App development, we have also engaged patient, family and healthcare stakeholders as research participants in qualitative focus groups and interviews.

Child Bright Website

ApplyIT

The journey from childhood to adult life involves reaching milestones, as well as assuming new roles and responsibilities. For the rapidly growing population of youth with chronic health conditions/disabilities, transition into the adult healthcare system is an important dimension of this journey. Sadly patients and families often describe the transfer of care as ‘falling off a cliff’ due to the lack of sufficient preparation, information, supports, and skills to facilitate the process. Adolescents are expected to take on more responsibility for their own health as they age, yet many providers report neither having the tools nor appropriate resources to foster smooth transitions for patients and their families.

In February 2017, under the Hamilton Academic Sciences Organization (HAHSO), the ApplyIT study was funded (An app-based Transition Toolkit targeting youth with chronic health conditions: A randomized trial as a foundation to improve healthcare transition and outcomes).

We hypothesized that an app-based transition toolkit (named MyTransition) designed to support youth moving from pediatric to adult healthcare can improve their experiences and lead to better health. With HAHSO funding, our team conducted a pilot RCT informed by patient and family stakeholders, to test the MyTransition app at McMaster Children’s Hospital (MCH). We explored whether the MyTransition App can improve transition and health outcomes compared to usual care in transition aged youth (14‐17 years) at MCH. The main objective of this study was to collect information to design a large multi-centre RCT to assess implementation of the MyTransition app including the recruitment, completion of follow-up, and scalability of the intervention. The secondary objective was to assess the feasibility and potential effect of the MyTransition app-based transition toolkit for improving health of youth (quality of life), transition readiness, healthcare transition experiences, and achievement of health and life goals.

The primary feasibility outcome examined whether a 90% retention could be attained. Our team was successful in achieving this outcome with 36 out of 39 participants completing all 3 time points. However – we learned many valuable lessons from this study, including but not limited to the following: Buy‐in from youth and physicians around the importance of transition preparation/goal setting, recruitment barriers, and youth awareness of self-management.

The study team aims to build on the existing study and use the data collected to tailor and integrate lessons and transition supports that are highly scalable to a growing group of youth in transition from pediatric to adult health care systems.

Research in Concussion/Mild Traumatic Brain Injury

Safely Returning Children and Youth to Activity After Concussion (Back to Play Study)

Concussion management is a complex process. The challenge in preventing prolonged recovery and repeat injuries within a short period of time lies partly in creating and following guidelines for safe return to play/activity. With funding received from the Canadian Institutes of Health Research in 2014, Prof. DeMatteo and colleagues evaluated the Return to Activity and Return to School guidelines for Children with Concussion that were developed as part of a CanChild Knowledge Translation project. Enrollment for this study closed in December 2016 with a total of 139 families recruited. As ongoing final analyses occurred in 2017-2018, the Back to Play team continued to publish and present study results at local, national and international conferences.

Brain Smart Hamilton – Let’s Play Safely!

As concussion is on the rise among youth involved in organized sports the Brain Smart Hamilton Team received funding from the Hamilton Community Foundation to attempt to learn about the current practices regarding concussion protocols in organized youth sports in Hamilton. By developing, implementing and evaluating a concussion education strategy aimed at coaches, parents and youth the key objectives of this project were to reduce the risk of concussion in organized youth sports, to maintain and increase safe participation in organized youth sports and to increase knowledge of concussion management with various stakeholders. Recruitment started for the Let’s Play Safely Project in June 2017 and continued until December 2018. This project is currently in the final data analysis and dissemination phase.

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CanChild Pediatric Concussion Management Guidelines

The science of concussion management is constantly evolving. The 2012 CanChild Return to Activity(RTA) and Return to School(RTS) Guidelines needed to be updated to incorporate the most recent evidence from the literature and the results from CanChild’s most recent concussion study, “Back to Play”. The Concussion Research Team received funding from an internal grant from CanChild to update these guidelines. A systematic review examining the most recent evidence for RTA/RTS has been completed and submitted for publication. The guidelines were updated according to this systematic review, the results from the Back to Play Study and the Berlin Consensus Statement on Concussion (2017). The guidelines were released in March 2019. The newly updated guidelines can be found on the CanChild website and downloaded for free!

Research to Advance Rehabilitation Services Delivered in Schools

Partnering for Change (P4C); Facilitating Integration of Rehabilitation Services through Training Implementation ToolKit (FIRST KIT); and INtegrated serviCes for incLUsion anD Equity (INCLUDE)

Dr. Cheryl Missiuna, Dr. Wenonah Campbell, Nancy Pollock and a multidisciplinary team at CanChild have continued to conduct research about tiered rehabilitation services in schools, building from the Partnering for Change (P4C) program of research.

Tiered models, such as P4C, consist of “layered” services in which each tier represents increasingly intensive services. Building trusting relationships amongst the child, family, school team, and community partners provides the foundation to support interventions across all tiers. In a tiered model, services are provided universally by a health professional to support all children, with increasingly intensive services provided based on need. Thus, at the universal level, all children, the whole school, and broader system are supported. Services are collaboratively designed to support educators, children, and families. The needs of the child, educators, and family are considered when determining services and interventions required to support children’s learning, participation, and engagement. The child’s response to intervention is continually monitored to determine if, and when, more or less service is required to meet the child’s needs. Children receive services fluidly over time, as needed at each tier, and can receive interventions at more than one tier simultaneously.

The P4C team’s research and experience with implementation of the tiered P4C Model showed that transitioning to a new model of service delivery is complex (Pollock, Dix, Sahagian Whalen, Campbell, & Missiuna, 2017). As a result, current research activities aim to:

a) synthesize knowledge about the delivery of rehabilitation support services in education settings and

b) identify and develop resources to support implementation of tiered approaches to service delivery.

The team has received funding from the Ontario Ministry of Education for a two-year knowledge generation and synthesis project (2017-19) comprising several studies that are informing development of an Implementation Toolkit to be used by speech language pathologists (SLPs), occupational therapists (OTs) and physiotherapists (PTs) interested in providing tiered services in schools.

Specifically, four unique projects comprise this grant:

One of our projects uses semi-structured interviews and a qualitative framework analysis to answer the research question, “What do school board speech-language pathology services look like in Ontario and what influences delivery of these services?” In Ontario, only SLPs are routinely employed by school boards with other rehabilitation providers largely employed by community agencies. Therefore, school board SLPs are important stakeholders whose perspectives can shed light on current and best practices for service delivery within the education system.
A second project also is using interview methods and a framework analysis approach to answer the research question, “How do occupational therapists adopt and implement a tiered model of service delivery in varied education settings and what factors influence implementation?” In Ontario and across Canada, several occupational therapists who provide services in education settings have led efforts to intentionally transition from an individual, referral-based model of service to one that is based on Partnering for Change. In this study, we want to learn what that process of transition and adaptation “looks like.”
A third project involves synthesizing knowledge about tiered models of service delivery from an international perspective. We conducted a realist review of the peer-reviewed literature across speech-language pathology, occupational therapy, and physiotherapy to answer the question: “What are the characteristics of successful tiered approaches to rehabilitation services for children and youth in education settings, in what circumstances do these services best occur, and why?” Realist reviews are well-suited to answering questions about complex interventions and are ideal for identifying why implementation works in some contexts but not others.
Our fourth project, INtegrated serviCes for incLUsion anD Equity (INCLUDE), was a collaborative effort between CanChild, the Hamilton-Wentworth Catholic District School Board (HWCDSB), and the Hamilton Niagara Haldimand Brant Local Health Integration Network (HNHB LHIN) with research funding from the Hamilton Community Foundation. The project explored how health professionals and educators can work together as a team to develop and deliver tiered services and support for all members of school communities.
- Throughout the 2017-18 school year two teams comprising an occupational therapist (OT), speech-language pathologist (SLP), and special education resource teacher (SERT), collaboratively provided services one day/week in two HWCDSB Equal Opportunity elementary schools. The OT and SLP worked collaboratively with the SERT and educators to provide a range of services supporting students and the school community, including students with special needs. The study used a participatory action research approach by partnering with researchers, decision-makers, and local users. Qualitative research methods were used to learn about the nature and content of tiered services that are provided by this type of team and the perceived impact of these services on the larger school community, including children, educators, and families.
- Our findings showed that families viewed co-delivered services as comprehensive and family-centred; educators valued services that were provided in classrooms and focused on all children’s needs; and professionals appreciated the diverse perspectives offered by a team approach. Not unexpectedly, several challenges also were identified. Professionals from different disciplines understood tiered services differently; struggled to find the right balance between their individual caseloads and collective work as a team; and reported several system-level barriers that interfered with effective collaboration.
- Having shared these findings with our community stakeholders and Ministry partners, we are now in the process of preparing peer-reviewed presentations and publications.
In addition to these four projects, we have engaged an experienced Partnering for Change occupational therapist and a working group of school board speech-language pathologists to guide development of a repository of multi-media resources about tiered approaches to service delivery in schools. In Ontario and across many jurisdictions, resources and tools are needed to assist rehabilitation professionals in learning about, adopting, and advocating for tiered approaches to rehabilitation services in schools. Our resources will be free and available online at the conclusion of our project.

Related Grants:
- 2017 Apr – 2019 Aug Campbell W (co-PI), Missiuna C (co-PI), Pollock N, Bennett S, Kyte C, Rivard L, Specht J, McCauley D., Synthesizing knowledge and developing an implementation toolkit to support delivery of integrated rehabilitation services., Grant, Ontario Ministry of Education, Research – New Project, $659,857.00
- 2018 Apr – 2019 Dec Kennedy J (trainee & PI), Campbell W (co-I), Breaking down barriers: Understanding family engagement in school-based occupational therapy services. Grant, Canadian Occupational Therapy Foundation, Research – New Project, $5,000.00
- 2017 May – 2018 Apr Campbell W (PI), Missiuna C, Pollock N, Phoenix M & Kennedy J., Exploring Integrated, School-based Universal Services to Enhance Inclusion and Equity., Grant, Community Health, Education and Research Grant, Hamilton Community Foundation, Research – New Project, $29,943.00

Research in Autism Spectrum Disorder (ASD)

ACSF:SC – a tool to classify social communication in preschool children with ASD

One of the challenges faced by clinicians and families of children/youth with ASD is how to classify functional abilities in a meanigful way. For this purpose, with funding from CHIHR (2011-2015), researchers at CanChild developed the Autism Classification System of Functioning: Social Communication (ACSF:SC, version 2016).

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The ACSF:SC is a strengths based measure consisting of five brief descriptions of “social communication” abilities – what kids can do. This measure was originally designed and tested for use with preshoolers (ages 3 to <6 years), and could be completed by both families and professions familiar with the preshoolers.

Once testing was completed and this measure was released for general use, it proved to be popular among clinicians, therapists, and families. During 2017 we secured funds to study how to adapt this tool for other age groups. In 2018 we started with focus group sessions and interviews, to ask both professionals and parents for their ideas about how we could adapt the ACSF:SC for both younger (<3 years) and older (≥6 years)groups.

At this time, we have a working draft of the ACSF:SC-Integrated, for children and youth of all ages (minimum 24 months). We are now working to field test this adaptation with families and professionals working with toddlers, preschoolers, and school-aged children/youth. Once testing is completed, we will release a finalized version for general use.

Related Grants:

Hamilton Health Sciences’ New Investigator Fund (NIF).$35,000.00. 2018-2019. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion & Testing for Toddlers.Briano Di Rezze (Recipient), Peter Rosenbaum (Mentor), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).
Hamilton Health Sciences Research Early Career Award (ECA). $50,000.00. 2018-2019. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion, Testing, and Charting Early Trajectories for Toddlers to School-Aged Children with Autism Spectrum Disorder. Briano Di Rezze (Recipient), Peter Rosenbaum (Supervisor), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).
Hamilton Academic Health Sciences Organization (HAHSO) AFP Innovation Grant Competition. $199,792.13. 2018-2020. Autism Classification System of Functioning: Social Communication (ACSF:SC): Expansion, Testing, and Feasibility of Charting Early Trajectories from Toddlers to School-Aged Children. Peter Rosenbaum (Recipient), Briano Di Rezze (Co-PI), Caroline Roncadin, Stelios Georgiades, Eric Duku, Stephen J Gentles, Lonnie Zwaigenbaum, Mary Jo Cooley Hidecker (Co-Investigators).

Research in Cerebral Palsy

Childhood Cerebral Palsy Integrated Neuroscience Discovery Network

The Childhood Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is an initiative funded by the Ontario Brain Institute designed to improve our understanding of cerebral palsy (CP) and accelerate the development of new treatments. In 2018, the CP-NET program of research was funded for an additional 5 years.

Knowledge Translation

The Knowledge Translation arm of CP‐NET is being spearheaded by CanChild Centre for Childhood Disability Research under the leadership of Drs. Jan Willem Gorter and Peter Rosenbaum. In 2018, the following activities were undertaken to disseminate CP-NET research and bring awareness to issues of importance to individuals with CP:

Five Year Report– An interactive online report highlighting CP-NET activities and research from Phase 2 was released in June 2018. The report can be accessed by going to cpnetreport.ca
CP-NET Science and Family Day: On October 19, 2018, our community came together to celebrate World CP Day with the 5th Annual CP-NET Science & Family Day. We received very positive feedback from attendees on the event evaluation form (from approximately 65 attendees). Attendees felt that it was an excellent and family friendly way to network within the CP community. We received a number of positive and motivational comments from our audience:

“Loved the panel discussion and the key note!! Thanks for a great day”

“Engaging, informative. Speakers were well-prepared, knowledgeable”

“Congratulations on a tremendous event!”

We have already started planning the 2019 event!

Newsletters– The CP-NET Today newsletter was released twice in FY 2018/2019 and currently has over 2000 subscribers. The newsletter has a high open rate ranging from 34-42%. CP-NET work has also been highlighted in the CanChild newsletter (with over 4000 subscribers). We plan to continue circulating our newsletter 2x/year.
Webinars –Wehosted a webinar on Selective Dorsal Rhizotomy (June 12, 2018) which was attended by 117 participants worldwide. The webinar was presented by Christine and Larry Marion (parents); Dr. George Ibrahim (surgeon); Dr. Golda Milo-Manson (paediatrician); Marilyn Wright (PT) and moderated by Dr. Jan Willem Gorter. Since posting the webinar on the cp-net.org website, we have had more than 400 plays of the video. After each webinar, participants are requested to complete a survey. We received 36 responses from the survey with very positive results – 97% felt the speakers were knowledgeable; 94% felt the material was easy to understand; 100% felt the duration was appropriate; 83% felt the content was relevant to them. As requested from our Stakeholder Advisory Group, we will be hosting our next webinar on “Attitudes towards Disability” on April 25, 2019, presented by Dr. Lucy Lach and Donna Thomson.
Stakeholder Advisory Group/Engagement Activities – Over the past 5 years, we have built a very strong and active parent/stakeholder advisory group for CP-NET. Consisting of young adults with CP, parents, patient organizations, researchers and clinicians, this group provides guidance and direction for research planning and priority setting, support for our annual World CP Day Science and Family Day events, reviews materials for publishing on the website, etc. Over the 2018/2019 FY, we held 4 Stakeholder Advisory Group meetings. Members of our group have partnered with us on presenting at different forums (e.g., PAC meeting – Sept 27, 2018, CP-NET Investigator meeting – Jan 25, 2019), have volunteered to sit on committees (CP-NET Science and Family Day; Communication Video group).We have also collaborated with our Stakeholders on the preparation of the My Voice publication (to be submitted in May 2019).
GMFM App – Our group has worked closely with MEDIC at Mohawk College to create the GMFM App+. Our plan is to launch the Single User desktop versions (for both PC and Mac computers) in conjunction with the European Academy of Childhood Disability conference (May 2019) in which we will be presenting a poster on the GMFM App+.

Clinical Database – Understanding Risk Factors for Cerebral Palsy

A comprehensive CP-NET clinical database will allow researchers to study a variety of risk factors for CP, such as clinical risk factors occurring before, during and after childbirth. This data will be collected by conducting a detailed review of the child’s neonatal, medical and rehabilitation charts, along with maternal medical and obstetrical records. Other variables evaluated will include socio-demographic information, family history as well as diagnostic data. Clinically acquired imaging data from fMRIs will be obtained and will be read, classified, and coded to create a neuroimaging database. It is hoped that the information collected will support current and future CP-NET research questions and themes. McMaster is one of the 5 recruitment sites for the Clinical Database component. Researchers at CanChild and McMaster University are actively recruiting and assessing children from the Hamilton and Niagara regions. Phase 2 of the study ended in 2018 with 35 families having consented to participate. Phase 3 of the Clinical Database has recently begun. Two families have consented to participate in Phase 3 to date.

My Story – Understanding the Health and Well-being of Youth and Young Adults with CP

Research has shown that youth with disabilities have complex journeys. They often have to navigate new environments with limited guidance, feel pressure to be independent, and lack resources and supports for successful transition into adulthood. Adolescents and young adults aged 13-30 years from across Ontario are being recruited to investigate the course of physical and mental health and well-being, and explore brain functioning and development. A total of 126 participants have agreed to participate in this study. 38 participants completed year two of the study, 26 participants completed year three of the study, and five participants have completed year 4 of the study. The participants will be asked to complete up to 6 years in total until 2022. 12 youth have completed the EEG portion of the study, and 19 have participated in the fMRI portion of the study (10 youth with CP and 9 Controls).

Research on Family Engagement

Family Engagement in Research Certificate of Completion Program

In 2018, the Kids Brain Health Network Family Engagement Team at McMaster partnered with two parent advisors to co-create a “Family Engagement in Research Certificate of Completion Program”. The overall goal of the program is to create a cohort of graduate student research trainees and families across Canada who have the knowledge, experience of working together, and confidence to influence how research in developmental disability is done in Canada. The certificate program is a 10-week course (30-hours + assessment) offered through McMaster University’s Continuing Education Program. The course is delivered in an online format, using McMaster University’s Learning Management Platform – Avenue to Learn (A2L or Avenue). Course work involves live online (synchronous) discussions, review of written materials and case studies, as well as collaborative online (asynchronous) group exercises. From its inception the course has been developed and delivered in partnership by parents and researchers. Upon successful completion of the course, students receive a McMaster University/Kids Brain Health Network Certificate of Completion. The first two cohorts of the certificate program are now complete (Fall 2018 and Winter 2019) and there are 36 graduates (19 graduate student research trainees; 17 family members). Two more cohorts will be offered in Fall 2019 and Winter 2020.

What are family participants saying about the course?
“I highly recommend this course! With this course I was able to learn a lot about the research phases and how I could be engaged in research as a caregiver. The instructors and participants were fully engaged, the discussions were always respectful and the readings were right on target. An enlightening experience about Family Engagement in Research!”

“A fabulous opportunity in a warm, welcoming, and non-judgmental environment to understand and explore family engagement in research. Being able to have one-on-one conversations with my research partner gave me insight that is difficult to find in the community.”

What are graduate student research trainees saying about the course?
“I had zero experience regarding family engagement and research before taking this course, so it was very helpful for me to take this course. It really helped elevate my level of appreciation for family engagement in research. For anyone who is interested in family engagement in research I would definitely recommend it. It was really well designed.”

“I really liked the process and I really liked how we got to work with a family member as a research member for the entire course. I hope that everyone is getting something out of it moving forward because I think the potential is quite huge. I also really appreciate the continued support and I think it’s a great project being partnered with McMaster.”

Impact

“CanChild has been and still is the shining example of how to perform research that is meaningful to children and their parents and how to bring results of those efforts to the attention of researchers and caretakers.” -Professor

By the Numbers

the 2018 report only includes activities of CanChild Scientists

BY THE NUMBERS

Publications

CanChild Scientists published 106 articles in 2018 in the areas of childhood disability, child health, methodology and knowledge translation. Featured below are a selection of these articles. To see a full list of 2018 articles, click the button below!

Adair, B., Ullenhag, A., Rosenbaum, P., Granlund, M., Keen, D., & Imms, C.(2018). Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review. Developmental Medicine and Child Neurology, 60(11), 1101-1116.

Alba, A. C., Walter, S. D., Guyatt, G. H., Levy, W. C., Fang, J., Ross, H. J., & Lee, D. S. (2018). Predicting Survival in Patients with Heart Failure with an Implantable Cardioverter Defibrillator: The Heart Failure Meta-Score. Journal of cardiac failure, 24(11), 735-745.

Ally, S., Boyd, K., Abells, D., Amaria, K., Hamdani, Y., Loh, A., … & Hennen, B. (2018). Improving transition to adulthood for adolescents with intellectual and developmental disabilities: Proactive developmental and systems perspective. Canadian Family Physician, 64(Suppl 2), S37-S43.

Almasri, N. A., An, M., & Palisano, R. J.(2018). Parents’ perception of receiving family-centered care for their children with physical disabilities: a meta-analysis. Physical & occupational therapy in pediatrics, 38(4), 427-443.

Anaby, D. (2018). Towards a new generation of participation‐based interventions for adolescents with disabilities: the impact of the environment and the need for individual‐based designs. Developmental Medicine & Child Neurology, 60(8), 735-736.

View all publications

Anaby, D., Campbell, W., Missiuna, C., Shaw, S., Bennett, S., Khan, S., Kalubi, J. C., Camden, C., & GOLDs team (2018). Recommended practices to organize and deliver school-based services for children with disabilities. Child Care Health and Development, 45, 1, 15-27.

Anaby, D. R., Law, M., Feldman, D., Majnemer, A., & Avery, L. (2018). The effectiveness of the Pathways and Resources for Engagement and Participation (PREP) intervention: improving participation of adolescents with physical disabilities. Developmental Medicine & Child Neurology, 60(5), 513-519.

An, M., Palisano, R. J., Yi, C. H., Chiarello, L. A., Dunst, C. J., & Gracely, E. J. (2018). Effects of a Collaborative Intervention Process on Parent–Therapist Interaction: A Randomized Controlled Trial. Physical & occupational therapy in pediatrics, 1-17.

Bartlett, D., Dyszuk, E., Galuppi, B., & Gorter, J. W.(2018). Interrelationships of functional status and health conditions in children with cerebral palsy: a descriptive study. Pediatric Physical Therapy, 30(1), 10-16.

Bartlett, D. J., Gorter, J. W., Jeffries, L. M., Avery, L., Hanna, S. E., On Track Study Team, … & Galuppi, B. (2018). Longitudinal trajectories and reference centiles for the impact of health conditions on daily activities of children with cerebral palsy. Developmental Medicine & Child Neurology, 61(4), 469-476.

Bartlett, D. J., McCoy, S. W., Chiarello, L. A., Avery, L., Galuppi, B., & On Track Study Team. (2018). A collaborative approach to decision making through developmental monitoring to provide individualized services for children with cerebral palsy. Physical therapy, 98(10), 865-875.

Bedard, C.,Bremmer, E., Campbell, W., & Cairney, J. (2018). Evaluation of a direct-instruction intervention to improve movement and pre-literacy skills among young children: A within-subject repeated measures design. Frontiers in Pediatrics, 5, 298.

Bogossian, A., Gorter, J. W., & Racine, E. (2018). Protocol for a scoping review about ethics in transition programmes for adolescents and young adults with neurodisabilities. BMJ open, 8(8), e020914.

Boutis, K., Gravel, J., Freedman, S. B., Craig, W., Tang, K.,DeMatteo, C. A., … & Zemek, R. (2018). The Diagnosis of Concussion in Pediatric Emergency Departments: A Prospective Multicenter Study. The Journal of emergency medicine, 54(6), 757-765.

Brunton LK (2018). The Gross Motor Function Classification System: Clinicians Need to Spread the Word. Developmental Medicine and Child Neurology, 60[12], 1197-1198.

Brunton LK (2018). Descriptive Report of the Impact of Fatigue and Current Management Strategies in Cerebral Palsy. Pediatric Physical Therapy, 30(2), 135-41.

Butler, A., Van Lieshout, R. J., Lipman, E. L., MacMillan, H. L., Gonzalez, A., Gorter, J. W., Georgiades, K., Speechley, K. N., Boyle, M. H., & Ferro, M. A. (2018). Mental disorder in children with physical conditions: a pilot study. BMJ Open, 8(1), e019011.

Camden, C., Couture, M., Pratte, G., Morin, M., Roberge, P., Poder, T., … & Léger, F. (2018). Recruitment, use, and satisfaction with a web platform supporting families of children with suspected or diagnosed developmental coordination disorder: a randomized feasibility trial. Developmental neurorehabilitation, 1-9.

Chiarello, L. A., Bartlett, D. J., Palisano, R. J., McCoy, S. W., Jeffries, L., Fiss, A. L., & Wilk, P. (2018). Determinants of playfulness of young children with cerebral palsy. Developmental neurorehabilitation, 1-10.

Cho, R., Wickert, N. M., Klassen, A. F.,Tsangaris, E., Marshall, J. K., & Brill, H. (2018). Identifying needs during transition from adolescence to adulthood in young adults with inflammatory bowel disease: a qualitative study. Gastroenterol Nurs, 41(1), 19-28.

Choong, K., Fraser, D., Al-Harbi, S., Borham, A., Cameron, J., Cameron, S., Cheng, J., Clark, H., Doherty, T., Fayed, N., Gorter, J. W., Herridge, M., Khetani, M., Menon, K., Seabrook, J., Simpson, R., & Thabane, L. (2018). Functional Recovery in Critically Ill Children, the “WeeCover” Multicenter Study. Pediatr Crit Care Med, 19(2), 145-154.

Chu, L., & Timmons, B. W.(2018). Nutritional Considerations for Sport Participation in Children and Adolescents with Obesity. American journal of lifestyle medicine, 13(2), 129-137.

Cohen, E., Berry, J. G., Sanders, L., Schor, E. L., & Wise, P. H. (2018). Status complexicus? The emergence of pediatric complex care. Pediatrics, 141(Supplement 3), S202-S211.

Cohen, E., Horváth-Puhó, E., Ray, J. G., Pedersen, L., Ehrenstein, V., Adler, N., … & Sørensen, H. T. (2018). Cardiovascular Disease Among Women Who Gave Birth to an Infant with a Major Congenital Anomaly. JAMA network open, 1(5), e182320-e182320.

Cohen, E., Ray, J. G., & Sorenson, H. T. (2018). Addressing mortality in mothers of infants with congenital anomalies. J Public Health Emerg, 2, 10.

Cohen, E., Wang, C., & Zuckerman, B. (2018). Specialized Care without the Subspecialist: A Value Opportunity for Secondary Care. Children, 5(6), 69.

Cox, V. C. M., Schepers, V. P. M., Ketelaar, M., van Heugten, C. M., & Visser-Meily, J. M. A. (2018). Evaluating the CARE4Carer Blended Care Intervention for Partners of Patients with Acquired Brain Injury: Protocol for a Randomized Controlled Trial. JMIR Res Protoc, 7(2), e60.

Cox, V. C., Schepers, V. P., Ketelaar, M., Kruithof, W. J., Van Heugten, C. M., & Visser-Meily, J. M. (2018). A validation study of the Caregiver Mastery Scale for partners of patients with acquired brain injury. Clin Rehabil, 32(4), 493-500.

Cross, A.*, Rosenbaum, P., Grahovac, D.,Brocklehurst, J., Kay, D., Baptiste, S., & Gorter, J. W. (2018). A Web-Based Knowledge Translation Resource for Families and Service Providers (The “F-Words” in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study. JMIR Rehabilitation and Assistive Technologies, 5(2), e10439.

Cunningham, B. J., Hanna, S. E., Rosenbaum, P., Thomas-Stonell, N., & Oddson B. (2018). Factors contributing to preschoolers’ communicative participation outcomes: Findings from a population-based longitudinal cohort study in Ontario, Canada. American Journal of Speech-Language Therapy, 27(2), 737-750.

Di Rezze, B., Viveiros, H., Pop, R., & Rampton, G. (2018). A review of employment outcome measures in vocational research involving adults with neurodevelopmental disabilities. Journal of Vocational Rehabilitation, 49(1), 79-96.

Driediger, M., Vanderloo, L. M., Burke, S. M., Irwin, J. D., Gaston, A., Timmons, B. W., … & Tucker, P. (2018). The Implementation and Feasibility of the Supporting Physical Activity in the Childcare Environment (SPACE) Intervention: A Process Evaluation. Health Education & Behavior, 45(6), 935-944.

Eisen, I.*, Cunningham, B. J., & Campbell, W. (2018). Conducting participatory photography with children with disabilities: A literature review. Disability and Rehabilitation, 1-2.

Fayed, N., Gardecki, M., & Cohen, E. (2018). Complex Care for Kids Ontario evaluation team: Partnering with families of children with medical complexity to evaluate interventions. Canadian Medical Association. Journal, 190, S24-S25.

Fayed, N., Guttmann, A., Chiu, A., Gardecki, M., Orkin, J., Hamid, J. S., … & Cohen, E. (2018). Family‐provider consensus outcomes for children with medical complexity. Developmental Medicine & Child Neurology.

Ferro, M. A., Lipman, E. L., Van Lieshout R. J., Boyle, M. H., Gorter J. W., MacMillan H. L., Gonzalez, A., & Georgiades, K. (2018). Mental-Physical Multimorbidity in Youth: Associations with Individual, Family, and Health Service Use Outcomes. Child Psychiatry Hum Dev, 50(3), 400-410.

Freeman, M.*, Stewart, D., Cunningham, C. E., & Gorter, J. W.(2018). “If I had been given that information back then”: An interpretive description exploring the information needs of adults with cerebral palsy looking back on their transition to adulthood. Child: care, health and development, 44(5), 689-696.

Gagnon, I., Friedman, D., Beauchamp, M. H., Christie, B., DeMatteo, C., Macartney, G., … & Zemek, R. (2018). The Canadian Pediatric Mild Traumatic Brain Injury Common Data Elements Project: Harmonizing Outcomes to Increase Understanding of Pediatric Concussion. Journal of neurotrauma, 35(16), 1849-1857.

Gauvin-Lepage, J., Friedman, D., Grilli, L., Sufrategui, M., De Matteo, C., Iverson, G. L., & Gagnon, I. (2018). Effectiveness of an Exercise-Based Active Rehabilitation Intervention for Youth Who Are Slow to Recover After Concussion. Clinical journal of sport medicine: official journal of the Canadian Academy of Sport Medicine.

Gmelig Meyling, C., Ketelaar, M., Kuijper, M. A., Voorman, J., & Buizer, A. I. (2018). Effects of Postural Management on Hip Migration in Children with Cerebral Palsy: A Systematic Review. Pediatr Phys Ther, 30(2), 82-91.

Hidecker, M. J. C., Slaughter, J., Abeysekara, P., Ho, N. T., Dodge, N., Hurvitz, EA., Workinger, M. S., Kent, R. D., & Rosenbaum, P., Lenski, M., Vanderbeek, S. B., Deroos, S., & Paneth N. (2018) Early predictors and correlates of communication function in children with cerebral palsy. Journal of Child Neurology,33(4), 275-285.

Hillebregt, C. F., Scholten, E. W. M., Ketelaar, M., Post, M. W. M., & Visser-Meily, J. M. A. (2018). Effects of family group conferences among high-risk patients of chronic disability and their significant others: Study protocol for a multicentre controlled trial. BMJ Open, 8, e018883.

Hoppe, F. M., Hoppe, D. J., & Walter, S. D.(2018). Explaining odds ratios as conditional risk ratios. Journal of clinical epidemiology, 97, 123-124.

Izadi-Najafabadi, S., Ryan, N., Ghafooripoor, G., Gill, K., & Zwicker, J. G. (2018). Participation of children with developmental coordination disorder. Research in developmental disabilities, 84, 75-84.

Janus, M., Brownell, M., Reid-Westoby, C., Bennett, T., Birken, C., Coplan, R., … & Gorter, J. W.(2018). Establishing a protocol for building a pan-Canadian population-based monitoring system for early childhood development for children with health disorders: Canadian Children’s Health in Context Study (CCHICS). BMJ open, 8(5), e023688.

Jarvis, J. M., Downer, B., Baillargeon, J., Khetani, M. A., Ottenbacher, K. J., & Graham, J. E. (2018). Positive emotion, cognition, and disability in Mexican American older adults. Disability and Rehabilitation.

Jeevanantham, D., & Bartlett, D. (2018). Subgrouping children with cerebral palsy from a broader perspective using two methods. Physiotherapy theory and practice, 34(6), 453-463.

Kamphorst, K., Brouwer, A. J., Poslawsky, I. E., Ketelaar, M., Ockhuisen, H., & van den Hoogen, A. (2018). Parental Presence and Activities in a Dutch Neonatal Intensive Care Unit: An Observational Study. J Perinat Neonatal Nurs, 32(3), E3-E10.

Keilty, K., Cohen, E., Spalding, K., Pullenayegum, E., & Stremler, R. (2018). Sleep disturbance in family caregivers of children dependent on medical technology. Arch Dis Child, 103(2), 137-142.

Kennedy, J.*, Missiuna, C., Pollock, N., Wu, S., Yost, J., & Campbell, W. (2018). A scoping review to explore how universal design for learning is described and implemented by rehabilitation health professionals in school settings. Child: Care, Health and Development, 44(5), 670-688.

Khetani, M. A.,Albrecht, E., Jarvis, J., Porgorzelski, D., Cheng, E., & Choong, K. (2018). Determinants of home participation change among critically ill children following PICU admission. Developmental Medicine and Child Neurology, 60(8), 793-800.

Khetani, M. A., McManus, B., Arestad, K., Richardson, Z., Charlifue-Smith, R., Rosenberg, C., & Rigau, B. (2018). Technology-based functional outcomes assessment in early intervention: A pilot study. BMC Pilot and Feasbility Studies (Special Thematic Series), 4, 65.

Killeen, H., Shiel, A., Law, M., O’Donovan, D. J., Segurado, R., & Anaby, D. (2018). Relationships between adaptive behaviours, personal factors, and participation of young children. Physical & occupational therapy in pediatrics, 38(4), 343-354.

King, G., Imms, C., Stewart, D., Freeman, M.*, & Nguyen, T. (2018). A transactional framework for pediatric rehabilitation: shifting the focus to situated contexts, transactional processes, and adaptive developmental outcomes. Disability and rehabilitation, 40(15), 1829-1841.

King, G., McPherson, A. C., Kingsnorth, S., Gorter, J. W., & DeFinney, A. (2018). Intervention strategies in residential immersive life skills programs for youth with disabilities: a study of active ingredients and program fidelity. Developmental neurorehabilitation, 1-9.

King-Dowling, S., Kwan, M., Rodriguez, C., Missiuna, C.,Timmons B., & Cairney, J. (2018) Health-related fitness in preschool children with and without motor delays. Medicine & Science in Sports & Exercise, 50(7), 1442-1448.

Klassen, A. F., Riff, K. W. W., Longmire, N. M., Albert, A., Allen, G. C., Aydin, M. A., … & Dreise, M. M. (2018). Psychometric findings and normative values for the CLEFT-Q based on 2,434 children and young adult patients with cleft lip and/or palate from 12 countries. CMAJ, 190(15), E455-E462.

Kurahashi, A. M., Stinson, J. N., van Wyk, M., Luca, S., Jamieson, T., Weinstein, P., Cafazzo, J. A., Lokuge, B., Cohen, E., Rapoport, A., & Husain, A. The Perceived Ease of Use and Usefulness of Loop: Evaluation and Content Analysis of a Web-based Clinical Collaboration System. JMIR Hum Factors, 5(1), e2.

Lachapelle-Neveu, L., Carrier, C., Fink-Mercier, M., Larivière, M., Ruest, C., Demers, I., Maltais, D. B., & Camden, C.(2018). Expérimentation d’une formation sur le trouble développemental de la coordination destinée aux enseignants en éducation physique. Physiothérapie Canada, 71(2), 113-120.

Levac, D. E., Dumas, H., & Meleis, W. (2018). Development and preliminary usability evaluation of a tablet-based interactive movement tool for pediatric rehabilitation. JMIR: Rehabilitation and Assistive Technology, 5(2), e10307.

Levac, D. E., & Glegg SMN. (2018). Barriers, facilitators and interventions to support virtual reality implementation in rehabilitation: A scoping review. Physical Medicine & Rehabilitation, 10(11), 1237-1251.

Levac, D., & Lu, A. S. (2018). Does narrative feedback enhance children’s motor learning in a virtual environment? Journal of Motor Behavior, 51(2), 199-211.

Levac, D. E.,Miller, P., Glegg, S. M. N., & Colquhoun, H. (2018). How do the perspectives of clinicians with and without virtual reality or active video game experience differ about its use in practice? Int J Child Health Hum Dev, 11(2), 249-254.

Levac, D., Pradhan, S., Fox, E., Espy, D., & Deutsch, J. (2018). Usability of the ‘Kinect-ing with Clinicians’website: A knowledge translation resource supporting decisions about active video game use in rehabilitation. Games for Health Journal.

Longo, E., de Campos, A. C., & Palisano, R. J.(2018).Let’s make pediatric physical therapy a true evidence-based field! Can we count on you? Brazilian journal of physical therapy.

Mahant, S., Cohen, E., Nelson, K. E., & Rosenbaum, P. (2018) Decision-making around gastrostomy tube feeding in children with neurologic impairment: Engaging effectively with families. Paediatrics & Child Health, 23(3), 209-213.

Marcinko, J., Orkin, J., Cohen, E., Ho, M., Lalloo, C., Jiwan, A., McKillop, A., Kulandaivelu, Y., & Stinson, J. (2018). Paediatric Project Echo: Exploring the educational needs of Ontario healthcare provides with interest in caring for childen with medical complexity. Paediatrics & Child Health, 23(S1), 18.

McPhee, P. G.*, Wong-Pack, M., Obeid, J., MacDonald, M. J., Timmons, B. W., & Gorter, J. W. (2018). Differences in cardiovascular health in ambulatory persons with cerebral palsy. Journal of rehabilitation medicine, 50(10), 892-897.

McPhee, P. G.*, Claridge, E. A., Noorduyn, S. G., & Gorter, J. W. (2018). Cardiovascular disease and related risk factors in adults with cerebral palsy: a systematic review. Developmental Medicine & Child Neurology.

McPherson, A. C., Rudzik, A., Kingsnorth, S., King, G., Gorter, J. W., & Morrison, A. (2018). “Ready to take on the world”: Experiences and understandings of independence after attending residential immersive life skills programs for youth with physical disabilities. Developmental neurorehabilitation, 21(2), 73-82.

Mills, R., Levac, D., & Sveistrup, H. (2018). Kinematics and postural muscular activity during continuous oscillating platform movement in children and adolescents with cerebral palsy. Gait & Posture, 66, 13-20.

Morris, A., Imms, C., Kerr, C., & Adair, B. (2018). Sustained participation in community-based physical activity by adolescents with cerebral palsy: a qualitative study. Disability and rehabilitation, 1-9.

Nguyen, L.*, Di Rezze, B., Mesterman, R.,Rosenbaum, P. L., & Gorter, J. W. (2018). Effects of Botulinum Toxin Treatment in Nonambulatory Children and Adolescents with Cerebral Palsy: Understanding Parents’ Perspectives. Journal of Child Neurology, 33(11):724-733.

Nguyen, L.*, Mesterman, R., & Gorter, J. W.(2018). Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A. BMC pediatrics, 18(1), 1.

Nguyen, T., Palisano, R. J., & Graham, I. (2018). Perspectives and Experiences with Engaging Youth and Families in Research. Physical & occupational therapy in pediatrics, 1-14.

Nguyen, T., Stewart, D., & Gorter, J. W.(2018). Looking back to move forward: Reflections and lessons learned about transitions to adulthood for youth with disabilities. Child: care, health and development, 44(1), 83-88.

Nguyen, T., Stewart, D., Rosenbaum, P.,Baptiste, S., de Camargo, O. K., & Gorter, J. W.(2018). Using the ICF in transition research and practice? Lessons from a scoping review. Research in developmental disabilities, 72, 225-239.

Oude Lansink, I. L. B.*, McPhee, P. G.*, Brunton, L. K., & Gorter, J. W. (2018). Fatigue in adults with cerebral palsy: A three-year follow-up study. Journal of rehabilitation medicine, 50(10), 886-891.

Palisano, R. J., Avery, L., Gorter, J. W., Galuppi, B., & McCoy, S. W.(2018). Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System. Dev Med Child Neurol, 60(10), 1026-1032.

Phoenix, M.*, Nguyen, T., Gentles, S. J., VanderKaay, S., Cross, A.*, & Nguyen, L.* (2018). Using qualitative research perspectives to inform patient engagement in research. Research Involvement and Engagement, 4(1), 20.

Phoenix, M.*, Fischer, L., Walsh, K., & Missiuna, C. (2018). Promoting a thoughtful approach when families miss their child’s occupational therapy appointments. OT Now, 20(1), 11-13.

Poole, K., Schmidt, L., Ferro, M., Missiuna, C., Saigal, S., Boyle, M., & Lieshout, R. (2018). Early developmental influences on self-esteem trajectories from adolescence through adulthood: Impact of birth weight and motor skills. Development and Psychopathology, 30(1). 113-123.

Pordes, E., Gordon, J., Sanders, L. M., & Cohen, E.(2018). Models of care delivery for children with medical complexity. Pediatrics, 141(Supplement 3), S212-S223.

Pratte, G., Hurtubise, K., Rivard, L., Berbari, J., & Camden, C.(2018). Developing a web platform to support a community of practice: a mixed methods study in pediatric physiotherapy. Journal of Continuing Education in the Health Professions, 38(1), 19-24.

Ray, J. G., Huang, T., Weschino, W., Cohen, E., & Park, A. L. (2018). Prenatal biochemical screening and long-term risk of maternal cardiovascular disease: population-based cohort study. BMJ, 362, k2739.

Rigau, B., Scully, B., Liftin, J., Murphy, N., McManus, B., & Khetani, M. A.(2018). Community engagement to pilot electronic patient-reported outcomes (e-PROs) in early intervention: Lessons learned. Journal of Clinical and Translational Science, 2, 20-26.

Ronen, G. M., Rosenbaum, P. L., Boyle, M. H., & Streiner, D. L. (2018). Patient-Reported Quality of Life and Biopsychosocial Health Outcomes in Pediatric Epilepsy: An update for healthcare providers. Epilepsy and Behavior, 86, 19–24.

Samuels-Kalow, M., Peltz, A., Rodean, J., Hall, M., Alpern, E. R., Aronson, P. L., … & Cohen, E. (2018). Predicting Low-Resource-Intensity Emergency Department Visits in Children. Academic pediatrics, 18(3), 297-304.

Scholten, E. W. M., Kieftenbelt, A., Hillebregt, C. F., de Groot, S., Ketelaar, M., Visser-Meily, J. M. A., & Post, M. W. M. (2018). Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation. Spinal Cord, 56(5), 436-446.

Shields, N., Adair, B., Wilson, P., Froude, E., & Imms, C.(2018). Characteristics Influencing Diversity of Participation of Children in Activities Outside School. American Journal of Occupational Therapy, 72(4), 7204205010p1-7204205010p9.

Silverberg, O., Park, A. L., Cohen, E., Fell, D. B., & Ray, J. G. (2018). Premature cardiac disease and death in women whose infant was preterm and small for gestational age: a retrospective cohort study.JAMA cardiology, 3(3), 247-251.

Sullivan, W. F., Diepstra, H., Heng, J., Ally, S., Bradley, E., Casson, I., Hennen, B., Kelly, M., Korossy, M., McNeil, K., Amaria, K., … & Witherbee, S. (2018). Soins primaires aux adultes ayant des déficiences intellectuelles et développementales: Lignes directrices consensuelles canadiennes de 2018. Canadian Family Physician, 64(4), e137-e166.

Sullivan, W. F., Diepstra, H., Heng, J., Ally, S., Bradley, E., Casson, I Hennen, B., Kelly, M., Korossy, M., McNeil, K., Amaria, K., … & Witherbee, S. (2018). Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Canadian Family Physician, 64(4), 254-279.

Szulc-Lerch, K. U., Timmons, B. W., Bouffet, E., Laughlin, S., de Medeiros, C. B., Skocic, J., … & Mabbott, D. J. (2018). Repairing the brain with physical exercise: Cortical thickness and brain volume increases in long-term pediatric brain tumor survivors in response to a structured exercise intervention. NeuroImage: Clinical, 18, 972-985.

Ten Hove, J., & Rosenbaum, P. (2018). The Concept of Resilience in Childhood Disability: Does the ICF Help Us? Child: Care Health and Development. Child: Care, Health and Development, 44(5), 730-735.

Thivel, D., Masurier, J., Baquet, G., Timmons, B. W., Pereira, B., Berthoin, S., … & Aucouturier, J. (2018). High-intensity interval training in overweight and obese children and adolescents: systematic review and meta-analysis. The Journal of sports medicine and physical fitness, 59(2), 310-324.

Tomas, V.*, Cross, A.*,& Campbell, W. (2018). Building bridges between education & health care: How the ICF and UDL frameworks mutually support inclusion of children with special needs in school settings. Frontiers in Education, 3, 18.

Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K. K., Colquhoun, H., Levac, D., et al. (2018). PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Annals of Internal Medicine, 169(7), 467-473.

Van Gorp, M., Roebroeck, M. E., Tan, S. S., de Groot, V., Gorter, J. W., Smits, D. W., … & PERRIN DECADE Study Group. (2018). Activity Performance Curves of Individuals with Cerebral Palsy. Pediatrics, 142(5), e20173723.

Van Gorp, M., Van Wely, L., Dallmeijer, A. J., de Groot, V., Ketelaar, M.,Roebroeck, M. E.; Perrin-Decade study group. (2018). Long-term course of difficulty in participation of individuals with cerebral palsy aged 16 to 34 years: a prospective cohort study. Dev Med Child Neurol, 61(2), 194-203.

Van Maren-Suir, I., Ketelaar, M., Brouns, B., Van der Sanden, K., & Verhoef, M. (2018). There is no place like home!: The value of home consultations in paediatric rehabilitation. Child Care Health Dev, 44(4), 623-629.

Williams, U., Rosenbaum, P., Gorter, J. W., McCauley, D., & Gulko, R. (2018). Psychometric properties and parental reported utility of the 19-item ‘About My Child’ (AMC-19) measure. BMC Pediatrics, 18(1), 174.

Wintels, S. C., Smits, D. W., van Wesel, F., Verhejden, J., Ketelaar, M., & PERRIN PiP Study Group. (2018). How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect, 21(6), 1024-1034.

Wong Riff, K. W., Tsangaris, E., Goodacre, T. E., Forrest, C. R., Lawson, J., Pusic, A. L., & Klassen, A. F.(2018). What matters to patients with cleft lip and/or palate: an international qualitative study informing the development of the CLEFT-Q. The Cleft Palate-Craniofacial Journal, 55(3), 442-450.

Woods, H., Oronsaye, E., Bali, A., Rajakulasingam, Y., Lee, T., Umali, N., Cohen, E., Finkelstein, Y., Offringa, M., & Persaud, N. Development of a provisional essential medicines list for children in Canada: Consensus Process. CMAJ Open, 6(1), E146-E150.

Zwicker, J. G., Suto, M., Harris, S. R., Vlasakova, N., & Missiuna, C. (2018). Developmental coordination disorder is more than a motor problem: Children describe the impact of daily struggles on their quality of life. British Journal of Occupational Therapy, 81(2), 65–73.

* PhD student

Presentations

In 2018, CanChild members presented 145 invited lectures and 69 keynotes around the world. Featured below are a few of these presentations:

Dr. Dana Anaby presented at the Brain Awareness Week Symposium the HAGUE University of Applied Sciences, in The Hague, Netherlands (September). Her topic is about the Participation as Means and Outcome in Pediatric Rehabilitation and the Impact of the Environment.

Dr. Cheryl Missiuna was a keynote speaker at the Dyspraxia/DCD Ireland Conference in Uxbridge, Dublin, Ireland (July). She highlighted the Partnering for Change: An evidence-based, tiered model for school-based services. She also shared the same topic at the Developmental Coordination Disorder Biannual Conference in London, England (June).

Dr Robert Palisano was a guest lecturer at the 23^rdAnnual JH Maley Lectureship, American Physical Therapy Association in Orlando, Florida (June). His talk focused on the Health Development for Individuals with Chronic Health Conditions: Visualizing a Preferred Future.

Dr. Peter Rosenbaum was a keynote speaker at the 30^thAnnual Conference of the European Academy of Childhood Disability in Tbilisi, Republic of Georgia (May). He talked about Developmental Disability in the 21^stCentury: What Should We Know, and Do – and Why?

Dr. Jan Willem Gorter presented at the Cerebral Palsy Day in Oslo, Norway (April). He shared the Organization of the transition from pediatric to adult rehabilitation: The McMaster experience.

Dr. Olaf Kraus de Camargo presented at the Annual ICF User Conference in Hamburg, Germany (April). His topic is entitled Indvidualized or Standardized? Different Positions towards the use of Personal Factors in the ICF?

View all presentations

Presentations

Campbell W, Eisen I, & Rivard L. Implementing Universal Design for Learning (UDL) in a Professional Graduate Program: A Qualitative Study of Faculty Perspectives. (2018, December). Oral presentation delivered at the Research on Teaching and Learning Conference, McMaster University. Hamilton, Ontario, Canada.

Cohen, E. Early Career. (2018, December). Presented at Fellows’ Academic Rounds, Division of Paediatric Medicine, The Hospital for Sick Children. Toronto, Ontario, Canada.

Cross, A., & Teplicky, R. Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, December). Presented at Mushkegowuk Council – Early Years Gathering. Timmins, Ontario, Canada.

Cross, A., Thomson, D., Putterman, C., McCauley, D., Solomon, P., & Gorter, J.W. Building capacity for families as partners in research: A family engagement in research certificate program. (2018, December). Presented at Child Bright Annual Meeting. Montreal, Quebec, Canada.

McPhee P. G. The Formula for Health and Well-being in Individuals with Cerebal Palsy: Physical activity, Sleep and Nutrition – A first look at cross-sectional data. (2018, December). Presented at Ron Joyce Children’s Health Centre / Hamilton Health Sciences – Grand Rounds. Hamilton, Ontario, Canada.

Timmons, B. W. Submission for a grant.(2018, December). Presented at Evidence Based Medicine Course for Subspecialty Pediatric Residents (EBM-SPR) McMaster University. Hamilton, Ontario, Canada.

Tomas, V., Hamilton, J., Solomon, P., & Campbell, W. Using Knowledge Translation and Instructional Design to Support Pre-Professional Training of Speech-Language Pathologists: Developing Educational Resources on Universal Design for Learning. (2018, December). Oral presentation delivered at the Research on Teaching and Learning Conference, McMaster University. Hamilton, Ontario, Canada.

Bacauanu J. P., Proudfoot, N. A., Currie, K. D., Timmons, B. W., & MacDonald, M. J. The effect of sex on brachial artery flow-mediated dilation in health school-aged children. (2018, November). Presented at Exercise Medicine: Clinical Applications in Children at Sick Kids Hospital Symposium. Toronto, Ontario, Canada.

Campbell, W. Accessible Education and Universal Design for Learning. (2018, November). Presentation to the Graduate Program in Physiotherapy Curriculum Committee, McMaster University. Hamilton, Ontario, Canada.

Campbell, W.Accessible Education and Universal Design for Learning. (2018, November). Presentation to the Faculty of Health Sciences Graduate Policy and Curriculum Committee, McMaster University. Hamilton, Ontario, Canada.

Cross, A., Grahovac D., & Rosenbaum P.Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, November). Presented at Contact Brant. Brantford, Ontario, Canada.

Cross, A., & Teplicky, R. Applying family-centred care principles in practice: The ‘F-words’ approach.(2018, November). Presented at Kerry’s Place. Caledon, Ontario, Canada.

Gorter, J. W. StayFIT Program of Research. (2018, November). Presented at Ron Joyce Children’s Health Centre / Hamilton Health Sciences – Clinical Research Rounds. Hamilton, Ontario, Canada.

Gorter, J. W.Challenges in Transition in Youth with Special Health Care Needs, Hope for the Future. (2018, November). Presented at Pediatric Grand Rounds at Saint-Justine. Montreal, Quebec, Canada.

Khetani, M. A. Conducting good science and conducting oneself as a good scientist: Reflection of an AOTF awardee. (2018, November). Invited presentation for an event sponsored by the American Occupational Therapy Foundation (AOTF). Chicago, Illinois, United States.

Kraus de Camargo, O. Truth or Myth about Autism Spectrum Disorder: Ask the Doctor.(2018, November). Hamilton, Ontario, Canada.

Levac, D. Rehabilitation-engineering collaborations in the development and evaluation of virtual environments and low-cost gaming tools. (2018, November). Presented at the Institute for Signal Processing and Wireless Communications, Zurich University of Applied Sciences. Zurich, Switzerland.

Levac, D. Exploring the influence of virtual environmental and user attributes on skill acquisition and transfer. (2018, November). Presented at the Colloquium on sensorimotor control, Department of Human Movement Science, Technishe Universitat Munchen. Munich, Germany.

Levac D. Motor learning in virtual environments. (2018, November). Presented at CanChild Center for Childhood Disability Research. Hamilton, ON, Canada.

McPhee P. G. Fatigue in Adults with Cerebral Palsy. (2018, November). Presented at Ron Joyce Children’s Health Centre / Hamilton Health Sciences – Clinical Research Rounds. Hamilton, Ontario, Canada.

Palisano, R.Lifecourse Health Development for Individuals with Neuodevelopmental Conditions: Visualizing a Preferred Future. (2018, November). Presented at the Center for Family Intervention Science speaker series, Drexel University. Philadelphia, Pennsylvania, United States.

Phoenix, M. Reaching ‘Hard-to-Reach’ Families. (2018, November). Appreciation lecture for the Speech-Language Community Members affiliated with the McMaster Speech Language Program. Hamilton, Ontario, Canada.

Ronen G. M., Brown, D., Pohl, D., Bray, S., Streiner, D., Ferro, M. A., Mahlberg, N., Hamer, S., Timmons, B. W., & Rosenbaum P. L. Enhancing quality of life through physical activity in children with Epilepsy: a randomized controlled trial with a behavioural counselling intervention. (2018, November). Presented at American Epilepsy Society Annual Meeting (AES). New Orleans, Louisiana, United States.

Tomas, V., Cross, A., & Campbell, W. Building Bridges between Education and Health. (2018, November). Oral presentation delivered at the Ontario Association of Children’s Rehabilitation Centre’s (OACRS) Annual Conference. Toronto, Ontario, Canada.

Au, J. S., Proudfoot, N. A., Timmons, B. W., & MacDonald M. J. Retrograde shift in carotid artery longitudinal wall motion after one-year follow-up in childhood. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Bjelica, M., Timmons, B. W., & Obeid, J. The relationship between aerobic fitness and natural killer cell levels in children with juvenile idiopathic arthritis or type 1 diabetes mellitus. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Caldwell, H., Tait, P., Obeid, J., Di Cristofaro, N., McNicholas, P., & Timmons, B. W. Associations between sleep, sedentary time, physical activity and fitness in school-age children using compositional analysis. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Campbell, W., & Sahagian-Whalen, S. Tiered Service Delivery Models for Needs-Based Paediatric Occupational Therapy Services. (2018, October). Presentation at the Ontario Society for Occupational Therapists Annual Conference. Richmond Hill, Ontario, Canada.

Chen, R., Obeid, J., King-Dowling, S., & Timmons, B. W. The relationship between perceived well-being and physical activity in children with juvenile idiopathic arthritis. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Cross, A., Grahovac, D., Pozniak, K.,& Mora Severino, S. Putting the ‘F-words’ into action: Exploring applications for families, service providers and policy makers. (2018, October). Presented at CP Net Science and Family Day. Hamilton, Ontario, Canada.

Cross, A., Teplicky R. Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, October). Workshop presented at Children’s Community Network. Sudbury, Ontario, Canada.

Di Rezze, B.,& Palisano, R. Healthy development over the lifecourse of individuals with neurodevelopmental disability – how to think and practice. (2018, October). Presented at the Breakfast Seminar at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 72nd Annual Meeting. Cincinnati, Ohio, United States.

Driediger, M., Tucker, P., Vanderloo, L. M., Burke, S. M., Johnson, A. M., Irwin, J. D., & Timmons B. W. The Feasibility of a Modified Outdoor Free Play Schedule in Childcare Centres: Adherence to the Supporting Physical Activity in the Childcare Environment (SPACE) Intervention. (2018, October). Presented at Lawson Foundation Outdoor Play and Early Learning Policy Research Symposium. Toronto, Ontario, Canada.

Driediger, M., Vanderloo, L. M., Johnson, A. M., Burke, S. M., Irwin, J. D., Timmons, B. W., Gaston, A., & Tucker, P. The Impact of a Childcare Intervention on Early Childhood Educators’ Physical Activity Knowledge and Self-Efficacy. (2018, October). Presented at International Society for Physical Activity and Health Congress (ISPAH). London, England.

Gorter, J. W.Caringfor Children with Complex Needs: Focus on Children’s Function, and their Future!(2018, October). Presented at CIHR Beste Brain Exchange. Social Paediatrics: Protecting the rights of the child through collaborative models of care aimed at mitigating and addressing the social determinants of health.Charlottetown, PEI, Canada.

King-Dowling, S., McNicholl, T., Wellman, J., Obeid, J., Timmons, B.W., & Cairney, J. Motor coordination and its relationship to movement patterns and heart rate responses during submaximal exercise in young children. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

McPhee, P., Verschuren, O., Peterson, M., Tang, A., & Gorter, J. W. The formula for health and wellbeing: cross-sectional data on physical activity, sleep, and nutrition in individuals with cerebral palsy.(2018, October). Scientific presentation at the 72nd Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

McPhee, P., Benner, J., van den Berg-Emons, R., & Gorter, JW. Understanding and preventing multi-morbidity in adolescents and adults with cerebral palsy: an emphasis on health-promoting behaviours. (2018, October). Breakfast seminar at 72nd Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, USA.

McPhee, P., Benner, J., Darji, S., Roebroeck, M., & Gorter, J. W. Multi-morbidity risk and prevention in clinical practice: establishing and testing a core outcome set for adolescents and adults with cerebral palsy. (2018, October). Demonstration poster at 72nd Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, USA.

Mezil, Y. A., Obeid, J., & Timmons, B. W.The systemic effects of exercise on regulators of muscle and bone in girls and women. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Palisano, R., Di Rezze, B., Stewart, D., Freeman, M.,Rosenbaum, P. L., Hlyva, O., Wolfe, L., & Gorter, J. W. Promoting capacities for future adult roles and healthy adult living: A lifecourse health development approach.(2018, October) Podium Presentation at the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 72nd Annual Meeting. Cincinnati, Ohio, United States.

Palisano, R., & Di Rezze, B.Healthy Development Over the Lifecourse Of Individuals with Neurodevelopmental Disability – How to Think and Practice. (2018, October). Presented at the American Academy of Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

Palisano, R. Promoting Capacities for Future Adult Roles and Healthy Adult Living: A Lifecourse Health Development Approach. (2018, October). Presented at the American Academy of Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

Proudfoot N. A., Au J. S., Timmons, B. W., & MacDonald, M. J. Associations between carotid artery longitudinal wall motion and established indicators of arterial stiffness in prepubertal children. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Roebroeck, M., Labhard, S., Gorter, J. W., Thomson, D., & RodbyBousquet, E. Transformative journeys into adulthood: Best practices to promote life skills and to receive emerging adults with childhood onset disabilities into adult care. (2018, October). Presented at the American Academy of Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

Sharma, B., Allison, D., Tucker, P., Mabbott, D., & Timmons, B. W. Cognitive and neural effects of exercise in traumatic brain injury: A systematic review of randomized and clinical controlled trials. (2018, October). Presented at Annual Meeting of the Canadian Society for Exercise Physiology (CSEP): Health in Motion Science in Exercise. Niagara Falls, Ontario, Canada.

Statler, J., Wilk, P., Timmons, B. W., Colley, R., & Tucker, T. Exploring the Influence of Childcare Enrollment on Physical Activity and Sedentary Time of a Nationally Representative Sample of Canadian Preschoolers. (2018, October). Presented at International Society for Physical Activity and Health Congress (ISPAH). London, England.

Young, R., McMurdie, G., Teplicky, R., Cross, A., Rosenbaum P. Adapting and adopting the ‘F-words’ in Infant and Child Development Programs. (2018, October). Workshop presented at Ontario Association of Infant and Child Development Symposium. Vaughn, Ontario, Canada.

Anaby, D. Participation as Means and Outcome in Pediatric Rehabilitation and the Impact of the Environment. (2018, September). Presented at the Brain Awareness Week Symposium the HAGUE University of Applied Sciences. The Hague, Netherlands.

Anaby, D.How PREP works in daily practice?(2018, September). Presented two workshops at the Brain Awareness Week Symposium at The HAGUE University of Applied Sciences. The Hague, Netherlands.

Campbell, W. Facilitating Integration of Rehabilitation Services through Training: Knowledge Implementation Toolkit (FIRST KIT) Project Findings: SLP Interviews. (2018, September). Presentation to the Association of Chief Speech-Language Pathologists for Ontario School Boards. Mississauga, Ontario, Canada.

Cross, A., & Teplicky R.The ‘F-words’ in child development: Crossing the bridge from research to practice. (2018, September). Workshop Presented at Kids Inclusive. Kingston, Ontario, Canada.

DeMatteo, C., Noseworthy, M., Connolly, J., Bock, N., Giglia, L., Hall, G., Mazurek, M., Obeid, J., Lin, C. Y., Thabane, L., & Timmons B. W. Fact or Fiction- What Is the True Story of Return to Activity Protocols for Youth Recovery Post-Concussion: Accelerometry Versus Self-Report. (2018, September). Presented at The Third International Conference on Pediatric Acquired Brain Injury. Belfast, Ireland.

Gorter, J.W. Understanding and preventing multimorbidity in adolescents and adults with cerebral palsy: An emphasis on health-promoting behaviours.(2018, August). Presented at the American Academy of Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

Rosenbaum, P., Ronen, G., & Kraus de Camargo, O. Leading Health Education…Ideas for a Brighter World. (2018, September). Presented at Health Sciences Education Council. Hamilton, Ontario, Canada.

Stoffel, A., James, L., Barnekow, K., & Khetani, M. A.Exploring the complexities of family engagement and the role of occupational therapy in early intervention. (2018, September). Short course presented at the American Occupational Therapy Association Children and Youth Specialty Conference. Milwaukee, Wisconsin, United States.

Driediger, M., Truelove, S., Johnson, A. M., Vanderloo, L. M., Burke, S. M., Irwin, J. D.,Timmons, B. W., & Tucker, P. The Impact of a Modified Outdoor Play Schedule on Preschoolers’ Physical Activity: An Extension of the Supporting Physical Activity in the Childcare Environment (SPACE) Study. (2018, August). Presented at North American Society of Pediatric Exercise Medicine (NASPEM). Oakland, Califonia, USA.

King-Dowling, S., Timmons, B. W., & Obeid, J. Motor proficiency and its relationship to physical activity in children with a chronic medical condition. (2018, August). Presented at Biennial Meeting of the North American Society for Pediatric Exercise Medicine (NASPEM). Oakland, California, United States.

Timmons, B. W.Degree of Parity between Typical and Special Populations in Physical Activity Measures. (2018, August). Presented at Modeling the Activity of Children and Youth (MACY) Workshop, U.S. National Cancer Institute. Rockville, MD, USA.

Truelove, S., Johnson, A. M., Vanderloo, L. M., Driediger, M., Burke, S. M., Irwin, J. D., Timmons, B. W., Gaston, A., & Tucker, P. Preschoolers’ Health-Related Quality of Life Following the Implementation of a Childcare Physical Activity Intervention. (2018, August). Presented at North American Society of Pediatric Exercise Medicine (NASPEM). Oakland, California, USA.

Cross, A.Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, July). Workshop presented at Children’s Respite Services. Sudbury, Ontario, Canada.

Gorter J. W, Van der Slot, W. “It is my life.” Self-management promotion in adolescents and young adults with childhood onset disability. (2018, July). Presented at International Society of Physical Medicine and Rehabilitation. Paris, France.

Gorter, J. W. The Formula for Health and Well-being in Individuals with Cerebral Palsy: Physical Activity, Sleep and Nutition. From Idea, to Results, to Clinical Implementation. (2018, July). Presented at International Society of Physical Medicine and Rehabilitation. Paris, France.

Jover, M., Simard, M. N., Maltais, D., Madieu, M., & Camden, C. From basic science to inclusive societies for children with neurodevelopmental disabilities: What is the future in Developmental Coordination Disorder (DCD)?. (2018, July). 12ème International Society of Physical and Rehabilitation Medicine World Congress. Paris, France.

McPhee, P. G., Claridge, EA., Noorduyn, SG., & Gorter, JW. Cardiovascular disease and related risk factors in adults with cerebral palsy: a systematic review. (2018, July). Presented at 12th International Society of Physical Rehabilitation Medicine World Congress (ISPRM 2018). Paris, France.

Missiuna, C.Partnering for Change: An evidence-based, tiered model for school-based services. (2018, July). Keynote speaker at Dyspraxia/DCD Ireland. Uxbridge, Dublin, Ireland. (Two talks: Parents & Clinicians, July 3; Researchers & Policymakers, July 4).

Peterson, M. D., Gorter, JW., McPhee, PG., van der Slot, W., & Ryan, J. Supporting lifelong health and physical activity among individuals with cerebral palsy: international perspectives. (2018, July). Long workshop at 12th International Society of Physical Rehabilitation Medicine World Congress (ISPRM 2018). Paris, France.

Cohen, E.The Coach Approach: Supporting Families of Children with Disabilities(webinar). (2018, June). Presented at Canadian Association of Paediatric Health Centres. Toronto, Ontario, Canada.

Cross, A. Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, June). Workshop presented at Kerry’s Place. Brampton, Ontario, Canada.

Cross, A.Partnering with families to mobilize a holistic family-centred approach to childhood disability: Lessons learned from an integrated knowledge translation project. (2018, June). Presented at McMaster University School of Rehabilitation Science Research Rounds. Hamilton, Ontario, Canada.

Brown D. M. Y., Mahlberg, N., Pohl, D., Timmons, B. W.,Bray, S., Streiner, D. K., Ferro, M., Hamer, S., Rosenbaum, P. L., & Ronen, G. M. Examining the impact of behavioral counselling on psychosocial mediators for physical activity among children with epilepsy. (2018, June). Presented at North American Society for the Psychology of Sport and Physical Activity (NASPSPA). Denver, Colorado, USA.

Ketelaar, M.,Voorman, J. Onderzoek en innovatie in de Kinderrevalidatie. (2018, June). Presented at Stakeholders Revalidatie Nederland. Netherlands.

Ketelaar, M. Samen kom je verder en wordt het beter! De patiënt als partner in onderzoek. (2018, June). Presented at Raad van Bestuur UMC Utrecht. Utrecht, Netherlands.

Kraus de Camargo, O. Connecting “Patient-Reported Problems” to “Patient-Reported Outcomes” using the ICF – Part 1 “ICF as a tool to translate problems into the realm of functioning.”(2018, June). Presented at 30^thAnnual Meeting European Academy of Childhood Disability. Tbilisi, Georgia.

Palisano, R. Health Development for Individuals with Chronic Health Conditions: Visualizing a Preferred Future. (2018, June). Presented at 23^rdAnnual JH Maley Lectureship, American Physical Therapy Association. Orlando, Florida, United States.

Palisano, R.Webinar: New Horizons for Pediatric Physical Therapy. (2018, June). Presented at Virginia Pediatric Special Interest Group.

Missiuna, C.Partnering for Change: An evidence-based, tiered model for school-based services. (2018, June). Keynote speaker at Developmental Coordination Disorder – United Kingdom Biannual Conference. London, England.

Phoenix, M. Pre-school speech language services, how can we promote parents’ attendance, participation and engagement?(2018, June). Presented at the Ministry of Children and Youth Services, Preschool Speech-Language Coordinators Meeting. Toronto, Ontario, Canada.

Phoenix, M. Promoting attendance, participation and engagement in children’s developmental rehabilitation services. (2018, June). Presented at the Department of Pediatrics Rounds, Ron Joyce Centre, Hamilton Health Sciences. Hamilton, Ontario, Canada.

Rosenbaum, P. “The ‘F-Words’ in Childhood Disability: Are We Ready to Shift Gears – and What does this Mean?”. (2018, June). Invited Pediatric Ground Rounds, University of Massachusetts. Boston, Massachusetts, United States.

Segers, E. W., van den Hoogen, A., van Eerden, I. C., Hafsteinsdóttir, T., Ketelaar, M. The content validation of the Dutch Family Empowerment Scale, for parents of children with a chronic condition. (2018, June). Presented at the Pediatric Nursing Association of Europe Congress. Athens, Greece.

Anaby, D., Camden, C., Lamontagne, M. E., & Thomas, A. Module 7: Évaluation et impact des processus de TC. École d’été en transfert des connaissances en santé.(2018, May). Presented at McGill University. Montreal, Quebec, Canada.

Anaby, D. Participation: a central concept to health living and wellness. (2018, May). Presented at the 20^thResearch Colloquium in Rehabilitation, McGill University. Montreal, Quebec, Canada.

Anaby, D., Bonnard, M. Participation-focused services in the school setting: Current profile of OT practice and possible directions. (2018, May). Presented at Scientific Day and Annual Meetings REPAR-INTER 2018 in collaboration with CIRRIS and CRIR. Quebec City, Quebec, Canada.

Campbell, W., Kennedy, J., Missiuna, C.,Pollock, N., Wu, S., & Yost, J. How Do School-Based Health Professionals Implement Universal Design for Learning?(2018, May). Oral presentation delivered at the Speech Language and Audiology Canada Bi-Annual Conference. Edmonton, Alberta, Canada.

Cohen, E. Who are the Frail Young? What descriptions of this population will be useful in providing high quality care?(2018, May).Presented at Frail Young Workshop, University of British Columbia. Vancouver, BC, Canada.

Cohen, E.Complex Care – Mapping Care for Medically Fragile Children. (2018, May). Presented at the Advancing Care for the Child with Continuing Critical Illness Symposium, Hospital for Sick Children. Toronto, Ontario, Canada.

Cohen, E.Intro to Complex Care. (2018, May). Presented at Pediatric Education Lecture Series (PeRLS), The Hospital for Sick Children. Toronto, Ontario, Canada.

Cross, A. Partnering with families to mobilize a holistic family-centred approach to childhood disability: Lessons learned from an integrated knowledge translation project. Graduate Course on Knowledge Exchange and Translation (HM 725). (2018, May). Presented at School of Rehabilitation Science, McMaster University. Hamilton, Ontario, Canada.

Cross, A., & Rosenbaum P.The ‘F-words’ Community: Exploring how families and service providers are moving the ‘F-words’ into Practice. (2018, May). Presented at McMaster University Developmental Pediatrics Academic Hour. Hamilton, Ontario, Canada.

Cross, A. Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, May). Workshop presented at Main Street Community Services. Ottawa, Ontario, Canada.

Cross, A. Applying family-centred care principles in practice: The ‘F-words’ approach. (2018, May). Workshop presented at SD & G Developmental Services. Cornwall, Ontario, Canada.

Cross, A., Grahovac, D., &Teplicky, R.The 6 F’s of Childhood Disability: Applying the ‘F-words’ in life and therapy. (2018, May). Workshop presented at Children’s Treatment Network. Alliston, Ontario, Canada.

Di Rezze, B. Emerging concepts in developmental paediatrics: WTF (What’s The Function)? Using Classification Systems of Functioning in your Pediatric Practice. (2018, May). Presented at the Canadian Paediatric Society Annual Conference. Quebec City, Quebec, Canada.

Gorter, J. W. Making it Happen: Putting the P-Words in Policy & Practice!(2018, May). Presented at Child Health Symposium. London, Ontario, Canada.

Gorter, J.W. The ABC’s of Transition to Adulthood!. (2018, May). Presented at the Canadian Down Syndrome Association Congress. Hamilton, Ontario, Canada.

Ketelaar, M.De patiënt als partner in onderzoek en innovatie. (2018, May). Presented at Publieksavond “Hersenen en de Maatschappij”, Hersencentrum UMC Utrecht met New Scientist. Utrecht, Netherlands.

McCauley, D., & Cross, A. Research in the Age of Social Media. McMaster University School of Rehabilitation Science Research Skills Series. (2018, May). Presented at McMaster University School of Rehabilitation Science Research Skills Series. Hamilton, Ontario, Canada.

Smits, D. W., Klem, M., Alsem, M., van Meeteren, K., Ketelaar, M. Patient and parent participation in research. (2018, May). Instructional course Conference European Academy of Childhood Disability (EACD). Tblisi, Georgia.

Phoenix, M. Parents’ attendance, participation and engagement: The journey to child health and happiness. (2018, May). Pursuit Award Presentation, Bloorview Research Institute. Toronto, Ontario, Canada.

Rosenbaum, P. Developmental Disability in the 21^stCentury: What Should We Know, and Do – and Why?(2018, May). Keynote lecture – the “Fondation Paralysie Cérébral/Fondation Motrice Prize” – at the 30^thannual European Academy of Childhood Disability European Academy of Childhood Disability. Tbilisi, Republic of Georgia.

Rosenbaum, P. F-Words in Childhood Disability: New Ideas, and a New Language, for a New Century. (2018, May). Presented atthe 30^thannual European Academy of Childhood Disability European Academy of Childhood Disability. Tbilisi, Republic of Georgia.

Rosenbaum, P. Family-Centred Service: Why Should I Care? (“Don’t’ We All Do That Already?”). (2018, May). Presented at the 30^thannual European Academy of Childhood Disability European Academy of Childhood Disability. Tbilisi, Republic of Georgia.

Rosenbaum, P.Writing abstracts: A Guide to Critical Appraisal. (2018, May). Presented at the 30^thannual European Academy of Childhood Disability European Academy of Childhood Disability. Tbilisi, Republic of Georgia.

Rosenbaum, P.Ethical Issues in Childhood Disability. (2018, May). Presented at the 30^thannual European Academy of Childhood Disability European Academy of Childhood Disability. Tbilisi, Republic of Georgia.

Anaby, D., Teplicky, R.,Jarvis, J., &Khetani, M. Environmentally-focused approaches forimproving children’s participation in occupation. (2018, April). Presented at the 4^thAnnual Scholarship of Practice Day, University of Illinois at Chicago. Chicago, Illinois, United States.

Cross, A., Grahovac D., & Teplicky R.The ‘F-words’ in Childhood Disability: Strong to stronger. (2018, April).Presented at Dufferin Peel. Mississauga, Ontario, Canada.

Cohen, E., Perrin, J., Brosco, J. A Conversation on the Emergence of Pediatric Complex Care. (2018, April). Presented at Lucille Packard Foundation for Children’s Health. Palo Alto, California, United States.

Cohen, E. Complex Care: What is it and how do we do it?(2018, April). Presented at Pediatric Education Lecture Series (PeRLS), The Hospital for Sick Children. Toronto, Ontario, Canada.

Cohen, E. Noon report. (2018, April). Presented at the Hospital for Sick Children. Toronto, Ontario, Canada.

Decker, M., & Kraus de Camargo, O.Digital Tools for the use of ICF. (2018, April). Presented at the Annual German ICF User Conference. Germany.

Di Rezze, B. Employment accommodations for adults with ASD. (2018, April). Presented at the Canadian Autism Spectrum Disorders Alliance. Ottawa, Ontario, Canada.

Gorter J.W. Organization of the transition from pediatric to adult rehabilitation: The McMaster experience. (2018, April). CP-Fagdag. Oslo, Norway.

Ketelaar, M. Alleen ga je sneller, samen kom je verder! Patiënt als partner in onderzoek en innovatie. (2018, April). Presented at Ketenavond CVA UMC Utrecht. Utrecht, Netherlands.

Kraus de Camargo, O., & Sykes, E. Think Local, Act Global – The Journey of the ICanFunction (mICF) Solution Apps for Health. (2018, April). Presented at Mohawk College. Hamilton, Ontario, Canada.

Kraus de Camargo, O.“Indvidualized or Standardized? Different Positions towards the use of Personal Factors in the ICF?” (2018, April). Presented at the Annual German ICF User Conference. Germany.

Stoffel, A., Barnekow, K., Khetani, M. A., & James, L. Occupational therapy role in promoting family engagement within early intervention processes of care. (2018, April). Short course presented at the American Occupational Therapy Association Annual Conference and Expo. Salt Lake City, Utah, United States.

Campbell, W. The International Classification of Functioning, Disability and Health (ICF): Connections to McMaster Speech-Language Pathology. (2018, March). Presentation to the Peel District School Board Speech-Language Pathology Department. Mississauga, Ontario, Canada.

Campbell, W. Tiered Models: Evidence and Implications from Research and Practice. (2018, March). Presentation to the Provincial Advisory Group, Ontario Special Needs Strategy, Integrated Delivery of Rehabilitation Services. Toronto, Ontario, Canada.

Cohen, E.New (and old) Approaches to Improve the Care of Children with Medical Complexity. (2018, March). Presented at Pediatric Grand Rounds, Southlake Regional Health Centre. Newmarket, Ontario, Canada.

Cross, A., & Rosenbaum, P. From research to practice: How families are applying the ‘F-words’ in everyday life! (2018, March). Presented at Cerebral Palsy Society of New Zealand. Auckland, New Zealand.

Gorter, J. W. The ABC’s of Improvement of Transition to Adulthood. (2018, March). Presented AusACPDM 2018 preconference workshop. Auckland, New Zealand

Gorter, J. W. Naar Canadees voorbeeld: samenwerken voor een goede zorg en een betere toekomst voor kinderen met ontwikkelingsbeperkingen en hun gezinnen!. (2018, March). Presented at Johanna KinderFonds Symposium. Rotterdam, Nertherlands.

Miller, L., Rosenbaum P., Cross, A., & Cavaleiros, V.Academic researchers and family stakeholders: A dance that needs both partners.(2018, March). Workshop presented at Australasian Academy of Cerebral Palsy and Developmental Medicine (AusACPDM) Conference. Auckland, New Zealand.

Phoenix, M. Promoting attendance, participation and engagement in children’s health services. (2018, March). Presented to the Ministry of Children and Youth Services, Early Child Development Branch. Toronto, Ontario, Canada.

Sahagian-Whalen, S., & Campbell, W. Introduction to Tiered Models and Universal Design for Learning. (2018, March). Presentation to the Halton Region Children’s Services. Oakville, Ontario, Canada.

Anaby, D. Improving Participation through Environmental-based Interventions: The Effectiveness of the PREP.(2018, February). Presented at CanChild Research Rounds, McMaster University. Hamilton, Ontario, Canada.

Campbell, W. Introduction to Universal Design for Learning. (2018, February). Invited half-day workshop for health professionals hosted by KidsAbility Centre for Children’s Development. Waterloo, Ontario, Canada.

Cohen, E.The SickKids Journey in Complex Care. (2018, February). Presented at Provincial Council of Maternal and Child Health, Complex Care for the North Strategy. Toronto, Ontario, Canada.

Cross, A., Grahovac, D., & Rosenbaum, P. The F-words in Childhood Disability: Crossing the bridge from research to practice. (2018, February). Workshop at Lansdowne Children’s Treatment Centre. Brantford, Ontario, Canada.

Gorter, J. W.Children of Today are Tomorrow’s Future: Rethinking Paediatric Health Care!(2018, February). Presented at CIHR Beste Brain Exchange. Charlottetown, PEI, Canada.

Kraus de Camargo, O.Using the ICF to assess children in the school environment. (2018, February). Presented at the Annual ICF Summer Course the at the Department of Public health at the University of São Paulo. São Paulo, Brazil.

Palisano, R.,Chiarello, L., & Bartlett, D. Health Conditions, Self-care, and Participation of Children with Cerebral Palsy: Monitoring Change Over Time. (2018, February). Presented at the Combined Sections Meeting, American Physical Therapy Association. San Antonio, Texas, United States.

Phoenix, M. Parents’ attendance, participation and engagement: The journey to child health and happiness. (2018, February). Presented at the Centre for Research on Children and Families. McGill University. Montreal, Quebec, Canada.

Phoenix, M. Parents’ attendance, participation and engagement: The journey to child health and happiness. (2018, February). Presented at the Centre Hospitalier Universitaire de Sherbrooke. Sherbrooke, Quebec, Canada.

Rosenbaum, P. Developmental/Behavioural Paediatrics in the 21^stCentury: Is Anything New, and Why Should I Care?(2018, February). Invited Grand Rounds University of Iowa. Iowa City, Iowa, United States.

Timmons, B. W. Physical Activity Recommendations for Children with a Chronic Medical Condition or Disability: What is the Evidence?(2018, February). Presented at Pediatric Grand Rounds, University of Ottawa and Children’s Hospital of Eastern Ontario. Ottawa, Ontario, Canada.

Tremblay M. S., Carson, V., Chaput, J-P., Adamo, K. B., Aubert, S., Choquette, L., Duggan, M., Faulkner, G., Goldfield, G. S., Gray, C. E., Gruber, R., Janson, K., Janssen, I., Janssen, X., Kuzik, N., LeBlanc, C., MacLean, J., Okely, A., Poitras, V. J., Rayner, M-E., Reilly, J. J., Sampson, M., Spence, J. C., & Timmons B. W. Canadian 24-Hour Movement Guidelines for the Early Years (0-4 years): An Integration of Physical Activity, Sedentary Behaviour, and Sleep. (2018, February). Presented at Active Living Research Conference. Banff, Canada.

Anaby, D.Improving the participation of youth with physical disabilities: The effectiveness of the PREP intervention. (2018, January). Presented at Monday Noon Seminar Series, Child Health and Human Development Program, McGill University Health Centre – Research Institute. Montreal, Quebec, Canada.

Bacauanu, J. P., Currie, K. D., Proudfoot, N. A., Timmons, B. W.,& MacDonald, M. J. The relationship between objectively-measured physical activity during the preschool years and endothelial function in school-aged children: a proposal. (2018, January). Presented at Ontario Exercise Physiology Conference. Barrie, Ontario, Canada.

Caldwell, H. A. T., Bochsler, A., Mitchell, D., Wilson, A., & B. W. Timmons. An overview of the development of the Physical Literacy Environmental Assessment (PLEA) Tool.(2018, January). Presented at The Sports for Life Canadian Summit. Gatineau, Canada.

Cohen, E.Critical Appraisal. (2018, January). Presented at 2018 Canadian Paediatric Review Program, McMaster University. Hamilton, Ontario, Canada.

Timmons, B.W.From Petri Dish to Playground: Research at the Child Health & Exercise Medicine Program. (2018, January). Presented at Children’s Hospital of Eastern Ontario Research Institute. Ottawa, Ontario, Canada.

Dupont-Gauthier, M., Fournier, F., Lapierre-Fortin, M., Laroche, A., Turcotte, M, & Camden, C. Feasibility of brain stimulation for children with DCD (Stimulation transcrânienne à courant direct chez les enfants ayant un trouble développemental de la coordination : Étude de faisabilité pour documenter les effets secondaires). (2018). School of Rehabilitation Symposium. Canada.

Abstracts

Bosak, D., Kaelin, V., Anaby, D., Teplicky, R., Jarvis, J. M., & Khetani, M. A. Caregiver creation of participation-focused care plans using Participation and Environment Measure Plus (PEM+). (2018, November). Poster presented at the Annual Research Day, Honors College, University of Illinois at Chicago. Chicago, Illinois, United States.

Gurga, A., Jarvis, J., Choong, K., & Khetani, M. A.Parent strategy use to promote a child’s home participation following pediatric critical illness. (2018, November). Poster presented at the Annual Research Day, College of Applied Health Sciences, University of Illinois at Chicago. Chicago, Illinois, United States.

Kennedy, J., Missiuna, C., Pollock, N., Sahagian-Whalen, S., Dix, L., & Campbell, W. Family Engagement in Tiered School-Based Occupational Therapy Services. (2018, November). Presentation at Ontario Association of Children’s Rehabilitation Services (OACRS) Annual Conference. Toronto, Ontario, Canada.

McManus, B., Richardson, Z., Scully, B., Litfin, J., & Khetani, M. A. Child and family characteristics and receipt of core early intervention services. (2018, November). Paper presented at the American Public Health Association Annual Conference. San Diego, California, United States.

Ozer, M., van der Meji-Ross, M., van de Grift, T., Mullender, M., Kreukels, B., Bouman, M., Buthcamper, M., Young-Afat, D., & Pusic, A, & Klassen, A. Personalized care for individuals with gender dysphoria – the development of a patient-reported outcome measure (PROM). (2018, November). Presented at the World Professional Association for Transgender Health. Buenos Aires, Argentina.

Phoenix, M., Popov, N., Kirubainathan, L., Kingsnorth, S., Ballantyne, M., Scratch, S., Hamdani, Y., &King, G. Opening conversations about mental health with parents of children with disabilities: A systematic review of clinically-useful screening tools. (2018, November). Presented at the Bloorview Research Institute Symposium. Hamilton, Ontario, Canada.

van de Grift, T. C., Elfering, L., Greijdanus, M., Maerten Smit, J., Bouman, M., Klassen, A. F., Pusic, A. L., Kaur, M., & Mullender, M. G. The BODY-Q Chest Module: Presentation of a novel patient-reported outcome measure and first findings using the instrument. (2018, November). Presented at the World Professional Association for Transgender Health. Buenos Aires, Argentina.

Au, J. S., Proudfoot N. A.,Timmons, B. W., & MacDonald, M. J.Retrograde shift in carotid artery longitudinal wall motion after one-year follow-up in childhood. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Bjelica, M.,Timmons, B. W.,& Obeid, J. The relationship between aerobic fitness and natural killer cell levels in children with juvenile idiopathic arthritis or type 1 diabetes mellitus. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Breckels, C., Isanboulian, N., McKeracher, C., Schwabe, K., Viveiros, H., Hylva, O., Gentles, S. J., Rosenbaum, P., & Di Rezze, B. Autism Classification System of Functioning: Social Communication – A preliminary analysis to expand for school-aged children with ASD. (2018, October). Geneva Centre for Autism (GCA) Symposium. Toronto, Ontario, Canada.

Caldwell, H. A. T., Tait, P., Obeid, J., DiCristofaro, N., McNicholas, P., & Timmons, B. W. Associations between sleep, sedentary time, physical activity and fitness in school-age children using compositional analysis. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Chen, R., Obeid, J., King-Dowling, S., & Timmons B. W. The relationship between perceived well-being and physical activity in children with juvenile idiopathic arthritis. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Cross, A. ENVISAGE Poster. (2018, October). Presented at Canadian Association of Paediatric Health Centres (CAPHC). Edmonton, Alberta, Canada.

Khetani, M. A., Richardson, Z., Scully, B., Litfin, J., & McManus, B. Child and family characteristics and receipt of core early intervention services.(2018, October). Paper presented at the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM) Annual Conference. Cincinnati, Ohio.

Jarvis, J., Choong, K., & Khetani, M. A.Effect of home participation strategies and rehabilitation service use on parental stress following pediatric critical illness.(2018, October). Poster presented at the American Congress in Rehabilitation Medicine Conference. Dallas, Texas, United States.

Jarvis, J., Gurga, A., Choong, K., & Khetani, M. A. Parent strategy use to promote a child’s home participation following pediatric critical illness.(2018, October). Poster presented at the American Congress in Rehabilitation Medicine Conference. Dallas, Texas, United States.

King-Dowling, S., McNicholl, T., Wellman, S., Obeid, J., Timmons, B. W., & Cairney, J. Motor coordination and its relationship to movement patterns and heart rate responses during submaximal exercise in young children. (2018, October). Presented at Proceedings of the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Leonardi, M., Lee, H., & Kraus de Camargo, O. Functioning and Disability Reference Group Annual Report. (2018, October). Presented at WHO-FIC Network Annual Meeting. Seoul, Republic of Korea.

Mezil, Y. A., Obeid, J., &Timmons, B. W. The systemic effects of exercise on regulators of muscle and bone in girls and women. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

McPhee, P., Verschuren, O., Peterson, M., Tang, A., & Gorter, J. W. The formula for health and wellbeing: cross-sectional data on physical activity, sleep, and nutrition in individuals with cerebral palsy. (2018, October). Scientific presentation at 72nd Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine. Cincinnati, Ohio, United States.

Poulsen L et al. BODY-Q: patient-reported outcomes in weight loss and body contouring surgery: a cross-sectional analysis using the BODY-Q. (2018, October). Presented at ISAPS. Miami Beach, Florida, United States.

Proudfoot, N. A., Au, J. S.,Timmons, B. W. & MacDonald, M. J. Associations between carotid artery longitudinal wall motion and established indicators of arterial stiffness in prepubertal children. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Rigau, B., Murphy, N., Litfin, J., Scully, B., McManus, B., & Khetani, M. A.(2018, October). Lessons learned in piloting an electronic assessment option for family-centered care in early intervention. Abstract accepted for poster presentation at the ZERO TO THREE Annual Conference. Denver, Colorado, United States.

Sharma, B., Allison, D., Tucker, P., Mabbott, D., & Timmons, B. W.Cognitive and neural effects of exercise in traumatic brain injury: A systematic review of randomized and clinical controlled trials. (2018, October). Presented at the Canadian Society for Exercise Physiology 51st Annual General Meeting. Niagara Falls, Ontario, Canada.

Sierakowski, K., Sanchez, K. E., Dean, N., Pusic, A., Cano, S., Griffin, P., Bain, G., Lalonee, D., & Klassen, A. Development of the HAND-Q: A qualitative study to understand the patient perspective of their hand condition, treatment and outcome. (2018, October). Presented at the South Australian Hand Surgery Society Annual Meeting. Adelaide, Australia.

Van den Berg, L., Versteegden, D., Geerards, D., Nienhuijs, S. W., Klassen, A. F., Pusic, A. L., & Hoogbergen, M. M. Body contouring surgery: the key to a better weight maintenance?(2018, October). Presented at ISAPS. Miami Beach, Florida, United States.

Van Haren, E., Poulsen, L., Sorensen, J. A., Hoogbergen, M. M., Pusic, A. L., &Klassen, A. F. How we developed the BODY-Q: a patient –reported outcome instrument for weightloss and body contouring. (2018, October). Presented at ISAPS. Miami Beach, Florida, United States.

Kazato, H., Van Den Berg, L., Poulsen, L., Sorensen, J. A., Rose, M., Klassen, A. F., Pusic, A. L., Hoogbergen, M. M. BODY-QW: improvements in physical function and symptoms after abdominoplasty. (2018, September). Presented at the International Federation for the Surgery of Obesity and Metabolic Disorders. Dubai, United Arab Emirates.

Khetani, M. A., Richardson, Z., Scully, B., Litfin, J., & McManus, B. Child and family characteristics and receipt of core early intervention services.(2018, September). Poster presented at the CityMatCH Leadership and Maternal and Child Health Epidemiology Conference. Portland, Oregon, United States.

Lepiane, D., Patel, D., Tiberi, M., Wilk, N., & Anaby, D. Capturing participation patterns of youth with disabilities through the Aday App: A mixed-methods study. (2018, September). Poster presented at the OEQ colloque. Saint-Hyacinthe, Quebec, Canada.

King-Dowling, S.,Timmons, B. W.,& Obeid, J. Motor proficiency and its relationship with physical activity in children with a chronic medical condition. (2018, August). Presented at North American Society for Pediatric Exercise Medicine (NASPEM) 2018 Conference. Oakland, California, United States.

Kirubainathan, L., Phoenix, M., Popov, N., Kingsnorth, S., Ballantyne, M., Scratch, S., Hamdani, Y., & King, G. Opening conversations about mental health with parents of children with disabilities. (2018, July). Presented at Ward Summer Student Presentation Day, Holland-Bloorview Kids Rehabilitation Hospital. Toronto, Ontario, Canada.

McPhee, P. G., Claridge, E. A., Noorduyn, S. G., & Gorter, J. W. Cardiovascular disease and related risk factors in adults with cerebral palsy: a systematic review. (2018, July). Presented at 12th International Society of Physical Rehabilitation Medicine World Congress (ISPRM 2018). Paris, France.

Popov, N., Phoenix, M., Kirubainathan, L., Kingsnorth, S., Ballantyne, M., Scratch, S., Hamdani, Y., & King, G. To screen or not to screen? Exploring parent mental health screening in children’s rehabilitation services. (2018, July). Presented at Ward Summer Student Presentation Day, Holland-Bloorview Kids Rehabilitation Hospital. Toronto, Ontario, Canada.

Anaby, D., Tremblay, S., Mercerat, C. Beyond the activity itself: The impact of the PREP intervention. (2018, June). Paper presented at the Canadian Association of Occupational Therapists Conference. Vancouver, British Columbia, Canada.

Anaby D., Teplicky R., & Turner L. Environmental-based approaches to participation – Making it work in practice. (2018, June). Paper presented at the Canadian Association of Occupational Therapists Conference. Vancouver, British Columbia, Canada.

Brown, D. M. Y., Mahlberg, N., Pohl, D.,Timmons, B.W., Bray, S., Streiner, D. L., Ferro, M., Hamer, S., Rosenbaum, P. L., & Ronen, G. M. Examining the impact of behavioral counselling on psychosocial mediators for physical activity among children with epilepsy. (2018, June). Presented at North American society for the Psychology of Sport and Physical Activity. Denver, Colorado, United States.

Camden, C., Campbell, W., Stewart, D., Dix, L., McCauley D., & Missiuna, C. Implementing a new school-based occupational therapy service delivery model: What do stakeholders say about access, service quality and sustainability?(2018, June). Poster presented at the Developmental Coordination Disorder – United Kingdom Biannual Conference. London, England.

Conti, J.,Dancose, S., Scarcella, C., Greenberg, J., & Anaby, D. The effectiveness of community participation on body functions: An evaluation.(2018, June). Poster presented at the Canadian Association of Occupational Therapists Conference. Vancouver, British Columbia, Canada.

Gagnon, M., Couture, M., Hui, C., Obradovic, N, Camden, C., Lemay, L., & Jasmin, E. Occupational therapy interventions for preschool children who screened negative for autism spectrum disorder. (2018, June). Poster presented at American Association on Intellectual and Developmental Disabilities (AAIDD).

Gagnon, M., Couture, M., Obradovic, N., Camden, C., Lemay, L., Myre-Bisaillon, J., Puentes-Neuman, G., Boudreau, J., & Jasmin, E. Interventions for preschool children with sensory or motor difficulties. (2018, June). Poster presented at Canadian Association of Occupational Therapists Conference – CAOT Conference 2018.

Pollock, N., Sahagian-Whalen, S., Dix, L., Stewart, D., & Missiuna, C. Shifting practice with children with Developmental Coodination Disorder: What works?(2018, June). Poster presented at the Developmental Coordination Disorder – United Kingdom Biannual Conference in London, England.

Stewart, D., Hecimovich, C., Pollock, N., Campbell, W., Camden, C., Bennett, S., Gaines, R., McCauley, D., Cairney, J., O’Reilly, D., Floyd, K., Haughton, D., Wlodarczyk, K., Dix, L.,DeCola, C., & Missiuna, C. Partnering for Change: An Innovative and Evidence-based Model for Managing Children with Developmental Coordination Disorder in School Settings.(2018, June). Poster presented at the Developmental Coordination Disorder – United Kingdom Biannual Conference. London, England.

Teplicky, R., Anaby, D., Jarvis, J., Gurga, A., Turner, L., & Khetani, M. PEM-Plus: An e-health tool for family-centred care planning support. (2018, June). Poster presented at the Canadian Association of Occupational Therapists Conference. Vancouver, British Columbia, Canada.

Thomas, A., Kairy, D., Anaby, D., Bussières, A., Camden, C., Lamontagne, M. E., Rochette, A., Shikako-Thomas, K., & Montpetit-Tourangeau, K. Development and implementation of a new knowledge translation strategic initiative in rehabilitation. (2018, June). Poster presented at KT Canada Scientific Meeting.

Alsem, M., van Meeteren, K., Siebes, R., Visser-Meily, A., Jongmans, M., Verhoef, M., & Ketelaar, M. Empowerment of parents of children with disabilities: results of the use of an online information tool as preparation for consultation with a rehabilitation physician. (2018, May). Oral Presentation presented at Conference European Academy of Childhood Disability (EACD). Tblisi, Georgia.

Anaby, D., Turner L., & Teplicky R.Making Participation Happen: The PREP Intervention Approach. (2018, May). Presented at the Canadian Down Syndrome Conference. Hamilton, Ontario, Canada.

Cohen, E., Ho, M., Jiwan, A., Kulandaivelu, Y., Lalloo, C., McKillop, A., Orkin, J., & Stinson, J. Paediatric Project ECHO: Exploring the Educational Needs of Ontario Healthcare Provides with Interest in Caring for Children with Medical Complexity. (2018, May). Presented at Department of Paediatrics Research Day, The Hospital for Sick Children. Toronto, Ontario, Canada.

Costain, G., Hayeems, R. Z., Snell, M., Marano, M., Reuter, M., Walker, S., Basran, R., Cohen, E., Cohn, R. D., Marshall, C. R., Orkin, J., Scherer, S. W., Shuman, C., Stavropoulos, D. J., & Meyn, M. S. Whole genome sequencing as a tool for genetic diagnosis and gene discovery in children with medical complexity (oral presentation). (2018, May). Presented at the Department of Paediatrics Research Day, The Hospital for Sick Children. Toronto, Ontario, Canada.

Costain, G., Hayeems, R. Z., Snell, M., Marano, M., Reuter, M., Walker, S., Basran, R., Cohen, E., Cohn, R. D., Marshall, C. R., Orkin, J., Scherer, S. W., Shuman, C., Stavropoulos, D. J., & Meyn, M. S. Whole genome sequencing as a tool for genetic diagnosis and gene discovery in children with medical complexity (poster presentation). (2018, May). Presented at the Department of Paediatrics Research Day, The Hospital for Sick Children. Toronto, Ontario, Canada.

Gentles, S. J., Di Rezze, B., Duku, E., Georgiades, S.,Zwaigenbaum, L., Hidecker, M. J. C., & Rosenbaum, P. Estimating Social Communication Functioning (ACSF:SC) from ADOS Data: Development of an Algorithm. (2018, May). Presented at the International Society for Autism Research (INSAR) Annual Meeting. Rotterdam, Netherlands.

Hounsell, K., Arje, D., Cohen, E., Miller, D., Orkin, J., Soscia, H., & Zahavi, A. Housing and Health: An Exploration of Housing Need in Children with Medical Complexity. (2018, May). Presented at Canadian Paediatric Society 95^thAnnual Conference. Quebec City, Quebec, Canada.

Huth, K., Orkin, J., Cohen, E., Audcent, T., Major, N., Issa, K., & Sbrocchi, A., Long-gagne, S., Miller, D., Arje, D., Weiser, N.: E-PAS. A Mixed-Methods Evaluation of Curricular Modules in the Care of Children with Medical Complexity. (2018, May). Presented at Pediatric Academic Societies Annual Meeting. Toronto, Ontario, Canada.

Jasmin, E., Gagnon, M., Couture, M.,Camden, C., Lemay, L., & Boudreau, J. How can we support preschool children not meeting autism spectrum disorder screening criteria but having sensory or motor difficulties?. (2018, May). Poster presented at Congress World Federation of Occupational Therapists 2018.

Mercerat, C., Anaby, D., & Tremblay, S. Intervention PREP : Promouvoir la participation sociale des jeunes avec un handicap : la perspective des parents. (2018, May). Communication libre présentée dans le cadre de la 83^e édition du Congrès l’Association francophone pour le savoir (ACFAS). Chicoutimi, Québec.

McKay, T., Hounsell, K. G., Orkin, J.,Cohen, E., Soscia, J., Netten, K., & Zahavi, A. Housing and Health: An Exploration of Housing Need in Children with Medical Complexity. (2018, May). Presented at Canadian Paediatric Society 95^thAnnual Conference. Quebec City, Quebec, Canada.

Mukerji, A., Shafey, A., Jain, A., Cohen, E., Shah, P., Shah, V., & Sander, B. Cost-effectiveness of pulse oximetry screening for critical congenital heart defects in Ontario. (2018, May). Presented at Canadian Paediatric Society 95^thAnnual Conference. Quebec City, Quebec, Canada.

Nelson, K., Rosella, L., Mahant, S., & Cohen, E. Effect of Permanent Feeding Tube Placement of Healthcare Utilization Among Children with Neurologic Impairment.(2018, May). Presented at Pediatric Academic Societies Annual Meeting. Toronto, Ontario, Canada.

Samuels-Kalow, M., Neuman, M. I., Rodean, J., Marin, J., Laronson, P. L., Hall, M., Freedman, S. B., Morse, R. B.,Cohen, E., Simon, H. K., Shah, S. S., Berry, J. G., Alpern, E. R.: E-PAS. Adult Patients in the Pediatric Emergency Department: Demographics, Care Patterns and Disposition. (2018, May). Presented at Pediatric Academic Societies Annual Meeting. Toronto, Ontario, Canada.

Saunders, N., Cohen, E., Diong, C., Guan, J., Ray, J.: E- PAS. Cost-Effectiveness of Pulse Oximetry Screening for Critical Congenital Heart Defects in Ontario. (2018, May). Presented at Pediatric Academic Societies Annual Meeting. Toronto, Ontario, Canada.

Saunders, N., Ray, J., Diong, C., Guan, J., & Cohen, E. Maternal-child primary care provider concordance: a population-based cohort study exploring health outcomes. (2018, May). Presented at Pediatric Academic Societies Annual Meeting. Toronto, Ontario, Canada.

Smits, D. W., van Gorp, M., van Wely, L., Verheijden, J., Voorman, J., Wintels, S., & Ketelaar, M. Participation in social roles of adolescents with cerebral palsy: accomplishment and satisfaction. (2018, May). Oral Presentation presented at Conference European Academy of Childhood Disability (EACD). Tblisi, Georgia.

Tremblay, S., Anaby, D., Law, M., Teplicky, R., Turner, L., Majnemer, A., Feldman, D., & Avery, L. Improving the participation of youth with physical disabilities in community-based occupation: The effectiveness of the PREP intervention. (2018, May). Paper presented at the World Federation of Occupational Therapists (WFOT) 2018 Congress. Cape Town, South Africa.

Tremblay, S., Anaby, D., Di Marino, E., & Khetani, M. The effect of child, family and environment factors on the participation of young children with disabilities. (2018, May). Poster presented at the World Federation of Occupational Therapists (WFOT) 2018 Congress. Cape Town, South Africa.

Nelson, K., Rosella, L., Mahant, S., Guttmann, A., & Cohen, E. Effect of Permanent Feeding Tube Placement on healthcare Utilization Among Children with Neurologic Impairment(TH340A). (2018, April). Presented at the Annual Assembly of the American Academy of Hospice and Palliative Medicine and the Hospice and Palliative Nurses Association. Boston, Massachusetts, United States.

Costain G, Hayeems RZ, Snell M, Marano M, Reuter M, Veenma D, Walker S, Basran R, Cohen E, Cohn RD, Marshall CR, Orkin J, Scherer SW, Shuman C, Stavropoulos DJ, Meyn MS. Whole genome sequencing as a tool for genetic diagnostic and gene discovery in children with medical complexity. (2018, March). Poster presented at the Genomics of Rare Disease. Cambridge, United Kingdom.

Eisen, I., Rivard, L., &Campbell, W. Implementing Universal Design for Learning in a Health Professional Graduate Program: A Qualitative Study of Faculty Perspectives. (2018, March). Poster Presentation at BHSc (Honours) Program Poster Day, McMaster University. Hamilton, Ontario, Canada.

van Alphen, T., Poulsen, L., van Haren, E., Lind Jacobsen, A., Tsangaris, E., Sørensen, J. A., Hoogbergen, M., van der Hulst, R., Pusic, A.,Klassen, A. ‘De vertaling van de WOUND-Q, een nieuwe PROM voor chronische wonden’.(2018, March). Presented at the NVPC meeting. Ede, the Netherlands.

O’Neil, M., Deutsch, J., Westcott McCoy, S., & Levac, D. Clinical reasoning: Video games and virtual reality in pediatric physical therapy practice. (2018, February). Presented at the APTA Combined Sections Meeting. New Orleans, LA, USA.

Grants

More than 8 million dollars in research funding for 2018

CanChild Scientists received 36 research grants as Principal Investigator, Co-Investigator or Collaborator.

As Principal Investigator or co-Principal Investigator, CanChild Scientists were awarded more than $8M CAD, $25K USD and €123K EURO.

CanChild Scientists at McMaster University received approximately $6M in 2018 for research conducted to further the field of child health and disability.

View all grants

American Academy for Cerebral Palsy and Developmental Medicine Care Pathway Grant. $5,000 USD. 2018. “Physical activity promotion in individuals with Cerebral Palsy over the Lifecourse.”Gorter, J. W. (PI),McPhee, P., Balemans, A., Hurvitz, E., Peterson, M., Roebroeck, M., Benner, J., van den Berg-Emons, R., van der Slot, W., & Verschuren, O.

Autism Speaks Canada Grant. $40,000 CAD. 2018-2019. Expanding summer employment learning opportunities for adolescents with ASD in the Job-Train Program. Di Rezze, B. (PI), Brennan, R.

Canadian Institutes of Health Research (CIHR) Operating Grant: Early Career Investigator Grants in Maternal, Reproductive, Child & Youth Health. $210,000 CAD. 2018-2021. Using telerehabilitation to support families of children with motor difficulties aged 3-8 years old. A patient-centred, mixed method innovative pragmatic trial (Téléréadaptation pour les enfants avec difficultés motrices: un essai pragmatique). Camden, C., Maltais, D., Jasmin, E., Légaré, F., Pratte, G., Corriveau, G., Duchow, H. J., Baillargeon J., Zwicker, J. G., Lane, J., Hurtubise, K. M., Goyette, M., Couture, M., Morin, M., Tousignant, M., Kraus de Camargo, O.,Roberge, P., Schell, S. B., Poder, T., Schuster, T., Nguyen, T., Fortier, M., Généreux, M.

Canadian Institutes of Health Research, Project Scheme Grant. $1,565,000 CAD. 2018-2022.When Expertise Collides: Using Experienced-Based Co-Design to Enhance Care for Children with Medical Complexity in the Pediatric Intensive Care Unit.Rennick, JE., Vigneault, K., Buchanan, F., Carnevale, F., Cohen, E., Dryden-Palmer, KD., Fontela, P. S., Law, S. K., Patel, H., Razack, SI., St-Sauveur, I., Zhang, X.

Canadian Institutes of Health Research, Project Scheme Grant: Child Health. $336,600 CAD.2018-2021. Schizophrenia understood in the perinatal period: Psychiatric outcomes and reproductive trajectories (SUPPORT) – Part 3: Child Health. Vigod, S. N., Brown, H., Dennis, C. L., Cohen, E., Saunders, N., Tu, K., Holloway, A., Morrison, K., Ray, J. G., Oberlander, T., Hanley, G., Berard, A.

Canadian Occupational Therapy Foundation Grant. $5,000 CAD. 2018-2019. Breaking down barriers: Understanding family engagement in school-based occupational therapy services. Kennedy, J., Campbell, W.(PI).

CanChild, Centre for Childhood Disability Research “Research making a difference” Research Grant. $10,000 CAD. 2018-2019. Measuring Clinician Use of Motor Learning Strategies in Pediatric Motor Skills-based Interventions. Ryan, J., Wright, V., & Levac, D.

Centre de réadaptation en déficience intellectuelle et trouble envahissant du développement. $5,000 CAD. 2018-2019. Quand doit-on donner le diagnostic de TAC aux enfants ayant une DI ou un TSA, et quels types d’interventions leur offrir? Camden, C., Couture, M.

Centre de recherche du CHUS, Programme de financement projets structurants. $77,532 CAD. 2018-2019. Diagnostic populationnel sur le développement global des enfants de 3-5 ans en situation de vulnérabilité et mise en place d’une étude de cohorte (Evaluation of the development of vulnerable children aged 3-5 y.o. & implementation of a study cohort). Camden, C., Couture, M., Argumendes Charles, M., Gaboury, I., Généreux, M., Hudon, C., Loignon, C., Roberge, P., Roy, M.

Chaire de recherche en paralysie cérébrale. $15,000 CAD. 2018-2019. Exploration de l’efficacité d’un guide de pratique concernant l’activité physique des enfants ayant un trouble développemental de la coordination sur des déterminants de changement des pratiques de physiothérapeutes (Physical activity for DCD). Maltais, D., Camden, C., Demers, I., Lamontagne, M., Moffet, M.

CIHR Project Grant. $371,025 CAD. 2018-2023. Participatory action research for the development of a tailored pediatric-adult transition program. Racine, E., Bogossian, A., Clermont, M., Fournier, A., Gorter, J. W.

CIHR Grant. $378,676 CAD. 2018-2021. ENVISAGE: ENabling VISion And Growing Expectations. A Program to Support Parents of Children Newly Diagnosed with A Neurodisability. Rosenbaum, P. L. (PI), Miller, L. (PI), Cross, A., Hanna, S., Imms, C., Ziviani, J., Cavalieros, V., Martens, R.

CIHR Strategy for Patient-Oriented Research (SPOR) – Patient-Oriented Research Collaboration Grants. $80,000 CAD. 2018-2019. Development of a Patient-Reported Outcome Instrument for Gender Confirming Treatments: The TRANS-Q. Klassen, A.,Pusic, A., McEvenue, G., Rowe, W., Kaur, M., Johnson, N., & Semple, J.

Conseil National de Recherche sur l’Intégration Sociale (CNRIS), Équipe émergente. $100,000 CAD. 2018-2020. Soutenir la participation sociale des personnes ayant un DI-TSA à travers la consolidation d’une équipe de recherche visant l’optimisation de l’organisation des services intersectoriels (Team supporting participation for individuals with autism). Couture, M., Camden, C., Beauregard, F., Bussières, È., Caouette, M., Couture, G., Fecteau, S., Flanagan, T., Jacques, C., Simard, M., Kalubi, J.

Fonds de recherche du Québec – Santé (FRQS), Réseau Provincial de Recherche en Adaptation Réadaptation. $24,780 CAD. 2018-2019. Activités de concertation et aux ressources communes du groupe de recherche en transfert de connaissances.Kairy, D., Thomas, A., Camden, C., Ahmed, S., Anaby, D., Lamontagne, M. E., Rochette, A., Shikako-Thomas, K.

Foundation of Orthopaedic Trauma Grant. $20,000 USD. 2018-2019. Development of a Patient-Reported Outcome Instrument for Severe Lower Extremity Trauma: Cognitive Debriefing Interviews. Mundy, L., Gage, M., Hollenbeck, S. T., Verheydan, C., Pusic, A., & Klassen A.

Hamilton Academic Health Sciences Organization (HAHSO) AFP Innovation Fund. $199,792.13 CAD. 2018-2020. Autism Classification System of Functioning: Social Communication (ACSF:SC) – Expansion, Testing, and Feasibility for Charting of Early Trajectories from Toddlers to School-Aged Children. Rosenbaum, P. (PI),Di Rezze, B. M. (PI), Roncadin, C., Georgiades, S., Duku, E., Gentles, SJ.,Zwaigenbaum, L., Hidecker, M. J. C.

Hamilton Academic Health Sciences Organization AHSC AFP Innovation Fund.$196,786 CAD. 2018-2020. Innovative assessment of spoken language comprehension in children with cerebral palsy: Development of the Canadian English C-BiLLT. Gorter, J. W., Kraus de Carmago, O.

Hamilton Health Sciences New Investigator Fund. $35,000 CAD. 2018-2019. Autism Classification System Of Functioning: Social Communication – Expansion & Testing For Toddlers. Di Rezze, B. (PI), Georgiades, S., Roncadin, C., Zwaigenbaum, L., Hidecker, MJC., Duku, E., Rosenbaum, P.

Institut universitaire de première ligne en santé et services sociaux. $40,000 CAD. 2018-2020. Portrait de la pratique et évaluation du travail de proximité des agents de milieux en RLP estriens: Quels effets sur la capacité des parents à favoriser le développement global des enfants. Roy, M., Camden, C., Benkhalti, M., Couturier, Y., Genereux, M., Roy, M. A., Bibeau, L., Bouchard, D., Clapperton, I., Durocher, N., Legendre, C. M., Ouelette, M., Roby, K.

Kids Brain Health Network. $99,750 CAD. 2018-2020. Family Engagement Certification Course Development Project. Gorter, J. W., Solomon, P.,Cross, A., Thomson, D., Putterman, C., McCauley, D.

Lyle S. Hallman Foundation Grant. $672,452 CAD. 2018-2019. ENGAGE – Supporting Attendance and Participation. Phoenix, M., Fischer, M., King, G., Simpson, S.

2018 Norman Saunders Complex Care Initiative Grant Competition. $41,194 CAD.2018-2019. High flow nasal cannula therapy for the management of obstructive sleep apnea in children with complex medical conditions. Narang, I., Amin, R., Cohen, E., Baker, A.

Office des Personnes Handicappés du Québec REPAR. $40,000 CAD. 2018-2020. Favoriser la participation sociale des enfants avec un trouble développemental de la coordination par la création d’un environnement social adapté : le programme MOTIFORM (fostering participation for children with DCD: a social program). Blanchet, M. E., Camden, C., Carmant, L., Cavallo, S., Couture, M., Leduc, E., Lippé, S., Nadeau, K., Simard, M.

Ontario Brain Institute Integrated Discovery Program. $3,500,000 CAD. 2018-2023. Childhood Cerebral Palsy Integrated Neuroscience Discovery Network “CP-NET” – Phase 3. Fehlings, D., Chau T., de Veber, G., Fehlings, M., Gorter, J.W., McCormick, A., Miller, S., Rosenbaum, P., Scherer, S., van der Kooy, D.

Ontario Center of Excellence (OCE) Health Technologies Fund. $400,581 CAD. 2018-2020. Enhancing self-management for individuals with severe disabilities through a cloud connected universal interface: Tecla-e. Chau, T., Meza, M., Whitmore, E., Peacocke, S., Adenwala, M., Seto, E., Gorter, J.W., Wan, E., Penner, M., Almaoui, M.

McMaster University Faculty of Health Sciences Freezer Replacement Program. $11,000 CAD. 2018-2018. Timmons, B. W.

McMaster University Faculty of Health Sciences Infrastructure Competition. $12,000 CAD. Timmons, B. W.

Ministry of Community and Social Services Employment and Modernization Fund. $195,909 CAD. 2018-2020. Enhancing volunteerism: Enhancing Quality of Life. Community Living Ajax-Pickering-Whitby, Rampton, G., Di Rezze, B. M.

Phelps Stichting Grant. $35,285 EUR. 2018-2019. Research Agenda CP. Ketelaar, M.

Provost’s Research Excellence Interdisciplinary Fund, McMaster University. $15,000 CAD. 2018-2019. Transitions to employment for secondary school students with Autism Spectrum Disorders (ASD). Badone, E. (PI), Di Rezze, B. (PI).

Public Health Office – Eastern Township (Direction de santé publique – CIUSSS de l’Estrie-CHUS). $23,000 CAD. 2018-2019. Determinants of optimal children’s development in Eastern Township – in the SPOP survey 2018 (Les déterminants du développement optimal des enfants en Estrie – dans l’Enquête de santé populationnelle estrienne (ESPE) 2018). Camden, C., Couture, M., Bergeron, J., Clapperton, I., Dion, E.

Research Making a Difference Research Grant Opportunity, CanChild Centre for Childhood Disability Research. $9,945.88 CAD. 2018-2019. The Readiness Support Program: Innovation to promote access and engagement in rehabilitation. Phoenix, M. (PI), King, G. (PI), Fischer, M., Erickson, R., Simpson, S.

Revalidatie Fonds. $88,500 EUR. 2018-2019. Impact op Meedoen (Impact on Participation).Ketelaar, M.

Star Foundation (Fondation des Étoiles). $15,000 CAD. 2018-2019. An online intervention for children with motor difficulties (Évaluation d’une intervention en ligne pour les familles d’enfants de 5 à 12 ans dépistés avec des difficultés de motricités et n’ayant pas accès aux services publics de réadaptation). Camden, C., Gaboury, I., Lepage, J., Couture, M., Généreux, M., Fraser, W., Demers, C., Bertelle, V.

Western University’s Medical and Health Sciences Review Board Western Strategic Support for CIHR Success Seed Grant. $25,000 CAD. 2018-2019. Determining the Natural Course of Fatigue in Children and Adolescents with Cerebral Palsy. Brunton, L., Condliffe E.

Revenue

The CanChild Shop, Custom Contracts, and the Measurement Analysis Service continue to be steady source of CanChild revenue. In 2018, the shop brought in approximately $700, 000 in revenue, which supports grant development, knowledge translation, and ongoing revenue activities.

As part of the Measurement and Analysis Service (MAS), the Ontario Ministry of Children, Community and Social Services contracted CanChild to evaluate the family-centredness of service delivery in the Ontario Autism Program and the Coordinated Service Planning program using the Measure of Processes of Care (MPOC). During the first part of the year, CanChild worked with the ministry and the agencies to customize the survey and the evaluation process for the two programs. Over the second part of the year, CanChild received a total of 785 responses from families across Ontario. We submitted a summary of the findings and recommendations to enhance family-centred service delivery to the ministry and each agency. We are currently exploring options for expanding the successful Measurement and Analysis Service.

CanChild measures have steady popularity in clinical use throughout North America as we continue to manage requests for Electronic Integration into health record systems. Additionally, we receive consistent interest from the pharmaceutical industry, with 2-3 companies approaching CanChild for licensing each year. Next year, we will see more continued development and update of CanChild measures as well as connection with the market to provide greater access to our products.

Engagement

3,932 Facebook likes, 290,193 website visitors, and 3,514 twitter followers for 2018

CanChild uses different methods to engage with our knowledge users. In 2018, CanChild had:

290,193 CanChild website visitors from 179 countries
4,326 subscribers to the CanChild Today! Newsletter
154 members in our Parents Participating in Research closed Facebook group

Connect with us!

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The Centre

News and Accomplishments

Selected News & Accomplishments

Dr. Mary Law (McMaster University)
Awarded the distinction Officer of the Order of Canada. The highest civilian honour in the country recognized Dr. Law for her “transformative work in the field of occupational therapy, which has set the standard for research and shaped clinical practice in Canada.”

Dr. Peter Rosenbaum (McMaster University)
Recipient of the Fondation Paralysie Cérébral/Fondation Motrice Prize from the Fondation Paralysie Cérébral in Paris during the 30th Annual European Academy of Childhood Disability (EACD) held in Tbilisi, Republic of Georgia.

Dr. Jan Willem Gorter (McMaster University)
Recipient of the McMaster Faculty of Health Sciences Graduate Student Federation (HSGSF) Excellence in Graduate Student Supervision Award for mentorship of the graduate students.

Dr. Cheryl Missiuna (McMaster University)
Awarded as a Patron of the Dyspraxia/DCD Ireland. Dr. Missiuna was also featured on the June 28th issue of the Dublin Gazette, where she shared the Partnering for Change (P4C) program: a model that uses a needs-based and tiered approach to provide rehabilitation services for children with special needs in schools.

Dr. Michelle Phoenix (McMaster University)
Recipient of the Pursuit Award from the Holland Bloorview Research Institute. She was recognized for her outstanding contributions to the advancement of childhood disability research.

Dr. Danielle Levac (Northeastern University)
Recipient of the Best Paper Award at the International Conference on Disability, Virtual Reality, and Associated Technologies held in Nottingham, United Kingdom. Her paper is entitled End-user involvement in Rehabilitation Virtual Reality Implementation Research: Benefits, Challenges, and Lessons Learned.

Dr. Robert Palisano (Drexel University)
Recipient of the John H.P. Maley Lecture Award, a recognition to the members of the American Physical Therapy Association who made a significant contribution to the profession and demonstrated clinical expertise.

Dr. Briano Di Rezze (McMaster University)
Received the Early Career Award from the Hamilton Health Sciences. The three year award is meant to help recipients pursue research in their specialty areas and contribute to the advancement of the field.

Dr. Eyal Cohen (University of Toronto)
One of the members of the Complex Care Team who received the President’s Choice Award from the Hospital for Sick Children. This is a recognition to the team’s effort that transformed the coordination and delivery of care to children with complex needs at SickKids.

Scientists

CanChild Scientists


DIRECTOR Jan Willem Gorter (McMaster University) CO-FOUNDERS Mary Law (McMaster University) Peter Rosenbaum (McMaster University) SCIENTISTS Khush Amaria (Hospital for Sick Children) Dana Anaby (McMaster University) Laura Brunton (Western University) Olaf Kraus de Camargo (McMaster University) Chantal Camden (Sherbrooke University) Wenonah Campbell (McMaster University) Eyal Cohen (University of Toronto) Carol DeMatteo (McMaster University) Briano Di Rezze (McMaster University) Marjolijn Ketelaar (University Medical Center Utrecht) Anne Klassen (McMaster University) Danielle Levac (Northeastern University) Cheryl Missiuna (McMaster University) Robert Palisano (Drexel University) Michelle Phoenix (McMaster University) Nancy Pollock (McMaster University) Brian Timmons (McMaster University)	SCIENTIST EMERITUS Doreen Bartlett (Western University) Johanna Darrah (University of Alberta) Marilyn Kertoy (Western University) Mary Law (McMaster University) Dianne Russell (McMaster University) Debra Stewart (McMaster University) Nancy Thomas-Stonell (Bloorview Research Institute) Stephen Walter (McMaster University) ASSOCIATE MEMBERS Gary Bedell (Tufts University) Sheila Bennett (Brock University) Jamie Brehaut (University of Ottawa) Jan Burke-Gaffney (Parent Advocate) John Cairney (University of Toronto) Lisa Chiarello (Drexel University) Wendy Coster (Boston University) Nora Fayed (Queen’s University) Darcy Fehlings (University of Toronto) Mark Ferro (University of Waterloo) Robin Gaines (Children’s Hospital of Eastern Ontario) Barbara Gibson (University of Toronto) Adrienne Harvey (Royal Children’s Hospital) Sandy Hodgetts (University of Alberta) Christine Imms (Australian Catholic University)	ASSOCIATE MEMBERS CONTINUED Lynn Jeffries (University of Oklahoma) Marian Jongmans (Utrecht University) Gillian King (Bloorview Research Institute) Mary Khetani (University of Illinois at Chicago) Dafna Kohen (Statistics Canada) Niina Kolehmainen (Newcastle University) Lena Krumlinde-Sundholm (Karolinska Institutet) Lucyna Lach (McGill University) Alyssa LaForme Fiss (Mercer University) Sanjay Mahant (Hospital for Sick Kids) Livia Malgalhaes (Federal University of Mina Gerais) Ronit Mesterman (McMaster University) Chris Morris (Peninsula Cerebra Research Unit) Eva Nordmark (Lund University) Iona Novak (University Notre Dame) Barbara Piskur (Zuyd University) Gabriel Ronen (McMaster University) Keiko Shikako-Thomas (McGill University) Olaf Verschuren (Rehabilitation Centre de Hoogstraat) Sarah Westcott McCoy (University of Washington) Virginia Wright (Bloorview Research Institute) Lonnie Zwaigenbaum (University of Alberta) Jill Zwicker (University of British Columbia)

DIRECTOR

Jan Willem Gorter (McMaster University)

CO-FOUNDERS

Mary Law (McMaster University)
Peter Rosenbaum (McMaster University)

SCIENTISTS

Khush Amaria (Hospital for Sick Children)
Dana Anaby (McMaster University)
Laura Brunton (Western University)
Olaf Kraus de Camargo (McMaster University)
Chantal Camden (Sherbrooke University)
Wenonah Campbell (McMaster University)
Eyal Cohen (University of Toronto)
Carol DeMatteo (McMaster University)
Briano Di Rezze (McMaster University)
Marjolijn Ketelaar (University Medical Center Utrecht)
Anne Klassen (McMaster University)
Danielle Levac (Northeastern University)
Cheryl Missiuna (McMaster University)
Robert Palisano (Drexel University)
Michelle Phoenix (McMaster University)
Nancy Pollock (McMaster University)
Brian Timmons (McMaster University)

SCIENTIST EMERITUS

Doreen Bartlett (Western University)
Johanna Darrah (University of Alberta)
Marilyn Kertoy (Western University)
Mary Law (McMaster University)
Dianne Russell (McMaster University)
Debra Stewart (McMaster University)
Nancy Thomas-Stonell (Bloorview Research Institute)
Stephen Walter (McMaster University)

ASSOCIATE MEMBERS

Gary Bedell (Tufts University)
Sheila Bennett (Brock University)
Jamie Brehaut (University of Ottawa)
Jan Burke-Gaffney (Parent Advocate)
John Cairney (University of Toronto)
Lisa Chiarello (Drexel University)
Wendy Coster (Boston University)
Nora Fayed (Queen’s University)
Darcy Fehlings (University of Toronto)
Mark Ferro (University of Waterloo)
Robin Gaines (Children’s Hospital of Eastern Ontario)
Barbara Gibson (University of Toronto)
Adrienne Harvey (Royal Children’s Hospital)
Sandy Hodgetts (University of Alberta)
Christine Imms (Australian Catholic University)

ASSOCIATE MEMBERS CONTINUED

Lynn Jeffries (University of Oklahoma)
Marian Jongmans (Utrecht University)
Gillian King (Bloorview Research Institute)
Mary Khetani (University of Illinois at Chicago)
Dafna Kohen (Statistics Canada)
Niina Kolehmainen (Newcastle University)
Lena Krumlinde-Sundholm (Karolinska Institutet)
Lucyna Lach (McGill University)
Alyssa LaForme Fiss (Mercer University)
Sanjay Mahant (Hospital for Sick Kids)
Livia Malgalhaes (Federal University of Mina Gerais)
Ronit Mesterman (McMaster University)
Chris Morris (Peninsula Cerebra Research Unit)
Eva Nordmark (Lund University)
Iona Novak (University Notre Dame)
Barbara Piskur (Zuyd University)
Gabriel Ronen (McMaster University)
Keiko Shikako-Thomas (McGill University)
Olaf Verschuren (Rehabilitation Centre de Hoogstraat)
Sarah Westcott McCoy (University of Washington)
Virginia Wright (Bloorview Research Institute)
Lonnie Zwaigenbaum (University of Alberta)
Jill Zwicker (University of British Columbia)

Research/KT Support

Research & KT Support


CANCHILD COORDINATORS Brie Chauncey, Communications Coordinator (until April 2018) Danijela Grahovac, Senior Technical Support Analyst Taya John, Administrative Support Donna Johnston, Finance Coordinator Dayle McCauley, Research Development Officer Marlice Simon, Administrative Support (Gorter/Rosenbaum) Sonya Strohm, Research Development Officer Jessica Tallarico, Business Analyst Rachel Teplicky, Business and Engagement Officer	RESEARCH COORDINATORS / ASSISTANTS Brie Chauncey, CP-NET KT project (until April 2018) Andrea Cross, Family Engagement Cindy DeCola, INCLUDE project Leah Dix, FIRST KIT project Kelsey Fish, ApplyIT project Barb Galuppi, On-TRACK project Oksana Hlyva, ApplyIT & Autism projects Sarah Hopmans, CP-NET & C-BiLLT projects Nadilein Mahlberg, ApplyIT project Rachel Martens, Family Engagement Kinga Pozniak, F-Words & ENVISAGE projects Sarah Randall, Back to Play project Sonya Strohm, CHILD-BRIGHT project Helena Viveiros, Autism projects	STUDENT RESEARCH ASSISTANTS Samantha Aung Geil Astorga Rachal Bolger Satyam Choudhuri Julia Hanes Isabel Eisen Eileen Kim Moleen Makumborenga Randi Mao Irene Oude Lansink Rachel Pan Kajaani Shanmugarajah Alice Soper

CANCHILD COORDINATORS

Brie Chauncey, Communications Coordinator (until April 2018)
Danijela Grahovac, Senior Technical Support Analyst
Taya John, Administrative Support
Donna Johnston, Finance Coordinator
Dayle McCauley, Research Development Officer
Marlice Simon, Administrative Support (Gorter/Rosenbaum)
Sonya Strohm, Research Development Officer
Jessica Tallarico, Business Analyst
Rachel Teplicky, Business and Engagement Officer

RESEARCH COORDINATORS / ASSISTANTS

Brie Chauncey, CP-NET KT project (until April 2018)
Andrea Cross, Family Engagement
Cindy DeCola, INCLUDE project
Leah Dix, FIRST KIT project
Kelsey Fish, ApplyIT project
Barb Galuppi, On-TRACK project
Oksana Hlyva, ApplyIT & Autism projects
Sarah Hopmans, CP-NET & C-BiLLT projects
Nadilein Mahlberg, ApplyIT project
Rachel Martens, Family Engagement
Kinga Pozniak, F-Words & ENVISAGE projects
Sarah Randall, Back to Play project
Sonya Strohm, CHILD-BRIGHT project
Helena Viveiros, Autism projects

STUDENT RESEARCH ASSISTANTS

Samantha Aung
Geil Astorga
Rachal Bolger
Satyam Choudhuri
Julia Hanes
Isabel Eisen
Eileen Kim
Moleen Makumborenga
Randi Mao
Irene Oude Lansink
Rachel Pan
Kajaani Shanmugarajah
Alice Soper

Trainees

Trainees (McMaster University)


POST-DOCTORAL FELLOWS Andrea Cross (Supervised by Dr. Jan Willem Gorter) Amanda Green (Supervised by Dr. Jan Willem Gorter) Patrick McPhee (Supervised by Dr. Jan Willem Gorter)	PHD STUDENTS Sandra Abdel Malek (Supervised by Dr. Jan Willem Gorter) Jael Bootsma (Supervised by Dr. Jan Willem Gorter) Hilary Caldwell (Supervised by Dr. Brian Timmons) Fiona Campbell (Supervised by Dr. Cheryl Missiuna) Andrea Cross (Supervised by Dr. Peter Rosenbaum) Matt Freeman (Supervised by Dr. Jan Willem Gorter) Karen Hurtibise (Supervised by Dr. Chantal Camden, Université de Sherbrooke) Jennifer Kennedy (Supervised by Dr. Wenonah Campbell) Ghaidaa Khalifa (Supervised by Dr. Briano DiRezze) Jia Lu Lin (Supervised by Dr. Eyal Cohen, University of Toronto) Patrick McPhee (Supervised by Dr. Jan Willem Gorter) Linda Nguyen (Supervised by Dr. Jan Willem Gorter) Monika Novak (Supervised by Dr. Peter Rosenbaum) Bhanu Sharma (Supervised by Dr. Brian Timmons) Enid Selkirk (Supervised by Dr. Cheryl Missiuna) Saeideh Shahin (Supervised by Dr. Dana Anaby, McGill University) Elena Tsangaris (Supervised by Dr. Anne Klassen)	VISITING SCHOLARS Virginia Aguayo Romero (Spain) Beatriz Helena Brugnaro (Brazil) Irene Oude Lansink (Netherlands)

POST-DOCTORAL FELLOWS

Andrea Cross (Supervised by Dr. Jan Willem Gorter)
Amanda Green (Supervised by Dr. Jan Willem Gorter)
Patrick McPhee (Supervised by Dr. Jan Willem Gorter)

PHD STUDENTS

Sandra Abdel Malek (Supervised by Dr. Jan Willem Gorter)
Jael Bootsma (Supervised by Dr. Jan Willem Gorter)
Hilary Caldwell (Supervised by Dr. Brian Timmons)
Fiona Campbell (Supervised by Dr. Cheryl Missiuna)
Andrea Cross (Supervised by Dr. Peter Rosenbaum)
Matt Freeman (Supervised by Dr. Jan Willem Gorter)
Karen Hurtibise (Supervised by Dr. Chantal Camden, Université de Sherbrooke)
Jennifer Kennedy (Supervised by Dr. Wenonah Campbell)
Ghaidaa Khalifa (Supervised by Dr. Briano DiRezze)
Jia Lu Lin (Supervised by Dr. Eyal Cohen, University of Toronto)
Patrick McPhee (Supervised by Dr. Jan Willem Gorter)
Linda Nguyen (Supervised by Dr. Jan Willem Gorter)
Monika Novak (Supervised by Dr. Peter Rosenbaum)
Bhanu Sharma (Supervised by Dr. Brian Timmons)
Enid Selkirk (Supervised by Dr. Cheryl Missiuna)
Saeideh Shahin (Supervised by Dr. Dana Anaby, McGill University)
Elena Tsangaris (Supervised by Dr. Anne Klassen)

VISITING SCHOLARS

Virginia Aguayo Romero (Spain)
Beatriz Helena Brugnaro (Brazil)
Irene Oude Lansink (Netherlands)

Advisory Board

Advisory Board Members

ADVISORY BOARD

Ian Buchanan
Jennifer Crowson (Parent Advisor)
Andrey Feldman
Susanne Flett
Jonathan Lu (Youth Advisor)
David Mosher
Frank Naus
Peter Rosenbaum

SCIENTIFIC ADVISORY BOARD

Jan Willem Gorter, Director
Peter Rosenbaum, Co-founder
Wenonah Campbell, Scientist
Cheryl Missiuna, Scientist
Brian Timmons, Scientist
Robert Palisano, Scientist
Dayle McCauley, Research Development Officer

Governance

Governance


SCHOOL OF REHABILITATION SCIENCE Patty Solomon, Vice Dean (from January to July) Steve Hanna, Acting Vice Dean (from July to December) Zrinka Granic, Director of Administration	DEPARTMENT OF PEDIATRICS Sheri Findlay, Acting Chair (from January to November) Angelo Mikrogianakis, Chair (as of December) Sarah Bouma, Director of Administration

SCHOOL OF REHABILITATION SCIENCE

Patty Solomon, Vice Dean (from January to July)
Steve Hanna, Acting Vice Dean (from July to December)
Zrinka Granic, Director of Administration

DEPARTMENT OF PEDIATRICS

Sheri Findlay, Acting Chair (from January to November)
Angelo Mikrogianakis, Chair (as of December)
Sarah Bouma, Director of Administration

Collaborators

Collaborators

CanChild proudly collaborates with the following key partners to generate knowledge and transform lives:

CanChild at Work and Play!

Produced & Designed by Geil Astorga, Danijela Grahovac, Randi Mao & Dayle McCauley.

Special thank you to all CanChild members and staff who contributed to this report!

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CanChild Annual Report2018

GENERATING KNOWLEDGETRANSFORMING LIVES

CanChild is grateful to the key partners for their financial and resource support: McMaster University, the Faculty of Health Sciences, the School of Rehabilitation Science, the Department of Pediatrics, and the McMaster Children’s Hospital Foundation.

VIDEO MESSAGE FROM THE DIRECTOR

“In 2018, we got formal approval by McMaster University as a recognized research Centre. I’m extremely proud of it…”

Research Highlights

F-words Research and Knowledge Translation Program

F-WORDS

Research on Child and Family Well-being

ENVISAGE: ENabling VISions And Growing Expectations’

Research on Language Comprehension

Computer-Based Instrument for Low motor Language Testing - Canadian English Validation Study

Research on Employment

Job Train Program (JTP)

Research on Transition

READYorNot - Brain-Based Disability trial

ApplyIT

Research in Concussion/ Mild Traumatic Brain Injury

Safely Returning Children and Youth to Activity After Concussion (Back to Play Study)

Brain Smart Hamilton – Let’s Play Safely!

CanChild Pediatric Concussion Management Guidelines

Research to Advance Rehabilitation Services Delivered in Schools

Partnering for Change (P4C); Facilitating Integration of Rehabilitation Services through Training Implementation ToolKit (FIRST KIT); and INtegrated serviCes for incLUsion anD Equity (INCLUDE)

Research in Autism Spectrum Disorder (ASD)

ACSF:SC - a tool to classify social communication in preschool children with ASD

Research in Cerebral Palsy

Childhood Cerebral Palsy Integrated Neuroscience Discovery Network

Research on Family Engagement

Family Engagement in Research Certificate of Completion Program

F-words Research and Knowledge Translation Program

Research on Child and Family Well-being

Research on Language Comprehension

Research on Employment

Research on Transition

Research in Concussion/Mild Traumatic Brain Injury

Research to Advance Rehabilitation Services Delivered in Schools

Research in Autism Spectrum Disorder (ASD)

Research in Cerebral Palsy

Research on Family Engagement

F-words Research and Knowledge Translation Program

F-WORDS

Research on Child and Family Well-being

ENVISAGE: ENabling VISions And Growing Expectations’

Research on Language Comprehension

Computer-Based Instrument for Low motor Language Testing – Canadian English Validation Study

Research on Employment

Job Train Program (JTP)

Research on Transition

READYorNot – Brain-Based Disability trial

ApplyIT

Research in Concussion/Mild Traumatic Brain Injury

Safely Returning Children and Youth to Activity After Concussion (Back to Play Study)

Brain Smart Hamilton – Let’s Play Safely!

CanChild Pediatric Concussion Management Guidelines

Research to Advance Rehabilitation Services Delivered in Schools

Partnering for Change (P4C); Facilitating Integration of Rehabilitation Services through Training Implementation ToolKit (FIRST KIT); and INtegrated serviCes for incLUsion anD Equity (INCLUDE)

Research in Autism Spectrum Disorder (ASD)

ACSF:SC – a tool to classify social communication in preschool children with ASD

Research in Cerebral Palsy

Childhood Cerebral Palsy Integrated Neuroscience Discovery Network

Research on Family Engagement

Family Engagement in Research Certificate of Completion Program

Impact

“CanChild has been and still is the shining example of how to perform research that is meaningful to children and their parents and how to bring results of those efforts to the attention of researchers and caretakers.” -Professor

By the Numbers

BY THE NUMBERS

Publications

Presentations

Grants

Revenue

Engagement

Publications

Presentations

Presentations

Abstracts

Grants

Revenue

Engagement

The Centre

News and Accomplishments

CanChild
Annual Report
2018

GENERATING KNOWLEDGE
TRANSFORMING LIVES

Research on Child and Family
Well-being

Research in Concussion/
Mild Traumatic Brain Injury