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AR-P4C

By geil|2021-06-22T12:08:06-04:00May 22nd, 2020|

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Partners

Family Advisors/Co-Investigators

Brenda Agnew, CP-NET & C-BiLLT Project

Rachel Barrett, COVID Time Capsule Project

Elizabeth Chambers, MPOC 2.0 Project

Genevieve Currie, Family Engagement in Research and COVID Time Capsule Projects

Amanda Doherty-Kirby, COVID Time Capsule and Youth Engagement in Research Projects

Kathy Fruck, CP-NET

Danijela Grahovac, F-words & C-BiLLT Projects

Manda Krpan Mesic, CP-NET

Jeanine Lebsack, COVID Time Capsule Project

Ali Martens, MPOC 2.0 Project

Rachel Martens, MPOC 2.0, ENVISAGE and Family Engagement in Research Projects

Susan McCoy, CP-NET

Joanne Mosel, F-words & CHILD-BRIGHT READYorNot™ BBD Projects

Heather Oliver-Hamilton, F-words Project

Sara Pot, F-words & Family Engagement in Research Projects

Kinga Pozniak, CP-NET & CHILD-BRIGHT READYorNot™ BBD Project

Connie Putterman, Family Engagement in Research & MPOC 2.0 Projects

Heather Shearer, CP-NET

Roger Stoddard, CHILD-BRIGHT READYorNot™ BBD Project

Katarzyna Świeczkowska, F-words Project

Donna Thomson, Family Engagement in Research & CHILD-BRIGHT Projects

Youth/ Adult Advisors/Co-Investigators

Dana Arafeh, BestSIBS and CHILD-BRIGHT READYorNot™ BBD Projects

Musa Arafeh, CHILD-BRIGHT READYorNot™ BBD Project

Samantha Bellefeuille, BestSIBS Project

Kyle Chambers, CHILD-BRIGHT READYorNot™ BBD Project

Crystal Chin, CP-NET

Hanae Davis, BestSIBS Project

Claire Dawe-McCord, CHILD-BRIGHT READYorNot™ BBD Project

Michael Frost, CHILD-BRIGHT READYorNot™ BBD Project

Jessica Geboers, Youth Engagement in Research, CP-NET and COVID and Transition Projects, Transition Hub

Vasilije Grahovac, COVID Time Capsule Project

Jessica Havens, BestSIBS & CHILD-BRIGHT READYorNot™ BBD Projects

Zachary Kirby, COVID Time Capsule Project

James Koutrakos, BestSIBS Project

Callum LaCour, COVID Time Capsule Project

Maddox Lebsack, COVID Time Capsule Project

Sarah Mooney, Transition Hub

Amanda St. Dennis, Youth Engagement in Research and CP-NET Projects; Transition Hub

Danny Steeves, CP-NET

Nathan Tasker, CHILD-BRIGHT READYorNot™ BBD Project

Natasha Trehan, Youth Engagement in Research Project and Transition Hub

Research Collaborators

Empowered Kids Ontario

Bloorview Research Institute

McMaster Autism Research Team

Offord Centre for Child Studies

Ontario Brain Institute

CHILD-BRIGHT Network

Kids Brain Health Network

McMaster Children’s Hospital

Trainees

Post-doctoral fellows

Christina Belza (Supervised by Eyal Cohen)

Zachary Boychuck (Supervised by Peter Rosenbaum)

Paula Chagas (Supervised by Peter Rosenbaum)

Eda Cinar (Supervised by Dana Anaby & Chantal Camden)

Andrea Cross (Supervised by Jan Willem Gorter)

Charlotte Danset (Supervised by Chantal Camden)

Hanae Davis (Supervised by Jan Willem Gorter) – until May 2021

Karen Hurtubise (Supervised by Chantal Camden)

Manraj Kaur (Supervised by Anne Klassen)

Elaine Kwok (Supervised by Peter Rosenbaum) – until April 2021

Esther Lee (Supervised by Eyal Cohen)

Patrick McPhee (Supervised by Brain Timmons & Jan Willem Gorter)

Samantha Micsinszki (Supervised by Michelle Phoenix)

Christelle Pons (Supervised by Jan Willem Gorter)

Kinga Pozniak (Supervised by Jan Willem Gorter)

Sabrin Rizk (Supervised by Mary Khetani)

Shazeen Suleman (Supervised by Eyal Cohen)

Diana Tajik-Parvinchi (Supervised by Briano DiRezze)

Sandra Vanderkaay (Supervised by Wenonah Campbell) – until June 2021

PhD Students

Sandra Abdel Malek (Supervised by Jan Willem Gorter)

Jael Bootsma (Supervised by Jan Willem Gorter)

Peter Cahill (Supervised by Wenonah Campbell)

Minxin Cheng (Supervised by Danielle Levac)

Isabelle Demers (Supervised by Chantal Camden)

Véronique Foley (Supervised by Chantal Camden)

Dinesh Ghatamaneni (Supervised by Laura Brunton)

Lina Ianni (Supervised by Dana Anaby & Chantal Camden)

Ghaidaa Khalifa (Supervised by Briano DiRezze)

Inge Klabe (Supervised by Marjolijn Ketelaar)

Linda Nguyen (Supervised by Jan Willem Gorter)

Monika Novak Pavlic (Supervised by Peter Rosenbaum)

Nikki Ow (Supervised by Dana Anaby)

Gabrielle Pratte (Supervised by Chantal Camden)

Meaghan Reitzel (Supervised by Michelle Phoenix)

Kathryn Rollins (Supervised by BJ Cunningham)

Mallory Ryan (Supervised by Dana Anaby)

Eline Scholten (Supervised by Marjolijn Ketelaar)

Liesbeth Segers (Supervised by Marjolijn Ketelaar)

Enid Selkirk (Supervised by Cheryl Missiuna)

Sureka Selvakumaran (Supervised by Briano DiRezze)

Saeideh Shahin (Supervised by Dana Anaby)

Ingrid Singer (Supervised by Jan Willem Gorter)

Alice Soper (Supervised by Peter Rosenbaum)

Stephanie Tremblay (Supervised by Dana Anaby)

Nathalie Trottier (Supervised by Chantal Camden)

Maren van Rijssen (Supervised by Marjolijn Ketelaar)

Vera Kaelin (Supervised by Mary Khetani)

Meaghan Lewcock (Co-supervised by BJ Cunningham)

Lianne Verhage-Schregardus (Supervised by Jan Willem Gorter)

Bhanu Sharma (Supervised by Brian Timmons)- until July 2021

Maddy Byra (Supervised by Brian Timmons)

Jia Lu Lin (Supervised by Eyal Cohen)

Advisory Board and Governance

Advisory Board

Ian Buchanan

Jennifer Crowson

Andrey Feldman

Susanne Flett

Jonathan Lu

David Mosher

Frank Naus

Peter Rosenbaum

Natasha Trehan

Scientific Advisory Board

Jan Willem Gorter, Director

Peter Rosenbaum, Co-founder

Wenonah Campbell, Scientist

Mary Khetani, Scientist

Dayle McCauley, Research Development Officer

Cheryl Missiuna, Scientist (until September 2021)

Brian Timmons, Scientist

Robert Palisano, Scientist

Governance

School Of Rehabilitation Science

Dina Brooks, Vice Dean

Zrinka Granic, Director of Administration

Department Of Pediatrics

Angelo Mikrogianakis, Chair

Sarah Bouma/Gunjan Srivistava, Director of Administration

CanChild Scientists

Director

Jan Willem Gorter (McMaster University) until June 30, 2021

Dina Brooks (Acting Director – July 1^st 2021- Present)

Co-founders

Mary Law (McMaster University)

Peter Rosenbaum (McMaster University)

Scientists

Dana Anaby (McGill University)

Laura Brunton (Western University)

Chantel Camden (University of Sherbrooke)

Wenonah Campbell (McMaster University)

Eyal Cohen (University of Toronto)

BJ Cunningham (Western University)

Carol DeMatteo (McMaster University)

Briano DiRezze (McMaster University)

Marjolijn Ketelaar (University Medical Center Utrecht)

Mary Khetani (University of Illinois at Chicago)

Anne Klassen (McMaster University)

Olaf Kraus de Camargo (McMaster University)

Danielle Levac (University of Montreal)

Robert Palisano (Drexel University)

Michelle Phoenix (McMaster University)

Gabriel Ronen (McMaster University)

Brian Timmons (McMaster University)

Sandra Vanderkaay (McMaster University) – as of October 2021

Scientists Emeritus

Doreen Bartlett (Western University)

Johanna Darrah (University of Alberta)

Marilyn Kertoy (Western University)

Cheryl Missiuna (McMaster University)

Dianne Russell (McMaster University)

Debra Stewart (McMaster University)

Nancy Thomas-Stonell (Bloorview Research Institute)

Stephen Walter (McMaster University)

Associate members

Gary Bedell (Tufts University)

Sheila Bennett (Brock University)

Jan Burke-Gaffney (McMaster University)

John Cairney (The University of Queensland)

Lisa Chiarello (Drexel University)

Wendy Coster (Boston University)

Nora Fayed (Queen’s University)

Darcy Fehlings (University of Toronto)

Mark Ferro (University of Waterloo)

Robin Gaines (Children’s Hospital of Eastern Ontario)

Barbara Gibson (University of Toronto)

Adrienne Harvey (Royal Children’s Hospital)

Sandy Hodgetts (University of Alberta)

Christine Imms (Australian Catholic University)

Lynn Jeffries (University of Oklahoma)

Marian Jongmans (Utrecht University)

Gillian King (Bloorview Research Institute)

Dafna Kohen (Statistics Canada)

Niina Kolehmainen (Newcastle University)

Lena Krumlinde-Sundholm (Karolinska Institutet)

Matthew Kwan (McMaster University)

Lucyna Lach (McGill University)

Alyssa LaForme Fiss (Mercer University)

Sanjay Mahant (Hospital for Sick Kids)

Lívia Magalhães (Federal University of Minas Gerais)

Ronit Mesterman (McMaster University)

Chris Morris (University of Exeter)

Eva Nordmark (Lund University)

Iona Novak (University Notre Dame)

Barbara Piskur (Zuyd University)

Keiko Shikako-Thomas (McGill University)

Olaf Verschuren (Rehabilitation Centre de Hoogstraat)

Jonathan Weiss (York University)

Sarah Westcott McCoy (University of Washington)

Virginia Wright (Bloorview Research Institute)

Lonnie Zwaigenbaum (University of Alberta)

Jill Zwicker (University of British Columbia)

RESEARCH & KT SUPPORT

CanChild Staff

Geil Astorga, Marketing and Communications Associate

Bailey Featherston, Business Development Analyst

Anne MacLeod, Administrative Assistant

Danijela Grahovac, Senior Technical Support Analyst

Dayle McCauley, Research Development Officer

Donna Johnston, Finance Coordinator

Rachel Teplicky, Business & Engagement Officer

Laura Turner, Clinician Consultant

Marilyn Wright, Clinician Consultant

Research Staff/Assistants

Leah Dix, FIRST KIT & P4C Projects

Sarah Earl, MPOC 2.0 Project

Hanna Fang, ACSF:SC Project

Barb Galuppi, CHILD-BRIGHT Project

Brittany Harding, F-words Project

Sarah Hopmans, CP-NET, C-BiLLT and Pain Projects

Debbie Hughes, ENVISAGE Project

Josie Jakubowski, Back to Play Project

Annie Jiang, P4C Project

Nadilein Mahlberg, CHILD-BRIGHT Project

Rachel Martens, Family Engagement in Research Project

Sarah Randall, Back to Play Project

Sandra Sahagian Whalen, P4C Project

Alice Soper, Family Engagement in Research, CP-NET and Transition Hub Projects

Kathy Stazyk, Back to Play Project

Sonya Strohm, CHILD-BRIGHT Project

Sarah Terreberry, P4C Projects

Vanessa Tomas, F-Words Project

Student Research Assistants

Samantha Dong

Brittany Harding (until Sept 2021)

Jathushika Ilangkumaran

Chitrini Tnadon

Rebecca Yakubov

Rose Yakubov

Engagement

5,436 Facebook followers and 5,078 Twitter followers for 2020

CanChild uses different methods to engage with our knowledge users. In 2020, CanChild had:

331, 311 CanChild website visitors from 181 countries
5,311 likes on CanChild Facebook page from 45 countries
5, 078 followers on CanChild Twitter
1, 679 retweets of CanChild posts on Twitter
249 members in our Parents Partnering in Research closed Facebook group

Connect with us!

	Facebook
	Twitter
	LinkedIn
	Subscribe to our newsletter
	Visit our website

CanChild Today!

In 2020, CanChild Today! newsletter had 5, 266 subscribers. Below are selected news, awards, and team activities featured in the newsletter throughout the year.

January

Linda Nguyen received the Australian Cerebral Palsy Alliance Conference Grant, an award that allowed her to attend the European Academy of Childhood Disability (EACD) Conference and present her research on the experiences of siblings with a brother or sister with a disability who are preparing for health care transition.
The CanChild team gathered on January 23, 2020, to celebrate the awarding of the John and Margaret Lillie Chair in Childhood Disability Research to Dr. Wenonah Campbell. The celebration also honoured the former holders of the Chair, Dr. Cheryl Missiuna and Dr. Mary Law.

L to R: Dr. Mary Law, Dr. Cheryl Missiuna, and Dr. Wenonah Campbell

February

Dr. Andrea Cross, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Julia Hanes, Danijela Grahovac & Vasilije presented during the Ontario Brain Institute Public Talk about the F-Words: Finding the Ability in Disability
The Concussion team hosted the Concussion Experience Exhibition at various sports events in the cities of Oakville, Burlington, and Hamilton.
Dr. Dana Anaby and team received the Canadian Institutes of Health Research (CIHR) Grant to examine whether engaging in a self-chosen activity in the community can lead to improvements in the motor, cognitive, and affective body functions of children with disabilities.

OBI Public Talk - F-Words: finding the ability in disability (L to R: Andre Picard, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Dr. Andrea Cross, Julia Hanes, Danijela Grahovac, Vasilije Grahovac)

L to R: Andre Picard, Dr. Jan Willem Gorter, Dr. Peter Rosenbaum, Dr. Andrea Cross, Julia Hanes, Danijela Grahovac, Vasilije Grahovac

March

The CanChild team transitioned to working from home and other research activities were conducted remotely.
Launch of the Dutch version of Developmental Coordination Disorder online workshop.

April

Peter Rosenbaum discussed the F-Words for Child Development as part of the Caring During COVID campaign of McMaster Children’s Hospital.
Developmental Medicine & Child Neurology (DMCN) released a podcast featuring Dr. Peter Rosenbaum and his editorial, “You have textbooks, we have story books: disability as perceived by professionals and parents.”

May

Launch of #MyCOVIDDisabilityQ Twitter Campaign, an online space for Canadian children and youth with disabilities, as well as family members speaking on their behalf, to ask questions that relate to both their disabilities and the COVID-19 outbreak.
Andrea Cross received the CIHR Fellowship: Patient-Oriented Research Awards – Transition to Leadership Stream – Phase 1 as a Post Doctoral Fellow.
Linda Nguyen received the CIHR Fellowship: Patient-Oriented Research Award as a Doctoral student and the Mitacs Globalink Research Award.
Michelle Phoenix published an article in The Conversation about the impacts of COVID-19 to children with disabilities.
The Networks of Centres of Excellence Program renewed the Kids Brain Health Network (KBHN) for three more years, resulting in KBHN’s continued support the Family Engagement in Research (FER) Certificate of Completion Program run by CanChild.

June

As part of the efforts to improve equity, inclusion, and diversity, CanChild developed strategies to increase the representation of different populations across our online channels.

July

Redesigned the F-Words for Child Development logo to highlight the importance and relevance of the ‘F-Words’ for all children.

August

Celebrated the birthday and memory of Luke Martens by encouraging the online community to post a photo with Luke’s favourite dessert, ice cream, using the hashtag #IceCreamForLuke or to donate to a children’s hospital of their choice.
Launch of the short video series featuring nonverbal people and their families, with the hope to inspire everyone with their stories and change the social stigma around nonverbal people.

September

Dr. Olaf Kraus de Camargo, Dr. Kinga Pozniak, Dr. Matt Freeman, and Dr. Farah Ahmad shared the preliminary results of their study about COVID-19 supports for people with disabilities and caregivers.
Dr. Jan Willem Gorter presented at the Lunch & Learn Seminars and Instructional Courses session of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) 74th Annual Meeting.

October

Dr. Peter Rosenbaum published an op-ed piece in The Hamilton Spectator, where he shared the important factors that contribute to the improvement of children’s health during the pandemic.
Canadian Institutes of Health Research -IHDCYH featured C-BiLLT, a computer program used to assess the language comprehension levels of non-verbal children. The article, written by Jael Bootsma, highlights how the tool can also help in setting therapy goals that reflect the skills of the children.

November

Dr. Peter Rosenbaum was invited as a Keynote Speaker at the 32nd European Academy of Childhood Disability Annual Meeting.

Grants

CanChild 2020 Funded Grants

Anaby, D., Camden, C., Quinn, M., Campbell, W., Colquhoun, H., Ianni, L. (2020-2021) Supporting children with disabilities in mainstream schools: Developing a guided stakeholder-oriented knowledge translation intervention to optimize collaboration between occupational therapists and teachers. CanChild Research Grant, McMaster University. Funding amount: $9,985.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Palisano, R., Teplicky, R., Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) The impact of participation on body functions among youth with physical disabilities: A pragmatic individual-based study. Canadian Institutes of Health Research, Operating Supplement, Project Grant. Funding amount: $9,441.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Palisano, R., Teplicky, R., Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) The impact of participation on body functions among youth with physical disabilities: A pragmatic individual-based study. Canadian Institutes of Health Research, Project Grant. Funding amount: $271,576.
Anaby, D., Gorter, J. W., Levin, M., Avery, L., Teplicky, R. Turner, L., Cormier, I., Coulter, J., Hanes, J. (2020-2021) Priority Announcement: Musculoskeletal, Skin and Oral Health: Clinical Research – Musculoskeletal Health Institution. Canadian Institutes of Health Research, Operating Supplement, Project Grant. Funding amount: $10,256.
Batthish, M., Gorter, J. W., Beattie, K., Dushnicky, M., McCauley, D., Cellucci, T., Heale, L., Talaat, H., Thomas, S., & Herrington, J. (2020-2022) TRansition US Together (TRUST) Study: A Parent-Centered Educational Toolkit to Support Their Adolescents with JIA and cSLE as They Transition to Adult Care. Hamilton Academic Health Sciences Organization. Funding amount: $197,979.
Beelen J.A.J., Oude Lansink I.L.B., vd Pol W.L., Visser-Meily J.M.A, Gorter, J. W., Bartels B. (2020) Contractures in children with spinal muscular atrophy (SMA) and their impact on daily functioning. Prinses Beatrix Spierfonds – Spieren voor Spieren. Funding amount: €222,397.
Camden, C., Malboeuf-Hurtubise, C., Bussières, E., Chadi, N., Généreux, M., Gorter, J. W., Jasmin, E., Kalubi, J., Lane, J., Montreuil, M., Roberge, P., Tremblay, K. (2020) Quelles sont les répercussions de la pandémie du COVID-19 sur la santé mentale des enfants de 5-12 ans, et quels sont les enjeux particuliers pour les enfants handicapés ou ayant une maladie chronique? Une scoping review des problématiques vécues et des pistes d’interventions prometteuses. Canadian Institutes of Health Research, Operating Grant: Knowledge Synthesis: COVID-19 in Mental Health & Substance. Funding amount: $50,000.
Campbell, W., Romoff, S., Anaby, D., Camden, C., Phoenix, M., Cahill, P., Reitzel, M. (2020-2021) Supporting pediatric rehabilitation service decision needs: A rapid review. CanChild Research Grant, McMaster University. Funding amount: $9,989.
Couture, M., Desormeaux-Moreau, M., Courcy, I., Roberge, P., Camden, C. (2020-2022) Mise en place d’une plateforme de soutien en ligne conçue par et pour les personnes autistes : une démarche citoyenne qui s’enracine dans le croisement des savoirs expérientiels, pratiques et scientifiques. Fondation VITAE, Fonds pour l’élaboration d’un projet de recherche. Funding amount: $25,000.
Cross, A., Gorter, J. W., Chambers, C., Solomon, P., Thomson, D., Putterman, C. (2020-2023) Family engagement in research: Evaluation, sustainability and scalability of an online training program for family and research partners in child health research. Fellowship: Patient-Oriented Research Awards – Transition to Leadership Stream – Phase 1. Funding amount: $232,500.
Cross, A., Hesketh, K., McMurdie, G., van Beers, M., Young, R., Gorter, J. W., Grahovac, D., Rosenbaum, P., Soper, A., Teplicky, R., Tomas, V. (2020-2021) Planning for the Evaluation of the Impact of the ‘F-words’ in Childhood Disability across Ontario Organizations. Canadian Institutes of Health Research. Funding amount: $8,000.
Cunningham, B. J. (2020) Exploring the effectiveness of a parent-implemented program for supporting language and social skill development in children who are late-to-talk. Western Strategic Support for Social Sciences and Humanities Research Council Success Program. Funding amount: $22,500.
Cunningham, B. J., Bootsma, J., McCauley, D. (2020-2021) Exploring clinicians’ experiences using the C-BiLLT to support implementation in the Canadian practice context: An international survey and interview study. CanChild Internal Grant. Funding amount: $9,800.
Cunningham, B. J., Glista, D., Moodie, S., Cardy, J., Servais, M., Weitzman, E.. (2020-2021) COVID-19 and parents’ experiences participating in virtual training to support children’s language and social communication development. Social Sciences and Humanities Research Council COVID PEG. Funding amount: $24,700.
Cunningham, B. J., Husein, M., Dworschak Stokan, A., Daub, O. (2020) Real world communication outcomes for children with velopharyngeal disorders. Western Strategic Support for Canadian Institutes of Health Research Success Program. Funding amount: $17,000.
DeMatteo C., Stazyk, K., Gjertsen, D., Di Rezze, B. (2020) Concussion 2020 – Let’s Play Safely – Prevention and Management. Ontario Brain Institute (OBI) Event Funding. Funding amount: $5,000.
Dong, S. Y., Gorter, J. W., McCauley, D., Cross, A. (2020) Youth Engagement in Research: Exploring Training Needs. Mitacs Research Training Award. Funding amount: $6,000.
Fayed, N., Cohen, E., Tranmer, J., Moretti, M., Avery, L., Orkin, J., Major, N., Sidra, M., Lee, E., Buchanan, F., Smith, N., Martens, R. (2020-2021) An Essential Subset of Good Outcome for Complex Care. Norman Saunders Complex Care Initiative National Grant Competition, The Hospital for Sick Children, Toronto, ON, Canada. Funding amount: $40,000.
Fayed, N., Davies, C., Cohen, E., Batorowicz, B., Lach, L., Zulkernine, F. (2020-2023) Unlocking Communication for Children with High Communication & Motor Impairments: Decoding Emotions. Queen’s University, Wicked Ideas Funding Program. Funding amount: $75,000.
Ferro, M., Gorter, J. W., Lipman, E.L., Reaume, S.V., Meyer, S., Yessis, J.L., (2020) COVID-19 Effects on Mental Health and Service Provision Effects on Children and Families: The MY LIFE Experience. Canadian Institutes of Health Research. Funding amount: $165,000.
Friere, G., Cohen, E., Friedman, J., Diong, C., Gandhi, S., Neuman, M., Freedman, S., Saunders, N. (2020-2021) Variation in Diagnostic Imaging Utilization in the Emergency Department: A Study of Ontario Hospitals. Creative Professional Activity Grant, Department of Pediatrics, The Hospital for Sick Children. Funding amount: $9,929.
Gill, P., Mahant, S., Bayliss, A., Parkin, P., Laupacis, A., Cohen, E., Tricco, A., Macarthur, C., Johnson, D., Sozer, A., McLaughlin, T., Forbes, K., Vomiero, G., Baerg, K., ‘t Jong, G., Taheri, S., Pound, C., Wahi, G., Sehgal, A., Zhou, K., Sakran, M., Li, P., Constantin, E., Drouin, O., Luu, M., Holland, J., Allwood Newhook, L., Cowan, K., Murray, S., Ren, L., Gavin, F., Buchanan, F., Breen-Reid, K., Van Clieaf, J., Langrish, K., Quinlan, M. (2020-2021) Patient-oriented research priorities for pediatric hospital care: a James Lind Alliance Priority Setting Partnership. Canadian Institutes of Health Research Catalyst Grant: Patient-Oriented Research. Funding amount: $100,000.
Gorter, J. W. (2020) Knowledge Translation webinar to showcase a unique set of strategies to tackle obstacles that the CHILD-BRIGHT READY or Not Brain-Based Disabilities (BBD) Trial is facing due to the COVID-19 pandemic. CHILD-BRIGHT.. Funding amount: $3,200.
Gorter, J. W., Cross, A., Thomson, D., Putterman, C., McCauley, D., Solomon, P. (2020-2023) Family Engagement in Research Training Program. Kids Brain Health Network. Funding amount: $513,454.
Gorter, J. W., McCauley, D., Lu, J., Jakubowski, J., Nguyen, L. (2020 – 2021). Supporting Transition in Health Care at McMaster: Improving the MyTransition App for Optimal Health/Well‐being on Campus. McMaster-Okanagan Special Project Funding. Funding amount: $8,000. .
Guttmann, A., Brownell, M. D., Cohen, E., Saunders, N. R., Hanlon-Dearman, A., Katz. A., Mahar, A., Moore Hepburn, C., Rayner, J., Stukel, T., Wanigaratne, S., Wilson, S. (2020-2021) Deferred Care Outcomes in Canadian Children and Youth: Measuring and Mitigating Risk during COVID-19. Canadian Institutes of Health Research, Operating Grant: COVID-19 Rapid Research – Clinical Management & Health System Interventions (447645). Funding amount: $258,686.
Ketelaar, M., Voorman, J., Gorter, J. W. (2020-2022) Toegankelijke kennis over ontwikkeling cerebrale parese: basis voor betere kwaliteit van zorg. Stichting Kwaliteitsgelden Medisch Specialisten (SKMS), The Netherlands. Funding amount: €119,516.
Khetani, M. A. (2020-2022) Implementation of Electronic Shared Decision-Making Support to Design and Monitor Participation-Focused Early Intervention. American Occupational Therapy Foundation. Funding amount: $100,000 USD.
Khetani, M. A., McManus, B. (2020-2024) Understanding Early Intervention Value: Effect of a Statewide Care Coordination Model on EI Resource Use and Outcomes. Agency for Healthcare Research and Quality (AHRQ) R0. Funding amount: $400,000 USD
Kwan, M., Cairney, J., King-Dowling, S. M., Price, D. J., Timmons, B. W., Veldhuizen, S. R., Wade, T. J. (2020-2023) CATCHing up: A continuation of the Coordination and Activity Tracking in CHildren cohort study. Canadian Institutes of Health Research, Project Grant. Funding amount: $726,749.
Kwok, E. (2020-2022) Partnering with speech-language pathologists to improve interventions for children with language disorders. Canadian Institute of Health Research, Postdoctoral Fellowship Award. Funding amount: $110,000.
Kwok, E., Rosenbaum, P., Cunningham, B. J. (2020-2021) Reflecting and redesigning learning programs for preschoolers with language delay during COVID-19 and beyond. Social Sciences and Humanities Research Council COVID PEG. Funding amount: $25,000.
Lane, J., Beaudoin, A. J., Bélanger, C., Brassard, R., Camden, C., Corriveau, P., Couture, M., Fleurant, J., Gariépy, C., Gendron, P., Lepage, J., Morin, A. Therriault, D., Thibodeau, G. (2020-2022) Centres de la petite enfance (CPE) adaptés pour les enfants en situation de négligence. Ministère de la Santé et des Services sociaux et Ministère de la Famille. Funding amount: $2,024,825.
Lee, S., Orkin, J., Cohen, E., Toulany, A., Korenblum, C., Abells, D. (2020-2021) Transition to Adult primary care for youth with medical complexity through the use of Telemedicine (TACT). Pediatric Consultants Partnership’s Grants for Creative Professional Activity, The Hospital for Sick Children. Funding amount: $9,918.
Levac, D. (2020-2020) Assessing the impact of changes in therapy service delivery during the COVID-19 shutdown on function, socialization and participation of children with disabilities. Northeastern University COVID-19 Crisis Seed Funding. Funding amount: $8,284 USD.
Levac, D. (2020-2020) Taking virtual reality ‘on the road’: A mobile VR system to explore motor learning in children with cerebral palsy. Cerebral Palsy Alliance Research Foundation, Small Research Equipment Grant. Funding amount: $3,194 USD.
Levac, D. (2020-2021) Immersive virtual reality as a training modality for the development of a growth mindset in economically-disadvantaged children and youth. Northeastern University Institute for Health Equity and Social Justice Advancing Health Equity Pilot Project Award. Funding amount: $4,310 USD.
Levac, D. (2020-2021) Immersive virtual reality for eye-hand coordination assessment in children with hemiplegia. American Academy of Developmental Medicine and Child Neurology/National Pediatric Rehabilitation Research Center (C-PROGRESS, NIH). Funding amount: $24,799 USD.
Levac, D. (2020-2021) Mentored Award: Novel methods to quantify the affective impact of virtual reality for motor skill learning. Northeastern University Mentored Tier 1. Funding amount: $49,713 USD.
Micsinszki, S. (2020-2021) CHILD-BRIGHT Project Title: Implementation and Evaluation of “Learning Together” Simulations to Support Researchers, Parents, Youth, and Trainees to Engage in Pediatric Rehabilitation Research. Graduate Student Fellowship in Patient-oriented Research Fellowship. Funding amount: $9,930.
Montreuil, M., Bogossian, A., Genest, C., Gilbert, E., Piché, G., Rassy, J., Boutin, M., Frati, F., Winkelmann, I., Camden, C. (2020) Supporting children’s mental health in the context of pandemic and confinement: A scoping review of interventions and ethical challenges. Canadian Institutes of Health Research, Operating Grant: COVID-19 Rapid Research Funding Opportunity in Mental Health and Substance. Funding amount: $50,000.
Noseworthy, M., Doyle, T., DeMatteo, C., Hall, G., Connolly, J., Gagnon, I., Hucal, M., Giglia, L., Hall, G., Koelink, E., Obeid, J., Reed, N., Timmons, B. (2020) Assessing and Predicting Recovery from Mild Traumatic Brain Injury. Juravinski Research Institute. Funding amount: $180,000.
Orkin, J., Diskin, C., Cohen, E., Sunderji, A., Faraoni, D., Fecteau, A., Fischer, J., Langrish, K., Parmar, A., Friedman, J. (2020-2021) The Hidden Danger: a Surveillance Study to Describe the Unintended Health Consequences of the COVID-19 Pandemic. Pediatric Consultants Partnership Creative Professional Activities Grants – COVID Call, Hospital for Sick Children. Funding amount: $9,670.
Perreault, K., Bath, B., Beauséjour, M., Desmeules, F., Feldman, D. E., Harding, K., Hébert, L. J., Hudon, A., Lamontagne, M. E., Miller, J., Pinard, A. M., Routhier, F., Roy, J. S. Ruiz, A. Camden, C. (2020-2021) Bringing together the ACCESS TO REHAB TEAM to improve access to rehabilitation services for persons experiencing musculoskeletal pain. Canadian Institutes of Health Research, Planning and dissemination grant. Funding amount: $14,984.
Ronen, G. (2020-2023) Thompson family fundraising for pediatric epilepsy research. Thompson Family Fundraiser. Funding amount: $35,000.
Saunders, N. R., Toulany, A., Cappelli, M., Chiu, M., Cohen, E., Gardner, W., Guttmann, A., Kurdyak, P., Moore Hepburn, C., Moran, K., Sundar, P., Vigod, S. (2020-2021). Equity of virtual mental health care uptake for children and youth during the COVID-19 pandemic. Canadian Institutes of Health Research, Operating Grant: COVID-19 Mental Health & Substance Use – Understanding Rapid System Transformations. Funding amount: $175,512.
Saunders, N., Cohen, E., Guttmann, A. (2020-2021) Pediatric Primary Care Access during the COVID-19 Pandemic. Pediatric Consultants Partnership Creative Professional Activities Grants – COVID Call, Hospital for Sick Children. Funding amount: $10,000.
Timmons, B., DeMatteo, C., Noseworthy, M., Sharma, B., Colterjohn, M., Koelink E. (2020-2023) The Concussion, Exercise, and Brain Networks (ConExNet) study. Canadian Institutes of Health Research, New Project Grant. Funding amount: $240,000.
Trottier, N., Wiart, L., Camden, C. (2020-2022) Parents’ information needs and perceived utility of online resources for preventing plagiocephaly, brachycephaly and positional preference among healthy newborns (Besoins Des familles et utilité perçue de ressources en ligne pour prévenir la plagio). Alberta Physiotherapy Association (APA), Clinical Research Innovation Fund. Funding amount: $15,000.
van Wijk, I., Gorter, J. W., Kalsbeek C., Verhoef M., (2020) ‘Like you’ Development of individualized, meaningful transition information for and by young people and their parents in rehabilitation care. Agis Innovation Fund. Funding amount: €76,158.
Verschuren O., Ketelaar, M., Voorman, J., Gorter, J.W., Gmelig Meyling, C., Jansen, M. (2020) Ontwikkeling van een Toolkit “op weg naar een gezonde generatie” voor jongeren met brain based developmental disabilities. Johanna KinderFonds (JKF). Funding amount: €9,478.
Verschuren, O., Ketelaar, M., Voorman, J., Pillen, S., Gorter, J.W., Hulst, R. (2020) Beter slapen voor kinderen met cerebrale parese: Additionele analyses. Johanna KinderFonds (JKF). Funding amount: €9,686.
Weiss, J. A., Lee, V., Putterman, C. B., Spoelstra, M. J., Ahmad, F., Gorter, J. W., Khanlou, N., Lai, J., & McMorris, C.A. (2020) The Impact of COVID-19 on the Mental Health and Well-being of Caregivers and Families Living with Autism. Canadian Institutes of Health Research. Funding amount: $34,068.
Weiss, J. Gorter, J. W., & Bishop, L. (2020-2022) Thriving with developmental disability: A photo-elicitation study. Social Sciences and Humanities Research Council. Funding amount: $91,000.
Yeates, K, (University of Calgary) in association with a nationwide group of collaborators (132), including Prof. DeMatteo, C. (2020-2025) The Canadian Concussion Network. Canadian Institutes of Health Research, Network Catalyst Grant. Funding amount: $1,500,000.

Awards

Khetani, M. Researcher of the Year, University of Illinois at Chicago, College of Applied Health Sciences (2020).
Kwok, E. Canada Governor General’s Gold Medal, The Governor General of Canada (2020).
Levac, D. Faculty Excellence in Community Engagement Award, Department of Physical Therapy, Movement and Rehabilitation Sciences (2020).
Vanderkaay, S. Faculty of Health Sciences Postdoctoral Association Travel Award, McMaster University (2020).

Grants Total

Total Canadian: $7,344,651

Total American: $590,299

Total Euro: $337,235

Total held at McMaster: $1,734,052

Presentations

Presentations (Keynotes)

Campbell, W. (2020, June). Innovative methodologies in KT research. International Knowledge Translation Conference, Montreal, Quebec, Canada. (Conference cancelled)
Cohen, E. (2020, April). Reflections on the Emergence of Pediatric Complex Care in Canada. All in: Creating Synergy in Pediatric Complex Care in Canada. Children’s Healthcare Canada, Calgary, AB, Canada.
Gorter, J. W. (2020, March). In my dream, I see a brighter world for all children with disabilities and their families. Australian Academy for Cerebral Palsy and Developmental Medicine (AusACPDM), Perth, Australia.
Gorter, J. W. (2020, March). Nieuwe inzichten om te komen tot betere uitkomsten voor kinderen met een beperking, (on the F-Words for children with developmental language disorder). TaalStaal Congress, Utrecht, The Netherlands.

Lectures/Presentations

Anaby, D. (2020, June). Improving participation through the PREP intervention: Current evidence. CHILD Research Meeting. Jönköping University, Jönköping, Sweden.
Anaby, D., Burrough, M. (2020, October). A participation ripple effect: Introduction to Pathways and Resources for Engagement and Participation (PREP). Royal College of Occupational Therapists Specialist Section for Children, Young People and Families (CYPF) webinar, UK.
Anaby, D., Teplicky R. (2020, January). Implementing PREP in India. Ummeed Child Development Center Workshop, India.
Backlin, G., Bellefeuille, S., Havens, J., Lalonde, C., Nguyen, L., & Tesolin, J. (alphabetical order). (2020, October). Learning from Youth and Young Adults: Engagement Strategies for Patient-Oriented Research Projects, Committees, and Councils [Webinar]. The CHILD-BRIGHT Network. Link: https://www.child-bright.ca/events/2020/9/9/youth-engagement-strategies
Brunton, L. (2020, September). Pain and Fatigue in Adults With CP: From State-of-Science to Treatment Options. American Academy of Cerebral Palsy and Developmental Medicine 74th Annual Conference (online).
Camden, C. (2020, April). What is the evidence for telerehabilitation with children with disabilities?. #LETSTALKNMD, Webinar Series, Muscular Dystrophy Canada (online).
Camden, C. (2020, May). Q&A: What are the evidence in pediatric rehabilitation – Questions and Answers. The eHealth Summit for Pediatric Therapists (online).
Camden, C. (2020, October). La téléréadaptation pour favoriser l’accès à l’intervention précoce pour les enfants ayant des retards de développements (et pour soutenir l’ensemble des familles). Symposium en physiothérapie pédiatrique du CHU Sainte-Justine (online).
Camden, C. (2020, October). Le rôle des professionnels non-enseignant au sein d’un cadre intégrateur de la Rai. Dépistage et intervention. Conférence consensus sur la réponse à l’intervention, Ministère de l’Éducation et de l’Enseignement supérieur (online).
Camden, C. (2020,April). Comment organiser les services pour les enfants de 0-5 ans avec ou à risque de présenter des retards de développement? 88e congrès de l’ACFAS (online).
Camden, C., Dixon, G., Silva, M. (May, 2020). Ongoing and future research ideas for telerehabilitation with children with disabilities. The eHealth Summit for Pediatric Therapists (online).
Camden, C., Kairy, D., Teitelbaum, D. (2020, May). What is the evidence for telerehabilitation with children with disabilities? Ethical considerations, evidence, and coaching families for success. The Pediatric Division of the Canadian Physiotherapy Association (online).
Campbell, W. (2020, November). FIRST KIT: A knowledge implementation toolkit to support school-based tiered services. Ontario Council for Exceptional Children Annual Conference. Toronto, Ontario, Canada. (Conference cancelled).
Campbell, W., VanderKaay, S., Dix, L., Rivard, L., Missiuna, C., Ng, S., Pollock, N., Sahagian Whalen, S., Eisen, I., Kyte, C., Phoenix, M., Bennett, S., Specht, J., Kennedy, J., & McCauley, D. (2020, June). When, why, and how tiered approaches to occupational therapy and speech and language services in schools support all students’ participation. CountMeIn!, Sheffield, UK. (Conference cancelled).
Campbell, W., VanderKaay, S., Dix, L., Rivard, L., Missiuna, C., Ng, S., Pollock, N., Sahagian Whalen, S., Eisen, I., Kyte, C., Phoenix, M., Bennett, S., Specht, J., Kennedy, J., & McCauley, D. (2020, March). A program of research to enhance understanding of tiered services. Empowered Kids Ontario Spring Symposium, Toronto, Ontario, Canada.(Conference cancelled).
Cleave, P., Desmarais, C., St. Pierr, M., Paul, M., Thoradottir, E., Trudeau, N., Gauvin, K., Berube, D., Molnar, M., Archibald, L., Oram Cardy, J., Cunningham, B. J., Campbell, W., Phoenix, M., Mayer-Crittenden, C., Minor-Corriveau, M., Charest, M., Chapman, T., & Colozzo, P. (2020, May). Cross Canada Curriculum on Developmental Language Disorder. 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Cohen, E. (2020, August). Impact on Return to School for Children and Youth with Medical and Developmental Complexity. Virtual Town Hall for SickKids patients and families. The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Cohn, R., Birkin, C., Goldthrop, K. (2020, August). Ask our SickKids Experts Webinar: Transitioning Children Back to School. The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Diskin, C. (2020, September). Prioritization of Clinical Research for Children with Medical Complexity and Neurologic Impairment: A Delphi Study of International Experts. Complex Care Special Interest Group (online).
Cohen, E., Diskin, C. (2020, September). Prioritization of Clinical Research for Children with Medical Complexity and Neurologic Impairment: A Delphi Study of International Experts. Pediatric Medicine Divisional Academic Rounds, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Foebel, A., Patel, H. (2020, November). A look at Children and Youth with Medical Complexity across Canada. Children’s Healthcare Canada Annual Meeting (online), Saskatoon, SK, Canada.
Cohen, E., Guttmann, A. (2020, December). The Edwin S.H. Leong Centre for Healthy Children. Senior Management Committee Meeting, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Guttmann, A. (2020, November). The Edwin S.H. Leong Centre for Healthy Children. Developmental Pediatrics Division Rounds, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
Cohen, E., Guttmann, A. (2020, November). The Edwin S.H. Leong Centre for Healthy Children. Senior Management Committee Meeting, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Kinross, L. (2020, September). Raising a child with chronic conditions or disability hurts parent health. Why do we ignore that? Bioethics Grand Rounds (online), The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Orkin, J., Ho, M., Diskin, C., Bismilla, Z., Allen, U. (2020, April). COVID-19 and the care of the child with chronic disease. Children’s Healthcare Canada, Project Echo, Toronto, ON, Canada.
Cohen, E., Otal, J. (2020, October). Public drug funding and decision-making in Ontario. Virtual Pediatric Medicine Divisional Academic Rounds, The Hospital for Sick Children, Toronto, ON, Canada.
Cohen, E., Science, M., Diskin, C. (2020, April). Infection Control for Children with Chronic Conditions in the COVID-era. Children’s Healthcare Canada, Project Echo, Toronto, ON, Canada.
Cross, A. (2020, February). Family Engagement in Research Certificate of Completion Program. CanChild Research Rounds, Hamilton, ON, Canada.
Cross, A. (2020, November). A national training program: How are researchers and families partnering together to build capacity in family engagement in research? McMaster University Department of Pediatrics Research Roundtable, Hamilton, ON, Canada.
Cross, A., Teplicky, R., Rosenbaum, P., Grahovac, D., & Hesketh, D. (2020, November). Using implementation science to embed the F-words for Child Development at an organizational level. BC Association for Child Development and Intervention Webinar (online).
Cross, A., Thomson, D., & Putterman, C. (2020, October). A national training program: How are researchers and families partnering together to build capacity in family engagement in research? Canadian ADHD Resource Alliance (CADDRA) Research Day.
Cunningham, B. J., Oram Cardy, J. (2020, May). Comprehensive assessment of preschoolers’ communicative participation using the ProPle of Preschool Communication (PPC). 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Cunningham, B. J., Oram Cardy, J. (2020, May). Engaging stakeholders to improve outcome measurement in preschool speech-language services. 2020 SAC Conference, Ottawa, Ontario, Canada. (Conference cancelled).
Di Rezze, B., Rosenbaum, P., Hidecker, M. J. C., Zwaigenbaum, L., Roncadin, C., Duku. E., Gentles, S. J., Georgiades, S., Viveiros, H., Fang, H. (2020, September). Testing the reliability of the Autism Classification System of Functioning: Social Communication-Integrated, for children and youth ages 2 to 21 years. American Academy for Cerebral Palsy and Developmental Medicine Conference, USA.
Gorter, J. W. (2020, January). CanChild Generating Knowledge, Transforming Lives! Elsass Foundation Visit, Copenhagen, Denmark.
Gorter, J. W. (2020, November). Cerebral Palsy: On Health, Development and Lifecourse. On the occasion of Dan Jacobson Thesis for Doctoral Degree Defense (online), Karolinska Institutet, Stockholm, Sweden.
Gorter, J. W. (2020, October). An app-based transition toolkit targeting youth with chronic health conditions: A feasibility study to improve healthcare transition and outcomes (ApplyIT study). 12th Annual Virtual Health Care Transition Research Consortium Research Symposium (online), Houston, US.
Gorter, J. W. (2020, September). Medicine and innovation gateways: collaborations at the interface to improve the lives of persons with disabilities while enriching each of the stakeholders. CanChild; Innovation for Participation, Mini-symposium (online), Brest, France.
Gorter, J. W., Rosenbaum, P., Cross, A., Grahovac, D., & Hanes, J. Moderated by: A. Picard (2020, February). The F-words: Finding the ability in disability. Ontario Brain Institute Public Talk.
Gorter, J.W., Thomson, D., Galuppi, B., Via-Dufresne Ley, A., Strohm, S., Mahlberg, N., Nguyen, L., Dawe-McCord, C. (2020, November). Conducting a Research Trial During a Pandemic: The New Normal? [Webinar]. Children’s Healthcare Canada Spark Live and the CHILD-BRIGHT Network. Link: https://www.child-bright.ca/events/2020/11/25/research-trial-during-pandemic
Hurtubise, K., Camden, C. (2020, May). Virtual rehabilitation services for children with gross motor considerations: What does the future add?. Conférence mensuelle de la communauté de pratique virtuelle albertaine sur le TDC (online).
Kennedy, J., Campbell, W. (2020, November). Universal design for learning: Roles for occupational therapists and physiotherapists. Toronto District School Board’s inaugural OT/PT School-Based Rehabilitation Conference. Toronto, Ontario, Canada. (Conference cancelled).
Kwok, E., Moodie, S., Cunningham, B. J., Oram Cardy, J. (2020, December). Selecting implementation strategies based on practice barriers, stakeholders’ preference and best-evidence. 13th Annual Conference on the Science of Dissemination and Implementation (online).
Ledoux, A. A., Barrowman, N. Bijelic, V., Davis A., Reid S., Sangha G., Yeates K.O., DeMatteo C., Reed N., Zemek, R. For the Pediatric Emergency Research Canada PedCARE Team . (2020, May). Pediatric Concussion Assessment of Rest and Exertion (PedCARE):A Multicentre Randomized Clinical Trial. Pediatric Academic Societies 2020 Conference. Philadelphia, USA.
Levac, D. E. (April, 2020). University of Southern California Virtual Technologies for Health SMART-VR Center Symposium. (Event cancelled).
Levac, D. E. (May, 2020) Action Lab, Department of Psychology, New York University. (Event cancelled).
Levac, D. E. (May, 2020). Center for Cerebral Palsy Research, Teacher’s College, Columbia University. (Event cancelled).
Levac, D. E., Lobo, M., Heathcock, J., Smith, B. A., Dusing, S. (2020, February). Strategies to elicit, sustain, and measure behavior change in pediatric rehabilitation research. APTA Combined Sections Meeting, Denver, CO, USA.
McPhee, P. (2020, November). Preparing to define your future: a postdoctoral fellow’s journey through the department of pediatrics. Department of Pediatrics Research Roundtable, McMaster University.
Micsinszki, S., Ballantyne, M., Cleverley, K., Green, P., & Stremler, R. (2020, November). Examining Factors Associated with Sleep Quality in Parents of Children 4-10 Years with Autism Spectrum Disorder. 15th Annual Bloorview Research Institute Symposium (online).
Micsinszki, S., Parker, K., Tanel, N., DangerOeld, B., Menna-Dack, D., Chu, A., Mistry, B., Phoenix, M. (2020, November). Learning Together: The Use of Simulation to Enhance and Enable Authentic and Meaningful Research Partnerships. 2020 Kids Brain Health Network Virtual Conference (online).
Nguyen, L, Pozniak, K., Chambers, K., Galuppi, B., Mahlberg, N., Via-Dufresne Ley, A., Doucet, S., Marelli, A., Kovacs, A., Amaria, K., Rozenblum, R., Gorter, J.W. on behalf of the READYorNot^TM Brain-Based Disabilities Project Team. (2020, May). Go Far, Go Together: A Journey of Collaboration with Youth and Families for the READYorNot^TM Brain-Based Disabilities Trial. 2020 CHILD-BRIGHT Virtual Symposium: Part 1 (online).
Nguyen, L. & Gorter, J.W. (2020 August). Growing together: The process of partnering with siblings to design the BEST SIBS Study. Canadian Student Health Research Forum (online).
Nguyen, L., Davis, H., Bellefeuille, S., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, November). Growing Together: The Process and Initial Outcomes of Partnering with Siblings in a Doctoral Patient-Oriented Research Study on Transition. 2020 Kids Brain Health Network Virtual Conference (online).
Nguyen, L., Davis, H., Bellefeuille, S., Ketelaar, M., Di Rezze, B., Jack, S., Gorter, J.W. in partnership with the Sibling Youth Advisory Council. (2020, May). Sibling Engagement in Research: An Illustrative Example of a Sibling-Researcher Partnership To Design a Study. 2020 CHILD-BRIGHT Virtual Symposium: Part 2 (online).
Nguyen, L., Davis, H., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, October).. Revealing the potential of sibling engagement in research. CP-Net Science and Family Day (online).
Nguyen, L., Davis, H., Ketelaar, M., Di Rezze, B., Jack, S., & Gorter, J.W. (2020, September). Revealing the potential of sibling engagement in research. 74^th Annual Meeting for the American Academy for Cerebral Palsy and Developmental Medicine, New Orleans, LA, USA (online).
Nguyen, L., Jack, S., Ketelaar, M., Di Rezze, B., Soper, A. K., & Gorter, J. W. (2020, October). Understanding the experiences of youth with autism spectrum disorder in peer mentorship programs during the transition to adulthood: a meta-ethnography. Canadian Autism Leadership Summit, Ottawa, Canada.
Nguyen, L., Ketelaar, M., Di Rezze, B., Jack, S., Gorter, J.W. in partnership with the Sibling Youth Advisory Council. (2020, June). Sibling Engagement in Research: An Illustrative Example of a Sibling-Researcher Partnership To Design a Study. Research Round Talks, Department of Pediatrics, McMaster University. Hamilton, Canada (online).
Noten, S., van der Slot, W. M. A., Thorpe, D. E., Heyn, P. C., Marciniak, C. M., McPhee, P. G., Lamberts, R. P., Langerak, N. G., Verschuren, O., Salokivi, T., Morrison, K., Papageorgiou, G., van der Berg-Emons, R. J. (2020, September). Determining blood pressure levels in adults with cerebral palsy: A systematic review and meta-analysis of individual participant data. 74th Annual Meeting for the American Academy for Cerebral Palsy and Developmental Medicine, New Orleans, LA, USA (online).
R. (2020, October). Gross Motor Function Measure. Brazilian Congress of Physiotherapy (online).
Phoenix, M. (2020, March). Knowledge Translation and grant preparation. Holland Bloorview Kids Rehabilitation Hospital. Bloorview Research Institute Trainee Workshop Panel. Toronto, Ontario, Canada.. (Event cancelled).
Pozniak, K. (2020, July). Afterlife of Parent Engagement. CanChild Research Rounds, McMaster University, Hamilton, Ontario, Canada..
Practile, T., Marshall, C., DeMatteo, C. (2020, May). Examining how time from sport-related concussion to initial assessment predicts return-to-play clearance. CASEM-AQMS Sport Medicine Conference, Banff, Alberta, Canada.
Ronen, G. M. (2020, October). Quality of life in adolescents with epilepsy, cerebral palsy, and population norms. Child Neurology Society (online).
Rosenbaum, P. (2020, August). Designing Child Development Services: Considerations for 21st Century Planning, and How WHO’s ICF Guides Us. Isfahan, Iran.
Rosenbaum, P. (2020, August). PARTICIPATION Rx: Start Early, and Involve the Family. It Lasts a LIFETIME!. Early Childhood Partner Forum, National Disability Insurance Scheme, Perth, Australia.
Rosenbaum, P. (2020, July). The ‘F-Words’ in Child Development are being used around the world: What are they, and why should I care? In Karachi and Lahore (online).
Sahagian Whalen, S., Campbell, W. (2020, November). Tiered services: How health professionals can support all students’ success. Toronto District School Board’s inaugural OT/PT School-Based Rehabilitation Conference. Toronto, Ontario. (Conference cancelled).

Revenue

CanChild revenue is driven by a number of different streams, including licensing of our products for clinical practice, research, and clinical trial contracts with pharmaceutical companies. CanChild also offers services to support and guide clinical practice and disability policy, including in-person and online training workshops, consultation services with provincial ministries and program evaluation through the Measurement and Analysis Service.

Sales from the CanChild Shop were strong throughout the year, despite the uncertainty of the pandemic. In addition, CanChild continued to grow its notoriety throughout the world, which is exemplified by the growth in interest in consultation and clinical trial contracts. In the 2020 Year, CanChild grossed approximately $450,000 in revenue. Projections for next year are positive, as we expect this growth trend to continue.

Publications

Abdel Malek, S., Rosenbaum, P., & Gorter, J. W. (2020). Perspectives on cerebral palsy in Africa: Exploring the literature through the lens of the International Classification of Functioning, Disability and Health. Child: care, health and development, 46(2), 175–186.
Albrecht, E. C., Kaelin, V. C., Rigau, B. L., Dooling-Litfin, J. K., Scully, E. A., Murphy, N. J., McManus, B. M., Khetani, M. A., & High Value Early Intervention Research Group (2020). Pilot implementation of an electronic patient-reported outcome measure for planning and monitoring participation-focused care in early intervention. BMC medical informatics and decision making, 20(1), 199.
Alghamdi, M. S., Chiarello, L. A., Palisano, R. J., McCoy, S. W., Orlin, M., & Abd-Elkafy, E. M. (2020). Longitudinal Changes in Physical Caregiving for Parents of Children with Cerebral Palsy. Physical & occupational therapy in pediatrics, 40(1), 93–105.
Anaby, D., Ianni, L., Heguy, L., Camden, C. (2020). Actual and ideal roles of school staff to support students with special needs: current needs and strategies for improvement. Support for Learning. 35(3): 326-345.
Anaby, D., Vrotsou, K., Kroksmark, U., Ellegard, K. (2020). Changes in participation of youth with physical disabilities following the PREP intervention: A time-geographic approach. Scandinavian Journal of Occupational Therapy, 27 (5), 364-372.
Bessette, J., Gendron, M., Lapointe, AM., Camden, C. (2020). Physiotherapy in Haiti: a qualitative study exploring local clinicians’ perspectives. Physiotherapy Research International. Advance online publication.
Boldyreva, U., Streiner, D. L., Rosenbaum, P. L., & Ronen, G. M. (2020). Quality of life in adolescents with epilepsy, cerebral palsy, and population norms. Developmental medicine and child neurology, 62(5), 609–614.
Brunton, L., & Scholtes, C. (2020). Commentary on “Longitudinal Change in Common Impairments in Children With Cerebral Palsy From Age 1.5 to 11 Years”. Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association, 32(1), 51.
Buchanan, F., Cohen, E., Milo-Manson, G., & Shachak, A. (2020). What makes difficult decisions so difficult?: An activity theory analysis of decision making for physicians treating children with medical complexity. Patient education and counseling, 103(11), 2260–2268.
Caldwell, H., Di Cristofaro, N. A., Cairney, J., Bray, S. R., MacDonald, M. J., & Timmons, B. W. (2020). Physical Literacy, Physical Activity, and Health Indicators in School-Age Children. International journal of environmental research and public health, 17(15), 5367.
Caldwell, H., Di Cristofaro, N. A., Cairney, J., Bray, S. R., & Timmons, B. W. (2020). Measurement properties of the Physical Literacy Assessment for Youth (PLAY) Tools. Applied physiology, nutrition, and metabolism = Physiologie appliquee, nutrition et metabolisme, 10.1139/apnm-2020-0648. Advance online publication.
Caldwell, H., Wilson, A., Mitchell, D., & Timmons, B. W. (2020). Development of the Physical Literacy Environmental Assessment (PLEA) tool. PloS one, 15(3), e0230447.
Calmon Almeida, V., da Silva Junior, W. M., de Camargo, O. K., de Santana Filho, V. J., Oliveira, G. U., Santana, M. S., & de Farias Neto, J. P. (2020). Do the commonly used standard questionnaires measure what is of concern to patients with low back pain?. Clinical rehabilitation, 34(10), 1313–1324.
Camden, C., Dostie, R., Heguy, L., Gauvin, C., Hudon, C., Rivard, L., Gaboury, I. (2020). Understanding parental concerns related to their child’s development and factors influencing their decisions to seek help from health care professionals: Results of a qualitative study. Child: Care, Health and Development. 46(1): 9-18.
Camden, C., Héguy, L., Casoli, M., Roy, M., Rivard, L., Berbari, J., Ppop Research Team, Couture, M. (2020). Preschoolers’ Developmental Profiles and School-Readiness in a Low-Income Canadian City: A Cross-Sectional Survey. International Journal of Environmental Research and Public Health. 17(7): 2529.
Chagas, P., Drumond, C. M., Toledo, A. M., de Campos, A. C., Camargos, A., Longo, E., Leite, H. R., Ayupe, K., Moreira, R. S., Morais, R., Palisano, R. J., Rosenbaum, P., & PartiCipa Brazil Research Group (2020). Study protocol: functioning curves and trajectories for children and adolescents with cerebral palsy in Brazil – PartiCipa Brazil. BMC pediatrics, 20(1), 393.
Chan-Viquez, D., Hasanbarani, F., Zhang, L., Anaby, D., Turpin, N. A., Lamontagne, A., Feldman, A. G., & Levin, M. F. (2020). Development of vertical and forward jumping skills in typically developing children in the context of referent control of motor actions. Developmental psychobiology, 62(6), 711–722.
Clark, H., Nair, K., Veldhuizen, S., Campbell, W., Rivard, L., Rodriguez, M. C., & Cairney, J. (2020). Validity of the Early Years Check-In (EYCI) in a Cross-Sectional Sample of Families. Frontiers in pediatrics, 8, 157.
Cohen, E., & Coller, R. J. (2020). Evaluating Integrated Care for Children: A Clarion Call or a Call for Clarity?. Pediatrics, 145(1), e20193282.
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Corriveau, G., Couturier, Y., Camden, C. (2020). Developing Competencies of Nurses in Wound Care: Results From a Study Evaluating the Impact of a New Service Delivery Model Including Teleassistance. The Journal of Continuing Education in Nursing. 51(12), 547–555.
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Cunningham, B. J., Oram Cardy J. (2020). Using implementation science to engage stakeholders and improve outcome measurement in a preschool speech-language service system. Speech Language and Hearing, 23(1), 17–24.
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DeMatteo, C., Randall, S., Falla, K., Lin, C. Y., Giglia, L., Mazurek, M. F., & Koelink, E. (2020). Concussion Management for Children Has Changed: New Pediatric Protocols Using the Latest Evidence. Clinical pediatrics, 59(1), 5–20.
De Souza, B., Richardson, S. E., Cohen, E., Mahant, S., Avitzur, Y., Carsley, S., & Rapoport, A. (2020). Gastric Flora in Gastrostomy Fed Children with Neurological Impairment on Antacid Medication. Children, 7(10), 154.
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Falla K, Randall S, DeMatteo C. (2020). Brain Smart – Let’s Play Safely: Evaluation of a Concussion Education Program in Hamilton Wentworth Catholic District School Board. Journal of Concussion. Advance online publication.
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Khalifa, G., Rosenbaum, P., Georgiades, K., Duku, E., & Di Rezze, B. (2020). Exploring the Participation Patterns and Impact of Environment in Preschool Children with ASD. International journal of environmental research and public health, 17(16), 5677.
Khetani, M. A., McManus, B. M., Albrecht, E. C., Kaelin, V. C., Dooling-Litfin, J. K., Scully, E. A., & High Value Early Intervention Research Group (2020). Early intervention service intensity and young children’s home participation. BMC pediatrics, 20(1), 330.
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King, G., McPherson, A. C., Kingsnorth, S., Gorter, J. W., Avery, L., Rudzik, A., & Ontario Independence Program Research (OIPR) Team (2020). Opportunities, experiences, and outcomes of residential immersive life skills programs for youth with disabilities. Disability and rehabilitation, 1–11. Advance online publication.
Kwok, E., Moodie, S., Cunningham, B. J., & Oram Cardy, J. E. (2020). Selecting and tailoring implementation interventions: a concept mapping approach. BMC health services research, 20(1), 385.
Lackner, C. L., Gorter, J. W., Segalowitz, S. J., & MyStory Study Group (2020). Cognitive Event-Related Potentials in Young Adults With Cerebral Palsy: A Proof-of-Concept Study. Clinical EEG and neuroscience, 1550059420977318. Advance online publication.
Lalloo, C., Diskin, C., Ho, M., Orkin, J., Cohen, E., Osei-Twum, J. A., Hundert, A., Jiwan, A., Sivarajah, S., Gumapac, A., & Stinson, J. N. (2020). Pediatric Project ECHO: Implementation of a Virtual Medical Education Program to Support Community Management of Children With Medical Complexity. Hospital pediatrics, 10(12), 1044–1052.
Leonardi, M., Lee, H., van der Veen, S., Maribo, T., Cuenot, M., Simon, L., Paltamaa, J., Maart, S., Tucker, C., Besstrashnova, Y., Shosmin, A., Cid, D., Almborg, A. H., Anttila, H., Yamada, S., Frattura, L., Zavaroni, C., Zhuoying, Q., Martinuzzi, A., Martinuzzi, M., … de Camargo, O. K. (2020). Avoiding the Banality of Evil in Times of COVID-19: Thinking Differently with a Biopsychosocial Perspective for Future Health and Social Policies Development. SN comprehensive clinical medicine, 1–3. Advance online publication.
Livingston, M. H., Elliott, T., Williams, C., Jones, S. A., Rosenbaum, P. L., & Walton, J. M. (2020). Glycerin suppositories used prophylactically in premature infants (supp): A pilot randomized controlled trial. Journal of neonatal-perinatal medicine, 13(4), 495–505.
Livingston, M. H., Mahant, S., Connolly, B., MacLusky, I., Laberge, S., Giglia, L., Yang, C., Roberts, A., Shawyer, A., Brindle, M., Parsons, S., Stoian, C., Walton, J. M., Thorpe, K. E., Chen, Y., Zuo, F., Mamdani, M., Chan, C., Loong, D., Isaranuwatchai, W., … Cohen, E. (2020). Effectiveness of Intrapleural Tissue Plasminogen Activator and Dornase Alfa vs Tissue Plasminogen Activator Alone in Children with Pleural Empyema: A Randomized Clinical Trial. JAMA pediatrics, 174(4), 332–340.
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Marin, J. R., Rodean, J., Hall, M., Alpern, E. R., Aronson, P. L., Chaudhari, P. P., Cohen, E., Freedman, S. B., Morse, R. B., Peltz, A., Samuels-Kalow, M., Shah, S. S., Simon, H. K., & Neuman, M. I. (2020). Trends in Use of Advanced Imaging in Pediatric Emergency Departments, 2009-2018. JAMA pediatrics, 174(9), e202209.
McCoy, S. W., Palisano, R., Avery, L., Jeffries, L., Fiss, A. L., Chiarello, L., & Hanna, S. (2020). Physical, occupational, and speech therapy for children with cerebral palsy. Developmental medicine and child neurology, 62(1), 140–146.
McManus, B. M., Murphy, N. J., Richardson, Z., Khetani, M. A., Schenkman, M., & Morrato, E. H. (2020). Family-centred care in early intervention: Examining caregiver perceptions of family-centred care and early intervention service use intensity. Child: care, health and development, 46(1), 1–8.
McPhee, P. G., Singh, S., & Morrison, K. M. (2020). Childhood Obesity and Cardiovascular Disease Risk: Working Toward Solutions. The Canadian journal of cardiology, 36(9), 1352–1361.
McPhee, P. G., Verschuren, O., Peterson, M. D., Tang, A., Gorter, J. W. (2020). The Formula for Health and Well-Being in Individuals With Cerebral Palsy: Cross-Sectional Data on Physical Activity, Sleep, and Nutrition. Annals of rehabilitation medicine, 44(4), 301–310.
Metzler, M. J., Haspels, E., Brunton, L., Andersen, J., Pritchard, L., Herrero, M., Hodge, J., & Kirton, A. (2020). Goals of children with unilateral cerebral palsy in a brain stimulation arm rehabilitation trial. Developmental medicine and child neurology, 10.1111/dmcn.14763. Advance online publication.
Mezil, Y., Obeid, J., Raha, S., Hawke, T. J., & Timmons, B. W. (2020). The Systemic Effects of Exercise on Regulators of Muscle and Bone in Girls and Women. Pediatric exercise science, 1–7. Advance online publication.
Moll, S., Wyndham-West, M., Mulvale, G., Park, S., Buettgen, A., Phoenix, M., Fleisig, R., Bruce, E. (2020). Are you really doing ‘codesign’? Critical reflections when working with vulnerable populations. BMJ open, 10(11), e038339.
Mondal, T. K., Muddaluru, V., Jaafar, A., Gupta-Bhatnagar, S., Greville, L. J., Gorter, J. W. (2020). Transition of adolescents with congenital heart disease from pediatric to adult congenital cardiac care: lessons from a retrospective cohort study, Journal of Transition Medicine, (1), 20190003.
Montpetit-Tourangeau, K., Kairy, D., Ahmed, S., Anaby, D., Bussières, A., Lamontagne, M. È., Rochette, A., Shikako-Thomas, K., & Thomas, A. (2020). A strategic initiative to facilitate knowledge translation research in rehabilitation. BMC health services research, 20(1), 973.
Mukerji, A., Shafey, A., Jain, A., Cohen, E., Shah, P. S., Sander, B., & Shah, V. (2020). Pulse oximetry screening for critical congenital heart defects in Ontario, Canada: a cost-effectiveness analysis. Canadian journal of public health = Revue canadienne de sante publique, 111(5), 804–811.
Nguyen, L., Jack, S., Ketelaar, M., Di Rezze, B., Soper, A. K., Gorter, J. W. (2020). Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood: A qualitative meta-ethnography. Child: care, health and development, 46(6), 667–681.
Orkin, J., Beaune, L., Moore, C., Weiser, N., Arje, D., Rapoport, A., Netten, K., Adams, S., Cohen, E., & Amin, R. (2020). Toward an Understanding of Advance Care Planning in Children With Medical Complexity. Pediatrics, 145(3), e20192241.
Palisano, R. J., Chiarello, L. A., Avery, L., Hanna, S., & On Track Study Team (2020). Self-Care Trajectories and Reference Percentiles for Children with Cerebral Palsy. Physical & occupational therapy in pediatrics, 40(1), 62–78.
Palisano, R. J., Winders, P. C. (2020). Commentary on “Basic Motor Skills of Children with Down Syndrome: Creating a Motor Growth Curve”. Pediatric Physical Therapy, 32, 381.
Paz Pérez-Salas, C., Ortega, A., Parra, V., Rosenbaum, P. (2020). School placement and participation of Chilean young people with cerebral palsy. International Journal of Inclusive Education.
Pentland, M., Cohen, E., Guttmann, A., de Oliveira, C. (2020). Maximizing the impact of the Canada Child Benefit: Implications for clinicians and researchers, Paediatrics & Child Health, pxaa092.
Phoenix, M., Chiarello, L., Pinto, M., & King, G. (2020). Recruitment in Pediatric Rehabilitation Research: Challenges, Strategies, Impact on Evidence-Informed Care, and a Call to Action. Physical & occupational therapy in pediatrics, 40(4), 365–370.
Poder, T., Carrier, N., Roy, M., Camden, C. (2020). A Discrete Choice Experiment on Women’s Preferences for Water Immersion During Labor and Birth: Identification, Refinement and Selection of Attributes and Levels. Health Related Quality of Life in Health Care. 17(6): 1936.
Pratte, G., Couture, M., Boisvert, M.-È., Clapperton, I., Bergeron, J., Roy, M. A., Dion, É., Camden, C. (2020). Participation in Activities Fostering Children’s Development and Parental Concerns about Children’s Development: Results from a Population-Health Survey of Children Aged 0-5 Years in Quebec, Canada. International Journal of Environmental Research and Public Health. 17(8): 2878.
Pratte, G., Couture, M., Morin, M., Berbari, J., Tousignant, M., Camden C. (2020). Evaluation of a Web Platform Aiming to Support Parents Having a Child with Developmental Coordination Disorder: Brief Report. Developmental neurorehabilitation. 23(1): 64-67.
Resch, C., Van Kruijsbergen, M., Ketelaar, M., Hurks, P., Adair, B., Imms, C., De Kloet, A., Piskur, B., & Van Heugten, C. (2020). Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Developmental medicine and child neurology, 62(4), 434–444.
Ronen, G. M., de Camargo, O. K., Rosenbaum, P. L. (2020). How Can We Create Osler’s “Great Physician”? Fundamentals for Physicians’ Competency in the Twenty-first Century. Med.Sci.Educ., 30, 1279–1284.
Rosenbaum P. (2020). Challenges of Guidelines: A Look at the Systematic Review of Clinical Guidelines Related to the Care of Individuals With Cerebral Palsy. Archives of physical medicine and rehabilitation, S0003-9993(20)31338-1. Advance online publication.
Rosenbaum P. (2020). How do we know if interventions in developmental disability are effective?. Developmental medicine and child neurology, 62(12), 1344.
Rosenbaum P. (2020). ‘You have textbooks; we have story books’. Disability as perceived by professionals and parents. Developmental medicine and child neurology, 62(6), 660.
Rosenbaum, P. L., Silva, M., & Camden, C. (2020). Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability. Disability and rehabilitation, 1–7. Advance online publication.
Rotberg, B., Wittenberg, J., Orkin, J., Saunders, N. R., & Cohen, E. (2020). Caring about caregivers: the role of paediatricians in supporting the mental health of parents of children with high caregiving needs. Archives of disease in childhood, 105(11), 1028–1030.
Roy, M., Lavoie-Trudeau, É., Roy, M. A., Clapperton, I., Couturier, Y., Lane, J., Bibeau, L., Ouellette, M., Benkhalti, M., Camden, C. (2020). Barriers and Facilitators to Implementing Community Outreach Work, and Inter-professional Collaboration with Regional Partners. Journal of Community Health. 45(5): 979-986.
Ruiter, K. I., Boshra, R., DeMatteo, C., Noseworthy, M., & Connolly, J. F. (2020). Neurophysiological markers of cognitive deficits and recovery in concussed adolescents. Brain research, 1746, 146998.
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Scheffer, I. E., Boysen, K. E., Schneider, A. L., Myers, C. T., Mehaffey, M. G., Rochtus, A. M., Yuen, Y. P., Ronen, G. M., Chak, W. K., Gill, D., Poduri, A., & Mefford, H. C. (2020). BRAT1 encephalopathy: a recessive cause of epilepsy of infancy with migrating focal seizures. Developmental medicine and child neurology, 62(9), 1096–1099.
Scholten, E., Ketelaar, M., Visser-Meily, J., Roels, E. H., Kouwenhoven, M., POWER Group, & Post, M. (2020). Prediction of Psychological Distress Among Persons With Spinal Cord Injury or Acquired Brain Injury and Their Significant Others. Archives of physical medicine and rehabilitation, 101(12), 2093–2102.
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Selvakumaran, S., Thompson-Hodgetts, S., Nicholas, D. B., Fan, L., Fang, H., Di Rezze, B. (2020). An umbrella review of the impact of the environment on the productive lives of individuals with autism and other neurodevelopmental disabilities. Current Developmental Disorders Reports, 7, 197-226.
Shahin, S., Reitzel, M., Di Rezze, B., Ahmed, S., & Anaby, D. (2020). Environmental Factors that Impact the Workplace Participation of Transition-Aged Young Adults with Brain-Based Disabilities: A Scoping Review. International journal of environmental research and public health, 17(7), 2378.
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Soper, A. K., Cross, A., Rosenbaum, P., Gorter, J. W. (2020). Knowledge translation strategies to support service providers’ implementation of the “F-words in Childhood Disability”. Disability and rehabilitation, 1–7.
Soper, A. K., Cross, A., Rosenbaum, P., Gorter, J. W. (2020). Service Providers’ Perspectives on Using the ‘F-Words in Childhood Disability’: An International Survey. Physical & occupational therapy in pediatrics, 40(5), 534–545.
Tajik-Parvinchi, D. J., Farmus, L., Cribbie, R., Albaum, C., Weiss, J. A. (2020). Clinical and Parental Predictors of Emotion Regulation Following Cognitive Behaviour Therapy in Children with Autism. Autism: The International Journal of Research and Practice, 24(4): 851-866.
Tajik-Parvinchi, D., Davis, A., Roth, S., Rosenbaum, P., Hopmans, S. N., Dudin, A., Hall, G., Gorter, J. W., & MyStory Study Group (2020). Functional connectivity and quality of life in young adults with cerebral palsy: a feasibility study. BMC neurology, 20(1), 388.
van der Slot, W., Benner, J. L., Brunton, L., Engel, J. M., Gallien, P., Hilberink, S. R., Månum, G., Morgan, P., Opheim, A., Riquelme, I., Rodby-Bousquet, E., Şimşek, T. T., Thorpe, D. E., van den Berg-Emons, R., Vogtle, L. K., Papageorgiou, G., & Roebroeck, M. E. (2020). Pain in adults with cerebral palsy: A systematic review and meta-analysis of individual participant data. Annals of physical and rehabilitation medicine, 101359. Advance online publication.
van Schelven, F., van der Meulen, E., Kroeze, N., Ketelaar, M., & Boeije, H. (2020). Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program. Research involvement and engagement, 6, 59.
VanderKaay, S., Letts, L., Jung, B., & Moll, S.E. (2020). Doing what’s right: A grounded theory of ethical decision-making in occupational therapy. Scandinavian Journal of Occupational Therapy, 27(2), 98–111.
Villegas, V., Bosak, D., Kaelin, V., Jarvis, J., Anaby, D., Teplicky, R., Khetani, M.A. (2020). Leveraging technology for family-centered and participation-focused care planning: A feasibility and pilot study of the Participation and Environment Measure-Plus (PEM+). American Journal of Occupational Therapy, 74(4), 7411515338.

Books/Book Chapters

Anaby, D. (2020). Providing opportunities for participation – a focus on the environment. In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Anaby, D. (2020). Cultural perspectives on participation; A newcomer to Canada. In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Ketelaar, M., Smits, D. W., Van Meeteren, K., Klem, M., Alsem, M. W. (2020). Involvement of young people and families in all stages of research: What, why and how? In: Imms, C. & Green, D. (Eds), Participation: Optimising Outcomes in Childhood-Onset Neurodisability. MacKeith Press, London.
Tajik-Parvinchi, D. (2020). Cognitive Behavior Therapy. In: Maich, K., Penny, S. C., Alves K., & Hall, H. (Ed.). Autism Spectrum Disorder in the Canadian Context; An Introduction. Canadian Scholars, Toronto, Ontario, Canada..

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