CanChild is grateful to the key partners for their financial and resource support: McMaster University, the Faculty of Health Sciences, the School of Rehabilitation Science, the Department of Pediatrics, and the Hamilton Health Sciences Foundation.
Message from CanChild’s Directors
Message from CanChild’s Directors
Dear Readers,
Every year, compiling our data, publications, awards, and grants is no small feat. We owe immense gratitude to our dedicated research coordinators and scientists for their invaluable contributions. A special thanks goes to our long-serving Research Development Officer, Dayle McCauley, our Communications Coordinator, Abigail Atmadja, and our students, Daniela Klobucar and Hannah Nguyen, for their meticulous work in gathering and formatting all the submissions for both print and web. Special recognition goes to our Technical Support Specialist, Danijela Grahovac for website design, and Jessica Geboers for making these documents accessible.
As you explore this report, you’ll find impressive numbers: over 120 publications, 230 presentations, 10 awards, and 36 grants totaling almost 9 million CAD. These achievements are remarkable. Yet, what fills us with the greatest pride is the presence of individuals with lived or living experiences and the consistent mention of “family” on every page. This epitomizes our dedication to making a difference in the lives of children with disabilities and their families. Our mission is to amplify their voices, conduct meaningful research relevant to their lives, and collaborate closely with family and patient partners to enhance their inclusion and participation in every facet of their lives.
Thank you for being a part of our journey. We hope you find inspiration and hope in these pages.
Best regards,
Dr. Briano Di Rezze
Dr. Olaf Kraus de Camargo
Dr. Briano Di Rezze, PhD, OT Reg(Ont.)
Co-Director of CanChild, Associate Professor, School of Rehabilitation Science, McMaster University
Dr. Olaf Kraus de Camargo, MD
Co-Director of CanChild, Associate Professor in the Department of Pediatrics at McMaster University and Developmental Paediatrician at the McMaster Children’s Hospital – Ron Joyce Children’s Health Centre
Research Highlights
Research Highlights
Campus Belonging
The Campus Belonging project was designed to understand and address the barriers that autistic postsecondary students face and to enhance their sense of belonging.
Campus Belonging
In collaboration with the University of Alberta, CanChild is co-leading the Campus Belonging project, developed to enhance autistic postsecondary (PS) students’ sense of belonging within Canadian institutions. Drs. Heather Brown (U of A), Briano Di Rezze (CanChild), and Sandy Hodgetts (U of A) received SSHRC funding to lead the project from April 2023 to March 2027. Employing a co-design methodology and community-based participatory approach, the Campus Belonging initiative unfolds in two distinct phases spanning the next four years. The Campus Belonging project is currently in its first phase, emphasizing the experiences of autistic PS students and university stakeholders. The second phase focuses on bringing autistic PS students and university stakeholders together to establish sustainable practices to promote autistic students’ sense of belonging in Canadian PS institutions. After successfully recruiting an oversight committee, efforts are being made to onboard autistic community partners, create digital stories, gather responses from national questionnaires, and recruit university stakeholders for focus groups.
Job-Train Program
The Job-Train Program is a summer vocational program developed through community-based research and designed to provide training and early paid-work experience for autistic high school students.
Job-Train Program (JTP)
The Job-Train Program (JTP) is an evidence-based summer vocational program that provides employment-related skills training, a paid work placement, and employment support to autistic high school students. Dr. Briano Di Rezze leads the JTP in partnership with various community stakeholders and fuses research with addressing the service needs of autistic high school students. The program began in 2016 and has since undergone iterative improvements, refining its approach based on qualitative and quantitative evaluation outcomes.
In 2023, the JTP team forged a successful partnership with the McMaster Children’s Hospital and received Skills Development Funding through the Government of Ontario Ministry of Labour, Immigration, Training and Skills Development.
The funding has supported the JTP’s implementation and research efforts with other partners, including McMaster’s Student Success Centre and ASpectrum. Last summer’s JTP resulted in 15 autistic high school students securing paid work placements across nine distinct employers at McMaster University, each lasting eight weeks. The students received added support from 10 neurodivergent post-secondary students from McMaster, trained as JTP job coaches. In addition to job placements, all participants were involved in weekly job club sessions to enhance their employment-related skills and knowledge. The results from JTP 2023 are currently being analyzed and will be presented locally and internationally at conferences.
ENVISAGE
ENabling VISions And Growing Expectations, is a series of online workshops developed to improve parents’ well-being and help them feel more competent, confident and empowered.
ENVISAGE (ENabling VIsions And Growing Expectations)
In collaboration with the Australian Catholic University, McMaster University, Murdoch Children’s Research Institute, University of Melbourne, the ENVISAGE program is a culmination of efforts among Canadian and Australian researchers, clinicians, and parents of children with disabilities. It aims to equip parents and caregivers with modern, strength-based approaches to health and development. ENVISAGE-families initially focused on aiding families in effective communication with service providers and connecting them with similar life situations. Over time, the program expanded to cater to service providers (ENVISAGE-SP) as well as to members of communities distinguished by culture (ENVISAGE-First Peoples) and language (ENVISAGE-Croatia). Subsequent work has included English adaptations for Culturally and Linguistically Diverse (CALD) populations. Plans are actively underway to introduce the Families program in Denmark as part of the ENVISAGE-Global initiative. Additionally, efforts are underway to develop an Integrated Families/SP program.
ENVISAGE-Families developments
In December 2022, the Government of Australia’s Department of Social Services awarded the ENVISAGE program’s Australian colleagues a 3-year, $6.9M AUD grant to deliver the ENVISAGE-Families program nationwide. Rapid efforts were made to update program materials and train Service Providers (SP) and Parent Peer facilitators for workshops starting in early 2023. Throughout 2023, over 100 SPs and parents received training, resulting in 72 workshops reaching over 380 parents/caregivers. Notably, 6% of participants were Aboriginal families, and 15% from culturally and linguistically diverse backgrounds. The program received overwhelmingly positive feedback with 94% of caregivers expressing high satisfaction and 84% reporting improved coping abilities and positive shifts in parent-child dynamics.
One parent shared: “I already feel very different in my relationship with my child – less therapist and more ‘mum’… they seem lighter and relaxed because I am – it’s like we are taking a collective deep breath together after being under water for a very long time.”
ENVISAGE-SP
In late 2022, the Families workshops were tailored into a program for Service Providers (SP), which was then tested with 21 SP across Canada and Australia. By late Fall 2023, the ENVISAGE-SP program was launched, including weekly online discussions facilitated by a clinician-researcher and a parent of a child with a neurodisability. The response was overwhelmingly positive, with participants praising its practicality and potential to revolutionize family support.
Participants quotes: “Absolutely fantastic. All SP should be trained. This should be offered to all students during their health professional training.” “The program philosophy is fantastic and has the potential to change the face of what it means to treat and support families.” “It’s the most practical program I have ever participated in! Thank you!!!”
ENVISAGE-First Peoples
The ENVISAGE-First Peoples project in Australia is a research project that aims to empower parents/caregivers/families raising Aboriginal and Torres Strait Islander children with disabilities or developmental difficulties. Through collaborative discussions (‘yarning’) with parents, caregivers, and families, our Australian colleagues have created workshops, resources, and tools focusing on family strengths. The program aims to boost caregivers’ confidence in working with healthcare professionals, and facilitates effective communication between SP and Aboriginal and Torres Strait Islander families, promoting culturally safe practices. Currently, the program is expanding its reach to ensure its accessibility and is being shared with Canadian colleagues, who are engaged in parallel explorations of First Nations’ cultures and their connections to ‘Western’ ways of knowing and doing.
ENVISAGE-Croatia
ENVISAGE-Croatia is an adaptation of the ENVISAGE-Families program tailored linguistically and culturally for delivery in Croatia. Developed from 2020 to 2021 as part of Monika Novak Pavlic’s doctoral dissertation under the guidance of Dr. Peter Rosenbaum, the program’s goal was to adapt and assess the program’s effectiveness for Croatian parents of children with neurodevelopmental disabilities. The pilot phase was conducted successfully, demonstrating that the program is valuable for Croatian families dealing with developmental disabilities, according to parents and professionals. In 2023, the Croatian cultural advisory team focused on knowledge translation activities, such as conference presentations and community outreach, to build capacity for the program’s continued implementation in Croatia. The team has since successfully obtained funding to research and deliver ENVISAGE starting in early 2024 in partnership with a leading children’s rehabilitation hospital in Croatia. There are indications that this support will now be ongoing.
Back2Play App
The Back2Play App will help guide children and youth through the CanChild Return to Activity and Return to School protocols by incorporating biological feedback, movement data and cognitive assessments.
Back2Play App
Traumatic brain injury (TBI) is the leading cause of death and remains a significant concern for children worldwide, with concussions among youth raising public health concerns. Professor Carol DeMatteo has dedicated her career to seeking solutions to improve the lives of these children/youth and their families, focusing on returning to normal function. Her team developed the CanChild Return to Activity and Return to School guidelines to help manage pediatric concussions. However, families still need more personalized advice for everyday decisions about school and activities after a concussion.
To address this, we created the Back2Play App. Its goals are to tailor concussion management to each child’s unique recovery, offer guidance and monitoring for better rehabilitation, and bring concussion care into the digital age. The app tracks symptoms and provides real-time activity and heart rate data via wearable tech (i.e. Apple Watch), guiding kids through their return to activity and school protocols. Currently, the app is being tested in our multi-centered randomized controlled trial (RCT), involving 181 participants aged 10 to 18 years of age recruited from both Montreal Children’s Hospital and McMaster Children’s Hospital. The team is now in the early stages of analysis, determining whether the app reduces the risk of reinjury three months after the initial injury compared to usual care and if the app shortens the duration and intensity of post-concussion symptoms compared to usual care.
Covid Time Capsule
Learning from the experiences of children with disabilities and their parents throughout the COVID pandemic to improve supports and services in healthcare and education.
Covid Time Capsule
In our ongoing COVID Time Capsule study, we’re delving into the needs of Canadian children and youth (ages 8-21 years old) with disabilities and their families as we navigate life beyond the pandemic. Our aim is clear: to uncover the gaps in healthcare access, unearth pre-existing inequalities exacerbated by COVID, and distill invaluable lessons to shape future ‘best practices’. What sets us apart is our approach—we’re not just researchers; we’re collaborators. Guided by patient-oriented research principles, we’ve teamed up with youth advisors and parents to ensure our study is truly representative and impactful.
Between January and July 2023, we conducted the first phase of our study. Through photo elicitation and insightful interviews, we gleaned firsthand experiences from 14 families spanning two Canadian provinces, including 14 parents and 18 children (four families had more than one child participate). By engaging children in visual worksheets called a Covid Time Capsule and online interviews, we gained rich insights into their pandemic journey.
Building on our initial findings, we’re now gearing up for the second phase. We aim to identify in greater detail children’s needs for health, education and community-related systems of support. Collaboratively crafting a comprehensive survey, informed by our earlier interviews, we aim to reach 500 families nationwide, and we are currently recruiting study participants. Looking ahead, we are dedicated to translating these findings into a variety of materials for different audiences, including infographics, podcasts, social media campaigns, videos, and cartoons.
Measure of Processes of Care (MPOC 2.0)
With a new MPOC 2.0 tool healthcare organizations will be able to determine how well they meet the needs of the families they serve.
Measure of Processes of Care (MPOC 2.0)
The Measure of Processes of Care (MPOC 2.0) project aims to understand what parents expect and value in healthcare services today. Originally developed in 1996 by CanChild researchers, the MPOC tool measured parents’ experiences with health services for their children both across Canada and internationally. However, with evolving healthcare landscapes, it is necessary to reassess these measures. In this ongoing study, launched in April 2021, researchers and parent partners delve into the current expectations of parents, especially amidst the prevalence of online information and the growing desire for family involvement in healthcare decisions. Through surveys and consultations, we explore what today’s parents, particularly those with children with disabilities, require and anticipate from healthcare services.
Based on our findings, we’ve crafted MPOC 2.0, a new assessment tool tailored for healthcare organizations to gauge their family-centeredness, determining how well they meet the expectations of the families they serve. We’ve meticulously refined this tool through input from 30 parents and service providers, utilizing methods like the Delphi process and usability testing. Currently, MPOC 2.0 is undergoing rigorous testing and validation. Once finalized, it will empower healthcare providers to better understand and meet the needs of families. Additionally, we’ll create resources to guide service providers on effectively addressing these needs.
This project is funded by the Canadian Institutes of Health Research.
Transition Projects
Our Transition Projects aim to improve healthcare transitions for youth with brain-based disabilities by developing e-health aids & understand transitional care amidst the COVID-19 pandemic.
Transition Projects
CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Project
This initiative, led by Dr. Jan Willem Gorter MD, PhD, FRCP(C) and Dr. Ariane Marelli MD, MPH, FRCPC, is part of the CIHR-SPOR-funded CHILD-BRIGHT Network, which addresses the needs of families and the need for systematically well-designed research approaches to co-create evidence-based e-health transition interventions through ongoing youth, parent/caregiver, and healthcare stakeholder engagement. To develop better ways to support youth with brain-based disabilities (BBD) as they transition from pediatric to adult health care, we created the MyREADY Transition™ BBD App in collaboration with patients, families, healthcare stakeholders, and industry partners. In the second part of the project, we evaluated the App in a randomized controlled trial (RCT) in four regions: Alberta, Ontario, Quebec, and the Maritimes.
This project received the support of the CHILD-BRIGHT Network, CIHR’s Strategy for Patient-Oriented Research initiative, and our partner support from Montreal Children’s Hospital Foundation, McMaster University Faculty of Health Sciences, New Brunswick Health Research Foundation, McMaster Children’s Hospital Foundation and Hamilton Health Sciences, and Centre hospitalier universitaire mère-enfant.
Transition to Adulthood during COVID: Learning from Canadian Youth with Special Healthcare Needs and their Families to Foster Effective Transitional Care Interventions
Amidst the COVID-19 pandemic, young people with special health needs faced unique challenges like health concerns, disrupted routines, and social isolation. This project explores the positive and negative impacts of COVID-19 on the health of Youth with Special Health Care Needs (YSHCN) as they transition from pediatric to adult health services, seeking to understand the pandemic’s effects on healthcare and other life transitions.
Our approach involves three main steps: qualitative interviews, a quantitative survey, and dissemination activities. In the first step, we interviewed 21 Canadian YSHCN and families to grasp their pandemic experiences and lessons learned. These insights guided the development of a survey, which 516 participants then completed to identify recommendations for enhancing healthcare transitions. We utilize an integrated Knowledge Translation (IKT) approach where YSHCN and their parents are active research team members, collaborating on every stage of the research process, from developing the research question and methodology to data collection, interpretation of findings, and dissemination of results.
Key highlights from 2023 include conducting additional interviews and survey completion, followed by a poster presentation at the Children’s Healthcare Canada Annual meeting in December. These efforts culminated in a virtual Town Hall discussion in 2024, where we shared our findings and discussed ways to improve healthcare experiences and transitional care interventions in the future. Through this project, we aim to offer valuable recommendations for addressing the needs of YSHCN during times of crisis and beyond.
Project BEYOND
Project BEYOND (Body-function Enhancement for YOuth through participatioN in real-worlD contexts) aims to explore the impact of participation on body functions.
Project BEYOND: Improving Body Functions through Participation
Following a pilot study successfully examining the impact of participation-based interventions on a range of body functions, our team received four-year CIHR funding for a larger cross-provincial study testing the impact of the Pathways and Resources for Engagement and Participation (PREP) intervention among 150 youth with physical disabilities across Quebec and Ontario.
Project BEYOND builds on our expertise in innovative clinical trials that offer an alternative to traditional efficacy studies. Our pilot work showed that targeting interventions at the activity/participation level can improve impaired body functions, such as balance, attention, and anxiety—crucial components in rehabilitation. This larger, more rigorous CIHR study aims to further explore the impact of participation on body functions.
In Project BEYOND, we have partnered with major youth rehabilitation organizations. In Quebec, we are collaborating with the CIUSSS West-Central Montreal, six other public health and social services centers (CIUSSS/CISSS), a hospital, and four community organizations spanning rural and urban areas. In Ontario, our partnership with Empowered Kids Ontario and key community stakeholders—including youth, clinicians, and managers—will enable us to investigate the impact of an 8-week community-based activity individually selected by the youth (e.g., sledge hockey, drawing, playing a musical instrument), on three key body functions: motor skills, behavior, and emotions. Changes in body functions (e.g., movement, attention, mood) will be measured multiple times before, during, and after engagement in the chosen activity.
Findings from this study will guide clinicians, families, and policymakers in selecting practical approaches that promote participation while also providing motor and mental health benefits from a single intervention. Such real-world treatment approaches involving activities of choice can enhance motivation, improve compliance, and reduce the burden on the healthcare system, youth, and families.
Research Lead, Principal Investigator: Dana Anaby
Co-Investigators/Collaborators: Briano Di Rezze, Mindy Levin, Lisa Avery, Bob Palisano, Rune J Simeonsson, Véronique Flamand, Laurent Ballaz, Mary Lattas, Jennifer Churchill, Julia Hanes
Funded by Canadian Institutes of Health Research (CIHR 186179; 2023-2027)
Transition Hub
Transition Hub network aims to “Create a knowledge network that.. bridge[s] the gap between current treatment practices and evidence-based solutions for healthcare transition in Canada”
Transition Hub
In 2019, CanChild co-founded the Child Health Hub in Transition with Children’s Healthcare Canada. This network, which is comprised of more than 200 service providers, researchers, families, youth, and decision makers, aims to “Create a knowledge (mobilization) network that.. bridge[s] the gap between current treatment practices and evidence-based solutions for healthcare transition in Canada”. Since the Transition Hub’s inception, we have established the following priorities:
- Health Quality Indicators: With funding from the Canadian Institutes of Health Research (CIHR) and the Physician Services Inc. (PSI) Foundation, we are now conducting a Delphi study to determine what are the most important indicators for various stakeholder groups. Once established and implemented, these indicators will help us better understand successful transitions and target interventions where they’re most needed.
- Environmental Scan: We’ve conducted both quantitative and qualitative scans to understand the landscape of transition services, supports, and barriers. In 2023, the findings were written up for peer-reviewed publication and are now seeking funding to create a national repository of transition programs.
- Knowledge Translation: Our 2nd annual Transition to Adulthood Conference, held in Vancouver in 2023 brought together over 100 passionate individuals dedicated to improving healthcare transitions. From this event, we’ve outlined additional goals to pursue in 2024.
In 2023, our network also initiated efforts to establish National Standards for Transition to Adult Care and began drafting a strategic communication plan to ensure long-term sustainability.
Family Engagement Program (FER)
The FER Program is for researchers (graduate students, trainees, research coordinators, investigators, etc.) and families (parents and siblings) who have an interest in child neurodevelopmental research.
Family Engagement Program
The Family Engagement in Research (FER) Program, led by a team of family leaders and health service researchers in Canada, is dedicated to advancing family involvement in neurodevelopmental disability and child health research and practice through equitable training, knowledge mobilization, and research initiatives. The FER Program is funded and co-developed by Kids Brain Health Network (KBHN).
Family Engagement Training:
The Family Engagement in Research (FER) Course brings together family members and researchers to enhance knowledge and develop skills in family engagement in research. With 134 new graduates trained in 2023 from diverse backgrounds, including international cohorts in the Netherlands and Australia, and a total of 434 graduates since 2018 across 10 Canadian provinces and 18 countries, the course is making a global impact. Ongoing studies evaluate the course’s effectiveness and adaptations.
The FER Leadership Academy was launched in Fall 2022 to support FER Course graduates in becoming leaders in family engagement across Canada and internationally. In the inaugural cohort, 11 researchers and family leaders were trained to champion family engagement at an organizational level. Efforts are currently underway to assess its impact through a pilot study.
Our Family Engagement Fundamentals program, developed collaboratively in 2022 and launched in 2023, provides foundational training to a wider audience, both online and in-person, to increase awareness and understanding of family engagement principles.
Family Engagement Knowledge Mobilization:
The Knowledge Mobilization and Brokering Program led by the Knowledge Broker, Rachel Martens, employs various channels of mobilization such as Twitter (>1,000 followers), a monthly newsletter (>450 subscribers), a Facebook group (>480 members), and Luke’s Legacy Family Research Rounds, a monthly virtual discussion forum to disseminate information, share accomplishments and facilitate connections among researchers and families.
Telerehabilitation Services
This project enhances family and clinician experiences with children’s telerehabilitation services to address the need for evidence to guide its integration with in-person services as part of a hybrid model of service.
Enhancing family and clinician experiences with children’s telerehabilitation services
With the rapid uptake of telerehabilitation in children’s rehabilitation during the COVID-19 pandemic, there is need for evidence to guide its integration with in-person services as part of a hybrid model of service.
Using an experience-based co-design approach, this project developed evidence-based solutions co-designed by caregivers, clinicians, and children’s treatment centre management to enhance family and clinician experiences with children’s telerehabilitation services.
The study’s goals were to identify challenges in children’s telerehabilitation services and develop strategies to address these issues. Through interviews with 27 caregivers and 27 clinicians, the project pinpointed key areas for improvement: enhancing child engagement, increasing the perceived value and caregiver involvement in telerehabilitation, ensuring the fit of the telerehabilitation model with family needs, and preparing both people and environments for effective telerehabilitation.
Four co-design meetings were held, involving 9 caregivers, 12 clinicians, and 3 managers, who collaborated to generate and refine ideas using various art-based methods. The resulting strategies focused on better communication to prepare families for telerehabilitation, offering consistent service delivery choices, and fostering strong connections between families and clinicians in engaging and safe environments.These collaborative efforts led to practical recommendations that can be implemented before, during, and after a child’s telerehabilitation session.
This project was funded through a CIHR Doctoral Award, Child Bright Fellowship in Patient-Oriented Research, and a Mitacs Accelerate grant.
Improving Equity in Childhood Disability Research Partnerships
This study aims to address the imbalance in childhood disability research partnerships by developing a substantive theory through qualitative grounded research.
Improving Equity in Childhood Disability Research Partnerships
In our ongoing commitment to ethical and inclusive research, we recognize the critical need to involve a diverse range of voices in childhood disability studies. Traditionally, research partnerships in this field have been dominated by white, middle-class, English-speaking, and highly educated mothers.
This leaves out crucial perspectives from young children with disabilities, fathers, racialized individuals, 2SLGBTQ+ communities, and those facing low income, low literacy, or mental health challenges. Such exclusions, driven by systemic biases like ageism, racism, sexism, classism, and ableism, can result in skewed research outcomes that do not accurately reflect the needs of all families.
Our qualitative grounded theory study aims to address this imbalance by developing a substantive theory through qualitative grounded research. We seek to understand how to better engage underrepresented children, youth, and families (CYF) as partners in childhood disability research. This study will uncover the key elements of effective engagement, explore the interplay between these elements, and explain how they contribute to both positive and negative experiences in research partnerships.
By conducting interviews with both researchers and excluded CYF participants, we will gather insights to create actionable recommendations. These will help guide researchers and institutions toward more equitable research practices, ensuring that the findings are relevant and beneficial to all families.
This project is supported by a Social Sciences and Humanities Research Council Insight Development Grant.
GrowDMD
Growing into Adulthood with Duchenne Muscular Dystrophy (DMD) – this project is exploring the challenges that adolescents with DMD face when transitioning from the pediatric to adult healthcare system.
Growing into Adulthood with Duchenne Muscular Dystrophy (GrowDMD): Comparing Patient Experiences and Systems to Optimize Care
The GrowDMD project studies the challenges that adolescents with Duchenne muscular dystrophy (DMD) face when transitioning from the pediatric to adult healthcare system in three partner countries: Germany, Italy, and Canada. The Canadian portion of this international collaboration is led by Dr. Olaf Kraus De Camargo. The project aims to enhance transitional care and increase opportunities for participation for adolescents with DMD and their caregivers.
This study utilizes an integrated knowledge translation process in which researchers, knowledge users, Patient Advocacy Organisations (PAOs) representatives, and patient partners collaborate across all stages of the research process. Conceptually, the study is guided by the World Health Organization (WHO) frameworks of International Classification of Functioning, Disability and Health (ICF) and the International Classification of Health Interventions (ICHI).
In 2023, the international team and family partners co-designed materials for interviews and mobility surveys to begin recruitment and data analysis and interpretation in 2024. Additionally, the team participated in a number of meetings and research activities, including the poster presentation at The 5th International Conference on Rare Diseases (Budapest, Hungary) and the 2nd Transition to Adulthood Pop-Up Event (Vancouver, Canada) where the poster was awarded the 1st place. The international team also convened for a meeting in Italy, with ongoing efforts to publish findings
Local Principal Investigator: Dr. Olaf Kraus de Camargo, CanChild Centre
Project Lead: Prof. Thorsten Langer, University of Freiburg, Germany
Italian National Lead: Dr. Nardo Nardocci, Istituto Neurologico Carlo Besta
The project received international (European Union’s Horizon 2020 research and innovation programme under grant agreement N°825575) and local (Canadian Institutes of Health Research, Federal Ministry of Education and Research of Germany, and Ministry of Health of Italy) funding.
COFFEE and PLAY
Community Opportunities For Families Engagement and Empowerment: Play and Learning Accessible for Youth (COFFEE and PLAY) is an innovative initiative designed to improve access to speech-language pathology services in socially and economically disadvantaged areas.
COFFEE and PLAY
COFFEE and PLAY is an innovative initiative designed to improve access to speech-language pathology services in socially and economically disadvantaged areas by providing a novel public health and trauma and violence informed model of service. This study is conducted in partnership with the Hamilton Wentworth Catholic District School Board and Canadian Children’s Literacy Foundation’s Early Words, By setting up a welcoming, drop-in program on a school playground, we aim to break down barriers to care for caregivers and their children aged birth to four years old. The program creates a warm, inviting atmosphere with coffee, snacks, and play materials, offering tier-one services, delivered by two McMaster Speech-Language Pathology students and supervised by a clinical SLP project partner from Early Words. Through a participatory action research case-study, we continually develop and refine COFFEE and PLAY based on real-world feedback.
We track data on program usage, including the number of children and caregivers participating, activities conducted by the SLP students, such as coaching families, demonstrating age-appropriate activities, and guiding families to additional resources. Weekly team meetings, which include a parent partner, ensure we remain responsive to the needs of our community. These sessions follow a play-do-study-act cycle, helping us to adapt and enhance the program effectively. While data collection is ongoing, we have witnessed significant daily engagement and have been able to provide valuable information to parents about child language development.
Principal Investigator: Michelle Phoenix
Collaborators: Wenonah Campbell; Chantal Camden; Katie Kotulak; Diane Peterson
CanChild Centre provided the initial seed funding from 2019-2021 that helped us launch this initiative. In 2023, we received the Community, Health, and Education Research (CHER) grant from the Hamilton Community Foundation.
C-BiLLT
Innovative assessment of spoken language comprehension in children with cerebral palsy: Development of the Canadian English Computer-Based instrument for Low motor Language Testing (C-BiLLT).
Back2Play App
From 2018-21, researchers at CanChild tested the validity, reliability, and feasibility of the Canadian English Version of the C-BiLLT (Computer-Based instrument for Low motor Language Testing – CAN). The C-BiLLT is an innovative Dutch tool that uses alternative access methods to assess spoken language comprehension in children with CP who are non-speaking. The tool is the first of its kind to provide a reliable, evidence-based assessment for these children, opening doors to better support, treatment, and education.
The Canadian validation study involved participants from Hamilton institutions, including schools, daycares, McMaster Children’s Hospital Clinics, the Ron Joyce Children’s Health Centre as well as from the broader community. Results showed that the C-BiLLT – CAN version was effective for assessing language comprehension in English-speaking Canadian children with CP. However, due to the COVID-19 pandemic, further testing is necessary to ensure its reliability in clinical settings.
In 2021, additional research was conducted to understand how the original Dutch C-BiLLT was used in practice. Surveys and interviews with clinicians in the Netherlands, Norway, and Belgium highlighted the need for better support for clinicians using the tool, especially for children with CP who also have visual impairments. Building on these findings, Drs. Cunningham and Chau secured CIHR funding to continue their work from 2022 to 2026
Their project aims to enhance the implementation of the C-BiLLT-CAN in Canada by understanding clinicians’ and families’ needs, improving accessibility for all children, and providing online training for clinicians. This collaborative effort involves researchers, clinicians, and families across 8 sites in Canada (6 in Ontario, 1 in New Brunswick, 1 in Alberta). As of 2024, progress includes the development of a new C-BiLLT-CAN app with various access methods, training for clinicians at partner sites, and feasibility testing.
Principal Investigators: BJ Cunningham; Tom Chau
Co-Investigators: Brenda Agnew; Beata Batorowicz; Jael Bootsma; Johanna Geytenbeek; Jan Willem Gorter; Danijela Grahovac; Olaf Kraus De Camargo; Dayle McCauley; Kristine Stadskleiv
Collaborators: Kim Oostrom; Andrea Cross
Partnering for Change (P4C)
Partnering for Change is an innovative, collaborative, tiered school-based service delivery model developed for occupational therapists.
Partnering for Change
Partnering for Change (P4C) is a tiered, needs-based model for delivering inclusive occupational therapy services in schools. P4C offers a continuum of services in three tiers: universal services for all, targeted services for some, and individualized services for children with the greatest needs. In P4C, services are integrated into school routines, focusing on children’s functioning and participation. Occupational therapists providing tiered services, collaborate with education professionals to support the whole school community. Occupational therapists also collaborate with educators to support students directly in the classroom or places in the school in which children will use the strategies and skills. In P4C, there is an intentional focus on building educator and family capacity through collaboration between occupational therapists, educators, students, and families.
Led by Dr. Wenonah Campbell, the P4C research team is continuing a multi-year realist evaluation study funded by the Ontario Ministry of Children, Community and Social Services that enables the evaluation of a P4C theory and determination of how, when, why, and for whom P4C works best.
Ten school communities are selected as “cases” to allow P4C to be studied in locations representative of varied geographies, size, and unique sociocultural, linguistic child and family needs. In each school, occupational therapists work with teachers, students, and families for at least two school years. Data are being collected from various sources and methods, including interviews with teachers, therapists, support staff, families, principals, and clinical leaders. Occupational therapists and therapy assistants are maintaining reflective journals and service logs, while surveys are administered to families and educators. Data are continually triangulated within each case and then compared across cases.
Our early findings are helping us understand how and why P4C achieves positive outcomes and the necessary conditions. Our current theory comprises four key areas:
- Introducing P4C into a new school context
- Establishing a strong foundation for successful delivery
- Executing the P4C practice model, and
- Understanding the impact of P4C over time.
In the coming year, our team will share guidelines and tools that will inform policy and successful implementation, as well as revised learning modules specific to P4C. In the interim, therapists are encouraged to visit our free, online professional development program called FIRST. The FIRST Program consists of an online asynchronous course (FIRST Course), a resource kit (FIRST KIT), and a collection of answers to frequently asked questions prepared by senior clinical experts and researchers (FIRST FAQs). Since its launch in May 2020, the FIRST Program has attracted 7020 users from 67 countries. It has accumulated an impressive 28,253 page views and 1855 registrations.
F-words for Child Development
The F-Words team has launched a successful online training program and continues to make significant strides in F-words implementation studies and initiatives to empower child development through holistic, strengths-based approaches.
F-words for Child Development
Funded by the Ontario Ministry of Children, Community, and Social Services, we launched the F-words Online Training Program in August 2023, attracting over 3600 users. Participants have praised the program’s comprehensiveness, incorporation of real-life, international stories, and practical and tangible tools. Thanks to funding from Kids Brain Health Network (KBHN) and Brain Canada Foundation, we’re now studying two versions of the program – a self-paced and a facilitated version, with results to be shared in 2024.
Throughout 2023, our team made significant strides in F-words implementation studies and initiatives. First, through a multi-site implementation science study in Ontario, Manitoba, and Auckland, New Zealand, we are understanding individual-, organizational-, and system-level factors that influence F-words implementation and the impact on families and service providers, to be shared in 2024. Additionally, we have received a CIHR Planning and Dissemination Grantand a CIHR Health Systems Postdoctoral Fellowship award which has helped fund the exploration of the cultural safety and inclusivity of F-words with/for culturally diverse families in Ontario and Manitoba. We have connected with an estimated 10 organizations and community partners, such as SMILE Canada, the Rehabilitation Centre for Children, and Children’s Treatment Network, to explore this work. Finally, as part of developing and piloting a CanChild Implementation Support Program, our team is leading F-words implementation training and consultation with the BC Association for Child Development and Intervention (BCACDI) and its affiliated centres.
Finally, there were multiple knowledge mobilization efforts throughout 2023. In collaboration with members of the Physicians of Ontario Neurodevelopmental Advocacy, we developed a new F-words tool (F-words for Child Development Focus: Mental Health) to support emotional well-being in child development. Our F-words team also presented at twenty conferences and parent events across Ontario, Manitoba, British Columbia, the United States, Italy, Portugal, Lebanon, South Africa, India, and New Zealand, four of which were co-presentations with families and service providers. Additionally, we have published four articles, all of which are detailed in our ‘By the Numbers’ section.
As one caregiver stated, “Although they are six simple words, they’ve just changed the whole way we look at living.”
CP-NET
CP-NET project, will connect children with Cerebral Palsy and their families to a network of world-renowned researchers from across Ontario, and across scientific disciplines to improve the understanding of CP and accelerate the development of new treatments.
CP-NET
Childhood Cerebral Palsy Integrated Neuroscience Discovery Network
The Childhood Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is an initiative funded by the Ontario Brain Institute. The program aims to improve our understanding of cerebral palsy (CP) through multiple research platforms and accelerate the development of new treatments. In 2023, CP-NET was funded for an additional 5 years until 2028 (Phase 4). McMaster Children’s Hospital is proudly part of three studies under the CP-NET research program.
Clinical Database: Understanding Risk Factors for Cerebral Palsy
Led by Dr. Darcy Fehlings at Holland Bloorview Kids Rehabilitation Hospital, the Clinical Database Platform serves as the cornerstone of CP-NET’s research at the ‘Individual & Family Level.’ By creating an extensive database of information about clinical risk factors, neuroimaging, genetics, neurodevelopmental factors, and the psychosocial and participation dimensions of children’s lives, this platform aims to support current and future CP-NET research questions and themes. In Phase 3 of the study, McMaster Children’s Hospital exceeded recruitment goals, enrolling 55 participants in the Clinical Database study. Phase 4, slated to commence recruitment in 2024, holds promise for further insights into CP.
MyStory: Understanding the Health and Well-being of Youth and Young Adults with Cerebral Palsy
Under the leadership of Dr. Jan Willem Gorter at McMaster Children’s Hospital, the MyStory study was conducted as part of the Wellness Platform, a component of the ‘Individual & Family Level.’ Completed in 2023, this longitudinal cohort study recruited adolescents and young adults aged 13-30 years across Ontario (McMaster Children’s Hospital, the Children’s Hospital of Eastern Ontario, The Ottawa Hospital, and through partnering advocacy groups, including the Ontario Federation for Cerebral Palsy) to understand how maturational changes interact with life stressors during adolescence and young adulthood and impact cognition, academic achievement, employment, social skills, and quality of life. Phase 3 of this study included completing surveys and providing hair samples to test for cortisol (a marker of chronic stress). Recruitment has concluded, with findings soon to be published.
CP-NET Clinical Database Platforms – Phase 4 Adult Cohort
Embarking on a new frontier, CP-NET’s Adult Clinical Database Platform study is beginning in Phase 4. The Adult Cohort will recruit adults with CP from rehabilitation centers in Hamilton, Ottawa, and London. A standardized patient database will include demographics, medical history, and function in daily life activities, among others. The study aims to establish an Ontario-wide research database of adults with cerebral palsy that will leverage existing infrastructures to integrate a wide range of clinical, neurodevelopmental, psychosocial, and participation measures and to allow researchers to explore the natural history of adult life for those with CP as well as specific outcomes related to pain, fatigue, participation, mental health outcomes, and healthcare needs/usage through usage of the collected data. Funding for the study began in October 2023 and will commence in 2024, pending ethics approval.
CBC Kids
The CBC Kids Project explores how children experience closed captioning in television. It aims to understand the current landscape, identify gaps and barriers, discover alternatives, and learn about children’s preferences.
CBC Kids
The CBC Kids Project is exploring how children aged 6-10 experience closed captioning in television programming. Our goal is to understand what closed captioning options are currently available for this population, identify gaps and barriers, discover which alternative closed captioning options best support content comprehension, and learn about the preferences of children with and without disabilities regarding closed captioning.
We conducted a thorough review of existing research, identifying factors that impact the viewing experience such as typography, line breaks, captioning speed, editing, positioning, and attention-enhancing techniques. After careful consideration, we decided to focus on the positioning of captions and attention-inducing features in our user tests with children
To engage our target audience, CBC Kids created short, animated clips with captions presented in traditional, dynamic, or karaoke styles. Children aged 6-10, with at least a Grade 1 reading level and an understanding of English, were invited to participate either online or in person at McMaster University. For in-person participants, eye-tracking technology was used to monitor how they watched the videos.
By March 31, 2024, we had 67 children participate in the study (13 in person and 54 online), including 16 children with disabilities. Data analysis is currently underway to assess reading proficiency, time spent viewing captions, and preferences for different captioning styles. Our findings will be shared through the CanChild website, social media, plain language reports, and academic conferences, aiming to improve accessibility and the learning experience for all children.
Principal Investigator: Dr. Olaf Kraus de Camargo, CanChild Centre
Co-Investigators: Dr. Victor Kuperman, ARiEAL, McMaster University; Dayle McCauley, CanChild Centre
Research Coordinator: Dr. Melda Coskun
CBC Kids: Karen Clout; Sarah Duda; Niki Ramesh; Olena Sullivan
Functioning in Down Syndrome
This study explores functioning in children with Down syndrome using a comprehensive biopsychosocial assessment to describe their participation levels, identify barriers and facilitators to involvement, and influences on activity.
Functioning in Down Syndrome
This study explored the functioning of children with Down syndrome aged 6- 17 years old. Using a comprehensive biopsychosocial assessment based on the ICF model, we aimed to describe their participation at home, school, and community, identify barriers and facilitators to their involvement, and explore which biopsychosocial factors influence their activities. Additionally, we sought to understand the concerns of their caregivers.
We gathered insights from 106 caregivers of children with Down syndrome. To be part of the study, the children needed a formal diagnosis of Down syndrome, and the caregivers had to have access to a cell phone or computer with internet to complete the survey. Children with other known diagnoses, such as autism spectrum disorder, attention-deficit/hyperactivity disorder, and sensory impairments not directly associated with Down syndrome (e.g., visual or hearing impairments not corrected using devices) were not included in the study.
We are currently completing our analysis of data on school and community participation, as well as data related to caregivers’ concerns regarding the child.
Principal Investigator: Dr. Beatriz Helena Brugnaro, Child Development Analysis Laboratory, Federal University of São Carlos, Brazil
Co-Investigator: Dr. Olaf Kraus de Camargo, CanChild Centre
Lab Coordinator: Dr. Nelci Adriana Cicuto Ferreira Rocha, Child Development Analysis Laboratory, Federal University of São Carlos, Brazil
The Centre
The Centre
Founded in 1989 at McMaster University, CanChild is a world leader in the field of childhood disability. Below we have highlighted our team and partners who contributed to our success in 2023!
Directors
Briano DiRezze (McMaster University)
Olaf Kraus de Camargo(McMaster University)
Co-Founders
Mary Law (McMaster University)
Peter Rosenbaum (McMaster University)
Scientists
Dana Anaby (McGill University)
Laura Brunton (Western University)
Chantel Camden (University of Sherbrooke)
Wenonah Campbell (McMaster University)
Eyal Cohen (University of Toronto)
BJ Cunningham (Western University)
Carol DeMatteo (McMaster University)
Jan Willem Gorter (McMaster University)
Marjolijn Ketelaar (University Medical Center Utrecht)
Mary Khetani (University of Illinois Chicago)
Anne Klassen (McMaster University)
Danielle Levac (University of Montreal)
Robert Palisano (Drexel University)
Michelle Phoenix (McMaster University)
Gabriel Ronen (McMaster University)
Brian Timmons (McMaster University)
Sandra VanderKaay (McMaster University)
Scientist Emeritus
Doreen Bartlett (Western University)
Johanna Darrah (University of Alberta)
Marilyn Kertoy (Western University)
Cheryl Missiuna (McMaster University)
Dianne Russell (McMaster University)
Debra Stewart (McMaster University)
Nancy Thomas-Stonell (Bloorview Research Institute)
Stephen Walter (McMaster University)
Associate Members
Gary Bedell (Tufts University)
Sheila Bennett (Brock University)
Jan Burke-Gaffney (McMaster University)
John Cairney (The University of Queensland)
Lisa Chiarello (Drexel University)
Wendy Coster (Boston University)
Nora Fayed (Queen’s University)
Darcy Fehlings (University of Toronto)
Mark Ferro (University of Waterloo)
Robin Gaines (Children’s Hospital of Eastern Ontario)
Barbara Gibson (University of Toronto)
Adrienne Harvey (Royal Children’s Hospital)
Sandy Hodgetts (University of Alberta)
Christine Imms (Australian Catholic University)
Lynn Jeffries (University of Oklahoma)
Marian Jongmans (Utrecht University)
Gillian King (Bloorview Research Institute)
Dafna Kohen (Statistics Canada)
Niina Kolehmainen (Newcastle University)
Lena Krumlinde-Sundholm (Karolinska Institutet)
Matthew Kwan (Brock University)
Lucyna Lach (McGill University)
Alyssa LaForme Fiss (Mercer University)
Sanjay Mahant (Hospital for Sick Kids)
Lívia Magalhães (Federal University of Minas Gerais)
Ronit Mesterman (McMaster University)
Chris Morris (University of Exeter)
Eva Nordmark (Lund University)
Iona Novak (University Notre Dame)
Barbara Piskur (Zuyd University)
Christelle Pons (Université de Bretagne Occidentale)
Keiko Shikako-Thomas (McGill University)
Olaf Verschuren (Rehabilitation Centre de Hoogstraat)
Jonathan Weiss (York University)
Sarah Westcott McCoy (University of Washington)
Virginia Wright (Bloorview Research Institute)
Lonnie Zwaigenbaum (University of Alberta)
Jill Zwicker (University of British Columbia)
CanChild Staff
Abigail Atmadja, Communications Coordinator
Samantha Dong, Website and Communications Assistant (until March 2023)
Jessica Geboers, Website and Communications Assistant
Danijela Grahovac, Technical Support Specialist
Anne MacLeod, Administrative Assistant
Dayle McCauley, Research Development Officer
Sanjana Sundar, Social Media and Digital Content Coordinator
Rachel Teplicky, Business & Engagement Officer
Laura Turner, Clinician Consultant
Marilyn Wright, Clinician Consultant
Research Staff/Assistants
Melda Coskun, CBC Project
Leah Dix, P4C Project
Cindy DeCola, P4C Project
Barb Galuppi, CHILD-BRIGHT READYorNot, BEYOND & COVID and Transition Projects
Oksana Hlyva, JTP Project
Sarah Hopmans, CP-NET, C-BiLLT & F-words Projects
Debbie Hughes, ENVISAGE & F-words Projects
Hayli Jang, JTP Project
Annie Jiang, P4C Project
Shannon Lane, P4C Project
Carrie Leo, JTP Project
Rachel Martens, Family Engagement in Research Project
Lynda Moore, Family Engagement in Research & F-words Projects
Christiana Okyere, P4C Project
Samantha Perrotta, Back to Play Project
Sara Pot, F-words & Family Engagement in Research Projects
Sandra Sahagian Whalen, P4C Project
Alice Soper, Family Engagement in Research Project
Kathy Stazyk, Back to Play Project
Amanda St. Dennis, Family Engagement in Research Project
Sonya Strohm, CHILD-BRIGHT READYorNot Project
Anya Swain, COVID Time Capsule & GrowDMD Projects
Sarah Terreberry, P4C Projects
Vanessa Tomas, F-Words Project
Jessica Vandenbussche, JTP Project
Sarah Wellman-Earl, MPOC 2.0 Project
Student Research Assistants
Alisha Ahmed
Sarah Ali
Hamda Altaf
Amelia Brushett
Carmen Kalo
Maliah Leblanc
Isha Mehreen
Hannah Nguyen
Lucy Thomas
Beverly Tran
Brittany Zaretsky
Richard Zheng
Post-Doctoral Fellows
Christina Belza (Supervised by Eyal Cohen)
Victoria Boyd (Supervised by Wenonah Campbell)
Paula Chagas (Supervised by Peter Rosenbaum)
Carly Cermak (Supervised by BJ Cunningham)
Andrea Cross (Supervised by Jan Willem Gorter) until November 2023
Pegah Firouzeh (Supervised by Briano DiRezze)
Matt Freeman (Supervised by Briano DiRezze)
Samory Houzangbe (Supervised by Danielle Levac)
Karen Hurtubise (Supervised by Michelle Phoenix)
Zoey Leyland (Supervised by BJ Cunningham)
Samantha Micsinszki (Supervised by Michelle Phoenix)
Monika Novak Pavlic (Supervised by Michelle Phoenix & Gillian King)
Linda Nguyen (Supervised by Keiko Shikako Thomas, Jan Willem Gorter & Marjolijn Ketelaar)
Annie Pouliot (Supervised by Danielle Levac)
Kinga Pozniak (Supervised by Jan Willem Gorter)
Enid Selkirk (Supervised by Wenonah Campbell) until March 2023
Bhanu Sharma (Supervised by Brian Timmons)
Michal Waisman-Nitzan (Supervised by Dana Anaby)
PhD Students
Maddy Byra (Supervised by Brian Timmons)
Peter Cahill (Supervised by Wenonah Campbell) graduated in 2023
June Coan-Brill (Supervised by BJ Cunningham)
Dinesh Ghatamaneni (Supervised by Laura Brunton)
Caroline Hui (Supervised by Dana Anaby)
Lina Ianni (Supervised by Dana Anaby & Chantal Camden)
Meaghan Lewcock (Supervised by BJ Cunningham)
Jia Lu Lin (Supervised by Eyal Cohen)
Inge Klatte (Supervised by Marjolijn Ketelaar)
Dorinde Korteling (Supervised by Marjolijn Ketelaar)
Basiliki Passaretti (Supervised by Wenonah Campbell)
Nathalie Patty (Supervised by Marjolijn Ketelaar)
Diane Peterson (Supervised by Michelle Phoenix)
Meaghan Reitzel (Supervised by Michelle Phoenix)
Lineke Rehorst (Supervised by Marjolijn Ketelaar)
Kari Renahan (Supervised by Wenonah Campbell)
Kathryn Hatherly (Supervised by BJ Cunningham)
Mallory Ryan (Supervised by Dana Anaby)
Eline Scholten (Supervised by Marjolijn Ketelaar)
Liesbeth Segers (Supervised by Marjolijn Ketelaar)
Sureka Selvakumaran (Supervised by Briano DiRezze)
Saeideh Shahin (Supervised by Dana Anaby)
Ingrid Singer (Supervised by Jan Willem Gorter)
Alice Soper (Supervised by Peter Rosenbaum)
Stephanie Tremblay (Supervised by Dana Anaby)
Nathalie Trottier (Supervised by Chantal Camden)
Jet van der Kemp (Supervised by Marjolijn Ketelaar)
Maren van Rijssen (Supervised by Marjolijn Ketelaar)
Family & Youth Advisors/Co-Investigators
Brenda Agnew, F-words & C-BiLLT Project, & CP-NET Program
Dana Arafeh, CHILD-BRIGHT READYorNot Project
Musa Arafeh, CHILD-BRIGHT READYorNot Project
Elizabeth Chambers, MPOC 2.0 & ENVISAGE Projects
Kyle Chambers, CHILD-BRIGHT READYorNot Project
Crystal Chin, CP-NET Program
Rosarie Coughlan, CP-NET Program
Genevieve Currie, COVID Time Capsule
Claire Dawe McCord, CHILD-BRIGHT READYorNot Project
Amanda Doherty-Kirby, COVID Time Capsule & Youth Engagement in Research Projects
Michael Frost, CHILD-BRIGHT READYorNot Project
Kathy Fruck, CP-NET Program
Jessica Geboers, COVID and Transition, Youth Engagement in Research & CP-NET Projects
Danijela Grahovac, F-words, COVID and Transition, COVID Time Capsule & C-BiLLT Projects
Vasilije Grahovac, COVID Time Capsule Youth Advisor
Julia Hanes, CHILD-BRIGHT READYorNot Project
Jessica Havens, CHILD-BRIGHT READYorNot Project
Dilshad Kassam-Lallani, COVID and Transition Project & Transition Hub Family Steering Committee Advisor
Zach Kirby, COVID Time Capsule Youth Advisor
Marion Knutson, ENVISAGE Project
Manda Krpan Mesic, CP-NET Program
Dr. Victor Kuperman, CBC Project
Callum LaCour, COVID Time Capsule Youth Advisor
Jeanine Lebsack, COVID Time Capsule Project
Maddox Lebsack, COVID Time Capsule Youth Advisor
Stephanie LeClerc, F-words Project
Ali Martens, MPOC 2.0 Project
Rachel Martens, MPOC 2.0, ENVISAGE Projects, & Family Engagement in Research Projects
Susan McCoy, CP-NET Program
Lynda Moore, F-words Project
JoAnne Mosel, F-words & CHILD-BRIGHT READYorNot Projects
Kinga Pozniak, CP-NET Program & CHILD-BRIGHT READYorNot Projects
Connie Putterman, Family Engagement in Research, MPOC 2.0 & CHILD-BRIGHT READYorNot Projects
Kelsey Seguin, CP-NET Project
Heather Shearer, CP-NET Program
Amanda St. Dennis, CP-NET, Youth Engagement in Research Projects, Transition Hub Youth Steering Committee Member, & Family Engagement in Research Projects
Danny Steeves, CP-NET & Youth Engagement in Research Projects
Nathan Tasker, CHILD-BRIGHT READYorNot Project
Carina Vogel, CP-NET Program
Kasia Swieczkowska, F-words Project
Donna Thomson, Family Engagement in Research & CHILD-BRIGHT READYorNot Projects
Natasha Trehan, Youth Engagement in Research Project
Jaime Winkler, ENVISAGE-SP Project
Advisory Board Members
Ian Buchanan
Jennifer Crowson
Susanne Flett
Jonathan Lu
David Mosher
Peter Rosenbaum
Nathasha Trehan
Scientific Advisory Board
Olaf Kraus de Camargo, Co-Director
Briano Di Rezze, Co-Director
Peter Rosenbaum, Co-founder
Wenonah Campbell, Scientist
Mary Khetani, Scientist
Dayle McCauley, Research Development Officer
Brian Timmons, Scientist
Robert Palisano, Scientist
School of Rehabilitation Science
Dina Brooks, Vice Dean
Zrinka Granic, Director of Administration
Department of Pediatrics
Angelo Mikrogianakis, Chair
Gunjan Srivistava, Director of Administratio
Faculty of Health Sciences
Jonathan Bramson, Vice-Dean, Health Sciences, Research
Collaborators
CanChild proudly collaborates with the following key organizations to generate knowledge and transform lives:
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By the Numbers
By the Numbers
Click on each button to learn more about CanChild’s success in securing funding, publishing papers, and disseminating findings in 2023!
122 Publications
CanChild Publications 2023
* indicates open access
- *Amin. R., Verma, R., Qing Bai, Y., Cohen, E., Guttmann, A., Gershon, A.S., Katz, S.L., Lim, A., Rose, L. (2023). Incidence and Mortality of Children Receiving Home Mechanical Ventilation. Pediatrics, 151(4):e2022059898.
- *Anaby, D.R., Avery, L., Palisano, R.J., Levin, M.F., Khayargoli, P., Hsieh, Y., Gorter, J.W., Teplicky, R. (2023). Participation and Beyond: The Benefits of Environment-based Approaches Among Young people with Physical Disabilities During COVID-19. Developmental Medicine and Child Neurology, 00:1-8.
- *Andringa, A., Veerkamp, K., Roebroeck, M., Ketelaar, M., Klem, M., Dekkers, H., Voorman, J., van Driel, M., Buizer, A. (2023). Combined surveillance and treatment register for children with cerebral palsy: the protocol of the Netherlands CP register. BMJ Open, 13:e076619.
- *Bedard, C., Timmons, B.W., Ferro, M.A. (2023). Exploratory examination of the association between physical-mental multimorbidity and physical activity in children. Frontiers in Pediatrics, 11: 920629.
- *Belza, C., Pullenayegum, E., Nelson, K.E., Aoyama, K., Fu, L., Buchanan, F., Diaz, S., Goldberg, A., Guttmann, A., Moore Hepburn, C., Mahant, S., Martens, R., Nathwani, A., Saunders, N., Cohen, E. (2023). Severe Respiratory Disease among Children with and without Medical Complexity during the COVID-19 pandemic. JAMA Network Open, 6(11):e2343318.
- *Biemans, C.F.M., Nijhof, S.L., Gorter, J.W., Stevens, G.J.W.M., van de Putte, E., Hoefnagels, J.W., van den Berg, A., van der Ent, C.K., Dudink, J., Verschuren, O.W. (2023). Self-reported quantity and quality of sleep in children and adolescents with a chronic condition compared to healthy controls. European Journal of Pediatrics, 182(7):3139-3146.
- *Bootsma, J.N., Campbell, F., McCauley, D., Hopmans, S., Grahovac, D., Cunningham, B.J., Phoenix, M., Kraus de Camargo, O., Geytenbeek, J.J.M., Gorter, J.W. (2023). Psychometric properties of the English language version of the C-BiLLT evaluated in typically developing Canadian children. Journal of Pediatric Rehabilitation Medicine, 16(1), 71-81.
- Bootsma, J.N., Stadskleiv, K., Phoenix, M., Geytenbeek, J.J.M., Gorter, J.W., McCauley, D., Fiske, S., Campbell, F., Crews, N., Cunningham, B.J. (2023). Implementation of the C-BiLLT, an accessible instrument to assess language comprehension in children with limited motor and speech function: an international clinician survey. Augmentative and Alternative Communication, 39(3), 135-145.
- Bosak, D., Fulford, D., Khetani, M.A. (2023). Formative evaluation of an entrepreneurial sponsored contract for knowledge translation training in occupational therapy relevant research spaces. World Federation of Occupational Therapy Bulletin, 79(2): 236-247.
- *Brandenberger, J., Duchen, R., Lu, H., Wanigaratne, S., Cohen, E., To, T., Piché-Renaud, P.P., Guttmann, A. (2023). COVID-19 Vaccine Uptake in Immigrant, Refugee, and Non-immigrant Children and Adolescents in Ontario, Canada. JAMA Network Open, 6(7):e2325636.
- Breij, L.M., van de Ven, R.A.H., Hulst, R.Y., Smorenburg, A.R.P., Gorter, J.W., Verschuren, O.W. (2023). Body mass index is not suitable for assessing body composition in children with spastic cerebral palsy. Disability and Rehabilitation, 46(3):509-514.
- *Brossman, H.L., Chiarello, L.A., Palisano, R.J., Wynarczuk KD. (2023). A Collaborative Approach to Support Participation in Physical Recreation for Preschool Students with Multiple Disabilities: A Case Series. Disabilities, 3(4): 591-607.
- Brugnaro, B.H., Kraus de Camargo, O., Pfeifer, L.I., Pavão, S.L., Hlyva, O., Rocha, N.A.C.F. (2023). Association between participation at home and functional skills in children and adolescents with Down syndrome: A cross-sectional study. Child: care, health and development, 50(1):e13197.
- *Brugnaro, B.H., Vieira, F.N., Kraus de Camargo, O., D., Rocha, N.A.C.F. (2023). What was the community support offered to people with disabilities during the COVID-19 pandemic in Brazil? A pilot study as part of a global survey. International Journal of Health Science, 3(32), 2-22.
- *Cahill, P., Missiuna, C., DeCola, C., Dix, L., Campbell, W.N. (2023). Structural validity and internal consistency of an outcome measure to assess self-reported educator capacity to support children with motor difficulties. Frontiers in Education, 8.
- Cahill, P. T., Ng, S. L., Dix, L., Ferro, M.A., Turkstra, L. S., & Campbell, W.N. (2023). Outcomes management practices in tiered school-based speech-language therapy: A Canadian example. International Journal of Language and Communication Disorders, 58(3): 786–801.
- *Campbell, W.N., Missiuna, C. Dix, L., Sahagian-Whalen, S. (2023). Partnering for Change: Collaborating to transform occupational therapy services that support inclusive education [Perspective]. Frontiers in Public Health, 11:1275920.
- *Cohen, E., Fu, L., Brown, H.K., Grandi, S.M., Boblitz, A., Fang, J., Austin, P.C., Nathwani, A.A., Szentkύti, P., Horváth-Puhó, Sørensen, H.T., Ray, J.G. (2023). Adverse perinatal events and maternal interpregnancy weight change: A population-based observational study. International Journal of Gynecology & Obstetrics.
- *Cohen, E., Quartarone, S., Orkin, J., Moretti, M.E., Emdin, A., Guttmann, A., Willan, A.R., Major, N., Lim, A., Diaz, S., Osqui, L., Soscia, J., Fu, L., Gandhi, S., Heath, A., Fayed, N. (2023). Effectiveness of Structured Care Coordination for Children With Medical Complexity: The Complex Care for Kids Ontario (CCKO) Randomized Clinical Trial. JAMA Pediatrics, 177(5):461-471.
- *Cox, V.C.M., Welten, J.J.E., Schepers, V.P.M., Ketelaar, M., Kruithof, W.J., Van Heugten, C.M., Visser-Meily, J.M.A. (2023). Burden, anxiety and depressive symptoms in partners – course and predictors during the first two years after stroke. Topics in Stroke Rehabilitation, 30(6):533-542.
- *Cunningham, B.J., Nepotiuk, A., Rosenbaum, P., Thomas-Stonell, N. (2023). Interrater reliability of the FOCUS-34: Parent to parent and parent to clinician. Communication Disorders Quarterly, 45(2):135-138.
- *Currie, G., Doherty-Kirby, A., Lebsack, G., Grahovac, D., Pozniak, K. (2023). “Falling off a cliff”: Mothering Disabled Children Through the Pandemic and Beyond. Journal of the Motherhood Initiative for Research and Community Involvement 14 (1): 62-82.
- *Da Costa, I.G.R., Brugnaro, B.H., Lima, C.R.G., Kraus de Camargo, O., Fumincelli, L., Pavão, S.L., & Rocha, N.A.C.F. (2023). Perceived Social Support and Quality of Life of Children with and without Developmental Disabilities and Their Caregivers during the COVID-19 Pandemic in Brazil: A Cross-Sectional Study. International Journal of Environmental Research and Public Health, 20(5), 4449.
- Demers, I., Corriveau, G., Morneau-Vaillancourt, G., Lamontagne, M.E., Camden, C., Moffet, H., Maltais, D.B. (2023). A Clinical Practice Guide to Enhance Physical Activity Participation for Children with Developmental Coordination Disorder in Canada. Physiotherapy Canada, 75(3):293-307.
- *Denusik, L., Servais, M., Glista, D., Hatherly, K., Moodie, S., Oram Cardy, J., Cunningham, B.J. (2023). Families’ experiences in the virtual Hanen More Than Words program during the COVID-19 pandemic. American Journal of Speech-Language Pathology, 32(2):701-716.
- *Diskin, C., Orkin, J., Dharmaraj, B., Agarwal, T., Parmar, A., McNaughton, K., Cohen, E., Sunderji, A., Faraoni, D., Fecteau, A., Fischer, J., Maynes, J., Mahant, S., Friedman, J. (2023). Secondary impacts of the COVID-19 pandemic at a tertiary children’s hospital in Canada: a mixed-methods study. BMJ Open, 13(4):e059849.
- *Diskin, C., Robinson, K., Agrawal, R., Masterson, D., Coleman, C., Cohen, E. (2023). Family Partnership in Continuing Medical Education: A Collaborative Experience. Pediatrics, 151(5):e2022060280.
- Dostie, R., Gaboury, I., Trottier, N., Hurtubise, K., Camden, C. (2023). Acceptability of a Multimodal Telerehabilitation Intervention for Children Ages 3-8 Years with Motor Difficulties: Results of a Qualitative Study. Developmental Neurorehabilitation, 26(5):287-301.
- *D’Souza, D., Empringham, J., Pechlivanoglou, P., Uleryk, E.M., Cohen, E., Shulman, R. (2023). Incidence of Diabetes in Children and Adolescents During the COVID-19 Pandemic: A Systematic Review and Meta-Analysis. JAMA Network Open, 6(6):e2321281.
- *Evans, A., Mahar, A.L., Deb, B., Boblitz, A., Brownell, M., Guttmann, A., Stukel, T.A., Cohen, E., Sarkar, J., Eze, N., Katz, A., Raveendran, T., Saunders, N. (2023). Gaps in childhood immunizations and preventive care visits during the COVID-19 pandemic: a population-based cohort study in children in Ontario and Manitoba, Canada, 2016-2021. Canadian Journal of Public Health, 114(5):774-786.
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BOOKS:
- Palisano, R.J., Orlin, M.N., Schreiber, J. (2023). (Eds.): Campbell’s Physical Therapy for Children. Edition 6 St. Louis. Elsevier.
- Schreiber, J., Palisano, R.J. (2023). Evidence-Based Clinical Decision-Making in Pediatric Physical Therapy. In Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.
BOOK CHAPTERS:
- Cicirello, N.A., Doty, A.K., Palisano, R.J. (2023). Transition to Adulthood for Youth with Disabilities. In: Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.
- Cohen, E., Mahant, S. (2023). Feeding Tubes. In: Caring for the Hospitalized Child: A Handbook of Inpatient Pediatrics, 3rd Edition (Gershel JC, Rauch DA, eds). American Academy of Pediatrics, 217-224. Itasca, IL, USA.
- Lindsay, S., Ahmed, H., Tomas, V., Vijaykaymar, A. (2023). Lessons learned in conducting online Zoom qualitative interviews during COVID-19 with youth with disabilities (invited book chapter). In: Hayre C, Muller P, Hackett S. The future of qualitative research in healthcare: the role and management of methods. Cambridge: Cambridge University.
- Miller A., Gardiner E., Rosenbaum P.L. (2023). A Non‐categorical Approach to Childhood Neurodisability: Concepts, Evidence and Implications for Clinical Practice, Organization of Services, Teaching, and Research. In: Eisenstat D, Goldowitz D, Oberlander T, & Yager J. (Eds) Neurodevelopmental Pediatrics : Genetic and Environmental Influences. UK: Springer” (pp. 677-687) (eBook).
- Ronen G.M., Rosenbaum P.L. (2023). How Does the WHO’s Framework for Functioning, Disability and Health (ICF) Provide an Ethical Foundation for 21st Century Clinicians? In: Ethics and Intellectual and Developmental Disability (eds. Bianchi A and Vogt J).
- Wright, M., Palisano, R.J. (2023). Cerebral Palsy. In: Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.
- Yinusa-Nyahkoon, L., Khetani, M.A. (2023). Social participation. In Gillen and Brown (Eds.) and Ramugondo (Consulting Editor), Willard and Spackman’s Occupational Therapy (14th edition).
REPORTS:
- Kim, R., Cohn, I., Verstegen, R., Juurlink, D., Rieder, M., Charames, G.S., Sadikovic, B., Carroll, J., Freedman, Z., Fu, L., Zabawa, M., Cohen, E., Chan, K., Bell, K., Kim, R., Hart, J., Pollett, A., Healey, R., Lahan, S., Yeung, L., Neumark, S., Schmitz, M. (2023). Pharmacogenomics: Recommendations for Ontario [Report]. Ontario Health (Cancer Care Ontario), 1- 28.
229 Presentations
CanChild Presentations 2023
KEYNOTES
- Campbell, W. (2023, November). Using realist evaluation to explain when, how, and Partnering for Change is successful in a Canadian context [Invited Keynote]. Swedish Research Network for Participation and School-Based Interventions, Uppsala University, Sweden (Virtual).
- Kraus De Camargo, O. (2023, February). How to Become a “Great Health Professional”?. ICF Course, Isreal.
- Kraus De Camargo, O., Rosenbaum, P., Chambers, E. (2023, November). Relationships Between Service Providers and Families. 10th Annual CP-Net Science and Family Day (Virtual).
- Palisano, R. (2023, October). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
- Phoenix, M. (2023, February). Examining Access and Equity in Children’s Rehabilitation Services. International Women and Children’s Health Conference, Ontario, Canada.
- Rosenbaum, P. (2023, October). Childhood Disability in the 21st Century: Can We Create a Canadian Model for the World? [Invited Keynote]. Kids Brain Health Network Brain Development Conference: Invited Fraser Mustard Lecture, Ottawa, Ontario, Canada.
- Rosenbaum, P. (2023, November). How are ‘F-words’ transforming the world of Childhood Disability! [Invited Keynote]. Reimagine 2023 Conference, Australia (Virtual).
ORAL/LECTURE PRESENTATIONS
- Beattie, K., Cross, A. (2023, June). Next steps for patient and family engagement in child health research! [Invited Speaker]. McMaster University Department of Pediatrics Research Roundtable.
- Bedard, C., Obeid, J., Timmons, B.W., Ferro, M.A. (2023, June). Longitudinal physical activity behaviour among children with physical-mental multimorbidity. Canadian Society for Epidemiology and Biostatistics, Halifax, Canada.
- Benders, M., Ketelaar, M. (2023, February). Vroege voorspelling bij NICU baby. Presentatie Congres SCEM ‘De prematuur: Van baby tot adolescent.
- Bernhard, N., Talarico, S., Kumagai, A., Boyd, V.A., Herzog, L. (2023, April). Fostering Transformative Learning through Dialogue: Creating Safe Spaces that Support Discomfort (workshop). International Congress on Academic Medicine (ICAM).
- Binns, A., Wang, M., Cunningham, B.J., Oram Cardy, J. (2023, May). Speech-Language Pathologists’ Perspectives on Where Autism Researchers Should Focus Their Efforts. International Society for Autism Research Annual Meeting Stockholm, Sweden.
- Boyd, V.A. (2023, April). Dialogic education: Advancing a theory-informed approach to fostering critically reflective practice [Invited Presentation]. Department of Medical Education Research Rounds, College of Medicine, University of Chicago Illinois, Chicago, Illinois, USA.
- Boyd, V.A. (2023, November). Fostering Critically Reflective Practice in Speech-Language Pathology: What, Why, and How [Invited Presentation]. Department of Speech-Language Pathology, School of Rehabilitation Sciences, McMaster University, Hamilton, Ontario, Canada.
- Boyd, V.A., Binns, A., Forsey, J. (2023, February). Communication through dialogue: Creating opportunities for sharing knowledge (workshop). Convergence, Toronto, Ontario, Canada.
- Boyd, V.A., Binns, A., Forsey, J. (2023, May). Optimizing communication through dialogue: towards trusting patient-provider alliances (workshop). Collaborating Across Borders (CAB) Conference, Toronto, Ontario, Canada.
- Boyd, V.A., Forsey, J., Diaz, B., Ng, S.(2023, January). Teaching Healthcare Communication through Critical Pedagogy [Invited Presentation]. Best Practice in Education Rounds (BPER), jointly hosted by the Centre for Faculty Development, The Wilson Centre, and the Centre for Advancing Collaborative Healthcare & Education, University of Toronto, Toronto, Ontario, Canada.
- Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, December). Towards critically reflective practice: Examining the impacts of a dialogic teaching and learning approach [Abstract]. Innovations in Education Conference, McPherson Institute, Hamilton, Ontario, Canada.
- Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, February). Towards collaborative practice: Mapping the potential outcomes of teaching for critically reflective practice in the context of writing clinical letters for children with disabilities [Abstract]. Convergence, Toronto, Ontario, Canada.
- Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, May). Leveraging critical disability studies to reimagine health professions education [Abstract]. Nordic Network on Disability Research, Reykjavik, Iceland.
- Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, May). Towards collaborative practice: Mapping potential outcomes of teaching for critically reflective practice in the context of writing clinical letters [Abstract]. Collaborating Across Borders (CAB) Conference, Toronto, Ontario, Canada.
- Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, October). Jockeying for position: A critical discourse analysis of the interplay of discourses of disability in clinical letters [Abstract]. Richard K. Reznick Research Week, Toronto, Ontario, Canada.
- Bult-Mulder, M., Ketelaar, M., Voorman, J.M., Willems-op het Veld, M. (2023, May). Instructional Course: Knowledge translation through co-creation: Longitudinal data into readable web-based information for children and young people with cerebral palsy, parents and professionals. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Byra, M.M., Da Silva, S., Chen, S.R., MacDonald, M.J., Cellucci, T., Thabane, L., Timmons, B.W., Obeid, J. (2023, September). Oxygen pulse during exercise in children with a chronic inflammatory disease and healthy controls. 33rd European Group of Pediatric Work Physiology, Wales, United Kingdom.
- Byra, M.M., Proudfoot, N.A., Chen, S.R., MacDonald, M.J., Cellucci, T., Batthish, M., Timmons, B.W., Obeid, J. (2023, July). A comparison of cardiovascular health indicators in children with Juvenile Idiopathic Arthritis who meet and do not meet the physical activity guidelines. Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
- Campbell, W., Dix, L. (2023, October). Newest lessons from a provincial study of the Partnering for Change school-based tiered model and implications for practice. Ontario Society of Occupational Therapists Annual Conference, London, Ontario, Canada.
- Campbell, W., Sahagian-Whalen, S., Dix, L. (2023, April). FIRST: A Professional Development Program to Support School-based Tiered Services. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
- Campbell, W., Terreberry, S. (2023, November). Partnering for Change: A collaborative approach to inclusive school-based occupational therapy for all. Ontario Council for Exceptional Children Annual Conference, Toronto, Ontario, Canada.
- Carle, A., Levac, D.E., Marcoux, I., Sellitto, N., Lalonde, J., Fortin, C., Pouliot-Laforte, A. (2023, June). Effects of a personalized gait intervention in a virtual environment in children with neuromusculoskeletal disease. Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
- Cheng, M., Levac, D.E. (2023, July). Impact of affective and environmental factors on children’s motor skill transfer from virtual to physical environments. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Chhina, H., Klassen, A., Cooper, A.P. (2023, February). Development, Translation and Cultural adaptations of LIMB-Q Kids into Hindi: A new patient reported outcome measure for children with lower limb differences. POSICON Annual Meeting, Bhubaneswar, India.
- Chhina, H., Klassen, A., Johnson, L., Belthur, M., Sabharwal, S., Podeszwa, D., Vogt, B., Esparaza, M., Iobst, C., Kerrigan, A., Wright, J., Messner, J., Fernandes, J., Rolfing, J., Bade, D., Cooper, A.P. (2023, March). International field test of LIMB-Q Kids: An internationally applicable PROM for lower limb differences. European Paediatric Orthopaedic Society (EPOS) Annual Meeting, Krakow, Poland.
- Chhina, H., Klassen, A., Rolfing, J., Vogt, B., Belthur, M., Esparaza, M., Bade, D., Kerrigan, A., Wright, J., Ranade, A., Johnson, L., Podeszwa, D., Fernandes, J., Messner, J., Iobst, C., Sabharwal, S., Repo, J., Eylon, S., Cooper, A.P. (2023, July). International Field Test of LIMB-Q Kids: A New Patient Reported Outcome Measure for Lower Limb Differences. LLRS 32nd Annual Meeting, Lake Tahoe, California, USA.
- Coan-Brill, J., Costigan, A., Kay, J., Chau, T., Cunningham, B.J. (2023, May). Facilitating Evidence-Based Assessment: Bringing the C-BiLLT to Canada. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
- Coan-Brill, J., Teachman, G., Costigan, A., Cunningham, B.J. (2023, May). AAC Assessments with Limited Speech/Motor Skills: What Tools Should We Use? Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
- Cohen E. (2023, April). Effectiveness of Structured Care Coordination for Children with Medical Complexity [Invited Presentation]. Maternal and Child Health Bureau, Health Resources and Services Administration, Washington, DC, USA (Virtual).
- Cohen E. (2023, January). Community-engaged Pediatric Hospitalist Research. Pediatric Inpatient Research Network (PIRN) Meeting [Invited Presentation]. The Hospital for Sick Children, Toronto, Ontario, Canada.
- Cohen, E. (2023, June). Implementing health service changes, Making Strides, Moving Forward. CHILDBRIGHT Network Conference, Toronto, Ontario, Canada.
- Cohen E. (2023, May). A Discussion about Care Supports. Childhood disability (without) poverty: a national discussion [Invited Panelist]. Vancouver, British Columbia, Canada (Virtual).
- Cohen, E. (2023, May). Care of the Complex Patient: Informing Patient Centred Research: from Bedside to Bench. 2023 Research Day, Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.
- Cohen E. (2023, May). Effectiveness of Structured Care Coordination for Children with Medical Complexity [Invited Presentation]. Connecting Care for Children with Medical Complexity, Children’s Healthcare Canada, Toronto, Ontario, Canada (Virtual).
- Cohen E. (2023, May). The Complex Care for Kids Ontario Randomized Controlled Trial [Invited Presentation]. Connected Care for Children with Medical Complexity Meeting, Children’s Healthcare Canada, Toronto, Ontario, Canada (Virtual).
- Cohen E. (2023, October). Models of Pediatric Complex Care in North America [Invited Presentation]. Congress on Pediatric Chronic Conditions, IFF/FIOCRUZ, Rio De Janeiro, Brazil (Virtual).
- Cohen E. (2023, September). Complex Care Academic Series: Mobidity and Morality [Invited Presentation]. Target audience: Fellows advanced practice providers and rotating learners, Complex Care Program, The Hospital for Sick Children, Toronto, Ontario, Canada.
- Costello, C., Nguyen, L., Wong, L. (2023, October). From CHILD-BRIGHT: Patient stories making a difference for children with brain-based disabilities and their families. 2023 NorthWest SPOR Collaborative Forum (Virtual).
- Costigan, A., Kay, J., Cunningham, B.J. (2023, May). Breaking the barrier on low-motor language comprehension assessment in Canada. Child Health Symposium, London, Ontario, Canada.
- Cross, A., Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., McCauley, D., Pot, S., Gorter, J.W. (2023, October). Evolution of the Family Engagement Program: Sharing the scalability, reach, and impact of a novel training program [Invited Presentation]. Kids Brain Health Network, Ottawa, Canada.
- Cross, A., Stubbs, A. (2023, November). Finding your way in Patient-Oriented Research: Focusing on the How! [Invited Presentation]. Department of Kinesiology and Physical Education Graduate Seminar, Wilfrid Laurier University, Waterloo, Ontario, Canada.
- Cross, A., Thomson, D., Putterman, C., McGuire, K., Hilderly, A. (2023, October). Entrepreneurship in Family Engagement in Research [Invited Presentation]. Kids Brain Health Network Trainee Day, Ottawa, Ontario, Canada.
- Csercsics, A., Archibald, L., Cunningham, B.J. (2023, June). Working Towards Consistent Terminology in Preschool Speech-Language Pathology. Symposium on Research in Child Language Disorders, Madison, Wisconsin, USA.
- Csercsics, A., Cunningham, B.J. (2023, September). Towards consistent terminology in preschool speech and language disorders [Invited Presentation]. Ontario Preschool Speech and Language Program Provincial Collaborative Meeting (Online).
- Csercsics, A., Denusik, L., Cunningham, B.J. (2023, May). Communicating Clinical Labels to Families – What Makes it so Hard? Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
- Cunningham, B.J. (2023, March). Approaches to assessing and treating Developmental Language Disorder in preschoolers [Invited Presentation]. Child Development & Rehabilitation Eastern Health. St. John’s Newfoundland (Online).
- Cunningham, B.J. (2023, September). Challenges with Terminology and Clinical Label Use in Pediatric SLP [Invited Presentation]. Thames Valley District School Board, London, Ontario, Canada.
- Da Silva, S.M., Byra, M.M., Chen, S.R., MacDonald, M.J., Cellucci, T., Thabane, L., Timmons, B.W., Obeid, J. (2023, July). Assessing aerobic fitness in youth with a chronic inflammatory disease. Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
- Denusik, L., Glista, D., Servais, M., Friesen, J., Oram Cardy, J., Cunningham, B.J. (2023, May). Are we targeting the outcomes caregivers value? Exploring caregivers’ views on the important outcomes of caregiver-mediated programs for young autistic children and their families. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
- Denusik, L., Miletic, K., Binns, A., Cunningham, B.J., Weitzman, E., Oram Cardy, J. (2023, March). A large-scale program evaluation of a virtual parent-training program to support social communication in young autistic children. Centre for Health Services and Policy Research 35th Annual Health Policy Conference, Vancouver, British Columbia, Canada.
- Di Rezze, B. (2023, April). ACSF Education [Invited Presentation]. Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.
- Di Rezze, B. (2023, April). Building Collaboration in Autism Postsecondary Education Supports [Invited Presentation]. Autism Alliance of Canada Leadership Summit 2023, Ottawa, Ontario, Canada.
- Di Rezze, B., Freeman, M., Rianto, M. (2023, February). Developing actionable COVID-19 infection control guidance in congregate living settings within the Developmental Services sector in Ontario. The Canadian Health and Wellbeing in Developmental Disabilities Conference (HWDD), Canada.
- Di Rezze, B., Geboers, J., Grahovac, D., Anaby, D. (2023, November). Relationship with School and Employment. CP-NET Science and Family Day, Hamilton, Ontario, Canada.
- Di Rezze, B. (2023, May). Understanding Early Diagnosis & Intervention in Children with Developmental Differences through ICF Framework [Invited Presentation]. National Conference on Neurodevelopmental Differences, India.
- Di Rezze, B. (2023, November). Autism Classification System of Functioning: Social Communication (ACSF) – Expansion and Testing for Toddlers to School-Aged Children with Autism Spectrum Disorder [Invited Presentation]. Innovation Fund Showcase, Toronto, Ontario, Canada.
- Di Rezze, B., Palisano, R. (2023, August). ICF/Life Course Models [Invited Presentation]. Medical Residency trainees in Developmental Pediatrics, Hamilton, Ontario, Canada (Virtual).
- Doherty-Kirby, A., Grahovac, D., Swain, A., Pozniak, K., Currie, G., Lebsack, L., Campbell, W., Humphreys, C., Patterson, S., Raha, S., Whitley, J. Kraus de Camargo, O. (2023, October). The COVID Time Capsule Project: Children with Disabilities and Their Parents as Active Participants and Partners in Research. Pride in Patient Engagement in Research (PIPER) Research Day, University Health Network, Toronto, Ontario, Canada.
- Dong, S.Y., Nguyen, L., Cross, A., Doherty-Kirby, A., Geboers, J., McCauley, D., Soper, A.K., St. Dennis, A., Steeves, D., Trehan, N., Gorter, J.W. (2023, April). “Nothing About Us Without Us”: Strategies for Equitable and Meaningful Youth Engagement. EKO Spring Symposium 2023. Toronto, Canada.
- Dong, S.Y., Nguyen, L., Cross, A., Doherty-Kirby, A., Geboers, J., McCauley, D., Soper, A.K., St. Dennis, A., Steeves, D., Trehan, N., Gorter, J.W. (2023, March). “Nothing About Us Without Us”: Strategies for Equitable and Meaningful Youth Engagement. Luke’s Legacy Family Research Rounds
- Dong, S., Nguyen, L., St. Dennis, A., Cross, A., Geboers, J., Steeves, D., Trehan, A., Doherty Kirby, A., Soper, A.K., McCauley, D., Gorter, J.W. (2023, April). Youth Engagement in Research: Exploring Training Needs of Youth with Neurodevelopmental Disabilities. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
- Dostie, R., Trottier, N., Hurtubise, K., Gaboury, I., Camden, C. (2023, May). La téléréadaptation pour supporter les familles d’enfants ayant des difficultés développementales- Une étude qualitative.Canadian Association of Health Service and Policy Research (CAHSPR) Annual Conference, Montreal, Quebec, Canada.
- Ferron, A., Houzangbe, S., Robert, M., Levac, D.E. (2023, July). Activity intensity and electrodermal activity during virtual reality as compared to traditional intensive motor learning-based therapy for children with hemiplegia. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Firouzeh, P., Morris, C., Sonnenberg, L., Manns, P., Pritchard-Wiart, L. (2023, May). The Development of Clinical Practice Considerations for Ankle-Foot Orthosis Prescription and Monitoring for Young Children with Cerebral Palsy. Research Day, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Canada.
- Firouzeh, P. (2023, October). Ankle-Foot Orthoses for Young Children with Cerebral Palsy [Invited Presentation]. School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
- Firouzeh, P. (2023, October). Clinical Practice Considerations for Ankle-Foot Orthoses Prescription and Monitoring for Young Children with Cerebral Palsy [Invited Presentation]. George Brown College, Ontario, Canada.
- Fitzgerald, D., VanderKaay, S., Morin, J. (2023). Diversity criteria in student placement experiences: Faculty influence and the role of placement software [Invited Presentation]. InPlace Webinar (Virtual).
- Hadayeghi, L., Byra, M.M., Ferro, M., Obeid, J., Timmons, B.W. (2023, July). Movement behaviours and health indicators in children with a chronic medical condition or disability (MOMENTUM). Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
- Hatherly, K., Cunningham, B.J. (2023, September). Target Word pragmatic randomized controlled trial [Invited Presentation]. Ontario Preschool Speech and Language Program Provincial Collaborative Meeting (Online).
- Hatherly, K., Glista, D., Brunton, L., Cunningham, B.J. (2023, May). Virtual Synchronous Intervention in Preschool Rehabilitation: A Scoping Review. Child Health Symposium, London, Ontario, Canada.
- Hesketh, K., Bursey, E., Pot, S., Tomas, V. (2023, April). Implementation science in child/family health organizations: WHAT, HOW and WHY (Panel). Empowered Kids Ontario, Toronto, Ontario, Canada.
- Hidecker, M.J.C., Bartley, J., Di Rezze, B. (2023, November). Developing and Testing the Useability of the ACSF Algorithm with Parents of Autistic Children. American Speech-Language-Hearing Association (ASHA) Annual Convention., Boston, Massachusetts, USA.
- Houzangbe, S., Zejli, Y., Lemay, M., Levac, D.E. (2023, July). Quantifying individual and contextual factors that contribute to just-right challenge in an immersive virtual reality pediatric rehabilitation task: a protocol. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Houzangbe, S., Zejli, Y., Lemay, M., Levac, D.E. (2023, June). Collection of ecological physiological data during a paediatric rehabilitation session in virtual reality: a preliminary study. Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
- Hutrubise, K., Gaboury, I., Phoenix, M. (2023, June). Pediatric physiotherapists’ needs and behavior change strategies for sustaining digital practice: Finding from a national survey. World Physiotherapy Congress, United Arab Emirates.
- Imms, C., Babic, R. (2023, March). ENVISAGE: Enabling visions and growing expectations: a parent empowerment program [Invited Speakers]. Kids+ Changemaker Conference, Geelong, Victoria, Australia.
- Imms, C., Miller, L. (2023, November). ENVISAGE: Empowering families [Invited Worshop]. Reimagine 2023 Conference, Brisbane, Australia.
- Jones, M., Charles, L., Hammil, A., Hill, J., Cross, A., Hitchcock, B., Rosenbaum, P., Tomas, V. (2023, September). Partnering to explore the tailored implementation of the F-words for Child Development with an organisation in Aotearoa New Zealand. OTNZ-WNA Conference, Dunedin, New Zealand.
- Ketelaar, M., Soper, A.K., van Meeteren, K.M., Cross, A., Micsinszki, S., Bult, M., Gorter J.W. (2023, May). Let’s not re-invent the wheel: Scalability of a training program in family engagement in research across countries. European Academy of Childhood Disability, Ljubljana, Slovenia (Instructional Course).
- Khetani, M.A. (2023, April). How research in occupational therapy informs practice and elevates equity, justice and human potential [Invited Panelist]. American Occupational Therapy Foundation Future Scientist Institute, Kansas City, Missouri, USA.
- Khetani, M.A. (2023, February). What do Family Engagement in Research Leaders Need to Know About Equity, Diversity, Inclusion and Justice? [Invited Panelist]. Family-Engaged Research Academy, McMaster University, Hamilton, Ontario, Canada.
- Khetani, M.A. (2023, June). What surrounds us, shapes us [Invited Presentation]. Department of Occupational Therapy, College of Applied Health Sciences, University of Illinois Chicago, Chicago, Illinois, USA.
- Khetani, M.A. Lucero, I. (2023, October). Classifying children’s participation and its family of related concepts through the Participation and Environment Measure (PEM) approach. International Classification of Functioning, Disability and Health Turkey Conference, Ankara, Turkey (Hybrid).
- Khetani, M.A. (2023, November). Advancing implementation of a digital health solution for equitable early intervention service quality [Invited Presentation]. University of Massachusetts Medical School Eunice Kennedy Shriver Center Speaker Series, Boston, Massachusetts, USA.
- King, G.A., Phoenix, M., Einarson, K.M. (2023, April). Using the PRIME Engagement Measures for Practice, Education and Research. Empowered Kids Ontario (EKO) Spring Symposium, Ontario, Canada.
- Kraus De Camargo, O. (2023, April). Using the ICF framework for children, families and carers to formulate health and management goals in the context of autism spectrum disorders. International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India.
- Kraus De Camargo, O. (2023, August). Participation of Patients and Families in Research – Reflections from the CanChild Center. Meetings in Pediatric Rheumatology.
- Kraus De Camargo, O. (2023, December). Children with Disabilities and Environmental Factors. Hong Kong Physiotherapy Association Conference, Hong Kong, China.
- Kraus De Camargo, O. (2023, December). Impact of ICF on collaboration and communication. International Developmental Paediatrics Association (IDPA) Conference, Johannesburg, South Africa.
- Kraus De Camargo, O. (2023, October). How participatory action research informed practice and policy at a Canadian childhood disability research organization. National Early Childhood Intervention Congress, Eskişehir, Turkey.
- Kraus De Camargo, O., Soper, A.K., Chambers, E. Micsinszki, S., Martens, R., Posniak, K., Phoenix, M. (2023, September). How Participatory Action Research (PAR) informed practice and policy at a Canadian childhood disability research organization – Reflections from CanChild. 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
- Lancon, A., Roy, C., Fortin, W., Cardinal, M.C., Bau, O., Desgagnés, J., Levac, D.E. (2023, June). Intensive Bimanual Therapy for Children with Hemiplegia: How is Fine Motirism and Gross Motor Skills Targeted? Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
- Langer, T., Friedrich, S., Reeskau, G., Rodger, S., Willems, J., Antonini, G., Brigliadori, B., Guastafierro, E., Leonardi, M., Marcassoli, A., Moroni, I., Nardocci, N., Perinel, G., Petruzza, A., Fournier, A., Frei, J., Gorter, J.W., Gutierrez Rojas, R., Kraus de Camargo, O., McCauley, D., Osman, H., Pozniak, K., Rajapakse, N., Swain, A. (2023, December). Grow DMD: An International Study on Transition of Youth with Duchenne Muscular Dystrophy (DMD). Children’s Healthcare Canada, Vancouver, British Columbia, Canada.
- Levac, D.E. (2023, December). From Tech to Rehab: Applications in Clinical Settings [Invited Presentation]. FWO consortium, Université Libre de Bruxelles, Brussels, Belgium.
- Levac, D.E. (2023, March-April). [Invited Presentation]. 9th Journées Francophones de Kinésithérapie, Rennes, France.
- Levac, D.E. (2023, October). What if we combined research and technology for the benefit of multiple disabilities? [Invited Presentation]. 1st Quebec Forum on Polyhandicap, Montreal, Quebec, Canada.
- Lindsay, S., Fuentes, K., Tomas, V., Hsu, S. (2023, May). Ableism and workplace discrimination among youth and young adults with disabilities in the workforce. Child Health Symposium, London, Ontario, Canada.
- McCorquodale, L., Trudelle, M., VanderKaay, S., Hall, A., Anderson, R. (2023, October). Demystifying preceptorship to meet the need of occupational therapy students. OSOT Conference 2023, London, Ontario, Canada.
- Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., Phoenix, M., Gorter, J.W., Cross, A. (2023, October). Building Leadership Capacity in Family Engagement in Research. PiPER Research Day, Ontario, Canada.
- Miller, L., Imms, C., Cross, A., Pozniak, K., O’Connor, B., Martens, R., Cavalieros, V., Babic, R., Novak-Pavlic, M., Rodrigues, M., Balram, A., Hughes, D., Ziviani, J., Rosenbaum, P., Britt, K. (2023, May). Impact of ENVISAGE-Families workshops on outcomes for caregivers of children with neurodisabilities. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Moll, S., Phoenix, M., Murray-Leung, L., Freeman, B., Micsinszki, S., Mulalu, L., Mulvale, G. (2023, May). A Charter for Inclusive Excellence in Co-Creation of Health and Social Care. Canadian Association for Health Services and Policy Research, Ontario, Canada.
- Moosa, T., Moore, L., Cunningham, B.J., Theurer, J. (2023, May). Engaging End Users to Develop Gender Affirming Voice/Communication Training. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
- Morin, S.A., Da Silva, S., Byra, M.M., Issenman, R.M., Timmons, B.W., Obeid, J. (2023, September). Physical activity and cardiorespiratory fitness in pediatric inflammatory bowel disease. 33rd European Group of Pediatric Work Physiology, Wales, United Kingdom.
- Morris, C., Bourke-Taylor, H., Imms, C., Rosenbaum, P. (2023, May). Promoting health, empowerment and resilience in parents of disabled children: An exploration of novel parent-carer-focused interventions. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Nelson, K., Zhu, K., Thomson, J., Mahant, S., Widger, K., Pullenayegum, E., Feudtner, C., Cohen, E., Feinstein, J. (2023, April). Critical Illness Episodes and Long-Term Survival among Ontario Children with Severe Neurologic Impairment (oral abstract). Pediatric Academic Societies Annual Meeting, Washington, DC, USA.
- Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, December). Advocating for sibling roles: Understanding the experiences of youth and young adult siblings of individuals with a disability, and synthesizing and co-developing resources to support them. Second Siblings Studies Colloquium.
- Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, June). Moving forward: Mobilizing knowledge to co-develop the Siblings Training, Empowerment, and Advocacy Kit (Siblings TEAKit) to support siblings of individuals with a disability. CHILD-BRIGHT Conference.
- Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, October). Moving forward: Mobilizing knowledge to co-develop the Siblings Training, Empowerment, and Advocacy Kit (Siblings TEAKit). Kids Brain Health Network Conference 2023. Ottawa, Canada.
- Nguyen, L., Pozniak, K., Strohm, S., Dawe-McCord, C., Havens, J., Thomson, D., Putterman, C., Arafeh, D., Galuppi, B., Via-Dufresne Ley, A., Doucet, S., Amaria, K., Kovacs, A., Marelli, A., Rozenblum, R., Gorter, J.W. on behalf of the READYorNot™ Brain-Based Disabilities Project Team. (2023, June). The Evolution of our Partnership with Youth and Families on the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Project: Key Reflections and Lessons Learned. CHILD-BRIGHT Conference.
- Noel, M., Dittrich, K., Harrison, L.E., Hurtubise, K., Hess, C.W. (2023, May). Considering the multiple identities of patients with chronic pain: How can we tailor pain care to support young athletes?” Parrallel Symposia. Canadian Pain Society 43rd Annual Scientific Meeting (ASM). Banff, Alberta, Canada.
- Oosterveer, D., Verhage, V., Vroonland, E., de Groot, I., Ketelaar, M. (2023, November). Patiëntenparticipatie in revalidatieonderzoek. Workshop Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
- Palisano, R., DiRezze, B. (2023, April & August). Healthy Development for Children with Autism. McMaster Children’s Hospital, Hamilton, Ontario, Canada (Web presentation).
- Palisano, R. (2023, October). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Taiwan Academy of Pediatric Rehabilitation, Taipei, Taiwan (Web presentation).
- Palisano, R. (2023, October). Physical Therapy for Children with Neurodevelopmental Conditions: Contemporary Perspectives and Evidence Informed Practice. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
- Palisano, R. (2023, October). Preparing Children for Successful Community Participation. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
- Palisano, R. (2023, September). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Brazilian Congress of Neurofunctional Physiotherapy (COBRAFIN), Fortaleza, Ceará, Brazil.
- Palisano, R. (2023, September). Participation-Based Therapy for Children with Physical Disabilities. Brazilian Congress of Neurofunctional Physiotherapy (COBRAFIN), Fortaleza, Ceará, Brazil.
- Passaretti, B., Gallagher, T., Turkstra, L., Jiang, A., Cahill, P., Campbell, W. (2023, January). SLP-Educator Collaborative Practices for the Delivery of Morphological Awareness Instruction: Findings from a Scoping Review [Invited Presentation]. Speech and Language Services Department, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
- Passaretti, B., Turkstra, L., Gallagher, T., Jiang, A., Cahill, P., Campbell, W. (2023, February). Having Fun With Words! Features of Morphological Awareness Instruction [Invited Presentation]. Psychological Services Department, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
- Passaretti, B., Turkstra, L., Gallagher, T., Jiang, A., Cahill, P., Campbell, W. (2023, January). Having Fun with Words! Classroom-Based Morphological Awareness Instruction [Invited Professional Development]. Delivered to the Education Staff at Westwood Elementary School, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
- Phoenix, M., Bruce, E. (2023, November). Transitions in your research – lessons learned from building a community [Invited Presentation]. McMaster Faculty of Health Science, Women’s Symposium, Hamilton, Ontario, Canada.
- Phoenix, M. (2023, May). Using Critical Reflexivity to Advance Access, Equity, and Engagement in SLP Services [Invited Presentation]. Hamilton Health Sciences, Hamilton, Ontario, Canada.
- Phoenix, M., Minogianis, E.A., Salt, M., Reitzel, M., Micsinszki, S. (2023, October). Canadian Neurodevelopmental Research Training Platform. Kids Brain Health Network, Ontario, Canada.
- Phoenix, M. (2023, October). Advancing Equity, Diversity, Inclusion and Justice via Relationships and Research [Invited Presentation]. Kids Brain Health Network, Trainee Days, Ontario, Canada.
- Phoenix, M. (2023, October). Visualizing Equity-Based Co-Creation [Invited Presentation]. Leong Centre, Ontario, Canada.
- Phoenix, M., Reitzel, M., Shiry, G., Simpson, S., King, G. (2023, April). Reimagining missed appointments and family engagement: Organizational considerations. Empowered Kids Ontario, Ontario, Canada.
- Pouliot-Laforte, A., Marcoux, I., Levac, D.E. (2023, October). Integration and use of technologies in pediatric rehabilitation: Successful clinical and research collaborations. CHU Sainte-Justine Pediatric Physiotherapy Symposium.
- Pozniak, K., Currie, G., Doherty-Kirby, A., Grahovac, D., Lebsack, J., LaCour, C., Kirby, Z., Grahovac, V., Lebsack, L., Campbell, W., Humphreys, C., Patterson, S., Raha, S., Whitley, J., Swain, A., Kraus de Camargo, O. (2023, November). A child’s story is a treasure: What services and supports do children with disabilities and their families need, now and into the future? Luke’s Legacy Family Research Rounds, CanChild Centre for Childhood Disability Research.
- Pozniak, K. (2023, November). The Stories Outside These Walls: Parents of children with health conditions share their experiences with healthcare services. McMaster University Pediatric Research Rounds.
- Pozniak, K. (2023, November). Transcending Covid? Disabled children and their families between “returning to normal” and “building back better”. Canadian Anthropology Society/American Anthropological Association Annual Meeting.
- Pozniak, K., Rosenbaum, P., Chambers, E., King, G., Martens, R., Martens, A., Kraus de Camargo, O., McCauley, D., Teplicky, R., Duku, E., Earl, S. (2023, September). What do today’s parents want from healthcare services? Developing a new measure of Family-Centred Service. American Academy for Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
- Reitzel, M., Hurtubise, K., Knobl, E., Campbell, W., Gaboury, I., Phoenix, M. (2023, April). Virtual services: Multiple perspectives to advance training, practice and research. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
- Reitzel, M., Lennon, C., Lasenby-Lessard, J., Di Rezze, B., Letts, L., Novak Pavlic, M., Phoenix, M. (2023, October). Codesigning solutions to enhance families’ experiences with telerehabilitation – Findings and reflections. Kids Brain Health Network Conference, Ontario, Canada.
- Rivet, F., Levac, D.E., Pouliot-Laforte, A. (2023, June). Integrating Technology in Pediatric Rehabilitation: Understanding Clinical Decision-Making. Scientific Day REPAR-INTER, Drummondville, Quebec, Canada.
- Rosenbaum, P. (2023, April). What Lessons from Developmental Pediatrics Might be Relevant to the Whole Field of Child Health? [Invited Presentation]. Grand Rounds, Duke University, North Carolina, USA.
- Rosenbaum, P. (2023, April-May). (i) Family-Centred Care: Principles and Evidence (ii) What Should We Expect in Future for our Field of Childhood Disability? Some ideas for your consideration! (iii) The F-words for Child Development: Foundations I (iv) ENVISAGE (Enabling Visions and Growing Expectations). A parent-carer empowerment program (v) Communicating “Bad News” in Pediatric Patients with Disabilities. A Drama in Three Acts [Invited Presentations]. II Congresso Internacional de Paralisia Cerebral, Campinas, Brazil.
- Rosenbaum, P. (2023, February). Cerebral Palsy: From Diagnosis to Adult Life, Or: ‘CP: Then and Now’ [Invited Talk]. Association of Sri Lankan Neurologists.
- Rosenbaum, P. (2023, February). Research (in Childhood Disability): What are the Issues, and What Do I Do About Them? A Personal Reflection. Health Research Methods Program Talk.
- Rosenbaum, P. (2023, January). F-words for Child Development? What’s that Got to do with Me? [Invited Webinar]. Neurodevelopmental Disability (NDD) Special Interest Group for Child Neurology Society, USA (Virtual).
- Rosenbaum, P. (2023, January). How are we Thinking, Talking and Acting in Childhood Disability in 2023? What is New, What is the Evidence, and Why Should I Care? [Invited Seminar]. 10th Tokyo Physical Therapy Association, Tokyo, Japan.
- Rosenbaum, P. (2023, June). Childhood Disability in 2023: How are We Thinking, Talking and Acting? What is New, What is the Evidence, and Why Should I Care? Ummeed Centre, Mumbai, India.
- Rosenbaum, P. (2023, June). What Lessons from Developmental Pediatrics Might be Relevant to the Whole Field of Child Health? Doug Kinnett Memorial Lecture, Cincinnati Children’s Hospital, Ohio, USA.
- Rosenbaum, P. (2023, May). F-words of Child Development [Recorded Talk]. ICF Facilitator Course, South Africa.
- Rosenbaum, P. (2023, May). Family-Centred Care: Principles and Evidence [Invited Workshop]. Mali dom Centre, Zagreb, Croatia.
- Rosenbaum, P., Novak Pavlic, M. (2023, May). The “ENabling VISions And Growing Expectations” (ENVISAGE) program for parents of children with developmental disabilities: a pilot evaluation and feasibility in Croatia. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Rosenbaum, P. (2023, October). F-words for Child Development? How Can W.H.O.’s ICF Help Us? Sounds Weird… But Tell Me More! [Invited Lecture]. Irish Society of Chartered Physiotherapists, Dublin, Ireland.
- Rosenbaum, P. (2023, October). Seeing Cerebral Palsy through the Lens of WHO’s ICF and CanChild’s F-words: How does this perspective help children, families, and service providers? SESOBEL (Plateau Technique et Centre de Formation Continue) Cerebral Palsy Symposium, Beirut, Lebanon.
- Rosenbaum, P. (2023, October). W.H.O.’s ICF and the F-words: A Memorable Way to Bring Our Ideas Together! IV Polish Academy of Childhood Disability and Polish Association for Persons with Intellectual Disability, Gdansk, Poland.
- Rosenbaum, P. (2023, September). Childhood Disability in 2023: How are We Thinking, Talking and Acting? Ideas for the 21st Century! [Invited Lecture]. In Romania and Moldova.
- Rosenbaum, P. (2023, September). (i) Childhood Disability: Who is the ‘Patient’, and Why Does it Matter? (ii) The WHO’s ICF and the ‘F-Words for Child Development’: Impact Around the World [Invited Lecture]. Children with Cerebral Palsy (CPOP) Program annual conference, Fredericia, Denmark.
- Rosenbaum, P. (2023, September). Parenting Children with Cerebral Palsy: Do We Really Need a Lecture On This? [Invited Lecture]. Elsass Foundation, Copenhagen, Denmark.
- Routhier F., Lettre, J., Desmarais, C., Grandisson M., Morales, E., Lamontagne, M.-E., Julien-Gauthier, F., Mortenson, W.B., Field, D.A., Zwicker, J.G., Campbell, W., Phoenix, M., Belleau, M.-C., Tellier, F., Lamothe, S., Demange-Lacombe, J., Kangkoyiri, F. (2023, May). Accessibilité des services de garde au Canada pour les enfants de 0 à 5 ans en situation de handicap : Méthodologie d’un projet pour dresser un portrait de la situation actuelle. 90th Congress of Acfas, Montreal, Quebec, Canada.
- Roy, I., Salles, J., Doukhane, I., Larivière-Bastien, D., Blondin, A., Levac, D.E., Gauvin-Lepage, J., Bourassa, M., Fiset, S., Tadros, K., Beauchamp, M.H. (2023, July). Perspectives on Digital Health Technologies in Pediatric Care and Rehabilitation. 2023 World Congress for the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Santana, C., Ketelaar, M., Luchesse, C., Rosenbaum, P., De Campos, A.C. (2023). Transition to adulthood according to Brazilian young people with cerebral palsy: What themes do they identify? World Physiotherapy Congress 2023, Dubai.
- Santana, C., Ketelaar, M., Machado, R., Rosenbaum, P., De Campos, A.C. (2023). Percepções de jovens Brasileiros com paralisia cerebral sobre os cuidados de saúde recebidos durante a transição para a vida adulta. II Congresso Internacional de Paralisia Cerebral, Campinas, Brazil.
- Santana, C., Ketelaar, M., Souza, J.R., Rosenbaum, P., de Campos, A.C. (2023, May). When experts by theory work together with experts by experience: lessons learned from partnering with individuals with cerebral palsy in a research project. Poster European Academy of Childhood Disability, Ljubljana, Slovenia.
- Sommers, M., Stukker, A., Kavanaugh, M.S., Ketelaar, M., Visser Meily, J.M.A., Beelen, J.A.J.M. (2023, November). What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions. Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
- Stazyk, K., Perotta, S., DeMatteo, C. (2023). The Back2Play App: A Concussion Management Platform for Children and Youth to Bridge the Gap between Research and Practice. Apple Health Research Summit Cupertino, California, USA.
- St. Dennis, A., Martens, R., Micsinszki, S. (2023, September). Navigating Ablism Everyday. Panel discussion to Surrey Place Spotlight Series.
- Teplicky, R., Wright, M., Rosenbaum, P., Tajik-Parvinchi, D., Pozniak, K., Phoenix, M., Kwok, E., Kraus de Camargo, O., Hesketh, K., Gaetan, A. (2023, April). Designing Systems of Childhood Disability Care in the 21st Century: A Family-Centred, Community-Oriented, Strengths and Functional Needs-Based Approach. Empowered Kids Symposium, Toronto, Ontario, Canada.
- Tomas, V., Moore, L., Nguyen, L., Davis, H., Chin, C. (2023, November). Relationships with siblings and friends (Panel). 10th Annual CP-Net Science and Family Day (Virtual).
- Tomas, V., Teplicky, R., Hesketh, K., Grahovac, D., Pot, S. (2023, October). The F-words implementation journey: from publication to global impact. Kids Brain Health Network Annual Conference, Ottawa, Ontario, Canada.
- Tomas, V., Wittmeier, K., Hammond, E., Wilson, M., Rosenbaum, P., Teplicky, R., Soper, A.K., Cross, A. (2023, October). Partnering together to explore the tailored implementation of the F-words for Child Development at an organizational level: a case study at Specialized Services for Children and Youth (SSCY) Centre. Children’s Hospital Research Institute of Manitoba Child Health Research Days, Winnipeg, Manitoba, Canada.
- Trottier, N., Hurtubise, K., Cloutier, W., Camden, C., Gaboury, I. (2023, July). Barriers and facilitators influencing parental adherence to prevention strategies for deformational plagiocephaly: Results from a scoping review. Canadian Physiotherapy Association (CPA) Congress, Quebec, Canada.
- Tucker, T., Bruijns, B.A., Vanderloo, L.M., Johnson, A.M., Adamo, K.B., Burke, S.M., Carson, V., Heydon, R., Irwin, J.D., Naylor, P.J., Timmons, B.W. (2023, June). Implementation of the TEACH e-Learning course on physical activity and sedentary behaviour for pre- and in-service early childhood educators: A pilot study. 22nd Annual Meeting of the International Society of Behavioral Nutrition and Physical Activity, Uppsala, Sweden.
- van Alphen, G.J., Ketelaar, M., Voorman, J.M., Scholten, E.W.M., Post, M.W.M. (2023, May). Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation. European Academy of Childhood Disability, Ljubljana, Slovenia.
- VanderKaay, S., Begin, D., Lisogurski, R., Robb, C. (2023). Trauma-informed teaching strategies for clinical education [Invited Presentation]. Ontario Society of Occupational Therapists Webinar (Virtual).
- VanderKaay, S., Campbell, W., Carrier, A., Dhillon, S., & Ng. S. (2023, May). Occupational therapists’ epistemologies of practice: Informing reasoning and promoting equity. Canadian Association of Occupational Therapists’ Annual Conference, Saskatoon, Saskatchewan, Canada.
- VanderKaay, S. (2023). Ethical tensions in transitioning to tiered models of school-based occupational therapy in Ontario [Invited Presentation]. Ontario Children’s Treatment Centre P4C Community of Practice (Virtual).
- VanderKaay, S. (2023). Implementing trauma-Informed pedagogical practices to advance accessibility and inclusion [Invited Presentation]. McMaster University Faculty of Health Sciences Inclusive Community of Practice Meeting (Virtual).
- VanderKaay, S., Jack, S., Phoenix, M., & Vrkljan, B. (2023, May). Implementing trauma-informed pedagogical practices in occupational therapy education. Canadian Association of Occupational Therapists’ Annual Conference, Saskatoon, Saskatchewan, Canada.
- VanderKaay, S. (2023, October). Exploring ethical tensions in transitioning to tiered models of school-based occupational therapy. OSOT Conference 2023, London, Ontario, Canada.
- Verma, R., Amin, R.R., Bai, Y.Q., Cohen, E., Guttmann, A., Gerson, A.S., Katz, S.L., Lim, A., Rose, L. (2023, October). Health Care Utilization and Costs in Children Receiving Home Mechanical Ventilation: A 14-Year Cohort Study (abstract). CHEST Annual Meeting, Honolulu, Hawaii, USA.
- Yamaguchi, S., Castaldo, M., Kanagaratnam, S., Nguyen, L., Shikako, K. (2023, June). Progress and Goals for the Critical, Ethical Engagement with YOUth (CEE YOU)! Project. CHILD-BRIGHT Conference.
- Zerbo, A., Cardoso, R., Yamaguchi, S., Nguyen, L., Gonzalez, M., Hanson, J., Backlin, G., Dupuis, H., Yoo, P., Boychuck, Z., Mosel, J., Gitterman, A., Lai, J., Marcotte, C., Robeson, P., Bush, P., Elsabbagh, M., Weiss, J., Putterman, C., Glegg, S., Shikako, K. (2023, June). The CHILD-BRIGHT Knowledge Mobilization Program. CHILD-BRIGHT Conference.
- Zwiegers, P., Loftsgard, K.C., Costello, C., Nguyen, L., Micsinski, S., McCabe, J., Brossard-Racine, M., Severino, S.M., Laur, C., Goldowitz, D. (2023, June). Training & Capacity Building Program. CHILD-BRIGHT Conference.
POSTER PRESENTATIONS
- Alsem, M., Ketelaar, M., Reinders-Messelink, H., Willems, M., Doornbos, R. (2023, May). Developing and implementing a Standard of Care for psychosocial care in pediatric rehabilitation: WHAT, HOW and NOW? European Academy of Childhood Disability, May 24-27 2023, Ljubljana, Slovenia.
- Andringa, A., van Driel, M., Dekkers, H., Ketelaar, M., Klem, M., Roebroeck, M., Visch, P., Voorman, J., Buizer, A. on behalf of The Nederlands CP register consortium. (2023, November). Netherlands CP register for children with cerebral palsy: An innovative model for personalized care with patient participation. Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
- Andringa, A., van Driel, M., Dekkers, H., Ketelaar, M., Klem, M., Roebroeck, M., Voorman, J., Buizer, A. (2023, May). Netherlands CP register for children with cerebral palsy: An innovative model for personalized care with patient participation. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Brown, H.M., Ryan, J., Coombs, E., Crerear, A., Devlin, C., Bendevis, C., Ksiazek, T., Dwyer, P., Hack, C., Nelson, H., Stothers, M., Connolly, T., Di Rezze, B., Nicholas D. (2023, May). Promoting Meaningful Collaboration between Autism Researchers and the Autistic Community: An Example from the Campus Belonging Network. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
- Cheng, M., Levac, D.E. (2023, July). Feasibility of computerized and immersive VR-based visuomotor integration assessment in a busy cerebral palsy clinical setting. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Chhina, H., Klassen, A., Rolfing, J., Belthur, M., Esparaza, M., Bade, D., Kerrigan, A., Wright, J., Ranade, A., Vogt, B., McMahon, S., Podeszwa, D., Fernandes, J., Muwanis, M., Iobst, C., Sabharwal, S., Cooper, A.P. (2023, June). LIMB-Q Kids: An internationally applicable patient reported outcome measure for lower limb differences. Canadian Orthopaedic Association (COA) 2023 Annual Meeting, Calgary, Canada.
- Da Silva, S.M., Byra, M.M., Cellucci, T., MacDonald, M.J., Thabane, L., Timmons, B.W., Obeid, J. (2023, March). Assessing aerobic fitness in youth with a chronic inflammatory disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
- Di Rezze, B., Nelson, H., Switalsky, D., Ciesielski, J., Brown, H.M., Ryan, J., Stothers, M., Coombs, E., Crerar, A., Devlin, C., Bendevis, C., Ksiazek, T., Dwyer, P., HacK, C., Connolly, T., Nicholas, D. (2023, May). A scoping review of evidence-based supports on college and university campuses for autistic post-secondary students. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
- Ferron, A., Fortin, F., Robert, M.T., Levac, D.E. (2023, June). Virtual Reality and Active Video Games: Innovation in Intensive Pediatric Rehabilitation. Scientific Day REPAR-INTER, Drummondville, Quebec, Canada.
- Firouzeh, P., Morris, C., Sonnenberg, L., Manns, P., Pritchard-Wiart, L. (2023, September). The Development of Clinical Practice Considerations for Ankle-Foot Orthosis Prescription and Monitoring for Young Children with Cerebral Palsy, American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) Annual Meeting, Chicago, Illinois, USA.
- Hadayeghi, L., Byra, M.M., Ferro, M., Obeid, J., Timmons, B.W. (2023, March). The influence of meeting sleep duration and physical activity guidelines on psychological distress levels in children with a chronic medical condition or disability. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
- Hatherly, K., Denusik, L., Earle, C., Oram Cardy, J., Cunningham, B.J. (2023, November). The Virtual Target Word Program for Late Talkers: Results from a Pragmatic Waitlist Control Trial. American Speech-Language Hearing Association Convention, Boston, Massachusetts, USA (Virtual).
- Kaelin, V., Anaby, D., Werler, M., Khetani, M.A. (2023, April). Predictors of school participation among children and youth with craniofacial microsomia and childhood-onset disabilities. American Occupational Therapy Association Annual Conference, Kansas City, Missouri, USA.
- Kandappa, S., Morin, S., Byra, M.M., Issenman, R., Zachos, M., Sherlock, M., Pai, N., Brackenridge, E., Timmons, B.W., Obeid, J. (2023, March). Examining the association between TNF-α levels and physical activity in children with inflammatory bowel disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
- Khetani, M.A., Kaelin, V., Rizk, S., Angulo, M., Salgado, Z., Chen, YF, Villegas, V., Dooling-Litfin, J., Leland N., Lerner Papautsky, E., Murphy, N., McManus, B., on behalf of the High Value Early Intervention Research Group (2023, September). Preliminary effectiveness of the Young Children’s Participation in Environment Measure and program-specific decision-support tool on early intervention service quality. American Academy on Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
- Koo, M., Sharma, B., Timmons, B.W. (2023, March). Prevalence of traumatic brain injury in athletic individuals 25 years old and under with attention deficit hyperactive disorder: A review. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
- Korteling, D.L., Limmen, S., Luijten, M.A.J., van Oers, H.A., Bloemen, M.A.T., Ketelaar, M., Engelbert, R.H.H., Haverman, L. (2023, August-September). A qualitative approach to select patient reported outcomes within pediatric physical therapy. European Paediatric Psychology Conference, Stirling, Schotland.
- Lancon, A., Bisaillon, C., Fortin, W., Levac, D.E. (2023, July). Practical considerations for head-mounted display use in pediatric rehabilitation: a narrative review. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
- Lançon, L., Roy, C., Fortin, W., Bau, O., Cardinal, M-C., Desgagnés, J., Cheng, M., Bleyenheuft, Y., Saussez, G., Robert, M.T., Levac, D.E. (2023). HABIT-ILE for children with hemiplegia: Describing the relationship between intervention content, fine motor versus gross motor goals, and functional outcome change. American Academy of Cerebral Palsy & Developmental Medicine, Chicago, Illinois, USA.
- Limmen, S., Korteling, D.L., van Oers, H.A., Luijten, M.A.J., Bloemen, M.A.T., Ketelaar, M., Engelbert, R.H.H., Haverman, L. (2023, August-September). Facilitators and Barriers towards Implementing Shared Decision-Making in Pediatric Physical Therapy: Perspectives from Diverse Stakeholder Groups. European Paediatric Psychology Conference, Stirling, Schotland.
- Lucero, I., Kaelin, V., Khetani, M.A. (2023, November). Validating types of participation-focused strategies used by caregivers of young children with developmental need. Poster Applied Health Sciences Research Day, University of Illinois Chicago, Chicago, Illinois, USA.
- Martens, R., Seth, G., Micsinszki, S.K., Cross, A. (2023). Creating Equitable Spaces in Family Engagement in Research. Panel discussion to Edwin S.H. Leong Centre for Healthy Children, University of Toronto, Toronto, Ontario, Canada.
- Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, AK., McCauley, D., Phoenix, M., Gorter, JW., Cross, A. (2023, October). The Family Engagement in Research Leadership Academy: An Advanced Training Opportunity to Support Emerging Leaders in Child Health Research. Kids Brain Health Network Conference, Ottawa, Ontario, Canada.
- Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., Phoenix, P., Forster, V., Gorter, J.W., Cross, A. (2023, June). Leadership Competencies in Family Engagement in Child Health Research. CHILD-BRIGHT Conference, Toronto, Canada.
- Novak-Pavlic, M., Dezmar, D., Grgic, V., Vlasic, K., Ilicic, AM., Abramovic, I., Macedo, L., Di Rezze, B., Rosenbaum, P. (2023, May). The impact of the “ENabling VISions And Growing Expectations” (ENVISAGE) program for parents of children with developmental disabilities in Croatia: A discourse analysis study. European Academy of Childhood Disability, Ljubljana, Slovenia.
- Patel, J., Byra, M.M., Athaide, C, Au, J., Cellucci, T., Thabane, L., Timmons, B.W., MacDonald, M.J., Obeid, J. (2023, March). Carotid Artery Longitudinal Wall Motion in Children with a Chronic Inflammatory Disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
- Phoenix, M., Reitzel, M., Shiry, G., Simpson, S. (2023, October). Reimagining Missed Appointments & Family Engagement – Organizational Considerations. Kids Brain Health Network, Ontario, Canada.
- Phoenix, M., Moll, S., Bhaskar, L.T., Vrzovski, A., Mulvale, G., CoPro Consortium. (2023, May). Equity-based healthcare: Cocretaing visual prototypes for system change. Canadian Association for Health Services and Policy Research (CAHSPR), Ontario, Canada.
- Riosa, P.B., Di Rezze, B. (2023, May). Ready2Work: A User-Informed Employment Website for Autistic Job Seekers. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
- Rizk, S., Ngui, E., Salgado, Z., Bosak, D., Khetani, M.A. (2023, June). Medical home care and educational service use among children and youth on the Autism Spectrum: A scoping review. Occupational Therapy Summit of Scholars, held in The Ohio State University, Columbus, Ohio.
- Rizk, S., Ngui, E., Salgado, Z., Bosak, D., Khetani, M.A. (2023, June). Medical home care and educational service use among children and youth on the Autism Spectrum: A scoping review. AcademyHealth Annual Research Meeting, held in Seattle, Washington, USA.
- Rizk, S., Benevides, T., Koh, Berg, K., Khetani, M.A. (2023, April). Medical home care components associated with educational service use among children and youth with Autism Spectrum Disorder. American Occupational Therapy Association Conference, Kansas City, Missouri, USA.
- Roduta Roberts, M., Maeda, N., Esmail, S., Firouzeh, P., Hadizadeh, M., Aydin, M., Chao, I.C.I., Chrenek, E. (2023, May). Virtual reality to enhance student performance in an interview OSCE. Annual meeting of the Canadian Association of Occupational Therapists, Saskatoon, Saskatchewan, Canada.
- Saluja, S., Kaelin, V., Khetani, M.A. (2023, November). Caregiver creation of participation-focused strategies for children and youth with Craniofacial Microsomia. Applied Health Sciences Research Day, University of Illinois Chicago, Chicago, Illinois, USA.
- Selvakumaran, S., Hidecker, M.J.C., Rosenbaum, P., Duku, E., O’Connor, I., Di Rezze, B. (2023, May). Fidelity Measures of Job Coaching Interventions that Support Autistic Youth and Adults in Paid Integrated Employment: A Narrative Review. European Academy of Childhood Disability (EACD), Ljubljana, Slovenia.
- Soper, A.K., Cross, A., Ketelaar, M., van Meeteren, K., Micsinszki, S., Bult, M., Thomson, D., Putterman, C., McCauley, D., Gorter J.W. (2023). Let’s not re-invent the wheel: Scalability of a training program in family engagement in research across countries. Kids Brain Health Network, Ottawa, Canada.
- Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. Child Health Symposium, London, Ontario, Canada.
- Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, April). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. Empowered Kids Ontario, Toronto, Ontario, Canada.
- Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. University of Toronto Rehabilitation Sciences Institute Research Day, Toronto, Ontario, Canada.
- Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. University of Toronto Collaborative Program in Neuroscience Research Day, Toronto, Ontario, Canada.
- Valizadeh, M., Kaelin, V., Khetani, M.A., Parde, N. (2023, October). Natural language processing to classify caregiver strategies for participation-focused pediatric rehabilitation. American Congress for Rehabilitation Medicine conference, Atlanta, Georgia, USA.
- VanderKaay, S., Campbell, W., Carrier, A., Dhillon, S., & Ng. S. (2023, June). Occupational therapists’ epistemologies of practice: Informing reasoning and promoting equity. McMaster University Norman Education Research Day, Hamilton, Ontario, Canada.
- Verberne, M.S.W., Branco, M.P., Ketelaar, M., Geytenbeek, J., van Driel-Boerrigter, M., Willems-op het Veld, M., Rabbie-Baauw, K., Vansteensel, M.J. (2023, June). Stakeholders’ perspectives on BCI needs in children and adolescents with severe cerebral palsy. 10th BCI Society Meeting, Brussels, Belgium.
- Villegas, V., Bosak, D., Salgado, Z., Phoenix, M., Teplicky, R., Parde, N., Khetani, M.A., on behalf of the High Value Early Intervention Research Group (2023, November). Diversifying caregiver input to upgrade the Young Children’s Participation and Environment Measure (YC-PEM) for equitable pediatric re/habilitation practice. Illinois Occupational Therapy Association conference, Naperville, Illinois, USA.
- Villegas, V., Bosak, D., Salgado, Z., Phoenix, M., Teplicky, R., Parde, N., Khetani, M.A., on behalf of the High Value Early Intervention Research Group (2023, September). Diversifying caregiver input to upgrade the Young Children’s Participation and Environment Measure (YC-PEM) for equitable pediatric re/habilitation practice. American Academy of Cerebral Palsy and Developmental Medicine conference, Illinois, USA.
36 Grants
CanChild Grants 2023
- Anaby, D., Simeonsson, R., Avery, L., Churchill, J., Hanes, J., Lattas, M., Levin, M., Di Rezze, B., Palisano, R. (2023-2027). BEYOND: Body-function Enhancement for YOuth through participatioN in real-worlD contexts. The downstream effects of personalized ‘top-down’ participation-based interventions among youth with physical disabilities. Canadian Institutes of Health Research (CIHR) Research Grant. Funding amount: $631,124 CAD.
- Brown, H., Di Rezze, B., Thompson-Hodgetts, S., Nicholas, D., Douglas, P., McMorris, C., Ames, M., Searle, M., Connolly, T., Lopez, J., Soodeen, C., Dwyer, P. (2023-2027). Campus Belonging: Exploring Accessible Education in Canadian PostSecondary Environments. SSHRC Insight Grant. Funding amount: $317,932 CAD.
- Brown, H.K., Ray, J.G., Cohen, E., Dennis, C.L., Grandi, S., Rosella, L.C., Varner, C., Vigod, S.N., Wodchis, W. (2023-2024). Impact of maternal multimorbidity on pregnancy outcomes. Canadian Institutes of Health Research (CIHR), Operating Grant: Data Analysis Using Existing Databases and Cohorts. Funding amount: $74,993 CAD.
- Brown, H.K., Ray, J.G., Vigod, S.N., Campbell, K., Cohen, E., Darling, E., Dennis, C.L., Grandi, S., Rosella, L., Varner, C., Wodshis, W. (2023-2027). Pregnancy outcomes and care of women with physical-mental multimorbidity. Canadian Institutes of Health Research (CIHR), Project Scheme Grant. Funding amount: $558,112 CAD.
- Bruce, E., Moll, S., Gewurtz, R., Phoenix, M., Ahuja. (2023-2024). Recovery Colleges for International Student Mental Health: A Novel Approach to Health Promotion and Education: A Pilot Study. Ontario Society of Occupational Therapists Strategic Priorities Research Grant. Funding amount: $10,000 CAD.
- Brunton, L., Doralp, S. (2023). Development of a Maternal and Child Health Interprofesional Education Practicum. Western University Internal Research Support – Faculty of Health Sciences – Western Living Lab (WeLL) Planning Grant. Funding amount: $5,000 CAD.
- Campbell, W., VanderKaay, S., Kyte, C., Janus, M., Missiuna, C., Ng, S., Phoenix, M., Specht, J., & Whitley, J. (2023-2024). Creating a road map for successful implementation and scale-up of Partnering for Change tiered services in Ontario (Evaluation Phase – Year 2). Ontario Ministry of Children, Community and Social Services. Funding amount: $610,000 CAD.
- Cooper, A., Belthur, M., Chhina, H., Iobst, C., Kerrigan, A., Klassen, A., Juergen, M., Moreno Grangerio, P., Mashael, M., Ashish, R., Rolfing, J.D., Vogt, B., Wright, J., Abouassaly, M., Baraza, N., Fernandez, J., Johnson, L., Podeszwa, D., Sabharwal, S. (2023-2024). International study to field-test a new patient-reported outcome measure for children with lower limb differences. Canadian Institutes of Health Research (CIHR) 1-year bridge Grant. Funding amount: $100,000 CAD.
- Cross, A., Micsinszki, S., Kraus De Camargo, O., Beattie, K., Morrison, K., Batthish, M., Akrong, L., Matsos, M. (2023). Patient and Family Engagement in Research Community of Practice. School of Medicine, Faculty of Health Sciences, McMaster University. Funding amount: $9,942 CAD.
- Cunningham, B.J., Daub, O., Oram Cardy, J. (2023-2024). Improving speech/language outcome measurement in Onatrio’s Preschool Speech and Language and Infant Hearing Programs. Ontario Ministry of Children, Community and Social Services. Funding amount: $320,000 CAD.
- Dhir, J., Kitchings, S., Reid, R., Phoenix, M., VanderKaay, S., Glazewski, S., Morrison, N., Neu, C., Gilles, L., Porter, K., Fostering an Inclusive Clinical Education Environment. Partnered in Teaching and Learning Seed Grant, McMaster University. Funding amount: $4,000 CAD.
- Di Rezze, B., Squires, B., Phillips, A., Clarke, K. (2023-2024). Creating training and job opportunities for autistic youth in Ontario – the implementation of an evidence-based training and summer job program for autistic students on a university campus. Ontario Ministry of Labour, Immigration, Training and Skills Development Grant. Funding amount: $268,641.27 CAD.
- Dostie, R., Camden, C., Lovo, S. (2023-2028). Développement d’une formation pour les professionnels de réadaptation en fonction des besoins de parents d’enfants autochtones ayant des difficultés développementales. Canadian Institutes of Health Research (CIHR), Fellowship. Funding amount: $275,000 CAD.
- Emery, C., Request, B., Arbour-Nicitopoulos, K., Brunton, L., Kopala-Sibley, D., Latimer-Cheung, A., Leo, J., Maroney, M., McCabe, J., Quinn, N. (2023-2024). Addressing the Mental Health of Neurodiverse Youth: The Role of Community-Based Adapted Physical Activity Programming. Azrieli Accelerator Catalyst Grant Competition. Funding amount: $50,000 CAD.
- Ferro, M., Browne, D., Duncan, L., Leatherdale, S., Quadrilatero, J., Sajobi, T., Timmons, B.W., Toulani, A. (2023-2024). Multimorbidity in children and Youth across the LIFEcourse (MY LIFE): A long-term follow-up. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $100,000 CAD.
- Filiatrault-Veilleux, P., McMahon Morin, P., Campbell, W., Croteau, C. (2023-2024). Perception d’orthophonistes scolaires de leur implication au palier 1 d’intervention en lecture interactive: Retombées sur la pratique orthophonique. Speech-Language-Audiology Canada Clinical Research Grant. Funding amount: $5,000 CAD.
- Gorter, J.W., Cross, A., Thomson, D., Putterman, C., McCauley, D. (2023-2024). Supporting the sustainability and scalability of the Family Engagement in Research Training Program. Kids Brain Health Network. Funding amount: $100,000 CAD.
- Grandi, S., Ray, J.G., Bennett, F., Brown, H., Cohen, E., Malhamé, I., Siddiqi, A. (2023-2026). Aspirin and severe maternal morbidity and mortality and adverse pregnancy outcomes. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $294,526 CAD.
- Khetani, M., Bobbitt, J. (2023-2024). Preparing to test the implementation of an electronic assessment option for early intervention service plan quality. Center for Clinical and Translational Science (CCTS) grant funded by the National Institutes of Health (NIH/NCATS) (MPI: Mermelstein and Novak). Funding amount: $41,082.75 CAD.
- Lemay, M., Robert, M., Levac, D.E. (2023-2025). Dancing in the metaverse: virtual reality as a tool improve the living conditions of the social inclusion of young people with disabilities. Quebec Ministry of Economy and Innovation Call for Projects in Social Innovation. Funding amount: $331,217 CAD.
- Levac, D.E., Kairy, D., Pouliot-Laforte, A. (2023-2025). Building the Future of Precision Rehabilitation in Quebec: Integration of Interactive Technology, Data Management and Artificial Intelligence. Interactive Technology Engineering in Rehabilitation (INTER). Funding amount: $15,280 CAD.
- Maryam, O., Levac, D.E., Potter, B., Smith, M., Evans, A. (2023-2026). Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy (SMA). Canadian Institutes of Health Research (CIHR), Operating Grant: Clinical Trials Projects. Funding amount: $1,777,095 CAD.
- Maryam, O., Levac, D.E., Potter, B., Smith, M., Evans, A. (2023-2026). Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy (SMA). Canadian Institutes of Health Research (CIHR), Operating Grant: Clinical Trials Projects – Indirect Costs. Funding amount: $444,274 CAD.
- Moosa, T., Cunningham, B.J., Theurer, J. (2023). Gender Affirmation Voice and Communication Training Clinic. Western Living Lab (WeLL) Planning Grant. Funding amount: $5,000 CAD.
- Mulvale, G., Moll, S., Phoenix, M. (2023-2025). Advancing an Equity-Based Co-creation Research Centre at McMaster. McMaster University Office of the Provost and Vice-President (Academic) Strategic Excellence and Equity in Recruitment and Retention (STEER/R) Program. Funding amount: $200,000 CAD.
- Nault, M-L., Podlog, L., Pouliot-Laforte, A., Levac, D.E. (2023-2025). Immersive Virtual Reality to Assess Readiness for Return to Sport After Anterior Cruciate Ligament Reconstruction in a Pediatric Sports Medicine Clinic: A Feasability Study. Quebec Association of Sport and Exercise Physicians. Funding amount: $5,000 CAD.
- Nelson, K., Bogetz, J., Cohen, E., Diskin, C., Feinstein, J., Feudtner, C., Hauer, J., Lysecki, D., Mahant, S., Pullenayegum, E., Thomson, J., Widger, K. (2023-2026). Defining a Stage-Based Framework of Comorbidities among Children with Severe Neurologic Impairment. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $328,950 CAD.
- Nelson, K., Bogetz, J., Cohen, E., Diskin, C., Feinstein, J., Feudtner, C., Hauer, J., Lysecki, D., Mahant, S., Pullenayegum, E., Thomson, J., Widger, K. (2023-2026). Defining a Stage-Based Framework of Comorbidities among Children with Severe Neurologic Impairment. New Investigator Award, Physicians’ Services Incorporated (PSI) Foundation. Funding amount: $100,500 CAD.
- Ng, S., Parker, K., Adams-Carpino, G., Addison, M., Binns, A., Boyd, V., Campbell, W., Friesen, F., Gabison, S., Langlois, S., Lising, D., Ravenek, M., Woods, N. Student-Led Environments to Deliver Virtual Autism Supports for Wait-times (SLED-VAST). Ontario Autism Program (OAP) Workforce Capacity Fund. Awarded amount: $299,970 CAD.
- Phoenix, M., Campbell, W., Camden, C., Peterson, D. Collaborators: Sylvester, L., Torsney, M., Kotulak, K. (2023-2025). COFFEE and PLAY: Community Opportunities For Family Engagement and Empowerment, Play and Learning Accessible for Youth, Grant, Hamilton Community Foundation: Community, Health and Education Research (CHER) Grant. Funding amount: $27,460 CAD.
- Phoenix, M., Micsinszki, S. (2023-2025). Advancing Equity in Childhood Disability Research Partnerships., Grant, Social Sciences and Humanities Research Council of Canada (SSHRC) Insight Development Grant. Funding amount: $73,599 CAD.
- Robert, M., Levac, D.E., Lemay, M. (2023-2024). Integrating Virtual Reality in Sensorimotor Rehabilitation: Learning from the Past, Acting Now and Preparing for the Future. Interactive Technology Engineering in Rehabilitation (INTER). Funding amount: $15,900 CAD.
- Rosenbaum, P., Tomas, V., Wilson, M., Teplicky, R., Cross, A., Wittmeier, K.D.M., Wright, M.J. (2023). Building relationships and co-learning: Researchers, service providers, and First Nations people in Ontario and Manitoba explore the relevance and cultural safety of ‘Our Favourite Words’. Canadian Institutes of Health Research (CIHR), Planning Grant. Funding amount: $9,999 CAD.
- Squires, B., Augerman, H., Phillips, A., Hamilton, J., Glazewski, S., Perrett, L., Di Rezze, B., Koudys, J., Comegna, E., Braun, R., Beltrano, A. (2023-2024). Create 27 student placements at McMaster Children’s Hospital’s Autism Training Hub; provide French-language training opportunities for front-line staff members. Ontario Autism Program (OAP) Workforce Capacity Fund. Funding amount: $260,200 CAD.
- Thompson-Hodgetts, S., Brown, H., Di Rezze, B., Connelly, T. (2023). Campus Belonging – An Exploration of Accessibility and Belonging for Autistic Postsecondary Students in Canada: Gathering Staff Perspectives. Faculty of Rehabilitation Medicine, University of Alberta, Mid-Career Stimulus Grant. Funding amount: $10,000 CAD.
- Tomfohr-Madsen, L., Kendzerska, T., Keys, E., Ou, C., Pennestri, M.H., Reid, G.J., Shawanda, A., & Stranges, S. Co-Applicants: Anderson, K., Cameron, E., Chaput, J.P., Clayborne, Z., Ferber, R., Forest, G., Forkert, N., Freeman, M., Garland, S., George, J., Giesbrecht, G., Giuliano, R., Gruber, R., Hall, W., Hunter, S., Lebel, C., MacEachern, S., Mackinnon, A., Matin, M., Mcgrath, J., Metcalfe, A., Micsinszki, S., Montreuil, T., Papaconstantinou, E., Puterman, E., Robillard, R., Roos, L., Stremler, R., Thornton, J., van de Wouw, M., Watts, D., Colley, R., Roberts, K., Moody, D.L., Buxton, O.M., Dubar, R., Girardin, J.L., Grandner, M., Staton, S., Gabora-Roth, N., Roberts, K, Gaxherri, D., Perez, P, & The Canadian Childcare Federation, Public Health Agency of Canada, & Statistics Canada. (2023-2027). Towards Sleep Equity: Understanding and Addressing Intersectional Risk and Resilience Factors in the Promotion of Healthy Sleep. Canadian Institutes of Health Research (CIHR) Grant. Funding amount: $1,100,000 CAD.
633K Operating Budget
CanChild Operating Budget 2023
CanChild’s operating budget for the 2023/24 fiscal year was $633,000, with $466,500 in core salary expenses and $166,500 in non-salary expenses. CanChild’s overall revenue generating activities resulted in a gross total of $565,000, as described below.
Over the past year, licensing of products to individuals and organizations for use in clinical practice and research brought in nearly $128,000. Licensing products for use in industry studies brought in an additional $98,000. Of this revenue, approximately 25% is disbursed to the author teams for knowledge translation activities and continued development of the products, with 60% supporting core CanChild operations. We are proud to report that we achieved our goal of increasing our revenue from individual and organizational licenses (16% increase over last year). At the same time, we saw a significant decrease in licensing for industry studies (50% decrease) and we will work with our partners in the McMaster Industry Liaison Office to review our processes and establish goals for the upcoming year.
CanChild also offers services to support and guide clinical practice and disability policy. Training workshops resulted in $153,000 gross revenue. This revenue is primarily from the Family Engagement in Research and F-words programs, and these teams are actively working together to explore additional opportunities to support training and implementation. Consultation projects with provincial ministries, children’s service organizations and CBC brought in an additional $186,000 of gross revenue.
We are encouraged by the continued product sales, as well as interest in workshops and consultations. Continued requests from provincial ministries in Canada and international children’s service organizations to consult on projects related to transforming service delivery speaks to CanChild’s reputation as a world leader in knowledge creation and sharing. All of these activities contribute to CanChild’s impact on policy and practice, in turn improving the lives of children and their families.
Engagement
CanChild Metrics 2023
Engagement
2046 engagements on CanChild Facebook page
2097 likes, comments and retweets of CanChild posts on Twitter
166 LinkedIn engagements
796 Instagram engagements
Followers
7,338 followers of CanChild Facebook page from 45 countries
505 members in our Parents Partnering in Research closed Facebook group
6,432 followers on CanChild Twitter
431 CanChild Instagram followers
1,936 CanChild LinkedIn followers
Newsletter Subscribers
CanChild Mailing List – 7,143 Subscribers
CanChild Website
320 000+ New Users
780 000+ Page Views
60 000+ Downloads
10 Awards
CanChild Awards 2023
- Boyd, V. (2023). Minister’s Award of Excellence (in the category of Future-Proofing Ontario’s Students for the SLED-VAST (Student-Led Environments to Deliver Virtual Autism Supports for Wait-times) Project).
- Boyd, V. (2023). SGS Conference Grant. School of Graduate Studies. University of Toronto.
- Cross, A. (2023). CIHR Fellowship: Patient-Oriented Research Awards – Transition to Leadership Stream – Phase 2.
- Firouzeh, P. (2023). The Martha & Vincent Wagar Intellectual Disability and Autism Research Fund. McMaster University. Award amount: $20,000 (CAD).
- Khetani, A. (2023). Fellow. American Occupational Therapy Association.
- Nguyen, L. (2023). Implementation Skills Development Award. Kids Brain Health Network.
- Nguyen, L. (2023). Travel Award. Kids Brain Health Network. Award amount: $1400 (CAD).
- Rosenbaum, P. (2023). First Dr. Peter Dent Memorial Research Impact Award. Department of Pediatrics. McMaster University.
- Tomas, V. (2023). Canadian Institutes of Health Research Health Systems Impact Fellowship (Postdoctoral Fellowship). Institute of Human Development, Child, and Youth Health and Institute of Health Services and Policy Research. Award Amount: $155,000 (CAD).
- Tomas, V. (2023). Kids Brain Health Network Outstanding Trainee Member Award. Award amount: $1500 (CAD).
Nominations
- Triple E award for innovation excellence (top 5 short-listed)
- National Disability Services Award (top 3 short-listed).
- Our Co-PI, Dr. Laura Miller at Australian Catholic University, received the ACU Vice Chancellor-President’s Award for Research Excellence.
CanChild at Work and Play!
CanChild at Work and Play!
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Produced & Designed by Abigail Atmadja, Jessica Geboers, Danijela Grahovac, Daniela Klobucar, Dayle McCauley and Hannah Nguyen.
Special thank you to all CanChild members and staff who contributed to this report!
