ENabling Visions And Growing Expectations
ENVISAGE (ENabling Visions And Growing Expectations) is a program originally developed by Canadian and Australian researchers, clinicians and parents of children with disabilities to give other caregivers the tools to conceptualize contemporary strengths-based ideas about health and development. The goal of ENVISAGE-Familieswas to help parents be able to communicate and collaborate with service providers, and connect with other parents in similar life situations. The program has since expanded to offer these ideas and materials to service providers (ENVISAGE-SP) and to members of communities distinguished by culture (ENVISAGE First Peoples) and language (ENVISAGE-Croatia). With further experience and requests from a wide range of people, the ENVISAGE PROGRAM is striving to accommodate these requests, and planning for other applications is anticipated in the future.
In 2022, the ENVISAGE team published the results of data collected from the 65 parents of children with neurodevelopmental disabilities who participated in the ENVISAGE-Families workshops across Australia and Canada. We found that at all stages of the development of the materials and the delivery of ENVISAGE, parents were both pleased and very supportive and helpful. The program itself – five weekly virtual workshops co-facilitated by a parent and a researcher – led to marked enhancement of parents’ self-reported sense of empowerment and their sense of confidence in parenting. Qualitative findings from scores of interviews confirmed parents’ sense of the value of what one parent called ‘Early intervention for parents!’
Over the course of 2022, presentations were given at the Australasian Academy of Cerebral Palsy and Developmental Medicine, Melbourne and the Murdoch Children’s Research Institute, Melbourne, and a poster at the Developmental Origins of Health and Disease, 12th World Congress, Vancouver, BC.
Publications in 2022 included:
- Miller et al. ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers' perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability. Res Dev Disabil. Epub 2021 Dec 20.
- Pozniak et al. Co-development of the ENVISAGE-Families programme for parents of children with disabilities: Reflections on a parent-researcher partnership. Australian Occupational Therapy Journal.1-9.
- Miller et al. Impact of "early intervention" parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study. Disability and Rehabilitation,
(Please see below for a full list of presentations, posters and publications).
In December 2022, the Government of Australia’s Department of Social Services awarded the ENVISAGE team a 3-year, $6.9M AUD grant to deliver the ENVISAGE-Families program across their country. Work was undertaken to update the program modules and begin training Service Providers and Parent Peer facilitators to deliver workshops beginning early in 2023. We will be reporting next year on the national rollout of this program.
ENVISAGE-SP (ENabling Visions And Growing Expectations for Service Providers) is a program co-developed by researchers, clinicians and parents of children with disabilities for Service Providers (SPs) who work in the field of paediatric disability. ENVISAGE-SP promotes the adoption of a holistic, strengths-based, function-promoting, family-centred approach to children’s health and development. The program (i) provides the tools to conceptualize contemporary ideas about health and development; (ii) encourages the implementation of these key ideas in the clinical practice of SPs; (iii) aims to improve the application of family-centred services (FCS); and (iv) strengthens SP-family communication and engagement. This program complements the ENVISAGE-Families program so that everyone involved in child-onset neurodevelopmental disability work can use a common lens and language with a view to supporting families and setting shared goals, expectations and priorities.
ENVISAGE-FP (ENabling Visions And Growing Expectations for First Peoples) is a program under development in Australia for Aboriginal and Torres Strait Islanders. In conjunction with the Institute for Urban Indigenous Health (IUIH), this program is currently being culturally adapted for national delivery in 2023.
ENVISAGE-Croatia is an adaptation of the ENVISAGE-Families program tailored linguistically and culturally for delivery in Croatia. This program was developed and delivered in 2020 to 2021 as part of Monika Novak Pavlic’s doctoral dissertation under the supervision of Dr. Peter Rosenbaum. The objectives were: (1) to perform cross-cultural and language adaptation and proof-of-concept pilot exploration of an innovative, strengths-based support program ENVISAGE-Families for parents of children with neurodevelopmental disabilities in Croatia; (2) to refine the Croatian version of the program according to the pilot study results; (3) to run the first set of ENVISAGE workshops and evaluate their impact on Croatian parents’ perception of self, their child with a disability and their family; and (4) to learn about participants’ experience with the program. The program was successfully piloted in Croatia according to all feasibility criteria and outputs. The results showed that ENVISAGE-Croatia is an acceptable and valuable program for parents of children with developmental disabilities in Croatia, as viewed by parents of children with NDD (0-18 years) and professionals working in the field of childhood disability.
In the pilot implementation of ENVISAGE in Croatia, we were interested to assess the perceived changes that occurred as a result of taking part in ENVISAGE. Based upon exploration of the findings using discourse analysis methodology, ENVISAGE-Croatia was shown to be a highly valuable program for empowering mothers of children in their perception of themselves, their child with a disability, and their family. We observed desirable changes on all three domains of variables: an increase in positive and a decrease in negative verbal expressions about self, child with a disability and family. Mothers who completed the study consistently reported high satisfaction with the program across the sample. As ENVISAGE continues to grow in Croatia and internationally, it will be equally important to assess its effectiveness and processes of implementation process through both quantitative and qualitative methodologies. Dr. Novak Pavlic successfully defended her thesis in September 2022. We hope that this program will be the first of further international work in various settings across the globe.
References to Papers and Presentations
Cross, A., Miller, L., Imms, C., Rosenbaum, P., Hughes, D., Martens, R., Babic, R., Cavalieros, V., Pozniak, K.,O’Connor, B., Rodrigues, M., Novak Pavlic, M. Impact of ENVISAGE (ENabling VISions And Growing Expectations): An online program for caregivers of children with neurodisabilities. Poster Presentation, Developmental Origins of Health and Disease, 12th World Congress, Vancouver, BC, August 2022.
Dezmar, D., Grgic, V., Novak Pavlic, M., Abramovic, I., Vlasic, K., Ilicic, A. M., Rosenbaum, P. (2022). The experiences with the implementation of the ENabling VISions And Growing Expectations (ENVISAGE) program for parents of children with disabilities (0-6 years) in Croatia. The Association of Educational Rehabilitators Conference 2022 “Collaboration in Educational Rehabilitation”. Vodice, Croatia.
Imms, C., Cavalieros, V., Babic, R., Miller, L (2022). ENVISAGE: Enabling Visions and Growing Expectations. Inited presentation at the Murdoch Children’s Research Institute, Melbourne, VIC.
Miller, L., Babic, R., Martens, R. (2022). Early intervention workshops for parents: Impact on caregivers of preschoolers with neurodisabilities. A mixed methods study. Presentation at Australasian Academy of Cerebral Palsy and Developmental Medicine, Melbourne, Australia, January 2022.
Miller, L., Nickson, G., Pozniak, K., Khan, D., Imms, C., Ziviani, J., Cross, A., Martens, R., Cavalieros, V., & Rosenbaum, P. (2022). ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers' perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability. Research in developmental disabilities, 121, 104150. https://doi.org/10.1016/j.ridd.2021.104150
Miller L, Imms C, Cross A, Pozniak K, O'Connor B, Martens R, Cavalieros V, Babic R, Novak-Pavlic M, Rodrigues M, Balram A, Hughes D, Ziviani J, Rosenbaum P. Impact of "early intervention" parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study. Disabil Rehabil. 2022 Nov 20:1-12. doi: 10.1080/09638288.2022.2143579. Epub ahead of print. PMID: 36404703.
Novak Pavlic, M., Ilicic, A. M., Rosenbaum, P. (2022). Exploring transferability of the ENabling VISions And Growing Expectations (ENVISAGE) program in Croatia: a proof-of-concept explanatory sequential mixed-method study. 6th Croatian Symposium on Early Childhood Intervention “Understanding and supporting the family of a child with developmental risks or difficulties”. Zagreb, Croatia.
Novak Pavlic, M., Grgic, V., Vlasic, K., Dezmar, D., Abramovic, I., Ilicic, A. M., Rosenbaum, P. (2022). Examining the impact and evaluation of the ENVISAGE program in Croatia: a discourse analysis study. 6th Croatian Symposium on Early Childhood Intervention “Understanding and supporting the family of a child with developmental risks or difficulties”. Zagreb, Croatia.
Pozniak, K., Cross, A., Babic, R., Cavalieros, V., Martens, R., Rosenbaum, P., Imms, C., Novak-Pavlic, M.,Balram, A., Hughes, D., O'Connor, B., & Miller, L. (2022). Co-development of the ENVISAGE-Families programme for parents of children with disabilities: Reflections on a parent-researcher partnership. Australian Occupational Therapy Journal, 10.1111/1440-1630.12811. Advance online publication. https://doi.org/10.1111/1440-1630.12811.
Envisage study link