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CanChild Team May 4

By geil|2021-05-04T11:54:07-04:00May 4th, 2021|

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Presentations

KEYNOTES

Campbell, W. (2023, November). Using realist evaluation to explain when, how, and Partnering for Change is successful in a Canadian context [Invited Keynote]. Swedish Research Network for Participation and School-Based Interventions, Uppsala University, Sweden (Virtual).
Kraus De Camargo, O. (2023, February). How to Become a “Great Health Professional”?. ICF Course, Isreal.
Kraus De Camargo, O., Rosenbaum, P., Chambers, E. (2023, November). Relationships Between Service Providers and Families. 10th Annual CP-Net Science and Family Day (Virtual).
Palisano, R. (2023, October). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
Phoenix, M. (2023, February). Examining Access and Equity in Children’s Rehabilitation Services. International Women and Children’s Health Conference, Ontario, Canada.
Rosenbaum, P. (2023, October). Childhood Disability in the 21st Century: Can We Create a Canadian Model for the World? [Invited Keynote]. Kids Brain Health Network Brain Development Conference: Invited Fraser Mustard Lecture, Ottawa, Ontario, Canada.
Rosenbaum, P. (2023, November). How are ‘F-words’ transforming the world of Childhood Disability! [Invited Keynote]. Reimagine 2023 Conference, Australia (Virtual).

ORAL/LECTURE PRESENTATIONS

Beattie, K., Cross, A. (2023, June). Next steps for patient and family engagement in child health research! [Invited Speaker]. McMaster University Department of Pediatrics Research Roundtable.
Bedard, C., Obeid, J., Timmons, B.W., Ferro, M.A. (2023, June). Longitudinal physical activity behaviour among children with physical-mental multimorbidity. Canadian Society for Epidemiology and Biostatistics, Halifax, Canada.
Benders, M., Ketelaar, M. (2023, February). Vroege voorspelling bij NICU baby. Presentatie Congres SCEM ‘De prematuur: Van baby tot adolescent.
Bernhard, N., Talarico, S., Kumagai, A., Boyd, V.A., Herzog, L. (2023, April). Fostering Transformative Learning through Dialogue: Creating Safe Spaces that Support Discomfort (workshop). International Congress on Academic Medicine (ICAM).
Binns, A., Wang, M., Cunningham, B.J., Oram Cardy, J. (2023, May). Speech-Language Pathologists’ Perspectives on Where Autism Researchers Should Focus Their Efforts. International Society for Autism Research Annual Meeting Stockholm, Sweden.
Boyd, V.A. (2023, April). Dialogic education: Advancing a theory-informed approach to fostering critically reflective practice [Invited Presentation]. Department of Medical Education Research Rounds, College of Medicine, University of Chicago Illinois, Chicago, Illinois, USA.
Boyd, V.A. (2023, November). Fostering Critically Reflective Practice in Speech-Language Pathology: What, Why, and How [Invited Presentation]. Department of Speech-Language Pathology, School of Rehabilitation Sciences, McMaster University, Hamilton, Ontario, Canada.
Boyd, V.A., Binns, A., Forsey, J. (2023, February). Communication through dialogue: Creating opportunities for sharing knowledge (workshop). Convergence, Toronto, Ontario, Canada.
Boyd, V.A., Binns, A., Forsey, J. (2023, May). Optimizing communication through dialogue: towards trusting patient-provider alliances (workshop). Collaborating Across Borders (CAB) Conference, Toronto, Ontario, Canada.
Boyd, V.A., Forsey, J., Diaz, B., Ng, S.(2023, January). Teaching Healthcare Communication through Critical Pedagogy [Invited Presentation]. Best Practice in Education Rounds (BPER), jointly hosted by the Centre for Faculty Development, The Wilson Centre, and the Centre for Advancing Collaborative Healthcare & Education, University of Toronto, Toronto, Ontario, Canada.
Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, December). Towards critically reflective practice: Examining the impacts of a dialogic teaching and learning approach [Abstract]. Innovations in Education Conference, McPherson Institute, Hamilton, Ontario, Canada.
Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, February). Towards collaborative practice: Mapping the potential outcomes of teaching for critically reflective practice in the context of writing clinical letters for children with disabilities [Abstract]. Convergence, Toronto, Ontario, Canada.
Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, May). Leveraging critical disability studies to reimagine health professions education [Abstract]. Nordic Network on Disability Research, Reykjavik, Iceland.
Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, May). Towards collaborative practice: Mapping potential outcomes of teaching for critically reflective practice in the context of writing clinical letters [Abstract]. Collaborating Across Borders (CAB) Conference, Toronto, Ontario, Canada.
Boyd, V.A., Woods, N., Campbell, W., Kumagai, A., Ng, S. (2023, October). Jockeying for position: A critical discourse analysis of the interplay of discourses of disability in clinical letters [Abstract]. Richard K. Reznick Research Week, Toronto, Ontario, Canada.
Bult-Mulder, M., Ketelaar, M., Voorman, J.M., Willems-op het Veld, M. (2023, May). Instructional Course: Knowledge translation through co-creation: Longitudinal data into readable web-based information for children and young people with cerebral palsy, parents and professionals. European Academy of Childhood Disability, Ljubljana, Slovenia.
Byra, M.M., Da Silva, S., Chen, S.R., MacDonald, M.J., Cellucci, T., Thabane, L., Timmons, B.W., Obeid, J. (2023, September). Oxygen pulse during exercise in children with a chronic inflammatory disease and healthy controls. 33rd European Group of Pediatric Work Physiology, Wales, United Kingdom.
Byra, M.M., Proudfoot, N.A., Chen, S.R., MacDonald, M.J., Cellucci, T., Batthish, M., Timmons, B.W., Obeid, J. (2023, July). A comparison of cardiovascular health indicators in children with Juvenile Idiopathic Arthritis who meet and do not meet the physical activity guidelines. Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
Campbell, W., Dix, L. (2023, October). Newest lessons from a provincial study of the Partnering for Change school-based tiered model and implications for practice. Ontario Society of Occupational Therapists Annual Conference, London, Ontario, Canada.
Campbell, W., Sahagian-Whalen, S., Dix, L. (2023, April). FIRST: A Professional Development Program to Support School-based Tiered Services. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
Campbell, W., Terreberry, S. (2023, November). Partnering for Change: A collaborative approach to inclusive school-based occupational therapy for all. Ontario Council for Exceptional Children Annual Conference, Toronto, Ontario, Canada.
Carle, A., Levac, D.E., Marcoux, I., Sellitto, N., Lalonde, J., Fortin, C., Pouliot-Laforte, A. (2023, June). Effects of a personalized gait intervention in a virtual environment in children with neuromusculoskeletal disease. Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
Cheng, M., Levac, D.E. (2023, July). Impact of affective and environmental factors on children’s motor skill transfer from virtual to physical environments. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Chhina, H., Klassen, A., Cooper, A.P. (2023, February). Development, Translation and Cultural adaptations of LIMB-Q Kids into Hindi: A new patient reported outcome measure for children with lower limb differences. POSICON Annual Meeting, Bhubaneswar, India.
Chhina, H., Klassen, A., Johnson, L., Belthur, M., Sabharwal, S., Podeszwa, D., Vogt, B., Esparaza, M., Iobst, C., Kerrigan, A., Wright, J., Messner, J., Fernandes, J., Rolfing, J., Bade, D., Cooper, A.P. (2023, March). International field test of LIMB-Q Kids: An internationally applicable PROM for lower limb differences. European Paediatric Orthopaedic Society (EPOS) Annual Meeting, Krakow, Poland.
Chhina, H., Klassen, A., Rolfing, J., Vogt, B., Belthur, M., Esparaza, M., Bade, D., Kerrigan, A., Wright, J., Ranade, A., Johnson, L., Podeszwa, D., Fernandes, J., Messner, J., Iobst, C., Sabharwal, S., Repo, J., Eylon, S., Cooper, A.P. (2023, July). International Field Test of LIMB-Q Kids: A New Patient Reported Outcome Measure for Lower Limb Differences. LLRS 32nd Annual Meeting, Lake Tahoe, California, USA.
Coan-Brill, J., Costigan, A., Kay, J., Chau, T., Cunningham, B.J. (2023, May). Facilitating Evidence-Based Assessment: Bringing the C-BiLLT to Canada. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
Coan-Brill, J., Teachman, G., Costigan, A., Cunningham, B.J. (2023, May). AAC Assessments with Limited Speech/Motor Skills: What Tools Should We Use? Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
Cohen E. (2023, April). Effectiveness of Structured Care Coordination for Children with Medical Complexity [Invited Presentation]. Maternal and Child Health Bureau, Health Resources and Services Administration, Washington, DC, USA (Virtual).
Cohen E. (2023, January). Community-engaged Pediatric Hospitalist Research. Pediatric Inpatient Research Network (PIRN) Meeting [Invited Presentation]. The Hospital for Sick Children, Toronto, Ontario, Canada.
Cohen, E. (2023, June). Implementing health service changes, Making Strides, Moving Forward. CHILDBRIGHT Network Conference, Toronto, Ontario, Canada.
Cohen E. (2023, May). A Discussion about Care Supports. Childhood disability (without) poverty: a national discussion [Invited Panelist]. Vancouver, British Columbia, Canada (Virtual).
Cohen, E. (2023, May). Care of the Complex Patient: Informing Patient Centred Research: from Bedside to Bench. 2023 Research Day, Department of Pediatrics, The Hospital for Sick Children, Toronto, Ontario, Canada.
Cohen E. (2023, May). Effectiveness of Structured Care Coordination for Children with Medical Complexity [Invited Presentation]. Connecting Care for Children with Medical Complexity, Children’s Healthcare Canada, Toronto, Ontario, Canada (Virtual).
Cohen E. (2023, May). The Complex Care for Kids Ontario Randomized Controlled Trial [Invited Presentation]. Connected Care for Children with Medical Complexity Meeting, Children’s Healthcare Canada, Toronto, Ontario, Canada (Virtual).
Cohen E. (2023, October). Models of Pediatric Complex Care in North America [Invited Presentation]. Congress on Pediatric Chronic Conditions, IFF/FIOCRUZ, Rio De Janeiro, Brazil (Virtual).
Cohen E. (2023, September). Complex Care Academic Series: Mobidity and Morality [Invited Presentation]. Target audience: Fellows advanced practice providers and rotating learners, Complex Care Program, The Hospital for Sick Children, Toronto, Ontario, Canada.
Costello, C., Nguyen, L., Wong, L. (2023, October). From CHILD-BRIGHT: Patient stories making a difference for children with brain-based disabilities and their families. 2023 NorthWest SPOR Collaborative Forum (Virtual).
Costigan, A., Kay, J., Cunningham, B.J. (2023, May). Breaking the barrier on low-motor language comprehension assessment in Canada. Child Health Symposium, London, Ontario, Canada.
Cross, A., Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., McCauley, D., Pot, S., Gorter, J.W. (2023, October). Evolution of the Family Engagement Program: Sharing the scalability, reach, and impact of a novel training program [Invited Presentation]. Kids Brain Health Network, Ottawa, Canada.
Cross, A., Stubbs, A. (2023, November). Finding your way in Patient-Oriented Research: Focusing on the How! [Invited Presentation]. Department of Kinesiology and Physical Education Graduate Seminar, Wilfrid Laurier University, Waterloo, Ontario, Canada.
Cross, A., Thomson, D., Putterman, C., McGuire, K., Hilderly, A. (2023, October). Entrepreneurship in Family Engagement in Research [Invited Presentation]. Kids Brain Health Network Trainee Day, Ottawa, Ontario, Canada.
Csercsics, A., Archibald, L., Cunningham, B.J. (2023, June). Working Towards Consistent Terminology in Preschool Speech-Language Pathology. Symposium on Research in Child Language Disorders, Madison, Wisconsin, USA.
Csercsics, A., Cunningham, B.J. (2023, September). Towards consistent terminology in preschool speech and language disorders [Invited Presentation]. Ontario Preschool Speech and Language Program Provincial Collaborative Meeting (Online).
Csercsics, A., Denusik, L., Cunningham, B.J. (2023, May). Communicating Clinical Labels to Families – What Makes it so Hard? Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
Cunningham, B.J. (2023, March). Approaches to assessing and treating Developmental Language Disorder in preschoolers [Invited Presentation]. Child Development & Rehabilitation Eastern Health. St. John’s Newfoundland (Online).
Cunningham, B.J. (2023, September). Challenges with Terminology and Clinical Label Use in Pediatric SLP [Invited Presentation]. Thames Valley District School Board, London, Ontario, Canada.
Da Silva, S.M., Byra, M.M., Chen, S.R., MacDonald, M.J., Cellucci, T., Thabane, L., Timmons, B.W., Obeid, J. (2023, July). Assessing aerobic fitness in youth with a chronic inflammatory disease. Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
Denusik, L., Glista, D., Servais, M., Friesen, J., Oram Cardy, J., Cunningham, B.J. (2023, May). Are we targeting the outcomes caregivers value? Exploring caregivers’ views on the important outcomes of caregiver-mediated programs for young autistic children and their families. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
Denusik, L., Miletic, K., Binns, A., Cunningham, B.J., Weitzman, E., Oram Cardy, J. (2023, March). A large-scale program evaluation of a virtual parent-training program to support social communication in young autistic children. Centre for Health Services and Policy Research 35th Annual Health Policy Conference, Vancouver, British Columbia, Canada.
Di Rezze, B. (2023, April). ACSF Education [Invited Presentation]. Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.
Di Rezze, B. (2023, April). Building Collaboration in Autism Postsecondary Education Supports [Invited Presentation]. Autism Alliance of Canada Leadership Summit 2023, Ottawa, Ontario, Canada.
Di Rezze, B., Freeman, M., Rianto, M. (2023, February). Developing actionable COVID-19 infection control guidance in congregate living settings within the Developmental Services sector in Ontario. The Canadian Health and Wellbeing in Developmental Disabilities Conference (HWDD), Canada.
Di Rezze, B., Geboers, J., Grahovac, D., Anaby, D. (2023, November). Relationship with School and Employment. CP-NET Science and Family Day, Hamilton, Ontario, Canada.
Di Rezze, B. (2023, May). Understanding Early Diagnosis & Intervention in Children with Developmental Differences through ICF Framework [Invited Presentation]. National Conference on Neurodevelopmental Differences, India.
Di Rezze, B. (2023, November). Autism Classification System of Functioning: Social Communication (ACSF) – Expansion and Testing for Toddlers to School-Aged Children with Autism Spectrum Disorder [Invited Presentation]. Innovation Fund Showcase, Toronto, Ontario, Canada.
Di Rezze, B., Palisano, R. (2023, August). ICF/Life Course Models [Invited Presentation]. Medical Residency trainees in Developmental Pediatrics, Hamilton, Ontario, Canada (Virtual).
Doherty-Kirby, A., Grahovac, D., Swain, A., Pozniak, K., Currie, G., Lebsack, L., Campbell, W., Humphreys, C., Patterson, S., Raha, S., Whitley, J. Kraus de Camargo, O. (2023, October). The COVID Time Capsule Project: Children with Disabilities and Their Parents as Active Participants and Partners in Research. Pride in Patient Engagement in Research (PIPER) Research Day, University Health Network, Toronto, Ontario, Canada.
Dong, S.Y., Nguyen, L., Cross, A., Doherty-Kirby, A., Geboers, J., McCauley, D., Soper, A.K., St. Dennis, A., Steeves, D., Trehan, N., Gorter, J.W. (2023, April). “Nothing About Us Without Us”: Strategies for Equitable and Meaningful Youth Engagement. EKO Spring Symposium 2023. Toronto, Canada.
Dong, S.Y., Nguyen, L., Cross, A., Doherty-Kirby, A., Geboers, J., McCauley, D., Soper, A.K., St. Dennis, A., Steeves, D., Trehan, N., Gorter, J.W. (2023, March). “Nothing About Us Without Us”: Strategies for Equitable and Meaningful Youth Engagement. Luke’s Legacy Family Research Rounds
Dong, S., Nguyen, L., St. Dennis, A., Cross, A., Geboers, J., Steeves, D., Trehan, A., Doherty Kirby, A., Soper, A.K., McCauley, D., Gorter, J.W. (2023, April). Youth Engagement in Research: Exploring Training Needs of Youth with Neurodevelopmental Disabilities. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
Dostie, R., Trottier, N., Hurtubise, K., Gaboury, I., Camden, C. (2023, May). La téléréadaptation pour supporter les familles d’enfants ayant des difficultés développementales- Une étude qualitative.Canadian Association of Health Service and Policy Research (CAHSPR) Annual Conference, Montreal, Quebec, Canada.
Ferron, A., Houzangbe, S., Robert, M., Levac, D.E. (2023, July). Activity intensity and electrodermal activity during virtual reality as compared to traditional intensive motor learning-based therapy for children with hemiplegia. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Firouzeh, P., Morris, C., Sonnenberg, L., Manns, P., Pritchard-Wiart, L. (2023, May). The Development of Clinical Practice Considerations for Ankle-Foot Orthosis Prescription and Monitoring for Young Children with Cerebral Palsy. Research Day, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Canada.
Firouzeh, P. (2023, October). Ankle-Foot Orthoses for Young Children with Cerebral Palsy [Invited Presentation]. School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
Firouzeh, P. (2023, October). Clinical Practice Considerations for Ankle-Foot Orthoses Prescription and Monitoring for Young Children with Cerebral Palsy [Invited Presentation]. George Brown College, Ontario, Canada.
Fitzgerald, D., VanderKaay, S., Morin, J. (2023). Diversity criteria in student placement experiences: Faculty influence and the role of placement software [Invited Presentation]. InPlace Webinar (Virtual).
Hadayeghi, L., Byra, M.M., Ferro, M., Obeid, J., Timmons, B.W. (2023, July). Movement behaviours and health indicators in children with a chronic medical condition or disability (MOMENTUM). Ontario Exercise Physiology Conference, Kingston, Ontario, Canada.
Hatherly, K., Cunningham, B.J. (2023, September). Target Word pragmatic randomized controlled trial [Invited Presentation]. Ontario Preschool Speech and Language Program Provincial Collaborative Meeting (Online).
Hatherly, K., Glista, D., Brunton, L., Cunningham, B.J. (2023, May). Virtual Synchronous Intervention in Preschool Rehabilitation: A Scoping Review. Child Health Symposium, London, Ontario, Canada.
Hesketh, K., Bursey, E., Pot, S., Tomas, V. (2023, April). Implementation science in child/family health organizations: WHAT, HOW and WHY (Panel). Empowered Kids Ontario, Toronto, Ontario, Canada.
Hidecker, M.J.C., Bartley, J., Di Rezze, B. (2023, November). Developing and Testing the Useability of the ACSF Algorithm with Parents of Autistic Children. American Speech-Language-Hearing Association (ASHA) Annual Convention., Boston, Massachusetts, USA.
Houzangbe, S., Zejli, Y., Lemay, M., Levac, D.E. (2023, July). Quantifying individual and contextual factors that contribute to just-right challenge in an immersive virtual reality pediatric rehabilitation task: a protocol. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Houzangbe, S., Zejli, Y., Lemay, M., Levac, D.E. (2023, June). Collection of ecological physiological data during a paediatric rehabilitation session in virtual reality: a preliminary study. Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
Hutrubise, K., Gaboury, I., Phoenix, M. (2023, June). Pediatric physiotherapists’ needs and behavior change strategies for sustaining digital practice: Finding from a national survey. World Physiotherapy Congress, United Arab Emirates.
Imms, C., Babic, R. (2023, March). ENVISAGE: Enabling visions and growing expectations: a parent empowerment program [Invited Speakers]. Kids+ Changemaker Conference, Geelong, Victoria, Australia.
Imms, C., Miller, L. (2023, November). ENVISAGE: Empowering families [Invited Worshop]. Reimagine 2023 Conference, Brisbane, Australia.
Jones, M., Charles, L., Hammil, A., Hill, J., Cross, A., Hitchcock, B., Rosenbaum, P., Tomas, V. (2023, September). Partnering to explore the tailored implementation of the F-words for Child Development with an organisation in Aotearoa New Zealand. OTNZ-WNA Conference, Dunedin, New Zealand.
Kaelin, V., Boyd, A., Werler, M., Parde, N., Khetani, M.A. (2023, January). Further optimizing Participation and Environment Measure Plus (PEM+) by using Natural Language Processing. Swiss Academy of Childhood Disability meeting, Switzerland.
Ketelaar, M., Soper, A.K., van Meeteren, K.M., Cross, A., Micsinszki, S., Bult, M., Gorter J.W. (2023, May). Let’s not re-invent the wheel: Scalability of a training program in family engagement in research across countries. European Academy of Childhood Disability, Ljubljana, Slovenia (Instructional Course).
Khetani, M.A. (2023, April). How research in occupational therapy informs practice and elevates equity, justice and human potential [Invited Panelist]. American Occupational Therapy Foundation Future Scientist Institute, Kansas City, Missouri, USA.
Khetani, M.A. (2023, February). What do Family Engagement in Research Leaders Need to Know About Equity, Diversity, Inclusion and Justice? [Invited Panelist]. Family-Engaged Research Academy, McMaster University, Hamilton, Ontario, Canada.
Khetani, M.A. (2023, June). What surrounds us, shapes us [Invited Presentation]. Department of Occupational Therapy, College of Applied Health Sciences, University of Illinois Chicago, Chicago, Illinois, USA.
Khetani, M.A. Lucero, I. (2023, October). Classifying children’s participation and its family of related concepts through the Participation and Environment Measure (PEM) approach. International Classification of Functioning, Disability and Health Turkey Conference, Ankara, Turkey (Hybrid).
Khetani, M.A. (2023, November). Advancing implementation of a digital health solution for equitable early intervention service quality [Invited Presentation]. University of Massachusetts Medical School Eunice Kennedy Shriver Center Speaker Series, Boston, Massachusetts, USA.
King, G.A., Phoenix, M., Einarson, K.M. (2023, April). Using the PRIME Engagement Measures for Practice, Education and Research. Empowered Kids Ontario (EKO) Spring Symposium, Ontario, Canada.
Kraus De Camargo, O. (2023, April). Using the ICF framework for children, families and carers to formulate health and management goals in the context of autism spectrum disorders. International Conference of Autism Acceptance and Neurodiversity at Ambedkar State Institute of Medical Sciences, India.
Kraus De Camargo, O. (2023, August). Participation of Patients and Families in Research – Reflections from the CanChild Center. Meetings in Pediatric Rheumatology.
Kraus De Camargo, O. (2023, December). Children with Disabilities and Environmental Factors. Hong Kong Physiotherapy Association Conference, Hong Kong, China.
Kraus De Camargo, O. (2023, December). Impact of ICF on collaboration and communication. International Developmental Paediatrics Association (IDPA) Conference, Johannesburg, South Africa.
Kraus De Camargo, O. (2023, October). How participatory action research informed practice and policy at a Canadian childhood disability research organization. National Early Childhood Intervention Congress, Eskişehir, Turkey.
Kraus De Camargo, O., Soper, A.K., Chambers, E. Micsinszki, S., Martens, R., Posniak, K., Phoenix, M. (2023, September). How Participatory Action Research (PAR) informed practice and policy at a Canadian childhood disability research organization – Reflections from CanChild. 77th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
Lancon, A., Roy, C., Fortin, W., Cardinal, M.C., Bau, O., Desgagnés, J., Levac, D.E. (2023, June). Intensive Bimanual Therapy for Children with Hemiplegia: How is Fine Motirism and Gross Motor Skills Targeted? Scientific Day REPAR-INTER 2023, Drummondville, Quebec, Canada.
Langer, T., Friedrich, S., Reeskau, G., Rodger, S., Willems, J., Antonini, G., Brigliadori, B., Guastafierro, E., Leonardi, M., Marcassoli, A., Moroni, I., Nardocci, N., Perinel, G., Petruzza, A., Fournier, A., Frei, J., Gorter, J.W., Gutierrez Rojas, R., Kraus de Camargo, O., McCauley, D., Osman, H., Pozniak, K., Rajapakse, N., Swain, A. (2023, December). Grow DMD: An International Study on Transition of Youth with Duchenne Muscular Dystrophy (DMD). Children’s Healthcare Canada, Vancouver, British Columbia, Canada.
Levac, D.E. (2023, December). From Tech to Rehab: Applications in Clinical Settings [Invited Presentation]. FWO consortium, Université Libre de Bruxelles, Brussels, Belgium.
Levac, D.E. (2023, March-April). [Invited Presentation]. 9th Journées Francophones de Kinésithérapie, Rennes, France.
Levac, D.E. (2023, October). What if we combined research and technology for the benefit of multiple disabilities? [Invited Presentation]. 1st Quebec Forum on Polyhandicap, Montreal, Quebec, Canada.
Lindsay, S., Fuentes, K., Tomas, V., Hsu, S. (2023, May). Ableism and workplace discrimination among youth and young adults with disabilities in the workforce. Child Health Symposium, London, Ontario, Canada.
McCorquodale, L., Trudelle, M., VanderKaay, S., Hall, A., Anderson, R. (2023, October). Demystifying preceptorship to meet the need of occupational therapy students. OSOT Conference 2023, London, Ontario, Canada.
Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., Phoenix, M., Gorter, J.W., Cross, A. (2023, October). Building Leadership Capacity in Family Engagement in Research. PiPER Research Day, Ontario, Canada.
Miller, L., Imms, C., Cross, A., Pozniak, K., O’Connor, B., Martens, R., Cavalieros, V., Babic, R., Novak-Pavlic, M., Rodrigues, M., Balram, A., Hughes, D., Ziviani, J., Rosenbaum, P., Britt, K. (2023, May). Impact of ENVISAGE-Families workshops on outcomes for caregivers of children with neurodisabilities. European Academy of Childhood Disability, Ljubljana, Slovenia.
Moll, S., Phoenix, M., Murray-Leung, L., Freeman, B., Micsinszki, S., Mulalu, L., Mulvale, G. (2023, May). A Charter for Inclusive Excellence in Co-Creation of Health and Social Care. Canadian Association for Health Services and Policy Research, Ontario, Canada.
Moosa, T., Moore, L., Cunningham, B.J., Theurer, J. (2023, May). Engaging End Users to Develop Gender Affirming Voice/Communication Training. Speech-Language and Audiology Conference, Vancouver, British Columbia, Canada.
Morin, S.A., Da Silva, S., Byra, M.M., Issenman, R.M., Timmons, B.W., Obeid, J. (2023, September). Physical activity and cardiorespiratory fitness in pediatric inflammatory bowel disease. 33rd European Group of Pediatric Work Physiology, Wales, United Kingdom.
Morris, C., Bourke-Taylor, H., Imms, C., Rosenbaum, P. (2023, May). Promoting health, empowerment and resilience in parents of disabled children: An exploration of novel parent-carer-focused interventions. European Academy of Childhood Disability, Ljubljana, Slovenia.
Nelson, K., Zhu, K., Thomson, J., Mahant, S., Widger, K., Pullenayegum, E., Feudtner, C., Cohen, E., Feinstein, J. (2023, April). Critical Illness Episodes and Long-Term Survival among Ontario Children with Severe Neurologic Impairment (oral abstract). Pediatric Academic Societies Annual Meeting, Washington, DC, USA.
Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, December). Advocating for sibling roles: Understanding the experiences of youth and young adult siblings of individuals with a disability, and synthesizing and co-developing resources to support them. Second Siblings Studies Colloquium.
Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, June). Moving forward: Mobilizing knowledge to co-develop the Siblings Training, Empowerment, and Advocacy Kit (Siblings TEAKit) to support siblings of individuals with a disability. CHILD-BRIGHT Conference.
Nguyen, L., Bellefeuille, S., Davis, H., Gorter, J.W., Ketelaar, M., Zwicker, J., Shikako, K. (2023, October). Moving forward: Mobilizing knowledge to co-develop the Siblings Training, Empowerment, and Advocacy Kit (Siblings TEAKit). Kids Brain Health Network Conference 2023. Ottawa, Canada.
Nguyen, L., Pozniak, K., Strohm, S., Dawe-McCord, C., Havens, J., Thomson, D., Putterman, C., Arafeh, D., Galuppi, B., Via-Dufresne Ley, A., Doucet, S., Amaria, K., Kovacs, A., Marelli, A., Rozenblum, R., Gorter, J.W. on behalf of the READYorNot™ Brain-Based Disabilities Project Team. (2023, June). The Evolution of our Partnership with Youth and Families on the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Project: Key Reflections and Lessons Learned. CHILD-BRIGHT Conference.
Noel, M., Dittrich, K., Harrison, L.E., Hurtubise, K., Hess, C.W. (2023, May). Considering the multiple identities of patients with chronic pain: How can we tailor pain care to support young athletes?” Parrallel Symposia. Canadian Pain Society 43rd Annual Scientific Meeting (ASM). Banff, Alberta, Canada.
Oosterveer, D., Verhage, V., Vroonland, E., de Groot, I., Ketelaar, M. (2023, November). Patiëntenparticipatie in revalidatieonderzoek. Workshop Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
Palisano, R., DiRezze, B. (2023, April & August). Healthy Development for Children with Autism. McMaster Children’s Hospital, Hamilton, Ontario, Canada (Web presentation).
Palisano, R. (2023, October). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Taiwan Academy of Pediatric Rehabilitation, Taipei, Taiwan (Web presentation).
Palisano, R. (2023, October). Physical Therapy for Children with Neurodevelopmental Conditions: Contemporary Perspectives and Evidence Informed Practice. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
Palisano, R. (2023, October). Preparing Children for Successful Community Participation. Australian Physiotherapy National Conference: IGNITE 2023, Brisbane, Ontario, Canada.
Palisano, R. (2023, September). Lifecourse Health Development of Individuals with Neurodevelopmental Conditions: Visualizing a Preferred Future. Brazilian Congress of Neurofunctional Physiotherapy (COBRAFIN), Fortaleza, Ceará, Brazil.
Palisano, R. (2023, September). Participation-Based Therapy for Children with Physical Disabilities. Brazilian Congress of Neurofunctional Physiotherapy (COBRAFIN), Fortaleza, Ceará, Brazil.
Passaretti, B., Gallagher, T., Turkstra, L., Jiang, A., Cahill, P., Campbell, W. (2023, January). SLP-Educator Collaborative Practices for the Delivery of Morphological Awareness Instruction: Findings from a Scoping Review [Invited Presentation]. Speech and Language Services Department, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
Passaretti, B., Turkstra, L., Gallagher, T., Jiang, A., Cahill, P., Campbell, W. (2023, February). Having Fun With Words! Features of Morphological Awareness Instruction [Invited Presentation]. Psychological Services Department, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
Passaretti, B., Turkstra, L., Gallagher, T., Jiang, A., Cahill, P., Campbell, W. (2023, January). Having Fun with Words! Classroom-Based Morphological Awareness Instruction [Invited Professional Development]. Delivered to the Education Staff at Westwood Elementary School, Hamilton Wentworth District School Board, Hamilton, Ontario, Canada.
Phoenix, M., Bruce, E. (2023, November). Transitions in your research – lessons learned from building a community [Invited Presentation]. McMaster Faculty of Health Science, Women’s Symposium, Hamilton, Ontario, Canada.
Phoenix, M. (2023, May). Using Critical Reflexivity to Advance Access, Equity, and Engagement in SLP Services [Invited Presentation]. Hamilton Health Sciences, Hamilton, Ontario, Canada.
Phoenix, M., Minogianis, E.A., Salt, M., Reitzel, M., Micsinszki, S. (2023, October). Canadian Neurodevelopmental Research Training Platform. Kids Brain Health Network, Ontario, Canada.
Phoenix, M. (2023, October). Advancing Equity, Diversity, Inclusion and Justice via Relationships and Research [Invited Presentation]. Kids Brain Health Network, Trainee Days, Ontario, Canada.
Phoenix, M. (2023, October). Visualizing Equity-Based Co-Creation [Invited Presentation]. Leong Centre, Ontario, Canada.
Phoenix, M., Reitzel, M., Shiry, G., Simpson, S., King, G. (2023, April). Reimagining missed appointments and family engagement: Organizational considerations. Empowered Kids Ontario, Ontario, Canada.
Pouliot-Laforte, A., Marcoux, I., Levac, D.E. (2023, October). Integration and use of technologies in pediatric rehabilitation: Successful clinical and research collaborations. CHU Sainte-Justine Pediatric Physiotherapy Symposium.
Pozniak, K., Currie, G., Doherty-Kirby, A., Grahovac, D., Lebsack, J., LaCour, C., Kirby, Z., Grahovac, V., Lebsack, L., Campbell, W., Humphreys, C., Patterson, S., Raha, S., Whitley, J., Swain, A., Kraus de Camargo, O. (2023, November). A child’s story is a treasure: What services and supports do children with disabilities and their families need, now and into the future? Luke’s Legacy Family Research Rounds, CanChild Centre for Childhood Disability Research.
Pozniak, K. (2023, November). The Stories Outside These Walls: Parents of children with health conditions share their experiences with healthcare services. McMaster University Pediatric Research Rounds.
Pozniak, K. (2023, November). Transcending Covid? Disabled children and their families between “returning to normal” and “building back better”. Canadian Anthropology Society/American Anthropological Association Annual Meeting.
Pozniak, K., Rosenbaum, P., Chambers, E., King, G., Martens, R., Martens, A., Kraus de Camargo, O., McCauley, D., Teplicky, R., Duku, E., Earl, S. (2023, September). What do today’s parents want from healthcare services? Developing a new measure of Family-Centred Service. American Academy for Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
Reitzel, M., Hurtubise, K., Knobl, E., Campbell, W., Gaboury, I., Phoenix, M. (2023, April). Virtual services: Multiple perspectives to advance training, practice and research. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.
Reitzel, M., Lennon, C., Lasenby-Lessard, J., Di Rezze, B., Letts, L., Novak Pavlic, M., Phoenix, M. (2023, October). Codesigning solutions to enhance families’ experiences with telerehabilitation – Findings and reflections. Kids Brain Health Network Conference, Ontario, Canada.
Rivet, F., Levac, D.E., Pouliot-Laforte, A. (2023, June). Integrating Technology in Pediatric Rehabilitation: Understanding Clinical Decision-Making. Scientific Day REPAR-INTER, Drummondville, Quebec, Canada.
Rosenbaum, P. (2023, April). What Lessons from Developmental Pediatrics Might be Relevant to the Whole Field of Child Health? [Invited Presentation]. Grand Rounds, Duke University, North Carolina, USA.
Rosenbaum, P. (2023, April-May). (i) Family-Centred Care: Principles and Evidence (ii) What Should We Expect in Future for our Field of Childhood Disability? Some ideas for your consideration! (iii) The F-words for Child Development: Foundations I (iv) ENVISAGE (Enabling Visions and Growing Expectations). A parent-carer empowerment program (v) Communicating “Bad News” in Pediatric Patients with Disabilities. A Drama in Three Acts [Invited Presentations]. II Congresso Internacional de Paralisia Cerebral, Campinas, Brazil.
Rosenbaum, P. (2023, February). Cerebral Palsy: From Diagnosis to Adult Life, Or: ‘CP: Then and Now’ [Invited Talk]. Association of Sri Lankan Neurologists.
Rosenbaum, P. (2023, February). Research (in Childhood Disability): What are the Issues, and What Do I Do About Them? A Personal Reflection. Health Research Methods Program Talk.
Rosenbaum, P. (2023, January). F-words for Child Development? What’s that Got to do with Me? [Invited Webinar]. Neurodevelopmental Disability (NDD) Special Interest Group for Child Neurology Society, USA (Virtual).
Rosenbaum, P. (2023, January). How are we Thinking, Talking and Acting in Childhood Disability in 2023? What is New, What is the Evidence, and Why Should I Care? [Invited Seminar]. 10th Tokyo Physical Therapy Association, Tokyo, Japan.
Rosenbaum, P. (2023, June). Childhood Disability in 2023: How are We Thinking, Talking and Acting? What is New, What is the Evidence, and Why Should I Care? Ummeed Centre, Mumbai, India.
Rosenbaum, P. (2023, June). What Lessons from Developmental Pediatrics Might be Relevant to the Whole Field of Child Health? Doug Kinnett Memorial Lecture, Cincinnati Children’s Hospital, Ohio, USA.
Rosenbaum, P. (2023, May). F-words of Child Development [Recorded Talk]. ICF Facilitator Course, South Africa.
Rosenbaum, P. (2023, May). Family-Centred Care: Principles and Evidence [Invited Workshop]. Mali dom Centre, Zagreb, Croatia.
Rosenbaum, P., Novak Pavlic, M. (2023, May). The “ENabling VISions And Growing Expectations” (ENVISAGE) program for parents of children with developmental disabilities: a pilot evaluation and feasibility in Croatia. European Academy of Childhood Disability, Ljubljana, Slovenia.
Rosenbaum, P. (2023, October). F-words for Child Development? How Can W.H.O.’s ICF Help Us? Sounds Weird… But Tell Me More! [Invited Lecture]. Irish Society of Chartered Physiotherapists, Dublin, Ireland.
Rosenbaum, P. (2023, October). Seeing Cerebral Palsy through the Lens of WHO’s ICF and CanChild’s F-words: How does this perspective help children, families, and service providers? SESOBEL (Plateau Technique et Centre de Formation Continue) Cerebral Palsy Symposium, Beirut, Lebanon.
Rosenbaum, P. (2023, October). W.H.O.’s ICF and the F-words: A Memorable Way to Bring Our Ideas Together! IV Polish Academy of Childhood Disability and Polish Association for Persons with Intellectual Disability, Gdansk, Poland.
Rosenbaum, P. (2023, September). Childhood Disability in 2023: How are We Thinking, Talking and Acting? Ideas for the 21st Century! [Invited Lecture]. In Romania and Moldova.
Rosenbaum, P. (2023, September). (i) Childhood Disability: Who is the ‘Patient’, and Why Does it Matter? (ii) The WHO’s ICF and the ‘F-Words for Child Development’: Impact Around the World [Invited Lecture]. Children with Cerebral Palsy (CPOP) Program annual conference, Fredericia, Denmark.
Rosenbaum, P. (2023, September). Parenting Children with Cerebral Palsy: Do We Really Need a Lecture On This? [Invited Lecture]. Elsass Foundation, Copenhagen, Denmark.
Routhier F., Lettre, J., Desmarais, C., Grandisson M., Morales, E., Lamontagne, M.-E., Julien-Gauthier, F., Mortenson, W.B., Field, D.A., Zwicker, J.G., Campbell, W., Phoenix, M., Belleau, M.-C., Tellier, F., Lamothe, S., Demange-Lacombe, J., Kangkoyiri, F. (2023, May). Accessibilité des services de garde au Canada pour les enfants de 0 à 5 ans en situation de handicap : Méthodologie d’un projet pour dresser un portrait de la situation actuelle. 90th Congress of Acfas, Montreal, Quebec, Canada.
Roy, I., Salles, J., Doukhane, I., Larivière-Bastien, D., Blondin, A., Levac, D.E., Gauvin-Lepage, J., Bourassa, M., Fiset, S., Tadros, K., Beauchamp, M.H. (2023, July). Perspectives on Digital Health Technologies in Pediatric Care and Rehabilitation. 2023 World Congress for the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Santana, C., Ketelaar, M., Luchesse, C., Rosenbaum, P., De Campos, A.C. (2023). Transition to adulthood according to Brazilian young people with cerebral palsy: What themes do they identify? World Physiotherapy Congress 2023, Dubai.
Santana, C., Ketelaar, M., Machado, R., Rosenbaum, P., De Campos, A.C. (2023). Percepções de jovens Brasileiros com paralisia cerebral sobre os cuidados de saúde recebidos durante a transição para a vida adulta. II Congresso Internacional de Paralisia Cerebral, Campinas, Brazil.
Santana, C., Ketelaar, M., Souza, J.R., Rosenbaum, P., de Campos, A.C. (2023, May). When experts by theory work together with experts by experience: lessons learned from partnering with individuals with cerebral palsy in a research project. Poster European Academy of Childhood Disability, Ljubljana, Slovenia.
Sommers, M., Stukker, A., Kavanaugh, M.S., Ketelaar, M., Visser Meily, J.M.A., Beelen, J.A.J.M. (2023, November). What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions. Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
Stazyk, K., Perotta, S., DeMatteo, C. (2023). The Back2Play App: A Concussion Management Platform for Children and Youth to Bridge the Gap between Research and Practice. Apple Health Research Summit Cupertino, California, USA.
St. Dennis, A., Martens, R., Micsinszki, S. (2023, September). Navigating Ablism Everyday. Panel discussion to Surrey Place Spotlight Series.
Teplicky, R., Wright, M., Rosenbaum, P., Tajik-Parvinchi, D., Pozniak, K., Phoenix, M., Kwok, E., Kraus de Camargo, O., Hesketh, K., Gaetan, A. (2023, April). Designing Systems of Childhood Disability Care in the 21st Century: A Family-Centred, Community-Oriented, Strengths and Functional Needs-Based Approach. Empowered Kids Symposium, Toronto, Ontario, Canada.
Tomas, V., Moore, L., Nguyen, L., Davis, H., Chin, C. (2023, November). Relationships with siblings and friends (Panel). 10th Annual CP-Net Science and Family Day (Virtual).
Tomas, V., Teplicky, R., Hesketh, K., Grahovac, D., Pot, S. (2023, October). The F-words implementation journey: from publication to global impact. Kids Brain Health Network Annual Conference, Ottawa, Ontario, Canada.
Tomas, V., Wittmeier, K., Hammond, E., Wilson, M., Rosenbaum, P., Teplicky, R., Soper, A.K., Cross, A. (2023, October). Partnering together to explore the tailored implementation of the F-words for Child Development at an organizational level: a case study at Specialized Services for Children and Youth (SSCY) Centre. Children’s Hospital Research Institute of Manitoba Child Health Research Days, Winnipeg, Manitoba, Canada.
Trottier, N., Hurtubise, K., Cloutier, W., Camden, C., Gaboury, I. (2023, July). Barriers and facilitators influencing parental adherence to prevention strategies for deformational plagiocephaly: Results from a scoping review. Canadian Physiotherapy Association (CPA) Congress, Quebec, Canada.
Tucker, T., Bruijns, B.A., Vanderloo, L.M., Johnson, A.M., Adamo, K.B., Burke, S.M., Carson, V., Heydon, R., Irwin, J.D., Naylor, P.J., Timmons, B.W. (2023, June). Implementation of the TEACH e-Learning course on physical activity and sedentary behaviour for pre- and in-service early childhood educators: A pilot study. 22nd Annual Meeting of the International Society of Behavioral Nutrition and Physical Activity, Uppsala, Sweden.
van Alphen, G.J., Ketelaar, M., Voorman, J.M., Scholten, E.W.M., Post, M.W.M. (2023, May). Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation. European Academy of Childhood Disability, Ljubljana, Slovenia.
VanderKaay, S., Begin, D., Lisogurski, R., Robb, C. (2023). Trauma-informed teaching strategies for clinical education [Invited Presentation]. Ontario Society of Occupational Therapists Webinar (Virtual).
VanderKaay, S., Campbell, W., Carrier, A., Dhillon, S., & Ng. S. (2023, May). Occupational therapists’ epistemologies of practice: Informing reasoning and promoting equity. Canadian Association of Occupational Therapists’ Annual Conference, Saskatoon, Saskatchewan, Canada.
VanderKaay, S. (2023). Ethical tensions in transitioning to tiered models of school-based occupational therapy in Ontario [Invited Presentation]. Ontario Children’s Treatment Centre P4C Community of Practice (Virtual).
VanderKaay, S. (2023). Implementing trauma-Informed pedagogical practices to advance accessibility and inclusion [Invited Presentation]. McMaster University Faculty of Health Sciences Inclusive Community of Practice Meeting (Virtual).
VanderKaay, S., Jack, S., Phoenix, M., & Vrkljan, B. (2023, May). Implementing trauma-informed pedagogical practices in occupational therapy education. Canadian Association of Occupational Therapists’ Annual Conference, Saskatoon, Saskatchewan, Canada.
VanderKaay, S. (2023, October). Exploring ethical tensions in transitioning to tiered models of school-based occupational therapy. OSOT Conference 2023, London, Ontario, Canada.
Verma, R., Amin, R.R., Bai, Y.Q., Cohen, E., Guttmann, A., Gerson, A.S., Katz, S.L., Lim, A., Rose, L. (2023, October). Health Care Utilization and Costs in Children Receiving Home Mechanical Ventilation: A 14-Year Cohort Study (abstract). CHEST Annual Meeting, Honolulu, Hawaii, USA.
Yamaguchi, S., Castaldo, M., Kanagaratnam, S., Nguyen, L., Shikako, K. (2023, June). Progress and Goals for the Critical, Ethical Engagement with YOUth (CEE YOU)! Project. CHILD-BRIGHT Conference.
Zerbo, A., Cardoso, R., Yamaguchi, S., Nguyen, L., Gonzalez, M., Hanson, J., Backlin, G., Dupuis, H., Yoo, P., Boychuck, Z., Mosel, J., Gitterman, A., Lai, J., Marcotte, C., Robeson, P., Bush, P., Elsabbagh, M., Weiss, J., Putterman, C., Glegg, S., Shikako, K. (2023, June). The CHILD-BRIGHT Knowledge Mobilization Program. CHILD-BRIGHT Conference.
Zwiegers, P., Loftsgard, K.C., Costello, C., Nguyen, L., Micsinski, S., McCabe, J., Brossard-Racine, M., Severino, S.M., Laur, C., Goldowitz, D. (2023, June). Training & Capacity Building Program. CHILD-BRIGHT Conference.

POSTER PRESENTATIONS

Alsem, M., Ketelaar, M., Reinders-Messelink, H., Willems, M., Doornbos, R. (2023, May). Developing and implementing a Standard of Care for psychosocial care in pediatric rehabilitation: WHAT, HOW and NOW? European Academy of Childhood Disability, May 24-27 2023, Ljubljana, Slovenia.
Andringa, A., van Driel, M., Dekkers, H., Ketelaar, M., Klem, M., Roebroeck, M., Visch, P., Voorman, J., Buizer, A. on behalf of The Nederlands CP register consortium. (2023, November). Netherlands CP register for children with cerebral palsy: An innovative model for personalized care with patient participation. Dutch Congress of Rehabilitation Medicine, Den Bosch, the Netherlands.
Andringa, A., van Driel, M., Dekkers, H., Ketelaar, M., Klem, M., Roebroeck, M., Voorman, J., Buizer, A. (2023, May). Netherlands CP register for children with cerebral palsy: An innovative model for personalized care with patient participation. European Academy of Childhood Disability, Ljubljana, Slovenia.
Brown, H.M., Ryan, J., Coombs, E., Crerear, A., Devlin, C., Bendevis, C., Ksiazek, T., Dwyer, P., Hack, C., Nelson, H., Stothers, M., Connolly, T., Di Rezze, B., Nicholas D. (2023, May). Promoting Meaningful Collaboration between Autism Researchers and the Autistic Community: An Example from the Campus Belonging Network. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
Cheng, M., Levac, D.E. (2023, July). Feasibility of computerized and immersive VR-based visuomotor integration assessment in a busy cerebral palsy clinical setting. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Chhina, H., Klassen, A., Rolfing, J., Belthur, M., Esparaza, M., Bade, D., Kerrigan, A., Wright, J., Ranade, A., Vogt, B., McMahon, S., Podeszwa, D., Fernandes, J., Muwanis, M., Iobst, C., Sabharwal, S., Cooper, A.P. (2023, June). LIMB-Q Kids: An internationally applicable patient reported outcome measure for lower limb differences. Canadian Orthopaedic Association (COA) 2023 Annual Meeting, Calgary, Canada.
Da Silva, S.M., Byra, M.M., Cellucci, T., MacDonald, M.J., Thabane, L., Timmons, B.W., Obeid, J. (2023, March). Assessing aerobic fitness in youth with a chronic inflammatory disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
Di Rezze, B., Nelson, H., Switalsky, D., Ciesielski, J., Brown, H.M., Ryan, J., Stothers, M., Coombs, E., Crerar, A., Devlin, C., Bendevis, C., Ksiazek, T., Dwyer, P., HacK, C., Connolly, T., Nicholas, D. (2023, May). A scoping review of evidence-based supports on college and university campuses for autistic post-secondary students. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
Ferron, A., Fortin, F., Robert, M.T., Levac, D.E. (2023, June). Virtual Reality and Active Video Games: Innovation in Intensive Pediatric Rehabilitation. Scientific Day REPAR-INTER, Drummondville, Quebec, Canada.
Firouzeh, P., Morris, C., Sonnenberg, L., Manns, P., Pritchard-Wiart, L. (2023, September). The Development of Clinical Practice Considerations for Ankle-Foot Orthosis Prescription and Monitoring for Young Children with Cerebral Palsy, American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) Annual Meeting, Chicago, Illinois, USA.
Hadayeghi, L., Byra, M.M., Ferro, M., Obeid, J., Timmons, B.W. (2023, March). The influence of meeting sleep duration and physical activity guidelines on psychological distress levels in children with a chronic medical condition or disability. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
Hatherly, K., Denusik, L., Earle, C., Oram Cardy, J., Cunningham, B.J. (2023, November). The Virtual Target Word Program for Late Talkers: Results from a Pragmatic Waitlist Control Trial. American Speech-Language Hearing Association Convention, Boston, Massachusetts, USA (Virtual).
Kaelin, V., Anaby, D., Werler, M., Khetani, M.A. (2023, April). Predictors of school participation among children and youth with craniofacial microsomia and childhood-onset disabilities. American Occupational Therapy Association Annual Conference, Kansas City, Missouri, USA.
Kandappa, S., Morin, S., Byra, M.M., Issenman, R., Zachos, M., Sherlock, M., Pai, N., Brackenridge, E., Timmons, B.W., Obeid, J. (2023, March). Examining the association between TNF-α levels and physical activity in children with inflammatory bowel disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
Khetani, M.A., Kaelin, V., Rizk, S., Angulo, M., Salgado, Z., Chen, YF, Villegas, V., Dooling-Litfin, J., Leland N., Lerner Papautsky, E., Murphy, N., McManus, B., on behalf of the High Value Early Intervention Research Group (2023, September). Preliminary effectiveness of the Young Children’s Participation in Environment Measure and program-specific decision-support tool on early intervention service quality. American Academy on Cerebral Palsy and Developmental Medicine, Chicago, Illinois, USA.
Koo, M., Sharma, B., Timmons, B.W. (2023, March). Prevalence of traumatic brain injury in athletic individuals 25 years old and under with attention deficit hyperactive disorder: A review. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
Korteling, D.L., Limmen, S., Luijten, M.A.J., van Oers, H.A., Bloemen, M.A.T., Ketelaar, M., Engelbert, R.H.H., Haverman, L. (2023, August-September). A qualitative approach to select patient reported outcomes within pediatric physical therapy. European Paediatric Psychology Conference, Stirling, Schotland.
Lancon, A., Bisaillon, C., Fortin, W., Levac, D.E. (2023, July). Practical considerations for head-mounted display use in pediatric rehabilitation: a narrative review. World Congress of the International Society for Virtual Rehabilitation, Montreal, Quebec, Canada.
Lançon, L., Roy, C., Fortin, W., Bau, O., Cardinal, M-C., Desgagnés, J., Cheng, M., Bleyenheuft, Y., Saussez, G., Robert, M.T., Levac, D.E. (2023). HABIT-ILE for children with hemiplegia: Describing the relationship between intervention content, fine motor versus gross motor goals, and functional outcome change. American Academy of Cerebral Palsy & Developmental Medicine, Chicago, Illinois, USA.
Limmen, S., Korteling, D.L., van Oers, H.A., Luijten, M.A.J., Bloemen, M.A.T., Ketelaar, M., Engelbert, R.H.H., Haverman, L. (2023, August-September). Facilitators and Barriers towards Implementing Shared Decision-Making in Pediatric Physical Therapy: Perspectives from Diverse Stakeholder Groups. European Paediatric Psychology Conference, Stirling, Schotland.
Lucero, I., Kaelin, V., Khetani, M.A. (2023, November). Validating types of participation-focused strategies used by caregivers of young children with developmental need. Poster Applied Health Sciences Research Day, University of Illinois Chicago, Chicago, Illinois, USA.
Martens, R., Seth, G., Micsinszki, S.K., Cross, A. (2023). Creating Equitable Spaces in Family Engagement in Research. Panel discussion to Edwin S.H. Leong Centre for Healthy Children, University of Toronto, Toronto, Ontario, Canada.
Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, AK., McCauley, D., Phoenix, M., Gorter, JW., Cross, A. (2023, October). The Family Engagement in Research Leadership Academy: An Advanced Training Opportunity to Support Emerging Leaders in Child Health Research. Kids Brain Health Network Conference, Ottawa, Ontario, Canada.
Micsinszki, S., Thomson, D., Putterman, C., Martens, R., Soper, A.K., Phoenix, P., Forster, V., Gorter, J.W., Cross, A. (2023, June). Leadership Competencies in Family Engagement in Child Health Research. CHILD-BRIGHT Conference, Toronto, Canada.
Novak-Pavlic, M., Dezmar, D., Grgic, V., Vlasic, K., Ilicic, AM., Abramovic, I., Macedo, L., Di Rezze, B., Rosenbaum, P. (2023, May). The impact of the “ENabling VISions And Growing Expectations” (ENVISAGE) program for parents of children with developmental disabilities in Croatia: A discourse analysis study. European Academy of Childhood Disability, Ljubljana, Slovenia.
Patel, J., Byra, M.M., Athaide, C, Au, J., Cellucci, T., Thabane, L., Timmons, B.W., MacDonald, M.J., Obeid, J. (2023, March). Carotid Artery Longitudinal Wall Motion in Children with a Chronic Inflammatory Disease. 15th Annual McMaster Child Health Research Day, Hamilton, Canada.
Phoenix, M., Reitzel, M., Shiry, G., Simpson, S. (2023, October). Reimagining Missed Appointments & Family Engagement – Organizational Considerations. Kids Brain Health Network, Ontario, Canada.
Phoenix, M., Moll, S., Bhaskar, L.T., Vrzovski, A., Mulvale, G., CoPro Consortium. (2023, May). Equity-based healthcare: Cocretaing visual prototypes for system change. Canadian Association for Health Services and Policy Research (CAHSPR), Ontario, Canada.
Riosa, P.B., Di Rezze, B. (2023, May). Ready2Work: A User-Informed Employment Website for Autistic Job Seekers. International Society for Autism Research (INSAR) Annual Meeting, Stockholm, Sweden.
Rizk, S., Ngui, E., Salgado, Z., Bosak, D., Khetani, M.A. (2023, June). Medical home care and educational service use among children and youth on the Autism Spectrum: A scoping review. Occupational Therapy Summit of Scholars.
Rizk, S., Ngui, E., Salgado, Z., Bosak, D., Khetani, M.A. (2023, June). Medical home care and educational service use among children and youth on the Autism Spectrum: A scoping review. AcademyHealth Annual Research Meeting, held in Seattle, Washington, USA.
Rizk, S., Benevides, T., Koh, Berg, K., Khetani, M.A. (2023, April). Medical home care components associated with educational service use among children and youth with Autism Spectrum Disorder. American Occupational Therapy Association Conference, Kansas City, Missouri, USA.
Roduta Roberts, M., Maeda, N., Esmail, S., Firouzeh, P., Hadizadeh, M., Aydin, M., Chao, I.C.I., Chrenek, E. (2023, May). Virtual reality to enhance student performance in an interview OSCE. Annual meeting of the Canadian Association of Occupational Therapists, Saskatoon, Saskatchewan, Canada.
Saluja, S., Kaelin, V., Khetani, M.A. (2023, November). Caregiver creation of participation-focused strategies for children and youth with Craniofacial Microsomia. Applied Health Sciences Research Day, University of Illinois Chicago, Chicago, Illinois, USA.
Selvakumaran, S., Hidecker, M.J.C., Rosenbaum, P., Duku, E., O’Connor, I., Di Rezze, B. (2023, May). Fidelity Measures of Job Coaching Interventions that Support Autistic Youth and Adults in Paid Integrated Employment: A Narrative Review. European Academy of Childhood Disability (EACD), Ljubljana, Slovenia.
Soper, A.K., Cross, A., Ketelaar, M., van Meeteren, K., Micsinszki, S., Bult, M., Thomson, D., Putterman, C., McCauley, D., Gorter J.W. (2023). Let’s not re-invent the wheel: Scalability of a training program in family engagement in research across countries. Kids Brain Health Network, Ottawa, Canada.
Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. Child Health Symposium, London, Ontario, Canada.
Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, April). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. Empowered Kids Ontario, Toronto, Ontario, Canada.
Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. University of Toronto Rehabilitation Sciences Institute Research Day, Toronto, Ontario, Canada.
Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023, May). Co-designing and testing the usability of an autism disclosure decision-aid tool for autistic youth and young adults in employment settings. University of Toronto Collaborative Program in Neuroscience Research Day, Toronto, Ontario, Canada.
Valizadeh, M., Kaelin, V., Khetani, M.A., Parde, N. (2023, October). Natural language processing to classify caregiver strategies for participation-focused pediatric rehabilitation. American Congress for Rehabilitation Medicine conference, Atlanta, Georgia, USA.
VanderKaay, S., Campbell, W., Carrier, A., Dhillon, S., & Ng. S. (2023, June). Occupational therapists’ epistemologies of practice: Informing reasoning and promoting equity. McMaster University Norman Education Research Day, Hamilton, Ontario, Canada.
Verberne, M.S.W., Branco, M.P., Ketelaar, M., Geytenbeek, J., van Driel-Boerrigter, M., Willems-op het Veld, M., Rabbie-Baauw, K., Vansteensel, M.J. (2023, June). Stakeholders’ perspectives on BCI needs in children and adolescents with severe cerebral palsy. 10th BCI Society Meeting, Brussels, Belgium.
Villegas, V., Bosak, D., Salgado, Z., Phoenix, M., Teplicky, R., Parde, N., Khetani, M.A., on behalf of the High Value Early Intervention Research Group (2023, November). Diversifying caregiver input to upgrade the Young Children’s Participation and Environment Measure (YC-PEM) for equitable pediatric re/habilitation practice. Illinois Occupational Therapy Association conference, Naperville, Illinois, USA.
Villegas, V., Bosak, D., Salgado, Z., Phoenix, M., Teplicky, R., Parde, N., Khetani, M.A., on behalf of the High Value Early Intervention Research Group (2023, September). Diversifying caregiver input to upgrade the Young Children’s Participation and Environment Measure (YC-PEM) for equitable pediatric re/habilitation practice. American Academy of Cerebral Palsy and Developmental Medicine conference, Illinois, USA.

Publications

* indicates open access

*Amin. R., Verma, R., Qing Bai, Y., Cohen, E., Guttmann, A., Gershon, A.S., Katz, S.L., Lim, A., Rose, L. (2023). Incidence and Mortality of Children Receiving Home Mechanical Ventilation. Pediatrics, 151(4):e2022059898.
*Anaby, D.R., Avery, L., Palisano, R.J., Levin, M.F., Khayargoli, P., Hsieh, Y., Gorter, J.W., Teplicky, R. (2023). Participation and Beyond: The Benefits of Environment-based Approaches Among Young people with Physical Disabilities During COVID-19. Developmental Medicine and Child Neurology, 00:1-8.
*Andringa, A., Veerkamp, K., Roebroeck, M., Ketelaar, M., Klem, M., Dekkers, H., Voorman, J., van Driel, M., Buizer, A. (2023). Combined surveillance and treatment register for children with cerebral palsy: the protocol of the Netherlands CP register. BMJ Open, 13:e076619.
*Bedard, C., Timmons, B.W., Ferro, M.A. (2023). Exploratory examination of the association between physical-mental multimorbidity and physical activity in children. Frontiers in Pediatrics, 11: 920629.
*Belza, C., Pullenayegum, E., Nelson, K.E., Aoyama, K., Fu, L., Buchanan, F., Diaz, S., Goldberg, A., Guttmann, A., Moore Hepburn, C., Mahant, S., Martens, R., Nathwani, A., Saunders, N., Cohen, E. (2023). Severe Respiratory Disease among Children with and without Medical Complexity during the COVID-19 pandemic. JAMA Network Open, 6(11):e2343318.
*Biemans, C.F.M., Nijhof, S.L., Gorter, J.W., Stevens, G.J.W.M., van de Putte, E., Hoefnagels, J.W., van den Berg, A., van der Ent, C.K., Dudink, J., Verschuren, O.W. (2023). Self-reported quantity and quality of sleep in children and adolescents with a chronic condition compared to healthy controls. European Journal of Pediatrics, 182(7):3139-3146.
*Bootsma, J.N., Campbell, F., McCauley, D., Hopmans, S., Grahovac, D., Cunningham, B.J., Phoenix, M., Kraus de Camargo, O., Geytenbeek, J.J.M., Gorter, J.W. (2023). Psychometric properties of the English language version of the C-BiLLT evaluated in typically developing Canadian children. Journal of Pediatric Rehabilitation Medicine, 16(1), 71-81.
Bootsma, J.N., Stadskleiv, K., Phoenix, M., Geytenbeek, J.J.M., Gorter, J.W., McCauley, D., Fiske, S., Campbell, F., Crews, N., Cunningham, B.J. (2023). Implementation of the C-BiLLT, an accessible instrument to assess language comprehension in children with limited motor and speech function: an international clinician survey. Augmentative and Alternative Communication, 39(3), 135-145.
Bosak, D., Fulford, D., Khetani, M.A. (2023). Formative evaluation of an entrepreneurial sponsored contract for knowledge translation training in occupational therapy relevant research spaces. World Federation of Occupational Therapy Bulletin, 79(2): 236-247.
*Brandenberger, J., Duchen, R., Lu, H., Wanigaratne, S., Cohen, E., To, T., Piché-Renaud, P.P., Guttmann, A. (2023). COVID-19 Vaccine Uptake in Immigrant, Refugee, and Non-immigrant Children and Adolescents in Ontario, Canada. JAMA Network Open, 6(7):e2325636.
Breij, L.M., van de Ven, R.A.H., Hulst, R.Y., Smorenburg, A.R.P., Gorter, J.W., Verschuren, O.W. (2023). Body mass index is not suitable for assessing body composition in children with spastic cerebral palsy. Disability and Rehabilitation, 46(3):509-514.
*Brossman, H.L., Chiarello, L.A., Palisano, R.J., Wynarczuk KD. (2023). A Collaborative Approach to Support Participation in Physical Recreation for Preschool Students with Multiple Disabilities: A Case Series. Disabilities, 3(4): 591-607.
*Brugnaro, B.H., Vieira, F.N., Kraus de Camargo, O., D., Rocha, N.A.C.F. (2023). What was the community support offered to people with disabilities during the COVID-19 pandemic in Brazil? A pilot study as part of a global survey. International Journal of Health Science, 3(32), 2-22.
*Cahill, P., Missiuna, C., DeCola, C., Dix, L., Campbell, W.N. (2023). Structural validity and internal consistency of an outcome measure to assess self-reported educator capacity to support children with motor difficulties. Frontiers in Education, 8.
Cahill, P. T., Ng, S. L., Dix, L., Ferro, M.A., Turkstra, L. S., & Campbell, W.N. (2023). Outcomes management practices in tiered school-based speech-language therapy: A Canadian example. International Journal of Language and Communication Disorders, 58(3): 786–801.
*Campbell, W.N., Missiuna, C. Dix, L., Sahagian-Whalen, S. (2023). Partnering for Change: Collaborating to transform occupational therapy services that support inclusive education [Perspective]. Frontiers in Public Health, 11:1275920.
*Cohen, E., Fu, L., Brown, H.K., Grandi, S.M., Boblitz, A., Fang, J., Austin, P.C., Nathwani, A.A., Szentkύti, P., Horváth-Puhó, Sørensen, H.T., Ray, J.G. (2023). Adverse perinatal events and maternal interpregnancy weight change: A population-based observational study. International Journal of Gynecology & Obstetrics.
*Cohen, E., Quartarone, S., Orkin, J., Moretti, M.E., Emdin, A., Guttmann, A., Willan, A.R., Major, N., Lim, A., Diaz, S., Osqui, L., Soscia, J., Fu, L., Gandhi, S., Heath, A., Fayed, N. (2023). Effectiveness of Structured Care Coordination for Children With Medical Complexity: The Complex Care for Kids Ontario (CCKO) Randomized Clinical Trial. JAMA Pediatrics, 177(5):461-471.
*Cox, V.C.M., Welten, J.J.E., Schepers, V.P.M., Ketelaar, M., Kruithof, W.J., Van Heugten, C.M., Visser-Meily, J.M.A. (2023). Burden, anxiety and depressive symptoms in partners – course and predictors during the first two years after stroke. Topics in Stroke Rehabilitation, 30(6):533-542.
*Cunningham, B.J., Nepotiuk, A., Rosenbaum, P., Thomas-Stonell, N. (2023). Interrater reliability of the FOCUS-34: Parent to parent and parent to clinician. Communication Disorders Quarterly, 45(2):135-138.
*Currie, G., Doherty-Kirby, A., Lebsack, G., Grahovac, D., Pozniak, K. (2023). “Falling off a cliff”: Mothering Disabled Children Through the Pandemic and Beyond. Journal of the Motherhood Initiative for Research and Community Involvement 14 (1): 62-82.
*Da Costa, I.G.R., Brugnaro, B.H., Lima, C.R.G., Kraus de Camargo, O., Fumincelli, L., Pavão, S.L., & Rocha, N.A.C.F. (2023). Perceived Social Support and Quality of Life of Children with and without Developmental Disabilities and Their Caregivers during the COVID-19 Pandemic in Brazil: A Cross-Sectional Study. International Journal of Environmental Research and Public Health, 20(5), 4449.
Demers, I., Corriveau, G., Morneau-Vaillancourt, G., Lamontagne, M.E., Camden, C., Moffet, H., Maltais, D.B. (2023). A Clinical Practice Guide to Enhance Physical Activity Participation for Children with Developmental Coordination Disorder in Canada. Physiotherapy Canada, 75(3):293-307.
*Denusik, L., Servais, M., Glista, D., Hatherly, K., Moodie, S., Oram Cardy, J., Cunningham, B.J. (2023). Families’ experiences in the virtual Hanen More Than Words program during the COVID-19 pandemic. American Journal of Speech-Language Pathology, 32(2):701-716.
*Diskin, C., Orkin, J., Dharmaraj, B., Agarwal, T., Parmar, A., McNaughton, K., Cohen, E., Sunderji, A., Faraoni, D., Fecteau, A., Fischer, J., Maynes, J., Mahant, S., Friedman, J. (2023). Secondary impacts of the COVID-19 pandemic at a tertiary children’s hospital in Canada: a mixed-methods study. BMJ Open, 13(4):e059849.
*Diskin, C., Robinson, K., Agrawal, R., Masterson, D., Coleman, C., Cohen, E. (2023). Family Partnership in Continuing Medical Education: A Collaborative Experience. Pediatrics, 151(5):e2022060280.
Dostie, R., Gaboury, I., Trottier, N., Hurtubise, K., Camden, C. (2023). Acceptability of a Multimodal Telerehabilitation Intervention for Children Ages 3-8 Years with Motor Difficulties: Results of a Qualitative Study. Developmental Neurorehabilitation, 26(5):287-301.
*D’Souza, D., Empringham, J., Pechlivanoglou, P., Uleryk, E.M., Cohen, E., Shulman, R. (2023). Incidence of Diabetes in Children and Adolescents During the COVID-19 Pandemic: A Systematic Review and Meta-Analysis. JAMA Network Open, 6(6):e2321281.
*Evans, A., Mahar, A.L., Deb, B., Boblitz, A., Brownell, M., Guttmann, A., Stukel, T.A., Cohen, E., Sarkar, J., Eze, N., Katz, A., Raveendran, T., Saunders, N. (2023). Gaps in childhood immunizations and preventive care visits during the COVID-19 pandemic: a population-based cohort study in children in Ontario and Manitoba, Canada, 2016-2021. Canadian Journal of Public Health, 114(5):774-786.
*Ferron, F., Robert, M., Levac, D.E. (2023). Virtual reality and active video game integration within an intensive bimanual therapy program for children with hemiplegia. Physiotherapy & Occupational therapy in pediatrics, 44(3):410-426.
Firouzeh, P., Morris, C., Sonnenberg, L.K., Manns, P., Pritchard, L. (2023). Parent experience with ankle-foot orthoses for their young children with cerebral palsy: a qualitative study. Disability and Rehabilitation, 1-8.
*Fishman, H., Al-Shamli, N., Sunkonkit, K., Maguire, B., Selvadurai, S., Baker, A., Amin, R., Propst, E.J., Wolter, N.E., Eckert, D.J., Cohen, E., Narang, I. (2023). Heated humidified high flow nasal cannula therapy in children with obstructive sleep apnea: A randomized cross-over trial. Sleep Medicine, 107:81-88.
Fonseca Romeros, A.C S., Sousa Junior, R., Souto, D., Fiss, A., de Matos, M.A., Martins Almeida Ayupe, K., Palisano, R.J., Chagas, P.S.C., Camargos, A.C.R., Leite, H.R. (2023). Translation, reliability, and validity of the Brazilian-Portuguese version of the Early Activity Scale for Endurance (EASE). Disability and Rehabilitation, 4(6), 1167-1172.
*Gerritsen, A., Hulst, R.Y., van Rijssen, I.M., Obeid, J., Pillen, S., Gorter, J.W., Verschuren, O. (2023). The temporal and bi-directional relationship between physical activity and sleep in ambulatory children with cerebral palsy. Disability and Rehabilitation, 1-7.
*Giles, M.L., Ball, G.D.C., Bonder, R., Buchholz, A., Gorter, J.W., Morrison, K.M., Perez, A., Walker, M., McPherson, A.C. (2023). Exploring the complexities of weight management care for children with spina bifida: a qualitative study with children and parents. Disability and Rehabilitation, 1-9.
*Gerritsen, A., Hulst, R.Y., van Rijssen, I.M., Obeid, J., Pillen, S., Gorter, J.W., Verschuren, O. (2023). The temporal and bi-directional relationship between physical activity and sleep in ambulatory children with cerebral palsy. Disability and Rehabilitation, 1-7.
Ghatamaneni, D., Peters, S., MacDermid, J., Brunton, L.K. (2023). Prevalence of Fatigue in Adolescents and Adults with Cerebral Palsy: A systematic review. Fatigue: Biomedicine, Health and Behavior, 11(2-4), 157-175.
*Global Research of Developmental Disabilities Collaborators. Olusanya, B.O., Cheung, V.G., Hadders-Algra, M., Breinbauer, C., Smythe, T., Moreno-Angarita, M., Brinkman, S., Almasri, N., Figueiredo, M., Kraus de Camargo, O., Nnanna, I.C., Block, S.S., Storbeck, C., Olusanya, J. O., Berman, B.D., Wertlieb, D., Williams, A.N., Nair, M.K.C., Davis, A.C., Wright, S.M. (2023). Sustainable Development Goals Summit 2023 and the global pledge on disability-focused early childhood development. The Lancet Global Health, 11(6), e823-e825.
Hatherly, K., Glista, D., Testani, D., Brunton, L.K, Cunningham, B.J. (2023). A Scoping Review of Virtual Synchronous Intervention Studies in Preschool Rehabilitation. Disability and Rehabilitation. Disability and Rehabilitation, 46(2):232-240.
Janzen, L., Toomey, C., Brunton, L.K., Condliffe, E.G., Esau, S., Kirton, A., Kuntze, G., Emery, C. (2023). Physical Activity Levels and Adiposity in Ambulant Children and Adolescents with Cerebral Palsy Compared to Their Typically Developing Peers. Pediatric Exercise Science, 35(4):225-231.
Kaelin, V., Anaby, D., Werler, M., Khetani, M.A. (2023). Caregiver strategies explaining school participation among children and youth with craniofacial microsomia and childhood-onset disabilities [Abstract]. Archives of Physical Medicine and Rehabilitation, 104(3), e16.
*Kaelin, V., Anaby, D., Werler, M., Khetani, M.A. (2023). School participation among young persons with craniofacial microsomia and childhood-onset disabilities. Developmental Medicine and Child Neurology.
*Karlsson, A.W., Kragh-Sørensen, A., Børgesen, K., Behrens, K.E., Andersen, T., Langhoff Kidholm, M., Rothmann, M.J., Ketelaar, M., Janssens, A. (2023). Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research. Research Involvement and Engagement, 9(1):43.
*Kauff, M., Bührmann, T., Gölz, F., Simon, L., Lüers, G., van Kampen, S., Kraus de Camargo, O., Snyman, S., Wulfhorst, B. (2023). Teaching interprofessional collaboration among future healthcare professionals. Frontiers in Psychology, 14, 1185730.
Khetani, M.A., Kaelin, V., Rizk, S., Angulo, M., Salgado, Z., Chen, Y.F., Villegas, V., Dooling-Litfin, J., Leland, N., Lerner Papautsky, E., Murphy, N., McManus, B., on behalf of the High Value Early Intervention Research Group. (2023). Preliminary effectiveness of an electronic patient-reported outcome measure and decision support tool on early intervention service quality [Abstract]. Developmental Medicine and Child Neurology, K10.
*King-Dowling, S., Fortnum, K., Chirico, D., Le, T., Kwan, M., Timmons, B.W., Cairney, J. (2023). Reliability of field- and laboratory-based assessments of health-related fitness in preschool-aged children. American Journal of Human Biology, 36(2); e23987.
King, G., Phoenix, M., VanderKaay, S., Pinto, M. (2023). Seeing the light versus being in the dark: Parent, child, and service providers’ use of metaphors to express system complexity, therapy engagement, and personal experiences of adaptation. Disability and Rehabilitation, 1-11.
*Klatte, I.S., Bloemen, M., de Groot, A., Mantel, T.C., Ketelaar, M., Gerrits, E. (2023). Collaborative working in speech and language therapy for children with Developmental Language Disorders – What are parents’ needs? International Journal of Language & Communication Disorders, 59(1):340-353.
*Klatte, I.S., Ketelaar, M., de Groot, A., Bloemen, M., Gerrits, E. (2023). Collaboration: how does it work according to therapists and parents of young children? A systematic review. Child: Care, Health and Development, 50(1):e13167.
*Kokotek, L.E., Cunningham, B.J., Washington, K. (2023). Construct validity of the focus on the outcomes of communication under six (FOCUS) total and profile scores of multilingual preschoolers: Considering functional speech skills. International Journal of Speech-Language Pathology, 25(2):245-255.
*Lang, J.J., Zhang, K., Agostinis-Sobrinho, C., Andersen, L.B., Basterfield, L., Berglind, D., Blain, D.O., Cadenas-Sanchez, C., Cameron, C., Carson, V., Colley, R.C., Csanyi, T., Faigenbaum, A.D., GarciaHermoso, A., Gomes, T.N.Q.F., Gribbon, A., Janssen, I., Jurak, G., Kaj, M., Kidokoro, T., Lane, K.N., Liu, Y., Lof, M., Lubans, D.R., Magnussen, C.G., Manyanga, T., McGrath, R., Mota, J., Olds, T., Onywera, V.O., Ortega, F.B., Oyeyemi, A.L., Prince, S.A., Ramirez-Velez, R., Roberts, K.C., Rubin, L., Servais, J., Silva, D.A.S., Silva, D.R., Smith, J.J., Song, Y., Stratton, G., Timmons, B.W., Tomkinson, G.R., Tremblay, M.S., Wong, S.H., Fraser, B.J. (2023). Top 10 international priorities for physical fitness research and surveillance among children and adolescents: A twin-panel Delphi study. Sports Medicine, 53(2): 549-564.
*Léger-Goodes, T., Malboeuf-Hurtubise, C., Hurtubise, K., Simons, K., Boucher, A., Paradis, P.O., Herba, C.M., Camden, C., Généreux, M. (2023). How children make sense of climate change: A descriptive qualitative study of eco-anxiety in parent-child dyads. PLoS One, 18(4):e0284774.
*Leong, R., Sanderson, K., Klassen, A.F., Ratcliffe, E.M., Zuniga-Villanueva, G. (2023). Comparing the suitability of virtual versus in-person care: Perceptions from pediatricians. Journal of Telemedicine and Telecare, 30:1357633X231205329.
*Levac, D.E. (2023). Individual and contextual factors influencing children’s effort in pediatric rehabilitation interventions. Developmental Medicine & Child Neurology, 66(1):23-31.
*McPhee, P.G., Di Cristofaro, N.A., Caldwell, H.A.T., Proudfoot, N.A., King-Dowling, S., MacDonald, M.J., Cairney, J., Bray, S.R., Timmons, B.W. (2023). Physical activity trajectories in early childhood: Investigating personal, environmental, and participation factors. Medicine & Science in Sports & Exercise, 55(7): 1232-1240.
*McPhee, P.G., Pozniak, K., Khetani, M.A., Campbell, W., Dix, L., Phoenix, M. (2023). Establishing and sustaining authentic organizational partnerships in childhood disability research: lessons learned. Research Involvement and Engagement, 9(54).
*Meneley, A.R., Firouzeh, P., Ferguson, A.F., Baird, M., Gross, D.P. (2023). Evaluation of a reflection-based program for health professional continuing competence. Discover Health Systems, 2(41).
*Mensah-Gourmel, J., Thépot, M., Gorter, J.W., Bourgain, M., Kandalaft, C., Chatelin, A., Letellier, G., Brochard, S., Pons, C. (2023). Assistive Products and Technology to Facilitate Activities and Participation for Children with Disabilities. International Journal of Environmental Research and Public Health, 20(3):2086.
*Meyling C.G., Verschuren, O., Rentinck, I.C.M., van Driel, D., Te Slaa, E., Engelbert, R.H., Gorter, J.W. (2023). “Your brain can’t wait”: perspectives of children and adolescents with acquired brain injury and their parents on physical rehabilitation during the subacute phase. Disability and Rehabilitation, 1-8.
*Meyling, C.G., Verschuren, O., Rentinck, I.C.M., Wright, V., Gorter, J.W., Engelbert, R.H. (2023). Development of expert consensus to guide physical rehabilitation in children and adolescents with acquired brain injury during the subacute phase. Journal of Rehabilitation Medicine, 55:jrm12303.
*Micsinszki, S., Tanel, N.L., Kowal, J., King, G., Menna-Dack, D., Chu, A., Parker, K., Phoenix, M. (2023). Delivery and evaluation of simulations to promote authentic and meaningful engagement in childhood disability research. Research Involvement and Engagement, 9(54).
*Mitchell, R.H.B., Toulany, A., Chung, H., Cohen, E., Fu, L., Strauss, R., Vigod, S.N., Stukel, T.A., Moran, K., Guttmann, A., Kurdyak, P., Artani, A., Kopec, M., Saunders, N.R. (2023). Self-harm among youth during the first 28 months of the COVID-19 pandemic in Ontario, Canada: a population-based study. Canadian Medical Association Journal, 195(36):E1210-E1220.
*Montreuil, M., Camden, C., Genest, C., Gilbert, E., Laberge-Perrault, E., Piché, G., Rassy, J., Bogossian, A., Gendron-Cloutier, L., Barbo, G. (2023). Children and adolescents’ mental health in pandemics and confinement: A scoping review of vulnerability factors and repercussions. Journal of Child Health Care, 13674935231165554.
*Nelson, H., Switalsky, D., Ciesielski, J., Brown, H.M., Ryan, J., Stothers, M., Coombs, E., Crerear, A., Devlin, C., Bendevis, C., Ksiazek, T., Dwye, P., Hack, C., Connolly, T., Nicholas, D.B., DiRezze, B. A scoping review of supports on college and university campuses for autistic post-secondary students. Frontiers in Education, 8.
*Nguyen, L., Bootsma, J.N., Ketelaar, M., Di Rezze, B., Jack, SM., Gorter, J.W. (2023). Programs to prepare siblings for future roles to support their sibling with a neurodisability: A scoping review. (2023). Current Developmental Disorders Reports, 10(1):47-79.
*Nguyen, L., Dawe-McCord, C., Frost, M., Arafeh, M., Chambers, K., Arafeh, D., Pozniak, K., Thomson, D., Mosel, J., Cardoso, R., Galuppi, B., Strohm, S., Via-Dufresne Ley, A., Cassidy, C., McCauley, D., Doucet, S., Alazem, H., Fournier, A., Marelli, A., Gorter, J.W. on behalf of the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Trial Study Group. (2023). A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach, and recommendations for change in Canada. Frontiers in Rehabilitation Sciences – Disability, Rehabilitation, and Inclusion; Research Topic, International Day of Persons with Disabilities – Children’s Disabilities, 4:1305084.
*Noseworthy, M., Danielli, E., Simard, N., DeMatteo, C., Kumbhare D., Ulmer, S. (2023). A Review of Brain Regions and Associated Post-concussion Symptoms. Frontiers in Neurology, 14, 1136367.
*Novak Pavlic, M., Gorter, J.W., Phoenix, M., Micsinszki, S., Pozniak, K., Li, L., Nguyen, L., Soper, A.K., Kwok, E.Y.L., Bootsma, J.N., Buchanan, F., Davis, H., Abdel Malek, S., van Meeteren, K., Rosenbaum, P. (2023). Patients and families as partners in patient-oriented research: How should they be compensated? Journal of Patient-Centered Research and Reviews, 10(2), 82-90.
*Novak Pavlic, M., Rosenbaum, P., Di Rezze, B. (2023). Changing directions: moving towards more inclusive healthcare for parents of children with developmental disabilities. International Journal of Environmental Research and Public Health, 20(21): 983.
*Novak Pavlic, M., Rosenbaum, P., Di Rezze, B., Yong, J., Hughes, D., Rohn, S., Grinberg, M., Chue, W., Shock, M., Macedo, L. (2023). The effectiveness of interventions promoting well-being of parents of children with developmental disabilities: a systematic review and meta-analysis. Developmental Medicine & Child Neurology, 11(7):e38686.
*Ombashi, S., Kurniawan, M., Allori, A.C., Sharif-Askary, B., Rogers, C.R., Koudstaal, M.J., Franken, M.C., Mathijssen, M.J., Klassen, A.F., Versnel, S.L. (2023). What is the optimal assessment of speech? A multicenter, international evaluation of speech assessment in 2500 patients with a cleft. BMJ Open, 13(12):e071571.
*Ombashi, S., Tsangaris, E., Heeres, A.G., Jacobs, E., van Veelen-Vincent, M.L.C., Matthijssen, I.M.J., Neuteboom, R.F., Klassen, A.F., Versnel, S.L. (2023). Quality of life in children suffering from headaches: a systematic literature review. The Journal of Headache and Pain, 24(1):127
*Passaretti, B., Turkstra, L.S., Gallagher, T., Jiang, A., Cahill, P., Campbell, W.N. (2023). Classroom-based morphological instruction and intervention for kindergarten to grade 3 students: A scoping review. Language, Speech and Hearing Services in Schools, 54(2):648-669.
*Parpia, C., Moore, C., Beatty, M., Miranda, S., Adams, S., Stinson, J., Desai, A., Bartlett, L., Culbert, E., Cohen, E., Orkin, J. (2023). Evaluation of a Secure Messaging System in the Care of Children With Medical Complexity: Mixed Methods Study. JMIR Formative Research,7:e42881.
*Phoenix, M., Micsinszki, S., Martens, R., Simpson, S., Pajevic, M. (2023). A seat at the table: A reflection on engaging Disabled People and their families in research and service design. Journal of Humanities in Rehabilitation. Journal of Humanities in Rehabilitation.
*Pitch, N., Shahil, A., Mekhuri, S., Abreen, M., Chu, S., Keilty, K., Cohen, E., Orkin, J., Amin, R. (2023). Caring for children with new medical technology at home: parental perspectives. BMJ Paediatrics Open, 7(1):e002062.
Pozniak, K., King, G., Chambers, E., Martens, R., Earl, S., Kraus de Camargo, O., McCauley, D., Teplicky, R., Rosenbaum, P. (2023). What do parents want from healthcare services? Reports of parents’ experiences with pediatric service delivery for their children with disabilities. Disability and Rehabilitation, 1-14.
Pozniak, K., Rosenbaum, P., Kwok, E. (2023). Tasks performed by parents to enable telepractice for children with communication disorders: An interview study with clinicians and parents. Disability & Rehabilitation, 46(8):1547-1558.
*Reitzel, M., Letts, L., Lennon, C., Lasenby-Lessard, J., Novak-Pavlic, M., Di Rezze, B., Phoenix, M. (2023). CoDesigning solutions to enhance access and engagement in pediatric telerehabilitation. Frontiers in Rehabilitation Sciences Sec Disability, Rehabilitation and Inclusion, 4.
Rizk, S., Benevides, T., Koh, C.Y., Berg, K., Khetani, M.A. (2023). Are medical home components associated with educational service use among children and youth on the Autism Spectrum? [Abstract]. Archives of Physical Medicine and Rehabilitation, 104(3), e11-e12.
*Rizk, S., Berg, K., Benevides, T., Koh, C., Khetani, M.A. (2023). Medical home primary care components associated with current educational service use in children and youth on the autism spectrum. Frontiers in Education, 8.
Rizk, S., Kaelin, V.C., Sim, J.G., Murphy, N., McManus, B., Leland, N., Stoffel, A., James, L., Barnekow, K., Papautsky, E.L., Khetani, M.A. (2023). Implementing an electronic patient-reported outcome and decision support tool in early intervention. Applied Clinical Informatics, 14(1):91-107.
*Rizk, S., Ngui, E., Benevides, T., Moerchen, V., Khetani, M.A., Barnekow, K. (2023). Medical home primary care adequacy associated with educational services use for children and youth with Autism. BMC Pediatrics, 23(1):12.
*Rosenbaum P. (2023). (Editorial) Child development: The foundation of ‘childhood disability’. Developmental Medicine & Child Neurology, 65(12);1538-1538.
*Ryan, J.L., Beal, D.S., Levac, D.E., Fehlings, D.L., Wright, V. (2023). The feasibility of using transcranial direct current stimulation as an adjunct to inpatient physiotherapy in children and youth with acquired brain injury. Brain Injury.
Ryan, J.L., Eng, E., Fehlings, D.L., Wright, F.V., Levac, D.E., Beal, D.S. (2023). Motor evoked potential amplitude in motor behavior-based transcranial direct current stimulation studies: a systematic review. Journal of Motor Behavior, 55(3):313-329.
*Saunders, N., Stukel, T., Strauss, R., Fu, L., Guan, J., Cohen, E., Vigod, E., Guttmann, A., Kurdyak, P., Toulany, A. (2023). Association between physician characteristics and practice-level uptake of pediatric virtual mental healthcare: a population-based study. BMJ Open, 13(7):e070172.
*Segers, E.W., Ketelaar, M., de Man, M.A.C.P., Schoonhoven, L., van de Putte, E.M., van den Hoogen, A. (2023). How to support children to develop and express their coping preferences around minor invasive medical procedures: children’s and parents’ perspectives. European Journal of Pediatrics, 182(12):5553-5563.
Shahin, S., Ahmed, S., DiRezze, B., Anaby, D. Reliability and validity of the youth and young-adult participation and environment measure (Y-PEM): An initial evaluation. Physical & Occupational Therapy In Pediatrics, 44(2):232-247.
Shahin, S., Di Rezze, B., Ahmed, S., Anaby D. (2023). Development and Content Validity of the Youth and Young-Adult Participation and Environment Measure (Y-PEM). Disability and Rehabilitation, 45(3): 549-561.
*Sharma, B., DeMatteo, C.A., Noseworthy, M., Timmons, B. (2023). Sex-specific differences in resting-state functional brain activity in pediatric concussion. Scientific Reports, 13(1), 3284.
*Sharma, B., Obeid, J., DeMatteo, C.A., Noseworthy, M.D., Timmons B.W. (2023). New insights into accelerometer-measured physical activity and sedentary time during early recovery in pediatric concussion. Pediatric Exercise Science, 1-8.
*Shouldice, A.C., Beatty, M.L., Adams, S., Dharmaraj, B.G., Moore, C., Stinson, J.N., Desai, A.D., Bartlett, L.D., Culbert, E.L., Cohen, E., Orkin, J. (2023). Caregivers’ Experiences with a Web – and Mobile-Based Platform for Children with Medical Complexity and the Role of a Live Platform Coach: Thematic Analysis. JMIR Pediatrics and Parenting, 6:e43214
*Shulman, R., Cohen, E., Stukel, T.A., Diong, C., Guttmann, A. (2023). Disruption to Pattern but No Overall Increase in the Expected Incidence of Pediatric Diabetes During the First Three Years of the COVID-19 Pandemic in Ontario, Canada (March 2020-March 2023). Diabetes Care, 47(2):e17-e19.
*Silberg, T., Kapil, N., Caven, I., Levac, D.E., Fehlings, D.E. (2023). Cognitive behavioral therapies for individuals with cerebral palsy: a scoping review. Developmental Medicine & Child Neurology, 65(8):1012-1028.
*Sommers-Spijkerman, M., Stukker, A., Kavanaugh, M.S., Ketelaar, M., Visser-Meily, J.M.A., Beelen, A. (2023). What, how and when do families communicate about ALS? A qualitative exploration of parents’ and children’s perceptions. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 25(3-4):256-263.
*Souto, D., Rodrigues, R., Clutterbuck, G., Anaby, D., Longo, E., Camargos, A., Ribeiro, H. (2023). A practitioner-led, peer-group sports intervention combined with a context-focused interventions for children with cerebral palsy: A protocol of a feasibility randomized clinical trial. BMJ Open, 13(1):e068486.
Taylor, C.L., Brown, H.K., Saunders, N.R., Barker, L.C., Chen, S., Cohen, E., Dennis, C.L., Ray, J.G., Vigod, S.N. (2023). Preventive Health Care Among Children of Women With Schizophrenia: A Population-Based Cohort Study. Journal of Clinical Psychiatry, 84(2):22m14497.
Tomas, V., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay, S. (2023). “I wish this tool was available to me sooner”: Piloting a workplace autism disclosure decision-aid tool for autistic youth and young adults. Autism in Adulthood. 2023.
*Tomas, V., Hsu, S., Kingsnorth, S., Anagnostou, E., Kirsh, B., Lindsay. S. (2023). Development and usability testing of a webbased workplace disability disclosure decision aid tool for autistic youth and young adults: qualitative co-design study. JMIR Formative Research, 7:e44354.
*Toulany, A., Kurdyak, P., Stukel, T.A., Strauss, R., Fu, L., Guan, J., Fiksenbaum, L., Cohen, E., Guttmann, A., Vigod, S., Chiu, M., Moore Hepburn, C., Moran, K., Gardner, W., Cappelli, M., Sundar, P., Saunders, N. (2023). Sociodemographic Differences in Physician-Based Mental Health and Virtual Care Utilization and Uptake of Virtual Care Among Children and Adolescents During the COVID-19 Pandemic in Ontario, Canada: A Population-Based Study. Canadian Journal of Psychiatry, 68(12):904-915.
*Toulany, A., Vigod, S., Kurdyak, P., Stukel, T.A., Strauss, R., Fu, L., Guttmann, A., Guan, J., Cohen, E., Chiu, M., Moore Hepburn, C., Moran, K., Gardner, W., Cappelli, M., Sundar, P., Saunders, N. (2023). New and continuing physician-based outpatient mental health care among children and adolescents during the COVID-19 pandemic in Ontario, Canada: a population-based study. Frontiers in Psychiatry, 14:1063203.
*Trottier, N., Hurtubise, K., Cloutier, W., Camden, C., Gaboury, I. (2023). Barriers and facilitators influencing parental adherence to prevention strategies for deformational plagiocephaly: Results from a scoping review. Child: Care, Health, and Development, 49(5):852-869.
*Unda, B.K., Chalil, L., Yoon, S., Kilpatrick, S., Irwin, C., Ronen, G.M., Singh, K. (2023). Impaired OTUD7A-dependent Ankyrin regulation mediates neuronal dysfunction in mouse and human models of the 15q13.3 microdeletion syndrome. Molecular Psychiatry, 28(4):1747-1769.
*Verhage, C.H., Gorter, J.W., Takken, T., Benders, M.J.N.L., de Vries, L.S., van der Aa, N.E., Wagenaar, N. (2023). Detecting Asymmetry of Upper Limb Activity with Accelerometry in Infants at Risk for Unilateral Spastic Cerebral Palsy. Physical & Occupational Therapy in Pediatrics, 44(1):1-15.
*Villegas, V.C., Bosak, D.L., Salgado, Z., Phoenix, M., Parde, N., Teplicky, R., Khetani, M.A. (2023). Diversified caregiver input to upgrade the Young Children’s Participation and Environment Measure for equitable pediatric re/habilitation practice. Journal of Patient-Reported Outcomes, 7(1):87.
Villegas, V., Salgado, Z., Bosak, D., Phoenix, M., Teplicky, R., Parde, N., Khetani, M.A. (2023). Diversifying caregiver input to upgrade the Young Children’s Participation and Environment Measure (YC-PEM) for equitable pediatric re/habilitation practice [Abstract]. Developmental Medicine and Child Neurology, SP-11.
*Winger, C.M., Cassidy, C., Starowciz, J., Brunton, L.K. (2023). Describing Healthcare Concerns of Adolescents and Adults with Cerebral Palsy. Health Care Transitions, 1, 100023.
Wong, J.B., McCallum, K.S., Frehlich, L., Bridel, W., McDonough, M.H., McCormack, G.R., Fox, K., Brunton, L.K., Yardley, L., Emery, C.A., Hagel, B. (2023). The Feasibility and Impact of a Painted Designs Intervention on the Physical Activity of Elementary School Children. Leisure/Loisir, 47(2), 181-207.
*Wright, S., Boyd, V.A., Okafor, I., Sharma, M., Giroux, R., Richardson, L., Brosnan, C. (2023). ‘First in Family’ Experiences in a Canadian Medical School: A Critically Reflexive Study. Medical Education, 57(10):980-990.
*Yimeng Dong, S., Nguyen, L., Cross, A., Doherty-Kirby, A., Geboers, J., McCauley, D., Soper, A.K., St. Dennis, A., Steeves, D., Trehan, N., Gorter, J.W. (2023). Youth engagement in research: Exploring training needs of youth with neurodevelopmental disabilities. Research Involvement and Engagement, 9(1):50.

BOOKS:

Palisano, R.J., Orlin, M.N., Schreiber, J. (2023). (Eds.): Campbell’s Physical Therapy for Children. Edition 6 St. Louis. Elsevier.
Schreiber, J., Palisano, R.J. (2023). Evidence-Based Clinical Decision-Making in Pediatric Physical Therapy. In Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.

BOOK CHAPTERS:

Cicirello, N.A., Doty, A.K., Palisano, R.J. (2023). Transition to Adulthood for Youth with Disabilities. In: Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.
Cohen, E., Mahant, S. (2023). Feeding Tubes. In: Caring for the Hospitalized Child: A Handbook of Inpatient Pediatrics, 3rd Edition (Gershel JC, Rauch DA, eds). American Academy of Pediatrics, 217-224. Itasca, IL, USA.
Lindsay, S., Ahmed, H., Tomas, V., Vijaykaymar, A. (2023). Lessons learned in conducting online Zoom qualitative interviews during COVID-19 with youth with disabilities (invited book chapter). In: Hayre C, Muller P, Hackett S. The future of qualitative research in healthcare: the role and management of methods. Cambridge: Cambridge University.
Miller A., Gardiner E., Rosenbaum P.L. (2023). A Non‐categorical Approach to Childhood Neurodisability: Concepts, Evidence and Implications for Clinical Practice, Organization of Services, Teaching, and Research. In: Eisenstat D, Goldowitz D, Oberlander T, & Yager J. (Eds) Neurodevelopmental Pediatrics : Genetic and Environmental Influences. UK: Springer” (pp. 677-687) (eBook).
Ronen G.M., Rosenbaum P.L. (2023). How Does the WHO’s Framework for Functioning, Disability and Health (ICF) Provide an Ethical Foundation for 21st Century Clinicians? In: Ethics and Intellectual and Developmental Disability (eds. Bianchi A and Vogt J).
Wright, M., Palisano, R.J. (2023). Cerebral Palsy. In: Palisano, R.J., Orlin, M.N., Schreiber, J. (Eds.): Campbell’s Physical Therapy for Children. Edition 6. St. Louis, Elsevier.
Yinusa-Nyahkoon, L., Khetani, M.A. (2023). Social participation. In Gillen and Brown (Eds.) and Ramugondo (Consulting Editor), Willard and Spackman’s Occupational Therapy (14th edition).

REPORTS:

Kim, R., Cohn, I., Verstegen, R., Juurlink, D., Rieder, M., Charames, G.S., Sadikovic, B., Carroll, J., Freedman, Z., Fu, L., Zabawa, M., Cohen, E., Chan, K., Bell, K., Kim, R., Hart, J., Pollett, A., Healey, R., Lahan, S., Yeung, L., Neumark, S., Schmitz, M. (2023). Pharmacogenomics: Recommendations for Ontario [Report]. Ontario Health (Cancer Care Ontario), 1- 28.

Grants

Anaby, D., Simeonsson, R., Avery, L., Churchill, J., Hanes, J., Lattas, M., Levin, M., Di Rezze, B., Palisano, R. (2023-2027). BEYOND: Body-function Enhancement for YOuth through participatioN in real-worlD contexts. The downstream effects of personalized ‘top-down’ participation-based interventions among youth with physical disabilities. Canadian Institutes of Health Research (CIHR) Research Grant. Funding amount: $631,124 CAD.
Brown, H., Di Rezze, B., Thompson-Hodgetts, S., Nicholas, D., Douglas, P., McMorris, C., Ames, M., Searle, M., Connolly, T., Lopez, J., Soodeen, C., Dwyer, P. (2023-2027). Campus Belonging: Exploring Accessible Education in Canadian PostSecondary Environments. SSHRC Insight Grant. Funding amount: $317,932 CAD.
Brown, H.K., Ray, J.G., Cohen, E., Dennis, C.L., Grandi, S., Rosella, L.C., Varner, C., Vigod, S.N., Wodchis, W. (2023-2024). Impact of maternal multimorbidity on pregnancy outcomes. Canadian Institutes of Health Research (CIHR), Operating Grant: Data Analysis Using Existing Databases and Cohorts. Funding amount: $74,993 CAD.
Brown, H.K., Ray, J.G., Vigod, S.N., Campbell, K., Cohen, E., Darling, E., Dennis, C.L., Grandi, S., Rosella, L., Varner, C., Wodshis, W. (2023-2027). Pregnancy outcomes and care of women with physical-mental multimorbidity. Canadian Institutes of Health Research (CIHR), Project Scheme Grant. Funding amount: $558,112 CAD.
Bruce, E., Moll, S., Gewurtz, R., Phoenix, M., Ahuja. (2023-2024). Recovery Colleges for International Student Mental Health: A Novel Approach to Health Promotion and Education: A Pilot Study. Ontario Society of Occupational Therapists Strategic Priorities Research Grant. Funding amount: $10,000 CAD.
Brunton, L., Doralp, S. (2023). Development of a Maternal and Child Health Interprofesional Education Practicum. Western University Internal Research Support – Faculty of Health Sciences – Western Living Lab (WeLL) Planning Grant. Funding amount: $5,000 CAD.
Campbell, W., VanderKaay, S., Kyte, C., Janus, M., Missiuna, C., Ng, S., Phoenix, M., Specht, J., & Whitley, J. (2023-2024). Creating a road map for successful implementation and scale-up of Partnering for Change tiered services in Ontario (Evaluation Phase – Year 2). Ontario Ministry of Children, Community and Social Services. Funding amount: $610,000 CAD.
Cooper, A., Belthur, M., Chhina, H., Iobst, C., Kerrigan, A., Klassen, A., Juergen, M., Moreno Grangerio, P., Mashael, M., Ashish, R., Rolfing, J.D., Vogt, B., Wright, J., Abouassaly, M., Baraza, N., Fernandez, J., Johnson, L., Podeszwa, D., Sabharwal, S. (2023-2024). International study to field-test a new patient-reported outcome measure for children with lower limb differences. Canadian Institutes of Health Research (CIHR) 1-year bridge Grant. Funding amount: $100,000 CAD.
Cross, A., Micsinszki, S., Kraus De Camargo, O., Beattie, K., Morrison, K., Batthish, M., Akrong, L., Matsos, M. (2023). Patient and Family Engagement in Research Community of Practice. School of Medicine, Faculty of Health Sciences, McMaster University. Funding amount: $9,942 CAD.
Cunningham, B.J., Daub, O., Oram Cardy, J. (2023-2024). Improving speech/language outcome measurement in Onatrio’s Preschool Speech and Language and Infant Hearing Programs. Ontario Ministry of Children, Community and Social Services. Funding amount: $320,000 CAD.
Dhir, J., Kitchings, S., Reid, R., Phoenix, M., VanderKaay, S., Glazewski, S., Morrison, N., Neu, C., Gilles, L., Porter, K., Fostering an Inclusive Clinical Education Environment. Partnered in Teaching and Learning Seed Grant, McMaster University. Funding amount: $4,000 CAD.
Di Rezze, B., Squires, B., Phillips, A., Clarke, K. (2023-2024). Creating training and job opportunities for autistic youth in Ontario – the implementation of an evidence-based training and summer job program for autistic students on a university campus. Ontario Ministry of Labour, Immigration, Training and Skills Development Grant. Funding amount: $268,641.27 CAD.
Dostie, R., Camden, C., Lovo, S. (2023-2028). Développement d’une formation pour les professionnels de réadaptation en fonction des besoins de parents d’enfants autochtones ayant des difficultés développementales. Canadian Institutes of Health Research (CIHR), Fellowship. Funding amount: $275,000 CAD.
Emery, C., Request, B., Arbour-Nicitopoulos, K., Brunton, L., Kopala-Sibley, D., Latimer-Cheung, A., Leo, J., Maroney, M., McCabe, J., Quinn, N. (2023-2024). Addressing the Mental Health of Neurodiverse Youth: The Role of Community-Based Adapted Physical Activity Programming. Azrieli Accelerator Catalyst Grant Competition. Funding amount: $50,000 CAD.
Ferro, M., Browne, D., Duncan, L., Leatherdale, S., Quadrilatero, J., Sajobi, T., Timmons, B.W., Toulani, A. (2023-2024). Multimorbidity in children and Youth across the LIFEcourse (MY LIFE): A long-term follow-up. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $100,000 CAD.
Filiatrault-Veilleux, P., McMahon Morin, P., Campbell, W., Croteau, C. (2023-2024). Perception d’orthophonistes scolaires de leur implication au palier 1 d’intervention en lecture interactive: Retombées sur la pratique orthophonique. Speech-Language-Audiology Canada Clinical Research Grant. Funding amount: $5,000 CAD.
Gorter, J.W., Cross, A., Thomson, D., Putterman, C., McCauley, D. (2023-2024). Supporting the sustainability and scalability of the Family Engagement in Research Training Program. Kids Brain Health Network. Funding amount: $100,000 CAD.
Grandi, S., Ray, J.G., Bennett, F., Brown, H., Cohen, E., Malhamé, I., Siddiqi, A. (2023-2026). Aspirin and severe maternal morbidity and mortality and adverse pregnancy outcomes. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $294,526 CAD.
Khetani, M., Mermelstein, Novak, Bobbitt, J., Ribeiro Lage, C., Bosak, D. (2023-2024). Preparing to Test the Implementation of an Electronic Assessment Option for Early Intervention Service Plan Quality. Center for Clinical and Translational Science (CCTS) Grant funded by the National Institutes of Health (NIH/NCATS) Grant. Funding amount: $30,000 CAD.
Lemay, M., Robert, M., Levac, D.E. (2023-2025). Dancing in the metaverse: virtual reality as a tool improve the living conditions of the social inclusion of young people with disabilities. Quebec Ministry of Economy and Innovation Call for Projects in Social Innovation. Funding amount: $331,217 CAD.
Levac, D.E., Kairy, D., Pouliot-Laforte, A. (2023-2025). Building the Future of Precision Rehabilitation in Quebec: Integration of Interactive Technology, Data Management and Artificial Intelligence. Interactive Technology Engineering in Rehabilitation (INTER). Funding amount: $15,280 CAD.
Maryam, O., Levac, D.E., Potter, B., Smith, M., Evans, A. (2023-2026). Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy (SMA). Canadian Institutes of Health Research (CIHR), Operating Grant: Clinical Trials Projects. Funding amount: $1,777,095 CAD.
Maryam, O., Levac, D.E., Potter, B., Smith, M., Evans, A. (2023-2026). Exergaming registry-based trial promoting physical activity in children and adolescents with spinal muscular atrophy (SMA). Canadian Institutes of Health Research (CIHR), Operating Grant: Clinical Trials Projects – Indirect Costs. Funding amount: $444,274 CAD.
Moosa, T., Cunningham, B.J., Theurer, J. (2023). Gender Affirmation Voice and Communication Training Clinic. Western Living Lab (WeLL) Planning Grant. Funding amount: $5,000 CAD.
Mulvale, G., Moll, S., Phoenix, M. (2023-2025). Advancing an Equity-Based Co-creation Research Centre at McMaster. McMaster University Office of the Provost and Vice-President (Academic) Strategic Excellence and Equity in Recruitment and Retention (STEER/R) Program. Funding amount: $200,000 CAD.
Nault, M-L., Podlog, L., Pouliot-Laforte, A., Levac, D.E. (2023-2025). Immersive Virtual Reality to Assess Readiness for Return to Sport After Anterior Cruciate Ligament Reconstruction in a Pediatric Sports Medicine Clinic: A Feasability Study. Quebec Association of Sport and Exercise Physicians. Funding amount: $5,000 CAD.
Nelson, K., Bogetz, J., Cohen, E., Diskin, C., Feinstein, J., Feudtner, C., Hauer, J., Lysecki, D., Mahant, S., Pullenayegum, E., Thomson, J., Widger, K. (2023-2026). Defining a Stage-Based Framework of Comorbidities among Children with Severe Neurologic Impairment. Canadian Institutes of Health Research (CIHR), Project Grant. Funding amount: $328,950 CAD.
Nelson, K., Bogetz, J., Cohen, E., Diskin, C., Feinstein, J., Feudtner, C., Hauer, J., Lysecki, D., Mahant, S., Pullenayegum, E., Thomson, J., Widger, K. (2023-2026). Defining a Stage-Based Framework of Comorbidities among Children with Severe Neurologic Impairment. New Investigator Award, Physicians’ Services Incorporated (PSI) Foundation. Funding amount: $100,500 CAD.
Ng, S., Parker, K., Adams-Carpino, G., Addison, M., Binns, A., Boyd, V., Campbell, W., Friesen, F., Gabison, S., Langlois, S., Lising, D., Ravenek, M., Woods, N. Student-Led Environments to Deliver Virtual Autism Supports for Wait-times (SLED-VAST). Ontario Autism Program (OAP) Workforce Capacity Fund. Awarded amount: $299,970 CAD.
Phoenix, M., Campbell, W., Camden, C., Peterson, D. Collaborators: Sylvester, L., Torsney, M., Kotulak, K. (2023-2025). COFFEE and PLAY: Community Opportunities For Family Engagement and Empowerment, Play and Learning Accessible for Youth, Grant, Hamilton Community Foundation: Community, Health and Education Research (CHER) Grant. Funding amount: $27,460 CAD.
Phoenix, M., Micsinszki, S. (2023-2025). Advancing Equity in Childhood Disability Research Partnerships., Grant, Social Sciences and Humanities Research Council of Canada (SSHRC) Insight Development Grant. Funding amount: $73,599 CAD.
Robert, M., Levac, D.E., Lemay, M. (2023-2024). Integrating Virtual Reality in Sensorimotor Rehabilitation: Learning from the Past, Acting Now and Preparing for the Future. Interactive Technology Engineering in Rehabilitation (INTER). Funding amount: $15,900 CAD.
Rosenbaum, P., Tomas, V., Wilson, M., Teplicky, R., Cross, A., Wittmeier, K.D.M., Wright, M.J. (2023). Building relationships and co-learning: Researchers, service providers, and First Nations people in Ontario and Manitoba explore the relevance and cultural safety of ‘Our Favourite Words’. Canadian Institutes of Health Research (CIHR), Planning Grant. Funding amount: $9,999 CAD.
Squires, B., Augerman, H., Phillips, A., Hamilton, J., Glazewski, S., Perrett, L., Di Rezze, B., Koudys, J., Comegna, E., Braun, R., Beltrano, A. (2023-2024). Create 27 student placements at McMaster Children’s Hospital’s Autism Training Hub; provide French-language training opportunities for front-line staff members. Ontario Autism Program (OAP) Workforce Capacity Fund. Funding amount: $260,200 CAD.
Thompson-Hodgetts, S., Brown, H., Di Rezze, B., Connelly, T. (2023). Campus Belonging – An Exploration of Accessibility and Belonging for Autistic Postsecondary Students in Canada: Gathering Staff Perspectives. Faculty of Rehabilitation Medicine, University of Alberta, Mid-Career Stimulus Grant. Funding amount: $10,000 CAD.
Tomfohr-Madsen, L., Kendzerska, T., Keys, E., Ou, C., Pennestri, M.H., Reid, G.J., Shawanda, A., & Stranges, S. Co-Applicants: Anderson, K., Cameron, E., Chaput, J.P., Clayborne, Z., Ferber, R., Forest, G., Forkert, N., Freeman, M., Garland, S., George, J., Giesbrecht, G., Giuliano, R., Gruber, R., Hall, W., Hunter, S., Lebel, C., MacEachern, S., Mackinnon, A., Matin, M., Mcgrath, J., Metcalfe, A., Micsinszki, S., Montreuil, T., Papaconstantinou, E., Puterman, E., Robillard, R., Roos, L., Stremler, R., Thornton, J., van de Wouw, M., Watts, D., Colley, R., Roberts, K., Moody, D.L., Buxton, O.M., Dubar, R., Girardin, J.L., Grandner, M., Staton, S., Gabora-Roth, N., Roberts, K, Gaxherri, D., Perez, P, & The Canadian Childcare Federation, Public Health Agency of Canada, & Statistics Canada. (2023-2027). Towards Sleep Equity: Understanding and Addressing Intersectional Risk and Resilience Factors in the Promotion of Healthy Sleep. Canadian Institutes of Health Research (CIHR) Grant. Funding amount: $1,100,000 CAD.

Partners

Family Advisors/Co-Investigators

Brenda Agnew, CP-NET & C-BiLLT Project

Rachel Barrett, COVID Time Capsule Project

Elizabeth Chambers, MPOC 2.0 Project

Genevieve Currie, Family Engagement in Research and COVID Time Capsule Projects

Amanda Doherty-Kirby, COVID Time Capsule and Youth Engagement in Research Projects

Kathy Fruck, CP-NET

Danijela Grahovac, F-words & C-BiLLT Projects

Manda Krpan Mesic, CP-NET

Jeanine Lebsack, COVID Time Capsule Project

Ali Martens, MPOC 2.0 Project

Rachel Martens, MPOC 2.0, ENVISAGE and Family Engagement in Research Projects

Susan McCoy, CP-NET

Joanne Mosel, F-words & CHILD-BRIGHT READYorNot™ BBD Projects

Heather Oliver-Hamilton, F-words Project

Sara Pot, F-words & Family Engagement in Research Projects

Kinga Pozniak, CP-NET & CHILD-BRIGHT READYorNot™ BBD Project

Connie Putterman, Family Engagement in Research & MPOC 2.0 Projects

Heather Shearer, CP-NET

Roger Stoddard, CHILD-BRIGHT READYorNot™ BBD Project

Katarzyna Świeczkowska, F-words Project

Donna Thomson, Family Engagement in Research & CHILD-BRIGHT Projects

Youth/ Adult Advisors/Co-Investigators

Dana Arafeh, BestSIBS and CHILD-BRIGHT READYorNot™ BBD Projects

Musa Arafeh, CHILD-BRIGHT READYorNot™ BBD Project

Samantha Bellefeuille, BestSIBS Project

Kyle Chambers, CHILD-BRIGHT READYorNot™ BBD Project

Crystal Chin, CP-NET

Hanae Davis, BestSIBS Project

Claire Dawe-McCord, CHILD-BRIGHT READYorNot™ BBD Project

Michael Frost, CHILD-BRIGHT READYorNot™ BBD Project

Jessica Geboers, Youth Engagement in Research, CP-NET and COVID and Transition Projects, Transition Hub

Vasilije Grahovac, COVID Time Capsule Project

Jessica Havens, BestSIBS & CHILD-BRIGHT READYorNot™ BBD Projects

Zachary Kirby, COVID Time Capsule Project

James Koutrakos, BestSIBS Project

Callum LaCour, COVID Time Capsule Project

Maddox Lebsack, COVID Time Capsule Project

Sarah Mooney, Transition Hub

Amanda St. Dennis, Youth Engagement in Research and CP-NET Projects; Transition Hub

Danny Steeves, CP-NET

Nathan Tasker, CHILD-BRIGHT READYorNot™ BBD Project

Natasha Trehan, Youth Engagement in Research Project and Transition Hub

Research Collaborators

Empowered Kids Ontario

Bloorview Research Institute

McMaster Autism Research Team

Offord Centre for Child Studies

Ontario Brain Institute

CHILD-BRIGHT Network

Kids Brain Health Network

McMaster Children’s Hospital

Trainees

Post-doctoral fellows

Christina Belza (Supervised by Eyal Cohen)

Zachary Boychuck (Supervised by Peter Rosenbaum)

Paula Chagas (Supervised by Peter Rosenbaum)

Eda Cinar (Supervised by Dana Anaby & Chantal Camden)

Andrea Cross (Supervised by Jan Willem Gorter)

Charlotte Danset (Supervised by Chantal Camden)

Hanae Davis (Supervised by Jan Willem Gorter) – until May 2021

Karen Hurtubise (Supervised by Chantal Camden)

Manraj Kaur (Supervised by Anne Klassen)

Elaine Kwok (Supervised by Peter Rosenbaum) – until April 2021

Esther Lee (Supervised by Eyal Cohen)

Patrick McPhee (Supervised by Brain Timmons & Jan Willem Gorter)

Samantha Micsinszki (Supervised by Michelle Phoenix)

Christelle Pons (Supervised by Jan Willem Gorter)

Kinga Pozniak (Supervised by Jan Willem Gorter)

Sabrin Rizk (Supervised by Mary Khetani)

Shazeen Suleman (Supervised by Eyal Cohen)

Diana Tajik-Parvinchi (Supervised by Briano DiRezze)

Sandra Vanderkaay (Supervised by Wenonah Campbell) – until June 2021

PhD Students

Sandra Abdel Malek (Supervised by Jan Willem Gorter)

Jael Bootsma (Supervised by Jan Willem Gorter)

Peter Cahill (Supervised by Wenonah Campbell)

Minxin Cheng (Supervised by Danielle Levac)

Isabelle Demers (Supervised by Chantal Camden)

Véronique Foley (Supervised by Chantal Camden)

Dinesh Ghatamaneni (Supervised by Laura Brunton)

Lina Ianni (Supervised by Dana Anaby & Chantal Camden)

Ghaidaa Khalifa (Supervised by Briano DiRezze)

Inge Klabe (Supervised by Marjolijn Ketelaar)

Linda Nguyen (Supervised by Jan Willem Gorter)

Monika Novak Pavlic (Supervised by Peter Rosenbaum)

Nikki Ow (Supervised by Dana Anaby)

Gabrielle Pratte (Supervised by Chantal Camden)

Meaghan Reitzel (Supervised by Michelle Phoenix)

Kathryn Rollins (Supervised by BJ Cunningham)

Mallory Ryan (Supervised by Dana Anaby)

Eline Scholten (Supervised by Marjolijn Ketelaar)

Liesbeth Segers (Supervised by Marjolijn Ketelaar)

Enid Selkirk (Supervised by Cheryl Missiuna)

Sureka Selvakumaran (Supervised by Briano DiRezze)

Saeideh Shahin (Supervised by Dana Anaby)

Ingrid Singer (Supervised by Jan Willem Gorter)

Alice Soper (Supervised by Peter Rosenbaum)

Stephanie Tremblay (Supervised by Dana Anaby)

Nathalie Trottier (Supervised by Chantal Camden)

Maren van Rijssen (Supervised by Marjolijn Ketelaar)

Vera Kaelin (Supervised by Mary Khetani)

Meaghan Lewcock (Co-supervised by BJ Cunningham)

Lianne Verhage-Schregardus (Supervised by Jan Willem Gorter)

Bhanu Sharma (Supervised by Brian Timmons)- until July 2021

Maddy Byra (Supervised by Brian Timmons)

Jia Lu Lin (Supervised by Eyal Cohen)

Advisory Board and Governance

Advisory Board

Ian Buchanan

Jennifer Crowson

Andrey Feldman

Susanne Flett

Jonathan Lu

David Mosher

Frank Naus

Peter Rosenbaum

Natasha Trehan

Scientific Advisory Board

Jan Willem Gorter, Director

Peter Rosenbaum, Co-founder

Wenonah Campbell, Scientist

Mary Khetani, Scientist

Dayle McCauley, Research Development Officer

Cheryl Missiuna, Scientist (until September 2021)

Brian Timmons, Scientist

Robert Palisano, Scientist

Governance

School Of Rehabilitation Science

Dina Brooks, Vice Dean

Zrinka Granic, Director of Administration

Department Of Pediatrics

Angelo Mikrogianakis, Chair

Sarah Bouma/Gunjan Srivistava, Director of Administration

CanChild Scientists

Director

Jan Willem Gorter (McMaster University) until June 30, 2021

Dina Brooks (Acting Director – July 1^st 2021- Present)

Co-founders

Mary Law (McMaster University)

Peter Rosenbaum (McMaster University)

Scientists

Dana Anaby (McGill University)

Laura Brunton (Western University)

Chantel Camden (University of Sherbrooke)

Wenonah Campbell (McMaster University)

Eyal Cohen (University of Toronto)

BJ Cunningham (Western University)

Carol DeMatteo (McMaster University)

Briano DiRezze (McMaster University)

Marjolijn Ketelaar (University Medical Center Utrecht)

Mary Khetani (University of Illinois at Chicago)

Anne Klassen (McMaster University)

Olaf Kraus de Camargo (McMaster University)

Danielle Levac (University of Montreal)

Robert Palisano (Drexel University)

Michelle Phoenix (McMaster University)

Gabriel Ronen (McMaster University)

Brian Timmons (McMaster University)

Sandra Vanderkaay (McMaster University) – as of October 2021

Scientists Emeritus

Doreen Bartlett (Western University)

Johanna Darrah (University of Alberta)

Marilyn Kertoy (Western University)

Cheryl Missiuna (McMaster University)

Dianne Russell (McMaster University)

Debra Stewart (McMaster University)

Nancy Thomas-Stonell (Bloorview Research Institute)

Stephen Walter (McMaster University)

Associate members

Gary Bedell (Tufts University)

Sheila Bennett (Brock University)

Jan Burke-Gaffney (McMaster University)

John Cairney (The University of Queensland)

Lisa Chiarello (Drexel University)

Wendy Coster (Boston University)

Nora Fayed (Queen’s University)

Darcy Fehlings (University of Toronto)

Mark Ferro (University of Waterloo)

Robin Gaines (Children’s Hospital of Eastern Ontario)

Barbara Gibson (University of Toronto)

Adrienne Harvey (Royal Children’s Hospital)

Sandy Hodgetts (University of Alberta)

Christine Imms (Australian Catholic University)

Lynn Jeffries (University of Oklahoma)

Marian Jongmans (Utrecht University)

Gillian King (Bloorview Research Institute)

Dafna Kohen (Statistics Canada)

Niina Kolehmainen (Newcastle University)

Lena Krumlinde-Sundholm (Karolinska Institutet)

Matthew Kwan (McMaster University)

Lucyna Lach (McGill University)

Alyssa LaForme Fiss (Mercer University)

Sanjay Mahant (Hospital for Sick Kids)

Lívia Magalhães (Federal University of Minas Gerais)

Ronit Mesterman (McMaster University)

Chris Morris (University of Exeter)

Eva Nordmark (Lund University)

Iona Novak (University Notre Dame)

Barbara Piskur (Zuyd University)

Keiko Shikako-Thomas (McGill University)

Olaf Verschuren (Rehabilitation Centre de Hoogstraat)

Jonathan Weiss (York University)

Sarah Westcott McCoy (University of Washington)

Virginia Wright (Bloorview Research Institute)

Lonnie Zwaigenbaum (University of Alberta)

Jill Zwicker (University of British Columbia)

RESEARCH & KT SUPPORT

CanChild Staff

Geil Astorga, Marketing and Communications Associate

Bailey Featherston, Business Development Analyst

Anne MacLeod, Administrative Assistant

Danijela Grahovac, Senior Technical Support Analyst

Dayle McCauley, Research Development Officer

Donna Johnston, Finance Coordinator

Rachel Teplicky, Business & Engagement Officer

Laura Turner, Clinician Consultant

Marilyn Wright, Clinician Consultant

Research Staff/Assistants

Leah Dix, FIRST KIT & P4C Projects

Sarah Earl, MPOC 2.0 Project

Hanna Fang, ACSF:SC Project

Barb Galuppi, CHILD-BRIGHT Project

Brittany Harding, F-words Project

Sarah Hopmans, CP-NET, C-BiLLT and Pain Projects

Debbie Hughes, ENVISAGE Project

Josie Jakubowski, Back to Play Project

Annie Jiang, P4C Project

Nadilein Mahlberg, CHILD-BRIGHT Project

Rachel Martens, Family Engagement in Research Project

Sarah Randall, Back to Play Project

Sandra Sahagian Whalen, P4C Project

Alice Soper, Family Engagement in Research, CP-NET and Transition Hub Projects

Kathy Stazyk, Back to Play Project

Sonya Strohm, CHILD-BRIGHT Project

Sarah Terreberry, P4C Projects

Vanessa Tomas, F-Words Project

Student Research Assistants

Samantha Dong

Brittany Harding (until Sept 2021)

Jathushika Ilangkumaran

Chitrini Tnadon

Rebecca Yakubov

Rose Yakubov

Engagement

5,436 Facebook followers and 5,078 Twitter followers for 2020

CanChild uses different methods to engage with our knowledge users. In 2020, CanChild had:

331, 311 CanChild website visitors from 181 countries
5,311 likes on CanChild Facebook page from 45 countries
5, 078 followers on CanChild Twitter
1, 679 retweets of CanChild posts on Twitter
249 members in our Parents Partnering in Research closed Facebook group

Connect with us!

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CanChild Today!

In 2020, CanChild Today! newsletter had 5, 266 subscribers. Below are selected news, awards, and team activities featured in the newsletter throughout the year.

January

Linda Nguyen received the Australian Cerebral Palsy Alliance Conference Grant, an award that allowed her to attend the European Academy of Childhood Disability (EACD) Conference and present her research on the experiences of siblings with a brother or sister with a disability who are preparing for health care transition.
The CanChild team gathered on January 23, 2020, to celebrate the awarding of the John and Margaret Lillie Chair in Childhood Disability Research to Dr. Wenonah Campbell. The celebration also honoured the former holders of the Chair, Dr. Cheryl Missiuna and Dr. Mary Law.

L to R: Dr. Mary Law, Dr. Cheryl Missiuna, and Dr. Wenonah Campbell

February

Dr. Andrea Cross, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Julia Hanes, Danijela Grahovac & Vasilije presented during the Ontario Brain Institute Public Talk about the F-Words: Finding the Ability in Disability
The Concussion team hosted the Concussion Experience Exhibition at various sports events in the cities of Oakville, Burlington, and Hamilton.
Dr. Dana Anaby and team received the Canadian Institutes of Health Research (CIHR) Grant to examine whether engaging in a self-chosen activity in the community can lead to improvements in the motor, cognitive, and affective body functions of children with disabilities.

OBI Public Talk - F-Words: finding the ability in disability (L to R: Andre Picard, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Dr. Andrea Cross, Julia Hanes, Danijela Grahovac, Vasilije Grahovac)

L to R: Andre Picard, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Dr. Andrea Cross, Julia Hanes, Danijela Grahovac, Vasilije Grahovac

March

The CanChild team transitioned to working from home and other research activities were conducted remotely.
Launch of the Dutch version of Developmental Coordination Disorder online workshop.

April

Peter Rosenbaum discussed the F-Words for Child Development as part of the Caring During COVID campaign of McMaster Children’s Hospital.
Developmental Medicine & Child Neurology (DMCN) released a podcast featuring Dr. Peter Rosenbaum and his editorial, “You have textbooks, we have story books: disability as perceived by professionals and parents.”

May

Launch of #MyCOVIDDisabilityQ Twitter Campaign, an online space for Canadian children and youth with disabilities, as well as family members speaking on their behalf, to ask questions that relate to both their disabilities and the COVID-19 outbreak.
Andrea Cross received the CIHR Fellowship: Patient-Oriented Research Awards – Transition to Leadership Stream – Phase 1 as a Post Doctoral Fellow.
Linda Nguyen received the CIHR Fellowship: Patient-Oriented Research Award as a Doctoral student and the Mitacs Globalink Research Award.
Michelle Phoenix published an article in The Conversation about the impacts of COVID-19 to children with disabilities.
The Networks of Centres of Excellence Program renewed the Kids Brain Health Network (KBHN) for three more years, resulting in KBHN’s continued support the Family Engagement in Research (FER) Certificate of Completion Program run by CanChild.

June

As part of the efforts to improve equity, inclusion, and diversity, CanChild developed strategies to increase the representation of different populations across our online channels.

July

Redesigned the F-Words for Child Development logo to highlight the importance and relevance of the ‘F-Words’ for all children.

August

Celebrated the birthday and memory of Luke Martens by encouraging the online community to post a photo with Luke’s favourite dessert, ice cream, using the hashtag #IceCreamForLuke or to donate to a children’s hospital of their choice.
Launch of the short video series featuring nonverbal people and their families, with the hope to inspire everyone with their stories and change the social stigma around nonverbal people.

September

Dr. Olaf Kraus de Camargo, Dr. Kinga Pozniak, Dr. Matt Freeman, and Dr. Farah Ahmad shared the preliminary results of their study about COVID-19 supports for people with disabilities and caregivers.
Dr. Jan Willem Gorter presented at the Lunch & Learn Seminars and Instructional Courses session of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 74th Annual Meeting.

October

Dr. Peter Rosenbaum published an op-ed piece in The Hamilton Spectator, where he shared the important factors that contribute to the improvement of children’s health during the pandemic.
Canadian Institutes of Health Research -IHDCYH featured C-BiLLT, a computer program used to assess the language comprehension levels of non-verbal children. The article, written by Jael Bootsma, highlights how the tool can also help in setting therapy goals that reflect the skills of the children.

November

Dr. Peter Rosenbaum was invited as a Keynote Speaker at the 32nd European Academy of Childhood Disability Annual Meeting.

Grants

CanChild 2020 Funded Grants

Anaby, D., Camden, C., Quinn, M., Campbell, W., Colquhoun, H., Ianni, L. (2020-2021) Supporting children with disabilities in mainstream schools: Developing a guided stakeholder-oriented knowledge translation intervention to optimize collaboration between occupational therapists and teachers. CanChild Research Grant, McMaster University. Funding amount: $9,985.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Palisano, R., Teplicky, R., Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) The impact of participation on body functions among youth with physical disabilities: A pragmatic individual-based study. Canadian Institutes of Health Research, Operating Supplement, Project Grant. Funding amount: $9,441.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Palisano, R., Teplicky, R., Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) The impact of participation on body functions among youth with physical disabilities: A pragmatic individual-based study. Canadian Institutes of Health Research, Project Grant. Funding amount: $271,576.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Teplicky, R. Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) Priority Announcement: Musculoskeletal, Skin and Oral Health: Clinical Research – Musculoskeletal Health Institution. Canadian Institutes of Health Research, Operating Supplement, Project Grant. Funding amount: $10,256.
Batthish, M., Gorter, J. W., Beattie, K., Dushnicky, M., McCauley, D., Cellucci, T., Heale, L., Talaat, H., Thomas, S., & Herrington, J. (2020-2022) TRansition US Together (TRUST) Study: A Parent-Centered Educational Toolkit to Support Their Adolescents with JIA and cSLE as They Transition to Adult Care. Hamilton Academic Health Sciences Organization. Funding amount: $197,979.
Beelen J.A.J., Oude Lansink I.L.B., vd Pol W.L., Visser-Meily J.M.A, Gorter, J. W., Bartels B. (2020) Contractures in children with spinal muscular atrophy (SMA) and their impact on daily functioning. Prinses Beatrix Spierfonds – Spieren voor Spieren. Funding amount: €222,397.
Camden, C., Malboeuf-Hurtubise, C., Bussières, E., Chadi, N., Généreux, M., Gorter, J. W., Jasmin, E., Kalubi, J., Lane, J., Montreuil, M., Roberge, P., Tremblay, K. (2020) Quelles sont les répercussions de la pandémie du COVID-19 sur la santé mentale des enfants de 5-12 ans, et quels sont les enjeux particuliers pour les enfants handicapés ou ayant une maladie chronique? Une scoping review des problématiques vécues et des pistes d’interventions prometteuses. Canadian Institutes of Health Research, Operating Grant: Knowledge Synthesis: COVID-19 in Mental Health & Substance. Funding amount: $50,000.
Campbell, W., Romoff, S., Anaby, D., Camden, C., Phoenix, M., Cahill, P., Reitzel, M. (2020-2021) Supporting pediatric rehabilitation service decision needs: A rapid review. CanChild Research Grant, McMaster University. Funding amount: $9,989.
Couture, M., Desormeaux-Moreau, M., Courcy, I., Roberge, P., Camden, C. (2020-2022) Mise en place d’une plateforme de soutien en ligne conçue par et pour les personnes autistes : une démarche citoyenne qui s’enracine dans le croisement des savoirs expérientiels, pratiques et scientifiques. Fondation VITAE, Fonds pour l’élaboration d’un projet de recherche. Funding amount: $25,000.
Cross, A., Gorter, J. W., Chambers, C., Solomon, P., Thomson, D., Putterman, C. (2020-2023) Family engagement in research: Evaluation, sustainability and scalability of an online training program for family and research partners in child health research. Fellowship: Patient-Oriented Research Awards – Transition to Leadership Stream – Phase 1. Funding amount: $232,500.
Cross, A., Hesketh, K., McMurdie, G., van Beers, M., Young, R., Gorter, J. W., Grahovac, D., Rosenbaum, P., Soper, A., Teplicky, R., Tomas, V. (2020-2021) Planning for the Evaluation of the Impact of the ‘F-words’ in Childhood Disability across Ontario Organizations. Canadian Institutes of Health Research. Funding amount: $8,000.
Cunningham, B. J. (2020) Exploring the effectiveness of a parent-implemented program for supporting language and social skill development in children who are late-to-talk. Western Strategic Support for Social Sciences and Humanities Research Council Success Program. Funding amount: $22,500.
Cunningham, B. J., Bootsma, J., McCauley, D. (2020-2021) Exploring clinicians’ experiences using the C-BiLLT to support implementation in the Canadian practice context: An international survey and interview study. CanChild Internal Grant. Funding amount: $9,800.
Cunningham, B. J., Glista, D., Moodie, S., Cardy, J., Servais, M., Weitzman, E.. (2020-2021) COVID-19 and parents’ experiences participating in virtual training to support children’s language and social communication development. Social Sciences and Humanities Research Council COVID PEG. Funding amount: $24,700.
Cunningham, B. J., Husein, M., Dworschak Stokan, A., Daub, O. (2020) Real world communication outcomes for children with velopharyngeal disorders. Western Strategic Support for Canadian Institutes of Health Research Success Program. Funding amount: $17,000.
DeMatteo C., Stazyk, K., Gjertsen, D., Di Rezze, B. (2020) Concussion 2020 – Let’s Play Safely – Prevention and Management. Ontario Brain Institute (OBI) Event Funding. Funding amount: $5,000.
Dong, S. Y., Gorter, J. W., McCauley, D., Cross, A. (2020) Youth Engagement in Research: Exploring Training Needs. Mitacs Research Training Award. Funding amount: $6,000.
Fayed, N., Cohen, E., Tranmer, J., Moretti, M., Avery, L., Orkin, J., Major, N., Sidra, M., Lee, E., Buchanan, F., Smith, N., Martens, R. (2020-2021) An Essential Subset of Good Outcome for Complex Care. Norman Saunders Complex Care Initiative National Grant Competition, The Hospital for Sick Children, Toronto, ON, Canada. Funding amount: $40,000.
Fayed, N., Davies, C., Cohen, E., Batorowicz, B., Lach, L., Zulkernine, F. (2020-2023) Unlocking Communication for Children with High Communication & Motor Impairments: Decoding Emotions. Queen’s University, Wicked Ideas Funding Program. Funding amount: $75,000.
Ferro, M., Gorter, J. W., Lipman, E.L., Reaume, S.V., Meyer, S., Yessis, J.L., (2020) COVID-19 Effects on Mental Health and Service Provision Effects on Children and Families: The MY LIFE Experience. Canadian Institutes of Health Research. Funding amount: $165,000.
Friere, G., Cohen, E., Friedman, J., Diong, C., Gandhi, S., Neuman, M., Freedman, S., Saunders, N. (2020-2021) Variation in Diagnostic Imaging Utilization in the Emergency Department: A Study of Ontario Hospitals. Creative Professional Activity Grant, Department of Pediatrics, The Hospital for Sick Children. Funding amount: $9,929.
Gill, P., Mahant, S., Bayliss, A., Parkin, P., Laupacis, A., Cohen, E., Tricco, A., Macarthur, C., Johnson, D., Sozer, A., McLaughlin, T., Forbes, K., Vomiero, G., Baerg, K., ‘t Jong, G., Taheri, S., Pound, C., Wahi, G., Sehgal, A., Zhou, K., Sakran, M., Li, P., Constantin, E., Drouin, O., Luu, M., Holland, J., Allwood Newhook, L., Cowan, K., Murray, S., Ren, L., Gavin, F., Buchanan, F., Breen-Reid, K., Van Clieaf, J., Langrish, K., Quinlan, M. (2020-2021) Patient-oriented research priorities for pediatric hospital care: a James Lind Alliance Priority Setting Partnership. Canadian Institutes of Health Research Catalyst Grant: Patient-Oriented Research. Funding amount: $100,000.
Gorter, J. W. (2020) Knowledge Translation webinar to showcase a unique set of strategies to tackle obstacles that the CHILD-BRIGHT READY or Not Brain-Based Disabilities (BBD) Trial is facing due to the COVID-19 pandemic. CHILD-BRIGHT.. Funding amount: $3,200.
Gorter, J. W., Cross, A., Thomson, D., Putterman, C., McCauley, D., Solomon, P. (2020-2023) Family Engagement in Research Training Program. Kids Brain Health Network. Funding amount: $513,454.
Gorter, J. W., McCauley, D., Lu, J., Jakubowski, J., Nguyen, L. (2020 – 2021). Supporting Transition in Health Care at McMaster: Improving the MyTransition App for Optimal Health/Well‐being on Campus. McMaster-Okanagan Special Project Funding. Funding amount: $8,000. .
Guttmann, A., Brownell, M. D., Cohen, E., Saunders, N. R., Hanlon-Dearman, A., Katz. A., Mahar, A., Moore Hepburn, C., Rayner, J., Stukel, T., Wanigaratne, S., Wilson, S. (2020-2021) Deferred Care Outcomes in Canadian Children and Youth: Measuring and Mitigating Risk during COVID-19. Canadian Institutes of Health Research, Operating Grant: COVID-19 Rapid Research – Clinical Management & Health System Interventions (447645). Funding amount: $258,686.
Ketelaar, M., Voorman, J., Gorter, J. W. (2020-2022) Toegankelijke kennis over ontwikkeling cerebrale parese: basis voor betere kwaliteit van zorg. Stichting Kwaliteitsgelden Medisch Specialisten (SKMS), The Netherlands. Funding amount: €119,516.
Khetani, M. A. (2020-2022) Implementation of Electronic Shared Decision-Making Support to Design and Monitor Participation-Focused Early Intervention. American Occupational Therapy Foundation. Funding amount: $100,000 USD.
Khetani, M. A., McManus, B. (2020-2024) Understanding Early Intervention Value: Effect of a Statewide Care Coordination Model on EI Resource Use and Outcomes. Agency for Healthcare Research and Quality (AHRQ) R0. Funding amount: $400,000 USD
Kwan, M., Cairney, J., King-Dowling, S. M., Price, D. J., Timmons, B. W., Veldhuizen, S. R., Wade, T. J. (2020-2023) CATCHing up: A continuation of the Coordination and Activity Tracking in CHildren cohort study. Canadian Institutes of Health Research, Project Grant. Funding amount: $726,749.
Kwok, E. (2020-2022) Partnering with speech-language pathologists to improve interventions for children with language disorders. Canadian Institute of Health Research, Postdoctoral Fellowship Award. Funding amount: $110,000.
Kwok, E., Rosenbaum, P., Cunningham, B. J. (2020-2021) Reflecting and redesigning learning programs for preschoolers with language delay during COVID-19 and beyond. Social Sciences and Humanities Research Council COVID PEG. Funding amount: $25,000.
Lane, J., Beaudoin, A. J., Bélanger, C., Brassard, R., Camden, C., Corriveau, P., Couture, M., Fleurant, J., Gariépy, C., Gendron, P., Lepage, J., Morin, A. Therriault, D., Thibodeau, G. (2020-2022) Centres de la petite enfance (CPE) adaptés pour les enfants en situation de négligence. Ministère de la Santé et des Services sociaux et Ministère de la Famille. Funding amount: $2,024,825.
Lee, S., Orkin, J., Cohen, E., Toulany, A., Korenblum, C., Abells, D. (2020-2021) Transition to Adult primary care for youth with medical complexity through the use of Telemedicine (TACT). Pediatric Consultants Partnership’s Grants for Creative Professional Activity, The Hospital for Sick Children. Funding amount: $9,918.
Levac, D. (2020-2020) Assessing the impact of changes in therapy service delivery during the COVID-19 shutdown on function, socialization and participation of children with disabilities. Northeastern University COVID-19 Crisis Seed Funding. Funding amount: $8,284 USD.
Levac, D. (2020-2020) Taking virtual reality ‘on the road’: A mobile VR system to explore motor learning in children with cerebral palsy. Cerebral Palsy Alliance Research Foundation, Small Research Equipment Grant. Funding amount: $3,194 USD.
Levac, D. (2020-2021) Immersive virtual reality as a training modality for the development of a growth mindset in economically-disadvantaged children and youth. Northeastern University Institute for Health Equity and Social Justice Advancing Health Equity Pilot Project Award. Funding amount: $4,310 USD.
Levac, D. (2020-2021) Immersive virtual reality for eye-hand coordination assessment in children with hemiplegia. American Academy of Developmental Medicine and Child Neurology/National Pediatric Rehabilitation Research Center (C-PROGRESS, NIH). Funding amount: $24,799 USD.
Levac, D. (2020-2021) Mentored Award: Novel methods to quantify the affective impact of virtual reality for motor skill learning. Northeastern University Mentored Tier 1. Funding amount: $49,713 USD.
Micsinszki, S. (2020-2021) CHILD-BRIGHT Project Title: Implementation and Evaluation of “Learning Together” Simulations to Support Researchers, Parents, Youth, and Trainees to Engage in Pediatric Rehabilitation Research. Graduate Student Fellowship in Patient-oriented Research Fellowship. Funding amount: $9,930.
Montreuil, M., Bogossian, A., Genest, C., Gilbert, E., Piché, G., Rassy, J., Boutin, M., Frati, F., Winkelmann, I., Camden, C. (2020) Supporting children’s mental health in the context of pandemic and confinement: A scoping review of interventions and ethical challenges. Canadian Institutes of Health Research, Operating Grant: COVID-19 Rapid Research Funding Opportunity in Mental Health and Substance. Funding amount: $50,000.
Noseworthy, M., Doyle, T., DeMatteo, C., Hall, G., Connolly, J., Gagnon, I., Hucal, M., Giglia, L., Hall, G., Koelink, E., Obeid, J., Reed, N., Timmons, B. (2020) Assessing and Predicting Recovery from Mild Traumatic Brain Injury. Juravinski Research Institute. Funding amount: $180,000.
Orkin, J., Diskin, C., Cohen, E., Sunderji, A., Faraoni, D., Fecteau, A., Fischer, J., Langrish, K., Parmar, A., Friedman, J. (2020-2021) The Hidden Danger: a Surveillance Study to Describe the Unintended Health Consequences of the COVID-19 Pandemic. Pediatric Consultants Partnership Creative Professional Activities Grants – COVID Call, Hospital for Sick Children. Funding amount: $9,670.
Perreault, K., Bath, B., Beauséjour, M., Desmeules, F., Feldman, D. E., Harding, K., Hébert, L. J., Hudon, A., Lamontagne, M. E., Miller, J., Pinard, A. M., Routhier, F., Roy, J. S. Ruiz, A. Camden, C. (2020-2021) Bringing together the ACCESS TO REHAB TEAM to improve access to rehabilitation services for persons experiencing musculoskeletal pain. Canadian Institutes of Health Research, Planning and dissemination grant. Funding amount: $14,984.
Ronen, G. (2020-2023) Thompson family fundraising for pediatric epilepsy research. Thompson Family Fundraiser. Funding amount: $35,000.
Saunders, N. R., Toulany, A., Cappelli, M., Chiu, M., Cohen, E., Gardner, W., Guttmann, A., Kurdyak, P., Moore Hepburn, C., Moran, K., Sundar, P., Vigod, S. (2020-2021). Equity of virtual mental health care uptake for children and youth during the COVID-19 pandemic. Canadian Institutes of Health Research, Operating Grant: COVID-19 Mental Health & Substance Use – Understanding Rapid System Transformations. Funding amount: $175,512.
Saunders, N., Cohen, E., Guttmann, A. (2020-2021) Pediatric Primary Care Access during the COVID-19 Pandemic. Pediatric Consultants Partnership Creative Professional Activities Grants – COVID Call, Hospital for Sick Children. Funding amount: $10,000.
Timmons, B., DeMatteo, C., Noseworthy, M., Sharma, B., Colterjohn, M., Koelink E. (2020-2023) The Concussion, Exercise, and Brain Networks (ConExNet) study. Canadian Institutes of Health Research, New Project Grant. Funding amount: $240,000.
Trottier, N., Wiart, L., Camden, C. (2020-2022) Parents’ information needs and perceived utility of online resources for preventing plagiocephaly, brachycephaly and positional preference among healthy newborns (Besoins Des familles et utilité perçue de ressources en ligne pour prévenir la plagio). Alberta Physiotherapy Association (APA), Clinical Research Innovation Fund. Funding amount: $15,000.
van Wijk, I., Gorter, J. W., Kalsbeek C., Verhoef M., (2020) ‘Like you’ Development of individualized, meaningful transition information for and by young people and their parents in rehabilitation care. Agis Innovation Fund. Funding amount: €76,158.
Verschuren O., Ketelaar, M., Voorman, J., Gorter, J.W., Gmelig Meyling, C., Jansen, M. (2020) Ontwikkeling van een Toolkit “op weg naar een gezonde generatie” voor jongeren met brain based developmental disabilities. Johanna KinderFonds (JKF). Funding amount: €9,478.
Verschuren, O., Ketelaar, M., Voorman, J., Pillen, S., Gorter, J.W., Hulst, R. (2020) Beter slapen voor kinderen met cerebrale parese: Additionele analyses. Johanna KinderFonds (JKF). Funding amount: €9,686.
Weiss, J. A., Lee, V., Putterman, C. B., Spoelstra, M. J., Ahmad, F., Gorter, J. W., Khanlou, N., Lai, J., & McMorris, C.A. (2020) The Impact of COVID-19 on the Mental Health and Well-being of Caregivers and Families Living with Autism. Canadian Institutes of Health Research. Funding amount: $34,068.
Weiss, J. Gorter, J. W., & Bishop, L. (2020-2022) Thriving with developmental disability: A photo-elicitation study. Social Sciences and Humanities Research Council. Funding amount: $91,000.
Yeates, K, (University of Calgary) in association with a nationwide group of collaborators (132), including Prof. DeMatteo, C. (2020-2025) The Canadian Concussion Network. Canadian Institutes of Health Research, Network Catalyst Grant. Funding amount: $1,500,000.

Awards

Khetani, M. Researcher of the Year, University of Illinois at Chicago, College of Applied Health Sciences (2020).
Kwok, E. Canada Governor General’s Gold Medal, The Governor General of Canada (2020).
Levac, D. Faculty Excellence in Community Engagement Award, Department of Physical Therapy, Movement and Rehabilitation Sciences (2020).
Vanderkaay, S. Faculty of Health Sciences Postdoctoral Association Travel Award, McMaster University (2020).

Grants Total

Total Canadian: $7,344,651

Total American: $590,299

Total Euro: $337,235

Total held at McMaster: $1,734,052

Presentations

Presentations (Keynotes)

Campbell, W. (2020, June). Innovative methodologies in KT research. International Knowledge Translation Conference, Montreal, Quebec, Canada. (Conference cancelled)
Cohen, E. (2020, April). Reflections on the Emergence of Pediatric Complex Care in Canada. All in: Creating Synergy in Pediatric Complex Care in Canada. Children’s Healthcare Canada, Calgary, AB, Canada.
Gorter, J. W. (2020, March). In my dream, I see a brighter world for all children with disabilities and their families. Australian Academy for Cerebral Palsy and Developmental Medicine (AusACPDM), Perth, Australia.
Gorter, J. W. (2020, March). Nieuwe inzichten om te komen tot betere uitkomsten voor kinderen met een beperking, (on the F-Words for children with developmental language disorder). TaalStaal Congress, Utrecht, The Netherlands.

Lectures/Presentations

Anaby, D. (2020, June). Improving participation through the PREP intervention: Current evidence. CHILD Research Meeting. Jönköping University, Jönköping, Sweden.
Anaby, D., Burrough, M. (2020, October). A participation ripple effect: Introduction to Pathways and Resources for Engagement and Participation (PREP). Royal College of Occupational Therapists Specialist Section for Children, Young People and Families (CYPF) webinar, UK.
Anaby, D., Teplicky R. (2020, January). Implementing PREP in India. Ummeed Child Development Center Workshop, India.
Backlin, G., Bellefeuille, S., Havens, J., Lalonde, C., Nguyen, L., & Tesolin, J. (alphabetical order). (2020, October). Learning from Youth and Young Adults: Engagement Strategies for Patient-Oriented Research Projects, Committees, and Councils [Webinar]. The CHILD-BRIGHT Network. Link: https://www.child-bright.ca/events/2020/9/9/youth-engagement-strategies
Brunton, L. (2020, September). Pain and Fatigue in Adults With CP: From State-of-Science to Treatment Options. American Academy of Cerebral Palsy and Developmental Medicine 74th Annual Conference (online).
Camden, C. (2020, April). What is the evidence for telerehabilitation with children with disabilities?. #LETSTALKNMD, Webinar Series, Muscular Dystrophy Canada (online).
Camden, C. (2020, May). Q&A: What are the evidence in pediatric rehabilitation – Questions and Answers. The eHealth Summit for Pediatric Therapists (online).
Camden, C. (2020, October). La téléréadaptation pour favoriser l’accès à l’intervention précoce pour les enfants ayant des retards de développements (et pour soutenir l’ensemble des familles). Symposium en physiothérapie pédiatrique du CHU Sainte-Justine (online).
Camden, C. (2020, October). Le rôle des professionnels non-enseignant au sein d’un cadre intégrateur de la Rai. Dépistage et intervention. Conférence consensus sur la réponse à l’intervention, Ministère de l’Éducation et de l’Enseignement supérieur (online).
Camden, C. (2020,April). Comment organiser les services pour les enfants de 0-5 ans avec ou à risque de présenter des retards de développement? 88e congrès de l’ACFAS (online).
Camden, C., Dixon, G., Silva, M. (May, 2020). Ongoing and future research ideas for telerehabilitation with children with disabilities. The eHealth Summit for Pediatric Therapists (online).
Camden, C., Kairy, D., Teitelbaum, D. (2020, May). What is the evidence for telerehabilitation with children with disabilities? Ethical considerations, evidence, and coaching families for success. The Pediatric Division of the Canadian Physiotherapy Association (online).
Campbell, W. (2020, November). FIRST KIT: A knowledge implementation toolkit to support school-based tiered services. Ontario Council for Exceptional Children Annual Conference. Toronto, Ontario, Canada. (Conference cancelled).
Campbell, W., VanderKaay, S., Dix, L., Rivard, L., Missiuna, C., Ng, S., Pollock, N., Sahagian Whalen, S., Eisen, I., Kyte, C., Phoenix, M., Bennett, S., Specht, J., Kennedy, J., & McCauley, D. (2020, June). When, why, and how tiered approaches to occupational therapy and speech and language services in schools support all students’ participation. CountMeIn!, Sheffield, UK. (Conference cancelled).
Campbell, W., VanderKaay, S., Dix, L., Rivard, L., Missiuna, C., Ng, S., Pollock, N., Sahagian Whalen, S., Eisen, I., Kyte, C., Phoenix, M., Bennett, S., Specht, J., Kennedy, J., & McCauley, D. (2020, March). A program of research to enhance understanding of tiered services. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.(Conference cancelled).
Cleave, P., Desmarais, C., St. Pierr, M., Paul, M., Thoradottir, E., Trudeau, N., Gauvin, K., Berube, D., Molnar, M., Archibald, L., Oram Cardy, J., Cunningham, B. J., Campbell, W., Phoenix, M., Mayer-Crittenden, C., Minor-Corriveau, M., Charest, M., Chapman, T., & Colozzo, P. (2020, May). Cross Canada Curriculum on Developmental Language Disorder. 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Cohen, E. (2020, August). Impact on Return to School for Children and Youth with Medical and Developmental Complexity. Virtual Town Hall for SickKids patients and families. The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Cohn, R., Birkin, C., Goldthrop, K. (2020, August). Ask our SickKids Experts Webinar: Transitioning Children Back to School. The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Diskin, C. (2020, September). Prioritization of Clinical Research for Children with Medical Complexity and Neurologic Impairment: A Delphi Study of International Experts. Complex Care Special Interest Group (online).
Cohen, E., Diskin, C. (2020, September). Prioritization of Clinical Research for Children with Medical Complexity and Neurologic Impairment: A Delphi Study of International Experts. Pediatric Medicine Divisional Academic Rounds, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Foebel, A., Patel, H. (2020, November). A look at Children and Youth with Medical Complexity across Canada. Children’s Healthcare Canada Annual Meeting (online), Saskatoon, SK, Canada.
Cohen, E., Guttmann, A. (2020, December). The Edwin S.H. Leong Centre for Healthy Children. Senior Management Committee Meeting, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Guttmann, A. (2020, November). The Edwin S.H. Leong Centre for Healthy Children. Developmental Pediatrics Division Rounds, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
Cohen, E., Guttmann, A. (2020, November). The Edwin S.H. Leong Centre for Healthy Children. Senior Management Committee Meeting, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Kinross, L. (2020, September). Raising a child with chronic conditions or disability hurts parent health. Why do we ignore that? Bioethics Grand Rounds (online), The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Orkin, J., Ho, M., Diskin, C., Bismilla, Z., Allen, U. (2020, April). COVID-19 and the care of the child with chronic disease. Children’s Healthcare Canada, Project Echo, Toronto, ON, Canada.
Cohen, E., Otal, J. (2020, October). Public drug funding and decision-making in Ontario. Virtual Pediatric Medicine Divisional Academic Rounds, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Science, M., Diskin, C. (2020, April). Infection Control for Children with Chronic Conditions in the COVID-era. Children’s Healthcare Canada, Project Echo, Toronto, ON, Canada.
Cross, A. (2020, February). Family Engagement in Research Certificate of Completion Program. CanChild Research Rounds, Hamilton, ON, Canada.
Cross, A. (2020, November). A national training program: How are researchers and families partnering together to build capacity in family engagement in research? McMaster University Department of Pediatrics Research Roundtable, Hamilton, ON, Canada.
Cross, A., Teplicky, R., Rosenbaum, P., Grahovac, D., & Hesketh, D. (2020, November). Using implementation science to embed the F-words for Child Development at an organizational level. BC Association for Child Development and Intervention Webinar (online).
Cross, A., Thomson, D., & Putterman, C. (2020, October). A national training program: How are researchers and families partnering together to build capacity in family engagement in research? Canadian ADHD Resource Alliance (CADDRA) Research Day.
Cunningham, B. J., Oram Cardy, J. (2020, May). Comprehensive assessment of preschoolers’ communicative participation using the ProPle of Preschool Communication (PPC). 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Cunningham, B. J., Oram Cardy, J. (2020, May). Engaging stakeholders to improve outcome measurement in preschool speech-language services. 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Di Rezze, B., Rosenbaum, P., Hidecker, M. J. C., Zwaigenbaum, L., Roncadin, C., Duku. E., Gentles, S. J., Georgiades, S., Viveiros, H., Fang, H. (2020, September). Testing the reliability of the Autism Classification System of Functioning: Social Communication-Integrated, for children and youth ages 2 to 21 years. American Academy for Cerebral Palsy and Developmental Medicine Conference, USA.
Gorter, J. W. (2020, January). CanChild Generating Knowledge, Transforming Lives! Elsass Foundation Visit, Copenhagen, Denmark.
Gorter, J. W. (2020, November). Cerebral Palsy: On Health, Development and Lifecourse. On the occasion of Dan Jacobson Thesis for Doctoral Degree Defense (online), Karolinska Institutet, Stockholm, Sweden.
Gorter, J. W. (2020, October). An app-based transition toolkit targeting youth with chronic health conditions: A feasibility study to improve healthcare transition and outcomes (ApplyIT study). 12th Annual Virtual Health Care Transition Research Consortium Research Symposium (online), Houston, US.
Gorter, J. W. (2020, September). Medicine and innovation gateways: collaborations at the interface to improve the lives of persons with disabilities while enriching each of the stakeholders. CanChild; Innovation for Participation, Mini-symposium (online), Brest, France.
Gorter, J. W., Rosenbaum, P., Cross, A., Grahovac, D., & Hanes, J. Moderated by: A. Picard (2020, February). The F-words: Finding the ability in disability. Ontario Brain Institute Public Talk.
Gorter, J.W., Thomson, D., Galuppi, B., Via-Dufresne Ley, A., Strohm, S., Mahlberg, N., Nguyen, L., Dawe-McCord, C. (2020, November). Conducting a Research Trial During a Pandemic: The New Normal? [Webinar]. Children’s Healthcare Canada Spark Live and the CHILD-BRIGHT Network. Link: https://www.child-bright.ca/events/2020/11/25/research-trial-during-pandemic
Hurtubise, K., Camden, C. (2020, May). Virtual rehabilitation services for children with gross motor considerations: What does the future add?. Conférence mensuelle de la communauté de pratique virtuelle albertaine sur le TDC (online).
Kennedy, J., Campbell, W. (2020, November). Universal design for learning: Roles for occupational therapists and physiotherapists. Toronto District School Board’s inaugural OT/PT School-Based Rehabilitation Conference. Toronto, Ontario, Canada. (Conference cancelled).
Kwok, E., Moodie, S., Cunningham, B. J., Oram Cardy, J. (2020, December). Selecting implementation strategies based on practice barriers, stakeholders’ preference and best-evidence. 13th Annual Conference on the Science of Dissemination and Implementation (online).
Ledoux, A. A., Barrowman, N. Bijelic, V., Davis A., Reid S., Sangha G., Yeates K.O., DeMatteo C., Reed N., Zemek, R. For the Pediatric Emergency Research Canada PedCARE Team . (2020, May). Pediatric Concussion Assessment of Rest and Exertion (PedCARE):A Multicentre Randomized Clinical Trial. Pediatric Academic Societies 2020 Conference. Philadelphia, USA.
Levac, D. E. (April, 2020). University of Southern California Virtual Technologies for Health SMART-VR Center Symposium. (Event cancelled).
Levac, D. E. (May, 2020) Action Lab, Department of Psychology, New York University. (Event cancelled).
Levac, D. E. (May, 2020). Center for Cerebral Palsy Research, Teacher’s College, Columbia University. (Event cancelled).
Levac, D. E., Lobo, M., Heathcock, J., Smith, B. A., Dusing, S. (2020, February). Strategies to elicit, sustain, and measure behavior change in pediatric rehabilitation research. APTA Combined Sections Meeting, Denver, CO, USA.
McPhee, P. (2020, November). Preparing to define your future: a postdoctoral fellow’s journey through the department of pediatrics. Department of Pediatrics Research Roundtable, McMaster University.
Micsinszki, S., Ballantyne, M., Cleverley, K., Green, P., & Stremler, R. (2020, November). Examining Factors Associated with Sleep Quality in Parents of Children 4-10 Years with Autism Spectrum Disorder. 15th Annual Bloorview Research Institute Symposium (online).
Micsinszki, S., Parker, K., Tanel, N., DangerOeld, B., Menna-Dack, D., Chu, A., Mistry, B., Phoenix, M. (2020, November). Learning Together: The Use of Simulation to Enhance and Enable Authentic and Meaningful Research Partnerships. 2020 Kids Brain Health Network Virtual Conference (online).
Nguyen, L, Pozniak, K., Chambers, K., Galuppi, B., Mahlberg, N., Via-Dufresne Ley, A., Doucet, S., Marelli, A., Kovacs, A., Amaria, K., Rozenblum, R., Gorter, J.W. on behalf of the READYorNot^TM Brain-Based Disabilities Project Team. (2020, May). Go Far, Go Together: A Journey of Collaboration with Youth and Families for the READYorNot^TM Brain-Based Disabilities Trial. 2020 CHILD-BRIGHT Virtual Symposium: Part 1 (online).
Nguyen, L. & Gorter, J.W. (2020 August). Growing together: The process of partnering with siblings to design the BEST SIBS Study. Canadian Student Health Research Forum (online).
Nguyen, L., Davis, H., Bellefeuille, S., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, November). Growing Together: The Process and Initial Outcomes of Partnering with Siblings in a Doctoral Patient-Oriented Research Study on Transition. 2020 Kids Brain Health Network Virtual Conference (online).
Nguyen, L., Davis, H., Bellefeuille, S., Ketelaar, M., Di Rezze, B., Jack, S., Gorter, J.W. in partnership with the Sibling Youth Advisory Council. (2020, May). Sibling Engagement in Research: An Illustrative Example of a Sibling-Researcher Partnership To Design a Study. 2020 CHILD-BRIGHT Virtual Symposium: Part 2 (online).
Nguyen, L., Davis, H., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, October).. Revealing the potential of sibling engagement in research. CP-Net Science and Family Day (online).
Nguyen, L., Davis, H., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, September). Revealing the potential of sibling engagement in research. 74^th Annual Meeting for the American Academy for Cerebral Palsy and Developmental Medicine, New Orleans, LA, USA (online).
Nguyen, L., Jack, S., Ketelaar, M., Di Rezze, B., Soper, A. K., & Gorter, J. W. (2020, October). Understanding the experiences of youth with autism spectrum disorder in peer mentorship programs during the transition to adulthood: a meta-ethnography. Canadian Autism Leadership Summit, Ottawa, Canada.
Nguyen, L., Ketelaar, M., Di Rezze, B., Jack, S., Gorter, J.W. in partnership with the Sibling Youth Advisory Council. (2020, June). Sibling Engagement in Research: An Illustrative Example of a Sibling-Researcher Partnership To Design a Study. Research Round Talks, Department of Pediatrics, McMaster University. Hamilton, Canada (online).
Noten, S., van der Slot, W. M. A., Thorpe, D. E., Heyn, P. C., Marciniak, C. M., McPhee, P. G., Lamberts, R. P., Langerak, N. G., Verschuren, O., Salokivi, T., Morrison, K., Papageorgiou, G., van der Berg-Emons, R. J. (2020, September). Determining blood pressure levels in adults with cerebral palsy: A systematic review and meta-analysis of individual participant data. 74th Annual Meeting for the American Academy for Cerebral Palsy and Developmental Medicine, New Orleans, LA, USA (online).
R. (2020, October). Gross Motor Function Measure. Brazilian Congress of Physiotherapy (online).
Phoenix, M. (2020, March). Knowledge Translation and grant preparation. Holland Bloorview Kids Rehabilitation Hospital. Bloorview Research Institute Trainee Workshop Panel. Toronto, Ontario, Canada.. (Event cancelled).
Pozniak, K. (2020, July). Afterlife of Parent Engagement. CanChild Research Rounds, McMaster University, Hamilton, Ontario, Canada..
Practile, T., Marshall, C., DeMatteo, C. (2020, May). Examining how time from sport-related concussion to initial assessment predicts return-to-play clearance. CASEM-AQMS Sport Medicine Conference, Banff, Alberta, Canada.
Ronen, G. M. (2020, October). Quality of life in adolescents with epilepsy, cerebral palsy, and population norms. Child Neurology Society (online).
Rosenbaum, P. (2020, August). Designing Child Development Services: Considerations for 21st Century Planning, and How WHO’s ICF Guides Us. Isfahan, Iran.
Rosenbaum, P. (2020, August). PARTICIPATION Rx: Start Early, and Involve the Family. It Lasts a LIFETIME!. Early Childhood Partner Forum, National Disability Insurance Scheme, Perth, Australia.
Rosenbaum, P. (2020, July). The ‘F-Words’ in Child Development are being used around the world: What are they, and why should I care? In Karachi and Lahore (online).
Sahagian Whalen, S., Campbell, W. (2020, November). Tiered services: How health professionals can support all students’ success. Toronto District School Board’s inaugural OT/PT School-Based Rehabilitation Conference. Toronto, Ontario. (Conference cancelled).

Revenue

CanChild revenue is driven by a number of different streams, including licensing of our products for clinical practice, research, and clinical trial contracts with pharmaceutical companies. CanChild also offers services to support and guide clinical practice and disability policy, including in-person and online training workshops, consultation services with provincial ministries and program evaluation through the Measurement and Analysis Service.

Sales from the CanChild Shop were strong throughout the year, despite the uncertainty of the pandemic. In addition, CanChild continued to grow its notoriety throughout the world, which is exemplified by the growth in interest in consultation and clinical trial contracts. In the 2020 Year, CanChild grossed approximately $450,000 in revenue. Projections for next year are positive, as we expect this growth trend to continue.

Publications

Abdel Malek, S., Rosenbaum, P., & Gorter, J. W. (2020). Perspectives on cerebral palsy in Africa: Exploring the literature through the lens of the International Classification of Functioning, Disability and Health. Child: care, health and development, 46(2), 175–186.
Albrecht, E. C., Kaelin, V. C., Rigau, B. L., Dooling-Litfin, J. K., Scully, E. A., Murphy, N. J., McManus, B. M., Khetani, M. A., & High Value Early Intervention Research Group (2020). Pilot implementation of an electronic patient-reported outcome measure for planning and monitoring participation-focused care in early intervention. BMC medical informatics and decision making, 20(1), 199.
Alghamdi, M. S., Chiarello, L. A., Palisano, R. J., McCoy, S. W., Orlin, M., & Abd-Elkafy, E. M. (2020). Longitudinal Changes in Physical Caregiving for Parents of Children with Cerebral Palsy. Physical & occupational therapy in pediatrics, 40(1), 93–105.
Anaby, D., Ianni, L., Heguy, L., Camden, C. (2020). Actual and ideal roles of school staff to support students with special needs: current needs and strategies for improvement. Support for Learning. 35(3): 326-345.
Anaby, D., Vrotsou, K., Kroksmark, U., Ellegard, K. (2020). Changes in participation of youth with physical disabilities following the PREP intervention: A time-geographic approach. Scandinavian Journal of Occupational Therapy, 27 (5), 364-372.
Bessette, J., Gendron, M., Lapointe, AM., Camden, C. (2020). Physiotherapy in Haiti: a qualitative study exploring local clinicians’ perspectives. Physiotherapy Research International. Advance online publication.
Boldyreva, U., Streiner, D. L., Rosenbaum, P. L., & Ronen, G. M. (2020). Quality of life in adolescents with epilepsy, cerebral palsy, and population norms. Developmental medicine and child neurology, 62(5), 609–614.
Brunton, L., & Scholtes, C. (2020). Commentary on “Longitudinal Change in Common Impairments in Children With Cerebral Palsy From Age 1.5 to 11 Years”. Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association, 32(1), 51.
Buchanan, F., Cohen, E., Milo-Manson, G., & Shachak, A. (2020). What makes difficult decisions so difficult?: An activity theory analysis of decision making for physicians treating children with medical complexity. Patient education and counseling, 103(11), 2260–2268.
Caldwell, H., Di Cristofaro, N. A., Cairney, J., Bray, S. R., MacDonald, M. J., & Timmons, B. W. (2020). Physical Literacy, Physical Activity, and Health Indicators in School-Age Children. International journal of environmental research and public health, 17(15), 5367.
Caldwell, H., Di Cristofaro, N. A., Cairney, J., Bray, S. R., & Timmons, B. W. (2020). Measurement properties of the Physical Literacy Assessment for Youth (PLAY) Tools. Applied physiology, nutrition, and metabolism = Physiologie appliquee, nutrition et metabolisme, 10.1139/apnm-2020-0648. Advance online publication.
Caldwell, H., Wilson, A., Mitchell, D., & Timmons, B. W. (2020). Development of the Physical Literacy Environmental Assessment (PLEA) tool. PloS one, 15(3), e0230447.
Calmon Almeida, V., da Silva Junior, W. M., de Camargo, O. K., de Santana Filho, V. J., Oliveira, G. U., Santana, M. S., & de Farias Neto, J. P. (2020). Do the commonly used standard questionnaires measure what is of concern to patients with low back pain?. Clinical rehabilitation, 34(10), 1313–1324.
Camden, C., Dostie, R., Heguy, L., Gauvin, C., Hudon, C., Rivard, L., Gaboury, I. (2020). Understanding parental concerns related to their child’s development and factors influencing their decisions to seek help from health care professionals: Results of a qualitative study. Child: Care, Health and Development. 46(1): 9-18.
Camden, C., Héguy, L., Casoli, M., Roy, M., Rivard, L., Berbari, J., Ppop Research Team, Couture, M. (2020). Preschoolers’ Developmental Profiles and School-Readiness in a Low-Income Canadian City: A Cross-Sectional Survey. International Journal of Environmental Research and Public Health. 17(7): 2529.
Chagas, P., Drumond, C. M., Toledo, A. M., de Campos, A. C., Camargos, A., Longo, E., Leite, H. R., Ayupe, K., Moreira, R. S., Morais, R., Palisano, R. J., Rosenbaum, P., & PartiCipa Brazil Research Group (2020). Study protocol: functioning curves and trajectories for children and adolescents with cerebral palsy in Brazil – PartiCipa Brazil. BMC pediatrics, 20(1), 393.
Chan-Viquez, D., Hasanbarani, F., Zhang, L., Anaby, D., Turpin, N. A., Lamontagne, A., Feldman, A. G., & Levin, M. F. (2020). Development of vertical and forward jumping skills in typically developing children in the context of referent control of motor actions. Developmental psychobiology, 62(6), 711–722.
Clark, H., Nair, K., Veldhuizen, S., Campbell, W., Rivard, L., Rodriguez, M. C., & Cairney, J. (2020). Validity of the Early Years Check-In (EYCI) in a Cross-Sectional Sample of Families. Frontiers in pediatrics, 8, 157.
Cohen, E., & Coller, R. J. (2020). Evaluating Integrated Care for Children: A Clarion Call or a Call for Clarity?. Pediatrics, 145(1), e20193282.
Cohn, L. N., Pechlivanoglou, P., Lee, Y., Mahant, S., Orkin, J., Marson, A., & Cohen, E. (2020). Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis. The Journal of pediatrics, 218, 166–177.e2.
Corriveau, G., Couturier, Y., Camden, C. (2020). Developing Competencies of Nurses in Wound Care: Results From a Study Evaluating the Impact of a New Service Delivery Model Including Teleassistance. The Journal of Continuing Education in Nursing. 51(12), 547–555.
Costain, G., Walker, S., Marano, M., Veenma, D., Snell, M., Curtis, M., Luca, S., Buera, J., Arje, D., Reuter, M. S., Thiruvahindrapuram, B., Trost, B., Sung, W., Yuen, R., Chitayat, D., Mendoza-Londono, R., Stavropoulos, D. J., Scherer, S. W., Marshall, C. R., Cohn, R. D., Cohen, E., … Hayeems, R. Z. (2020). Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity. JAMA network open, 3(9), e2018109.
Cox, E., Bells, S., Timmons, B. W., Laughlin, S., Bouffet, E., de Medeiros, C., Beera, K., Harasym, D., & Mabbott, D. J. (2020). A controlled clinical crossover trial of exercise training to improve cognition and neural communication in pediatric brain tumor survivors. Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology, 131(7), 1533–1547.
Cox, E., Bells, S., Timmons, B. W., Laughlin, S., Bouffet, E., de Medeiros, C., Beera, K., Harasym, D., & Mabbott, D. J. (2020). Corrigendum to “A controlled clinical crossover trial of exercise training to improve cognition and neural communication in pediatric brain tumor survivors” [Clin. Neurophysiol. 131 (2020) 1533-1547]. Clinical neurophysiology : official journal of the International Federation of Clinical Neurophysiology, 131(9), 2331–2332.
Cunningham, B. J., Oram Cardy J. (2020). Using implementation science to engage stakeholders and improve outcome measurement in a preschool speech-language service system. Speech Language and Hearing, 23(1), 17–24.
Danielli, E., DeMatteo, C., Hall, G. B., & Noseworthy, M. D. (2020). A Review of MRI and Exercise Treatment for Improved Concussion Diagnosis and Recovery. Critical reviews in biomedical engineering, 48(5), 261–283.
DeMatteo, C. A., Lin, C. A., Foster, G., Giglia, L., Thabane, L., Claridge, E., Noseworthy, M. D., Hall, G. B., & Connolly, J. F. (2019). Evaluating Adherence to Return to School and Activity Protocols in Children After Concussion. Clinical journal of sport medicine : official journal of the Canadian Academy of Sport Medicine. Advance online publication.
DeMatteo, C., Randall, S., Falla, K., Lin, C. Y., Giglia, L., Mazurek, M. F., & Koelink, E. (2020). Concussion Management for Children Has Changed: New Pediatric Protocols Using the Latest Evidence. Clinical pediatrics, 59(1), 5–20.
De Souza, B., Richardson, S. E., Cohen, E., Mahant, S., Avitzur, Y., Carsley, S., & Rapoport, A. (2020). Gastric Flora in Gastrostomy Fed Children with Neurological Impairment on Antacid Medication. Children, 7(10), 154.
Esser, K., Barreira, L., Miller, D., Church, P., Major, N., Cohen, E., & Orkin, J. (2020). Exploring Acceptance and Commitment Therapy for parents of preterm infants. Paediatrics & child health, 26(1), e1–e3.
Falla K, Randall S, DeMatteo C. (2020). Brain Smart – Let’s Play Safely: Evaluation of a Concussion Education Program in Hamilton Wentworth Catholic District School Board. Journal of Concussion. Advance online publication.
Farmus, L., Weiss, J., Tajik-Parvinchi, D., & Cribbie, R. A. (2020). Contextualizing Statistical Suppression Within Pretest-Posttest Designs. The Quantitative Methods for Psychology, 16 (1): 21-32.
Fayed, N., Cohen, E., & Houtrow, A. (2020). Quality of life cannot be predicted from a brain scan. Developmental medicine and child neurology, 62(4), 412.
Gonzalez, M., Phoenix, M., Saxena, S.Marquis, M., Hales, L., Putterman, C., & Shikako-Thomas, K. (2020). Strategies used to engage hard-to-reach populations in childhood disability research: a scoping review. Disability and rehabilitation, 1–13. Advance online publication.
Groff, M. L., Offringa, M., Emdin, A., Mahood, Q., Parkin, P. C., & Cohen, E. (2020). Publication Trends of Pediatric and Adult Randomized Controlled Trials in General Medical Journals, 2005-2018: A Citation Analysis. Children, 7(12), 293.
Hickling, A., Mallory, K. D., Wilson, K. E., Del Fernandes, R., Fuselli, P., Reed, N., & Youth Concussion Awareness Network (You-CAN) Team, DeMatteo, C. (member). (2020). The youth concussion awareness network (You-CAN) – a school-based peer-led intervention to improve concussion reporting and social support: the protocol for a cluster randomized trial. BMC public health, 20(1), 186.
Hilberink, S. R., Grootoonk, A., Ketelaar, M., Vos, I., Cornet, L., & Roebroeck, M. E. (2020). Focus on autonomy: Using ‘Skills for Growing Up’ in pediatric rehabilitation care. Journal of pediatric rehabilitation medicine, 13(2), 161–167.
Hoehne, C., Baranski, B., Benmohammed, L., Bienstock, L., Menezes, N., Margolese, N., & Anaby, D. (2020). Changes in Overall Participation Profile of Youth with Physical Disabilities Following the PREP Intervention. International journal of environmental research and public health, 17(11), 3990.
Ho, R. A., Hall, G. B., Noseworthy, M. D., & DeMatteo, C. (2020). Post-concussive depression: evaluating depressive symptoms following concussion in adolescents and its effects on executive function. Brain injury, 34(4), 520–527.
Hulst, R. Y., Voorman, J. M., Pillen, S., Ketelaar, M., Visser-Meily, J., & Verschuren, O. (2020). Parental perspectives on care for sleep in children with cerebral palsy: a wake-up call. Disability and rehabilitation, 1–10. Advance online publication.
Hurtubise, K., Blais, S., Noel, M., Brousselle, A., Dallaire, F., Rasic, N., Camden, C. (2020). Is It Worth It? A Comparison of an Intensive Interdisciplinary Pain Treatment and a Multimodal Treatment for Youth with Pain-related Disability. Clinical Journal of Pain. 36(11): 833-844.
Hurtubise, K., Brousselle, A., Camden, C. (2020). Using collaborative logic analysis evaluation to test the program theory of a pediatric specialized rehabilitation interventions for youth with pain-related disability. Paediatric and Neonatal Pain Journal. 2(4): 113-130.
Hurtubise, K., Brousselle, A., Noel, M., Camden, C. (2020). What really matters in pediatric chronic pain rehabilitation? Results of a multi-stakeholder nominal group technique study. Disability and Rehabilitation. 42(12): 1675-1686.
Huth, K., Audcent, T., Long-Gagne, S., Sbrocchi, A. M., Weiser, N., Miller, D., Arje, D., Stephens, D., Major, N., Issa, K., Cohen, E., & Orkin, J. (2020). Evaluating Curricular Modules in the Care of Children With Medical Complexity: A Mixed-Methods Randomized Controlled Trial. Academic pediatrics, 20(2), 282–289.
Jafri, S., de Camargo, O. K. (2020). Knowledge and use of the international classification of functioning, disability and health (icf) among health professionals in a developing country, Pakistan Journal of Neurological Sciences, 15(2): 6.
Jarvis, J. M., Fayed, N., Fink, E. L., Choong, K., Khetani, M. A. (2020). Caregiver dissatisfaction with their child’s participation in home activities after pediatric critical illness. BMC pediatrics, 20(1), 415.
Jarvis, J. M., Kaelin, V. C., Anaby, D., Teplicky, R., Khetani, M. A. (2020). Electronic participation-focused care planning support for families: a pilot study. Developmental medicine and child neurology, 62(8), 954–961.
Jewitt, N., Orkin, J., Cohen, E., Narang, I., Al-Saleh, S., Amin, R. (2020). The impact of polysomnograms and family-centred decision making in children with medical complexity, Paediatrics & Child Health, pxaa021.
Kaelin, V. C., Wallace, E. R., Werler, M. M., Collett, B. R., Khetani, M. A. (2020). Community participation in youth with craniofacial microsomia. Disability and rehabilitation, 1–8. Advance online publication.
Kaelin, V., Khetani, M.A., Albrecht, E., Rigau, B., Litfin, J., Scully, E., Murphy, N., McManus, B. (2020). Pilot implementation of an electronic Participation and Environment Measure for family-centered and participation-focused early intervention. American Journal of Occupational Therapy, 74, 7411520434.
Kaelin, V., Wallace, E., Werler, M., Collett, B., Rosenberg, J., Khetani, M.A. (2020). School participation in students with Craniofacial Microsomia (CFM). American Journal of Occupational Therapy, 74, 7411505222-7411505393.
Kang, M., Smith, E., Goldsmith, C. H., Switzer, L., Rosenbaum, P., Wright, F. V., & Fehlings, D. (2020). Documenting change with the Canadian Occupational Performance Measure for children with cerebral palsy. Developmental medicine and child neurology, 62(10), 1154–1160.
Khalifa, G., Rosenbaum, P., Georgiades, K., Duku, E., & Di Rezze, B. (2020). Exploring the Participation Patterns and Impact of Environment in Preschool Children with ASD. International journal of environmental research and public health, 17(16), 5677.
Khetani, M. A., McManus, B. M., Albrecht, E. C., Kaelin, V. C., Dooling-Litfin, J. K., Scully, E. A., & High Value Early Intervention Research Group (2020). Early intervention service intensity and young children’s home participation. BMC pediatrics, 20(1), 330.
King-Dowling, S., Proudfoot, N. A., Cairney, J., & Timmons, B. W. (2020). Motor Competence, Physical Activity, and Fitness across Early Childhood. Medicine and science in sports and exercise, 52(11), 2342–2348.
King, G., McPherson, A. C., Kingsnorth, S., Gorter, J. W., Avery, L., Rudzik, A., & Ontario Independence Program Research (OIPR) Team (2020). Opportunities, experiences, and outcomes of residential immersive life skills programs for youth with disabilities. Disability and rehabilitation, 1–11. Advance online publication.
Kwok, E., Moodie, S., Cunningham, B. J., & Oram Cardy, J. E. (2020). Selecting and tailoring implementation interventions: a concept mapping approach. BMC health services research, 20(1), 385.
Lackner, C. L., Gorter, J. W., Segalowitz, S. J., & MyStory Study Group (2020). Cognitive Event-Related Potentials in Young Adults With Cerebral Palsy: A Proof-of-Concept Study. Clinical EEG and neuroscience, 1550059420977318. Advance online publication.
Lalloo, C., Diskin, C., Ho, M., Orkin, J., Cohen, E., Osei-Twum, J. A., Hundert, A., Jiwan, A., Sivarajah, S., Gumapac, A., & Stinson, J. N. (2020). Pediatric Project ECHO: Implementation of a Virtual Medical Education Program to Support Community Management of Children With Medical Complexity. Hospital pediatrics, 10(12), 1044–1052.
Leonardi, M., Lee, H., van der Veen, S., Maribo, T., Cuenot, M., Simon, L., Paltamaa, J., Maart, S., Tucker, C., Besstrashnova, Y., Shosmin, A., Cid, D., Almborg, A. H., Anttila, H., Yamada, S., Frattura, L., Zavaroni, C., Zhuoying, Q., Martinuzzi, A., Martinuzzi, M., … de Camargo, O. K. (2020). Avoiding the Banality of Evil in Times of COVID-19: Thinking Differently with a Biopsychosocial Perspective for Future Health and Social Policies Development. SN comprehensive clinical medicine, 1–3. Advance online publication.
Livingston, M. H., Elliott, T., Williams, C., Jones, S. A., Rosenbaum, P. L., & Walton, J. M. (2020). Glycerin suppositories used prophylactically in premature infants (supp): A pilot randomized controlled trial. Journal of neonatal-perinatal medicine, 13(4), 495–505.
Livingston, M. H., Mahant, S., Connolly, B., MacLusky, I., Laberge, S., Giglia, L., Yang, C., Roberts, A., Shawyer, A., Brindle, M., Parsons, S., Stoian, C., Walton, J. M., Thorpe, K. E., Chen, Y., Zuo, F., Mamdani, M., Chan, C., Loong, D., Isaranuwatchai, W., … Cohen, E. (2020). Effectiveness of Intrapleural Tissue Plasminogen Activator and Dornase Alfa vs Tissue Plasminogen Activator Alone in Children with Pleural Empyema: A Randomized Clinical Trial. JAMA pediatrics, 174(4), 332–340.
Livingston, M. H., Walton, J. M., Cohen, E., & Arca, M. J. (2020). Re: Pediatric empyemas-Has the pendulum swung too far?. Journal of pediatric surgery, S0022-3468(20)30938-6. Advance online publication.
Marin, J. R., Rodean, J., Hall, M., Alpern, E. R., Aronson, P. L., Chaudhari, P. P., Cohen, E., Freedman, S. B., Morse, R. B., Peltz, A., Samuels-Kalow, M., Shah, S. S., Simon, H. K., & Neuman, M. I. (2020). Trends in Use of Advanced Imaging in Pediatric Emergency Departments, 2009-2018. JAMA pediatrics, 174(9), e202209.
McCoy, S. W., Palisano, R., Avery, L., Jeffries, L., Fiss, A. L., Chiarello, L., & Hanna, S. (2020). Physical, occupational, and speech therapy for children with cerebral palsy. Developmental medicine and child neurology, 62(1), 140–146.
McManus, B. M., Murphy, N. J., Richardson, Z., Khetani, M. A., Schenkman, M., & Morrato, E. H. (2020). Family-centred care in early intervention: Examining caregiver perceptions of family-centred care and early intervention service use intensity. Child: care, health and development, 46(1), 1–8.
McPhee, P. G., Singh, S., & Morrison, K. M. (2020). Childhood Obesity and Cardiovascular Disease Risk: Working Toward Solutions. The Canadian journal of cardiology, 36(9), 1352–1361.
McPhee, P. G., Verschuren, O., Peterson, M. D., Tang, A., Gorter, J. W. (2020). The Formula for Health and Well-Being in Individuals With Cerebral Palsy: Cross-Sectional Data on Physical Activity, Sleep, and Nutrition. Annals of rehabilitation medicine, 44(4), 301–310.
Metzler, M. J., Haspels, E., Brunton, L., Andersen, J., Pritchard, L., Herrero, M., Hodge, J., & Kirton, A. (2020). Goals of children with unilateral cerebral palsy in a brain stimulation arm rehabilitation trial. Developmental medicine and child neurology, 10.1111/dmcn.14763. Advance online publication.
Mezil, Y., Obeid, J., Raha, S., Hawke, T. J., & Timmons, B. W. (2020). The Systemic Effects of Exercise on Regulators of Muscle and Bone in Girls and Women. Pediatric exercise science, 1–7. Advance online publication.
Moll, S., Wyndham-West, M., Mulvale, G., Park, S., Buettgen, A., Phoenix, M., Fleisig, R., Bruce, E. (2020). Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations. BMJ open, 10(11), e038339.
Mondal, T. K., Muddaluru, V., Jaafar, A., Gupta-Bhatnagar, S., Greville, L. J., Gorter, J. W. (2020). Transition of adolescents with congenital heart disease from pediatric to adult congenital cardiac care: lessons from a retrospective cohort study, Journal of Transition Medicine, (1), 20190003.
Montpetit-Tourangeau, K., Kairy, D., Ahmed, S., Anaby, D., Bussières, A., Lamontagne, M. È., Rochette, A., Shikako-Thomas, K., & Thomas, A. (2020). A strategic initiative to facilitate knowledge translation research in rehabilitation. BMC health services research, 20(1), 973.
Mukerji, A., Shafey, A., Jain, A., Cohen, E., Shah, P. S., Sander, B., & Shah, V. (2020). Pulse oximetry screening for critical congenital heart defects in Ontario, Canada: a cost-effectiveness analysis. Canadian journal of public health = Revue canadienne de sante publique, 111(5), 804–811.
Nguyen, L., Jack, S., Ketelaar, M., Di Rezze, B., Soper, A. K., Gorter, J. W. (2020). Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood: A qualitative meta-ethnography. Child: care, health and development, 46(6), 667–681.
Orkin, J., Beaune, L., Moore, C., Weiser, N., Arje, D., Rapoport, A., Netten, K., Adams, S., Cohen, E., & Amin, R. (2020). Toward an Understanding of Advance Care Planning in Children With Medical Complexity. Pediatrics, 145(3), e20192241.
Palisano, R. J., Chiarello, L. A., Avery, L., Hanna, S., & On Track Study Team (2020). Self-Care Trajectories and Reference Percentiles for Children with Cerebral Palsy. Physical & occupational therapy in pediatrics, 40(1), 62–78.
Palisano, R. J., Winders, P. C. (2020). Commentary on “Basic Motor Skills of Children with Down Syndrome: Creating a Motor Growth Curve”. Pediatric Physical Therapy, 32, 381.
Paz Pérez-Salas, C., Ortega, A., Parra, V., Rosenbaum, P. (2020). School placement and participation of Chilean young people with cerebral palsy. International Journal of Inclusive Education.
Pentland, M., Cohen, E., Guttmann, A., de Oliveira, C. (2020). Maximizing the impact of the Canada Child Benefit: Implications for clinicians and researchers, Paediatrics & Child Health, pxaa092.
Phoenix, M., Chiarello, L., Pinto, M., & King, G. (2020). Recruitment in Pediatric Rehabilitation Research: Challenges, Strategies, Impact on Evidence-Informed Care, and a Call to Action. Physical & occupational therapy in pediatrics, 40(4), 365–370.
Poder, T., Carrier, N., Roy, M., Camden, C. (2020). A Discrete Choice Experiment on Women’s Preferences for Water Immersion During Labor and Birth: Identification, Refinement and Selection of Attributes and Levels. Health Related Quality of Life in Health Care. 17(6): 1936.
Pratte, G., Couture, M., Boisvert, M.-È., Clapperton, I., Bergeron, J., Roy, M. A., Dion, É., Camden, C. (2020). Participation in Activities Fostering Children’s Development and Parental Concerns about Children’s Development: Results from a Population-Health Survey of Children Aged 0-5 Years in Quebec, Canada. International Journal of Environmental Research and Public Health. 17(8): 2878.
Pratte, G., Couture, M., Morin, M., Berbari, J., Tousignant, M., Camden C. (2020). Evaluation of a Web Platform Aiming to Support Parents Having a Child with Developmental Coordination Disorder: Brief Report. Developmental neurorehabilitation. 23(1): 64-67.
Resch, C., Van Kruijsbergen, M., Ketelaar, M., Hurks, P., Adair, B., Imms, C., De Kloet, A., Piskur, B., & Van Heugten, C. (2020). Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Developmental medicine and child neurology, 62(4), 434–444.
Ronen, G. M., de Camargo, O. K., Rosenbaum, P. L. (2020). How Can We Create Osler’s “Great Physician”? Fundamentals for Physicians’ Competency in the Twenty-first Century. Med.Sci.Educ., 30, 1279–1284.
Rosenbaum P. (2020). Challenges of Guidelines: A Look at the Systematic Review of Clinical Guidelines Related to the Care of Individuals With Cerebral Palsy. Archives of physical medicine and rehabilitation, S0003-9993(20)31338-1. Advance online publication.
Rosenbaum P. (2020). How do we know if interventions in developmental disability are effective?. Developmental medicine and child neurology, 62(12), 1344.
Rosenbaum P. (2020). ‘You have textbooks; we have story books’. Disability as perceived by professionals and parents. Developmental medicine and child neurology, 62(6), 660.
Rosenbaum, P. L., Silva, M., & Camden, C. (2020). Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability. Disability and rehabilitation, 1–7. Advance online publication.
Rotberg, B., Wittenberg, J., Orkin, J., Saunders, N. R., & Cohen, E. (2020). Caring about caregivers: the role of paediatricians in supporting the mental health of parents of children with high caregiving needs. Archives of disease in childhood, 105(11), 1028–1030.
Roy, M., Lavoie-Trudeau, É., Roy, M. A., Clapperton, I., Couturier, Y., Lane, J., Bibeau, L., Ouellette, M., Benkhalti, M., Camden, C. (2020). Barriers and Facilitators to Implementing Community Outreach Work, and Inter-professional Collaboration with Regional Partners. Journal of Community Health. 45(5): 979-986.
Ruiter, K. I., Boshra, R., DeMatteo, C., Noseworthy, M., & Connolly, J. F. (2020). Neurophysiological markers of cognitive deficits and recovery in concussed adolescents. Brain research, 1746, 146998.
Saunders, N. R., Ray, J. G., Diong, C., Guan, J., & Cohen, E. (2020). Primary care of mothers and infants by the same or different physicians: a population-based cohort study. CMAJ : Canadian Medical Association journal = journal de l’Association medicale canadienne, 192(36), E1026–E1036.
Scheffer, I. E., Boysen, K. E., Schneider, A. L., Myers, C. T., Mehaffey, M. G., Rochtus, A. M., Yuen, Y. P., Ronen, G. M., Chak, W. K., Gill, D., Poduri, A., & Mefford, H. C. (2020). BRAT1 encephalopathy: a recessive cause of epilepsy of infancy with migrating focal seizures. Developmental medicine and child neurology, 62(9), 1096–1099.
Scholten, E., Ketelaar, M., Visser-Meily, J., Roels, E. H., Kouwenhoven, M., POWER Group, & Post, M. (2020). Prediction of Psychological Distress Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others. Archives of physical medicine and rehabilitation, 101(12), 2093–2102.
Scholten, E., Ketelaar, M., Visser-Meily, J., Stolwijk-Swüste, J., van Nes, I., Gobets, D., POWER Group, & Post, M. (2020). Self-Efficacy Predicts Personal and Family Adjustment Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others: A Dyadic Approach. Archives of physical medicine and rehabilitation, 101(11), 1937–1945.
Selvakumaran, S., Thompson-Hodgetts, S., Nicholas, D. B., Fan, L., Fang, H., Di Rezze, B. (2020). An umbrella review of the impact of the environment on the productive lives of individuals with autism and other neurodevelopmental disabilities. Current Developmental Disorders Reports, 7, 197-226.
Shahin, S., Reitzel, M., Di Rezze, B., Ahmed, S., & Anaby, D. (2020). Environmental Factors that Impact the Workplace Participation of Transition-Aged Young Adults with Brain-Based Disabilities: A Scoping Review. International journal of environmental research and public health, 17(7), 2378.
Sharma, B., Allison, D., Tucker, P., Mabbott, D., & Timmons, B. W. (2020). Cognitive and neural effects of exercise following traumatic brain injury: A systematic review of randomized and controlled clinical trials. Brain injury, 34(2), 149–159.
Shulman, R., Cohen, E., Benchimol, E. I., & Nakhla, M. (2020). Methods for Measuring the Time of Transfer from Pediatric to Adult Care for Chronic Conditions Using Administrative Data: A Scoping Review. Clinical epidemiology, 12, 691–698.
Soper, A. K., Cross, A., Rosenbaum, P., Gorter, J. W. (2020). Knowledge translation strategies to support service providers’ implementation of the “F-words in Childhood Disability”. Disability and rehabilitation, 1–7.
Soper, A. K., Cross, A., Rosenbaum, P., Gorter, J. W. (2020). Service Providers’ Perspectives on Using the ‘F-Words in Childhood Disability’: An International Survey. Physical & occupational therapy in pediatrics, 40(5), 534–545.
Tajik-Parvinchi, D. J., Farmus, L., Cribbie, R., Albaum, C., Weiss, J. A. (2020). Clinical and Parental Predictors of Emotion Regulation Following Cognitive Behaviour Therapy in Children with Autism. Autism: The International Journal of Research and Practice, 24(4): 851-866.
Tajik-Parvinchi, D., Davis, A., Roth, S., Rosenbaum, P., Hopmans, S. N., Dudin, A., Hall, G., Gorter, J. W., & MyStory Study Group (2020). Functional connectivity and quality of life in young adults with cerebral palsy: a feasibility study. BMC neurology, 20(1), 388.
van der Slot, W., Benner, J. L., Brunton, L., Engel, J. M., Gallien, P., Hilberink, S. R., Månum, G., Morgan, P., Opheim, A., Riquelme, I., Rodby-Bousquet, E., Şimşek, T. T., Thorpe, D. E., van den Berg-Emons, R., Vogtle, L. K., Papageorgiou, G., & Roebroeck, M. E. (2020). Pain in adults with cerebral palsy: A systematic review and meta-analysis of individual participant data. Annals of physical and rehabilitation medicine, 101359. Advance online publication.
van Schelven, F., van der Meulen, E., Kroeze, N., Ketelaar, M., & Boeije, H. (2020). Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program. Research involvement and engagement, 6, 59.
VanderKaay, S., Letts, L., Jung, B., & Moll, S.E. (2020). Doing what’s right: A grounded theory of ethical decision-making in occupational therapy. Scandinavian Journal of Occupational Therapy, 27(2), 98–111.
Villegas, V., Bosak, D., Kaelin, V., Jarvis, J., Anaby, D., Teplicky, R., Khetani, M.A. (2020). Leveraging technology for family-centered and participation-focused care planning: A feasibility and pilot study of the Participation and Environment Measure-Plus (PEM+). American Journal of Occupational Therapy, 74(4), 7411515338.

Books/Book Chapters

Anaby, D. (2020). Providing opportunities for participation – a focus on the environment. In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Anaby, D. (2020). Cultural perspectives on participation; A newcomer to Canada. In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Ketelaar, M., Smits, D. W., Van Meeteren, K., Klem, M., Alsem, M. W. (2020). Involvement of young people and families in all stages of research: What, why and how? In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Tajik-Parvinchi, D. (2020). Cognitive Behavior Therapy. In: Maich, K., Penny, S. C., Alves K., & Hall, H. (Ed.). Autism Spectrum Disorder in the Canadian Context; An Introduction. Canadian Scholars, Toronto, Ontario, Canada..

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